New to the Group

November 29, 2006

I have never had good luck with an Endo and I won't see one again for my thyroid unless something drastic happens. I haven't found and MD that knew enough to treat me properly, but I've had great luck with my 2 DOs, both of which treat by symptoms. Some hypo/hyper symptoms are similar. What are your symptoms of each and do you have labs that we can look at. At 182/185 mcg Levo, your labs can look hyper if they're only running a TSH, and yet your actual hormones could be still in the hypo range. Give us a bit more info and we'd be glad to provide feedback.

JudyP – If nothing changes, nothing changes.

CAn't seem to regulate, at 182mcg of Levoxyl, i am going hypo, at 185 mcg. I am going hyper?? Endo's are asses, can't look beyond the labs, any ideas??Frustrated and discouraged,

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November 29, 2006

I have never had good luck with an Endo and I won't see one again for my thyroid unless something drastic happens. I haven't found and MD that knew enough to treat me properly, but I've had great luck with my 2 DOs, both of which treat by symptoms. Some hypo/hyper symptoms are similar. What are your symptoms of each and do you have labs that we can look at. At 182/185 mcg Levo, your labs can look hyper if they're only running a TSH, and yet your actual hormones could be still in the hypo range. Give us a bit more info and we'd be glad to provide feedback.

JudyP – If nothing changes, nothing changes.

CAn't seem to regulate, at 182mcg of Levoxyl, i am going hypo, at 185 mcg. I am going hyper?? Endo's are asses, can't look beyond the labs, any ideas??Frustrated and discouraged,

Check out the all-new Yahoo! Mail beta - Fire up a more powerful email and get things done faster.

November 29, 2006

I have never had good luck with an Endo and I won't see one again for my thyroid unless something drastic happens. I haven't found and MD that knew enough to treat me properly, but I've had great luck with my 2 DOs, both of which treat by symptoms. Some hypo/hyper symptoms are similar. What are your symptoms of each and do you have labs that we can look at. At 182/185 mcg Levo, your labs can look hyper if they're only running a TSH, and yet your actual hormones could be still in the hypo range. Give us a bit more info and we'd be glad to provide feedback.

JudyP – If nothing changes, nothing changes.

CAn't seem to regulate, at 182mcg of Levoxyl, i am going hypo, at 185 mcg. I am going hyper?? Endo's are asses, can't look beyond the labs, any ideas??Frustrated and discouraged,

Check out the all-new Yahoo! Mail beta - Fire up a more powerful email and get things done faster.

February 8, 2007

> At this point I'm waiting on a referral to a liver specialist to

begin the process of getting on a transplant list. I just got

married this summer and feel to young to be dealing with these types

of health issues but I guess I already got 7 years for free so now is

my time : )

My husband and I had been married just over 2 yrs when he was dx with

colon cancer, had a proctocolectomy (colon removal), and we learned

the cancer was due to a genetic condition that we had half a chance

of having passed on to our then 18 month old son (our son who now has

PSC/UC). My husband was 2 months shy of his 25th bday at the time

and he felt the way you do --too young to be dealing with these types

of healht issues (and angry, sad, confused, scared, etc as well). I

know his condition was very different from all that you are now

facing, but there are some real similarities in your life

situations. I can remember his fears, worries, anxiety, etc sooo

well. I can imagine some of what you are feeling. I'm sorry that

this is starting for you now, and I know this must be very difficult

for you. Try not to worry about leaning on your wife, letting her be

a partner to you. Having been down a similar road myself, I can't

imagine she wants anything but to love you and assist you in this in

whatever ways she can.

There is sooo much information available here; look through old posts

or just start reading the new ones that come up (and ask questions of

your own). You can find help here in many forms.

I wish you the very best -feel free to ask anything (I'm not much

help with PSC yet as my son is very recently dx, but I was a wife to

a young husband going through health crisis before).

--Meghan, mom to Wyatt (UC & PSC 1/07: FAP 8/01: ?'s?)

(and wife to --FAP 4/96, proctocolectomy w/ J-pouch 4/96)

February 8, 2007