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RE: NIH Update

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ngsamuelson [ngsamuelson@...]

Ya just want to shoot the

guy, my husband. It's like everything I tell him goes in one ear and

out the other ear.

Hi ,

Boy, do I know what you mean by THAT! Men are usually bad at listening, I

mean HEARING and ABSORBING what we're saying! Mine is horrible also. He

also has ADD, so that doesn't help things at all. I swear he hears things

completely backwards at times! It's VERY frustrating! I sympathize with

you.

As far as your Ortho goes, it sounds like to me, you need a new one -

someone who will listen to you and trust that you know your own body! Any

chance of that?

I'm sorry for your kitties! Our pets are just like children, especially if

they are your only children. Knowing they're cats/dogs/birds etc. does not

change the love we have for them, does it? I hope she gets better soon, and

I hope and pray YOU do too!

Hang in there - glad you wrote in to vent. It helps sometimes.

Love Lana

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Re: NIH Update

Hi all,

Anyone read my post? Any responses?

Sincerely, S.

I can't stay up late like the rest of you all, too tired!

Sincerely, S.

~~~~~~~~~~~~~~~~~~~~`

Sorry nancy -

They actually grow the skin cells from the punch biopsy they took from your

arm. You've heard of growing skin cells for skin grafts? I think it's a similar

thing. They have to have enough skin cells grown to do the microscopic exam on

them. There are different collagens in the body and they look for those types

of collagen on the genes...where the collagen " code " is kept. I know from our

biopsies, they were looking for VEDS type of collagen. I don't know if the

researchers look at the other types or not.

Hope this helps

Bonnie

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Re: NIH Update

Hi all,

Anyone read my post? Any responses?

Sincerely, S.

I can't stay up late like the rest of you all, too tired!

Sincerely, S.

~~~~~~~~~~~~~~~~~~~~`

Sorry nancy -

They actually grow the skin cells from the punch biopsy they took from your

arm. You've heard of growing skin cells for skin grafts? I think it's a similar

thing. They have to have enough skin cells grown to do the microscopic exam on

them. There are different collagens in the body and they look for those types

of collagen on the genes...where the collagen " code " is kept. I know from our

biopsies, they were looking for VEDS type of collagen. I don't know if the

researchers look at the other types or not.

Hope this helps

Bonnie

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