Re: AJ...

[Guest guest]

Mark;

Not a problem with additional stress; though thank you for asking.

I feel much better now that I did a search on the place. People had warned

me of the place but I did not listen. I thought I could see the reality of

the situation; I didn¹t think that they could be such weasels. Man was I

wrong. See; I thought that a university that could diagnose the real

problem; would be open to that diagnosis in all its departments.

I don¹t think that the insurance is the problem; though this particular

doctor might think that it is. They were willing to do all sorts of testing

when I entered the program; it was only after the interaction with the pain

shrink that things changed radically.

I think the issue has more to do with the egos there; not allowing another

psychiatrist to say that my pain issues were not psychological and that I

received no secondary gain. The note I posted previously shows that this is

not their frame of mind; ever.

I think it is very sad and pathetic that they are hiding behind the

'alternative medicine' so that chronic pain people 'can save face' with

their malingering. It really gives alternative medicine a bad name.

Since this doctor has placed a red flag me; I guess I need to start over

finding doctors. It does help to know that I am not the lone stranger that

this has happened to there. Even if I were capable of forcing them to treat

me; who wants to end up in ER or under the surgeons knife with this type of

note in their file? I am not presently on any type of pain medications

other then tylenol and naprosyn; but I sure don¹t want it to be denied when

I ask for it.

Like you I have stuff going on that no one cares to even find out the reason

why. I just find it hard to believe that I am going to have to wait until

it is too late to be fixed before it is even acknowledged. I find this very

hard to accept.

I may have to stop reading here so often. There are days it is like having

your nose pressed against a candy store window reading here; that daily

realization that there is a very real problem which I cant receive help for;

a daily realization of 'just how serious this all is'. Gads; it is

difficult enough to embrace this diagnosis and all that it means for myself

and children... But then to know that only a small percentage of people will

receive help. It's worse then waiting for someone to win the lottery some

days; I can't even afford the ticket for the chance to win. Small wonder EDS

gets so little coverage and research money. Then we throw the world as a

whole and politics and private interests into the mix; and it is everything

I can do to remain opptimistic about even the smallest thing. Somedays mere

'depression' is a good day.

On 4/10/04 2:57 PM, " ceda " ceda > wrote:

> From: MTLamar@...

> Subject: AJ...

>

> I probably caused some additional stress -- but while that horrible doctor's

> manner was less than human, his answer was accurate. The reason I got better

> treatment for a while is purely luck with doctors -- I had a couple who were

> willing to fight a bit when needed. Currently, I'm under Medicare treatment

> only

> for my oesteoporosis. Everything else -- well, for instance I have nerve

> damage and no one cares to find out why, or even bother testing me again to

> find

> out if the damage is ongoing. Unless I pay for it, of course. I'd like to see

> a

> surgeon again, four years later -- but it'd cost me big time, to probably be

> told again there's nothing he could do. So I don't go....

>

> There are two reasons I'm not back in my deep depression. The first is, the

> medication works. Whatever it costs me, it works. Second, my job now is having

> EDS, so I search all the " alternate " paths. Like, acupressure has helped me

> drastically with migraines, which the system cared less about.

>

> And a couple days a week, I AM back in deep depression. I hate this, I hate

> this...it's all I can do to tolerate it, and despite appearances I know I'm

> fairly strong, so I can imagine what it does to others, and I hate it.