Re: AOBTA Article: Attn Cindy C., , Cindy H, TJ, Mark (LONG)

[Guest guest]

Mike,

WOW!!!! This is amazing, Firstly the fact that this information is

going to get out to those who could help us and at least bring EDS

out of the closet and who knows where that will lead, we may have

therapists recommending that patients of these seek genetic or rheumy

confirmation of EDS, if they think it is possible (we may find out

what most of us already seem to know or think.... That EDS is NOT as

RARE as it is made out....)

Secondly, the results that people have been getting from this is

amazing, my Osteo seems to do some of this energy work and it seems

to help me (I jus thave to learn to do it myself now).

ANy ideas for a chronically and severely dislcaoting shoulder and

collarbone/rib (my shoulder is dislocating subclavicularly and is

getting " stuck " under my collarbone and pushing it and my ac etc out

as well making my shoulder, forarm, neck and collarone etc areas

EXTREMELY painful so that my med's MsContin and liquid Codiene aren't

helping with the pain and I am left shaking, neauseous (sp?) and with

my body setting off into fasciculations and myoclonus (NOT FUN with

the shoulder etc out).

HELP !!!!

Sharon

> As you all know, I have been working with the Editor of " Pulse " for

> an article for their May issue on EDS and alternative therapies. I

> just got the draft from her tonight. The approach she decided to

> take was to essentially use the string of emails I exchanged with

> her over the last 4-5 months. At different times, I forwarded

> copies of posts to her as background information. She would like to

> use some of them in the article.

>

> I am going to copy my reply to her tonight directly below this

> section. Beneath it will be the draft of what she is looking at

> printing. If any of those listed in the subject line have a

problem

> with any of it that pertains to them, please let me know right away

> so I can get back to Deborah with revisions.

>

> On a separate, special note to TJ, I took the liberty of forwarding

> your long " letter to the attorney " to Deborah because I felt very

> strongly that your letter laid things out in ways that I never

could

> and that it really got the message across as to what this damn

> disease is all about. Deborah obviously feels the same because she

> would like to use excerpts from it. Please let me know if you are

> comfortable with having this as part of the article. I think what

> you said and how you said it is very important and a message that

> needs to " get out there. " And whether you used it with your

> attorney or not, I think using it here will make it well worth the

> time and pain of having written it.

>

> ----------------------

>

> My Reply tonight:

>

> Works for me. I do have one other testamonial that I had not

> forwarded to you yet. I am going to copy it directly below. I am

> also going to forward what you sent me to the List, just to make

> sure that the others involved with the emails are comfortable with

> this the way it is.

>

> The Polarity X technique is practically the same thing that

Upledger

> calls a V spread or Quantum Touch calls Directed Energy. It is

pure

> simplicity. You basically palpate around a joint, looking for

> tender spots. When you find them, you start with the most tender

> point and put the tips of one or two fingers of one hand on that

> spot and then place the tips of one or two fingers of the other

hand

> on the other side of the joint. You might go straight across, you

> might go diagonally. You basically let your hands guide you. Then

> you simply hold for a therapeutic pulse and wait for the energy to

> balance between your two hands. When it does, you repeat with the

> next tender point(s). I also use my own variation at times by

> grasping with one hand above and the other below a joint, like the

> knee or elbow. In essence, I have four points of contact - both

> thumbs and a couple of fingers of each hand. This variation seems

> to be particularly effective because the two most dramatic results

I

> have had have been with this hand hold and both involved knees. In

> both cases, tendons or ligaments suddenly let loose and the

patellas

> realigned themselves by themselves. You could actually see the

> patellas moving side to side and resettling on their own without

> actually being touched.

>

>

> From: cindy clark

> To: Mike Uggen

> Sent: Thursday, March 25, 2004 4:45 PM

> Subject: Testamonial

>

>

> My 16 year old son Dylan, has Ehlers Danlos type 3. After almost

> 12 months of unexplainable left knee pain when baring weight, I

came

> in contact with Mike Uggen via e-mail. Dylan's pain when baring

> weight had been at the 7 to 8 out of 10 pain scale. Mike came to

our

> home in January 2004 and taught me for four days how to do Polarity

> and Acupressure to help my son. Within a three week time period,

> Dylan's left knee pain was zero. During that same time, his

narcotic

> medications were being reduced. A once a week, half hour treatment

> has kept the pain at zero.

> Dylan's right knee also has chronic unexplained pain. A constant

> 8 pain level 24/7. The polarity/acupressure has not helped. The

type

> of pain between the two knees was very different. I find when my

> hands work on his right knee, they want to go somewhere else. I

just

> haven't figured out where they need to go.

> Giving my son one good leg to walk on has made a very big

> improvement for his mobility. Before January, he could not walk

more

> than 30 steps. Now he can walk a little further and with less

> limping and with less falling. Previous to learning these

> modalities, Dylan was falling every week. He has only fallen once

> since Mike has taught me Polarity and Acupressure.

> Since learning these things, I have helped friends and family

> with headaches, acid indigestion, constipation, and many other

> things. I have also been able to teach them to help themselves.

>

> -----------------

> Cover Email from Deborah tonight:

>

> Re: Accident

>

> As of today, and I are both essentially back to normal. For

> the record, what we did was: First, took a muscle relaxer almost

> immediately, which helped prevent some of the tension from setting

> in the first place. Second, we set about dealing with the various

> pressure points outlined both by Mike and two of the books on the

> subject. (I haven't even gotten to go through Mike's full procedure

> yet; I plan to learn that tomorrow.)

> It's worked, as far as I'm concerned. I've still got some

> residual imbalances...but that might also be the cold air coming

> this weekend...I could, actually, feel muscles relaxing at various

> points today. Quite nice, to simply press and feel that gentle

> melting...I did discover I have to be very careful on my shoulders,

> it takes so little pressure to push my arm out.

> This is so worth learning....

> Mike Uggen is a licensed Massage Therapist in Seattle, Washington,

> who has also studied Jin Shin Do®, Shiatsu and Polarity. With his

> daughter Barbara , who also has EDS, he provides information

on

> alternative healing methods to other EDS sufferers through their on-

> line site. He also writes a column in the online quarterly, Eds

> Today (see web address below).

>

> EDS Information

> What Is Ehlers-Danlos Syndrome

> www.ceda.ca/whateds.htm

>

> Types of Ehlers-Danlos Syndrome

> www.ceda.ca/typeseds.htm

>

> The Facts about Ehlers-Danlos Syndrome

> www.ceda.ca/edsfaq.htm

>

> Eds Today Quarterly

> www.edstoday.org/links.htm