IgA-Carla (Hi, everyone!)

[Guest guest]

Hi, all!

I just wanted tp let everyone know that I just got off the phone

with the National Kidney Foundation. The People Like Us is now

closed. They have the amount people they need. But it was said that

you can still do the online form and they will keep it on file and

up date us when things like these kind of events happens.

Unfortunately, they have been having a lot of computer problems and

that is why that some people couldn't do their application online.

But she said it has been fixed. She said sorry that it was

inconvience to some people that couldn't get in. The lady who I

spoke to was Sheila Weiner. She is the Patient Information and she

will also be at the event.

As far as me, today I am in pain. My kidneys are spasming out.

They hurt. I am so glad I just get them every so often. But they are

painful. So, I am staying home and on medication to see if the pain

goes down. If not, I will call my Nephrologist to see if I can get

some pain relief.

Pierre, or anybody when you first started out with this, did you

have a lot of kidney spasms? If so, what did you do for them? Reason

I ask that, because when I had this before, I was in pain and they

did xrays to see if they can find why I am having these. But that

didn't show up nothing. I am just in pain and trying to find some

ways to relieve the pain.

Well, I am going to go lay down, I am just not feeling well

today. Take Care, everyone!

Carla