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Re: Advice please

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Hi Joy,

This is where the issue of the metal ions comes in........... and what if

any effect may be experienced by the baby of the mother having higher than

normal levels from the prothesis......... though there seems to be some

evidence that this levels off so that would be the time you would be looking

for........... There is info around about that........ The release of the

ions seems to be correlated to how much use you give the prothesis which is

also something you could think about.............

I guess there are women who work within the metal's industries who have

children.......... you may be able to hunt down any info on that via the

net............if any one bothers to keep stats on it......... I mention

that as my OS states that all the info he can find suggests we run the same

risks as people who work within those industries............

Edith LBHR Dr. L Walter Syd Aust 8/02

>

> Although I have been a member of this group for a long time this is

> the first time I have posted so please excuse me if I come across as

> being a little shy.

>

> I am from Yorkshire in England and am currently waiting for a BHR on

> my right hip due before September 2004. I am 35 years old and have

> had problems isolated to my right hip only for about 10 years now.

>

> I have recently contacted my surgeon, Ian Stockley to ask how long

> after having the BHR I need to wait before I can start a family. He

> has advised me that a ceramic hip would be more suitable if I wish to

> become pregnant. Having already done my research (and looking though

> the archives of this site) about this issue I was not expecting this

> devastating news and I would very much like to hear from women who

> are in a similar position or even better who have gone on to have

> children and what advice they have been given.

>

> Before I knew about the BHR I had already made the decision to leave

> it as long as possible before having a THR, I just want my life back

> now, the BHR is definately still the option I intend to go for and

> having read your experiences I am even more sure.

>

> I must also thank the person who posted about the Capsican cream.

> It's very effective and has enabled me to ride my horse again for the

> for the first time in eight months - thank you very much.

>

> I would also be interested to hear from anyone how has been treated

> ny Ian Stockley at the Northern General Hospital.

>

> Thanks

>

> Joy Beechey

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  • 6 months later...
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Hi ,

I believe Dr. H. is talking about the Ilizarov technique. I don't know

much about it, but apparently enough to spell it right on an internet

search hehe... so here's a bunch of pages detailing it. The first few

seem to be in reference to limb lengthening - the last 10 or so directly

related to CF tx. Hope this helps - doesn't sound like fun. I'm

sorry! There are more pages that came up on the search - just type in

Ilizarov clubfoot into your search engine and you should get most of these

and more.

Kori

http://www.netlink.net/mp/pffdvsg/vsg-fl-jonathan.htm

http://www.umm.edu/mcllr/mcllr_lon.htm

http://apexdesign.com/surgery/

http://www.kktv.com/unclassified/35061.html

http://pages.ivillage.com/clubfootboard/id9.html

http://www.emedicine.com/orthoped/topic598.htm

http://www.ilizarov.org/

http://www.dkch.org/Education/Articles/CLUBFOOT%20BY%20ILIZAROV.html

http://pages.ivillage.com/clubfootboard/id8.html

http://www.healthcyclopedia.com/musculoskeletal-disorders/congenital-anomalies/c\

lubfoot.html

http://education.vsnl.com/polio_rx/

http://dmoz.org/Health/Conditions_and_Diseases/Musculoskeletal_Disorders/Congeni\

tal_Anomalies/Clubfoot/

http://www.emedicine.com/asp/image_search.asp?query=Clubfoot

http://www.limblengthening.org/sinaibody.cfm?id=1540

http://education.vsnl.com/polio_rx/ponseti2.htm

At 10:04 AM 5/8/2004, you wrote:

>Hi, My son Collin is a patient of Dr. Herzenberg and I'm looking

>for advice about treatment that includes you child wearing a round

>brace, looks like a circle around the leg, that requires a surgery to

>put it in and gets taken out after about 8 weeks. It is a wire that

>is inserted in the foot to hold the foot in position for the 8 weeks,

>no muscles, etc are cut as far as I know. I'm just looking for more

>info. on it and andvice from anyone who knows anything about it.

>

>Michele

>Collin 8-24-01

>Our web site: http://www.geocities.com/chele323232

>

>

>

>

>

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