Re: I'm on a rollercoaster

[Guest guest]

In a message dated 9/17/2002 7:01:21 AM Pacific Daylight Time,

babe61584@... writes:

> I wish I could somehow regulate myself

> by taking the dose I feel I need. Wishful thinking that's all.

>

Okay, I know the more prudent, cautious people on this list are going to have

a fit, but how dangerous is changing your dosage based on how you feel? Just

to recap my ATD history: In the first week of July, I started on 450mg/day

of PTU broken into 3 doses. I stayed on this dosage of PTU for 2 weeks until

Endo #2 switched me to 60mg/day of Tapazole broken into 3 doses. After 3

weeks, Endo #2 had me decrease the dosage to 40mg/day broken into 2 doses.

This decrease was predetermined and not based on labs. Anyway, I've been on

the 40mg/day of Tap since. But I feel like crap and can't take it anymore.

I'm so tired, I don't get anything done. Taking a shower wears me out and I

need a nap afterwards. And I'm depressed. I've read enough on this board

about hypO hell to recognize that I'm heading for it. OK, here's the part

that ya'll won't like: I finished off the last of my Tapazole last week and

didn't have the strength to go to the pharmacy or even call in a refill and

make pick it up for me. I still had a huge bottle of PTU left, so I

decided to switch back to PTU. I've been taking 350mg/day of PTU for the

past week. I feel like I may be getting some life back, but I do feel some

hyper symptoms like shortness of breath and heat intolerance returning. Is

switching meds and playing with dosage a really bad thing? I'm so sick of

waiting for dr appts only to get a crappy dr.

Peace,

Tori

[Guest guest]

In a message dated 9/17/2002 7:01:21 AM Pacific Daylight Time,

babe61584@... writes:

> I wish I could somehow regulate myself

> by taking the dose I feel I need. Wishful thinking that's all.

>

Okay, I know the more prudent, cautious people on this list are going to have

a fit, but how dangerous is changing your dosage based on how you feel? Just

to recap my ATD history: In the first week of July, I started on 450mg/day

of PTU broken into 3 doses. I stayed on this dosage of PTU for 2 weeks until

Endo #2 switched me to 60mg/day of Tapazole broken into 3 doses. After 3

weeks, Endo #2 had me decrease the dosage to 40mg/day broken into 2 doses.

This decrease was predetermined and not based on labs. Anyway, I've been on

the 40mg/day of Tap since. But I feel like crap and can't take it anymore.

I'm so tired, I don't get anything done. Taking a shower wears me out and I

need a nap afterwards. And I'm depressed. I've read enough on this board

about hypO hell to recognize that I'm heading for it. OK, here's the part

that ya'll won't like: I finished off the last of my Tapazole last week and

didn't have the strength to go to the pharmacy or even call in a refill and

make pick it up for me. I still had a huge bottle of PTU left, so I

decided to switch back to PTU. I've been taking 350mg/day of PTU for the

past week. I feel like I may be getting some life back, but I do feel some

hyper symptoms like shortness of breath and heat intolerance returning. Is

switching meds and playing with dosage a really bad thing? I'm so sick of

waiting for dr appts only to get a crappy dr.

Peace,

Tori

[Guest guest]

wrote:

>

> Is this really that hard to get us regulated?

It really does vary. Having relapsed a few years after surgery I

have two totally difference experiences of going hyper.

The first time it was comparitively easy to " fix " , and I had a

stable dose sorted inside 3 months, the second time the doctor

was relying on TSH and made me hypo. Getting back from hypo was

so slow, as you keep reducing the drug, and feeling it isn't

getting anywhere, and then I developed other problems.

Maybe you are a '10mg methimazole a day' person, but dropping

the betablockers and the medication together must make it harder

for both you and the doctor to judge, I'm surprised it took so

long to lose Inderal if you've been hypo.

I was stable on 15mg methimazole first time for quite a while,

so don't look at going back to 10mg of methimazole as a

retrograde step, just get the right dose and you may find in a

few months it needs to drop again.

Is your new doctor open to block and replace, as that may be an

easier way to regulate levels, although I don't think there is

much experience of B&R even here.

Simon

Is antithyroid drug induced depression the 'long dark tea time

of methimazole'....

If we don't have any fans you're all going to

think I'm bonkers now.

[Guest guest]

wrote:

>

> Is this really that hard to get us regulated?

It really does vary. Having relapsed a few years after surgery I

have two totally difference experiences of going hyper.

The first time it was comparitively easy to " fix " , and I had a

stable dose sorted inside 3 months, the second time the doctor

was relying on TSH and made me hypo. Getting back from hypo was

so slow, as you keep reducing the drug, and feeling it isn't

getting anywhere, and then I developed other problems.

Maybe you are a '10mg methimazole a day' person, but dropping

the betablockers and the medication together must make it harder

for both you and the doctor to judge, I'm surprised it took so

long to lose Inderal if you've been hypo.

I was stable on 15mg methimazole first time for quite a while,

so don't look at going back to 10mg of methimazole as a

retrograde step, just get the right dose and you may find in a

few months it needs to drop again.

Is your new doctor open to block and replace, as that may be an

easier way to regulate levels, although I don't think there is

much experience of B&R even here.

Simon

Is antithyroid drug induced depression the 'long dark tea time

of methimazole'....

If we don't have any fans you're all going to

think I'm bonkers now.

[Guest guest]

Hi Simon,

It took so long to lose the Inderal b/c the first Endo left me on

them and put me on methimazole, then didn't test me for 14 weeks!

That's why I went HypO. That doctor told me just to " stop taking the

Inderal " . I said, " But I need to wean off. " He said " No you

don't " . So I stayed on Inderal a few more weeks until I saw a new

Endo.

What is " block and replace " ? I wish I could somehow regulate myself

by taking the dose I feel I need. Wishful thinking that's all.

> >

> > Is this really that hard to get us regulated?

>

> It really does vary. Having relapsed a few years after surgery I

> have two totally difference experiences of going hyper.

>

> The first time it was comparitively easy to " fix " , and I had a

> stable dose sorted inside 3 months, the second time the doctor

> was relying on TSH and made me hypo. Getting back from hypo was

> so slow, as you keep reducing the drug, and feeling it isn't

> getting anywhere, and then I developed other problems.

>

> Maybe you are a '10mg methimazole a day' person, but dropping

> the betablockers and the medication together must make it harder

> for both you and the doctor to judge, I'm surprised it took so

> long to lose Inderal if you've been hypo.

>

> I was stable on 15mg methimazole first time for quite a while,

> so don't look at going back to 10mg of methimazole as a

> retrograde step, just get the right dose and you may find in a

> few months it needs to drop again.

>

> Is your new doctor open to block and replace, as that may be an

> easier way to regulate levels, although I don't think there is

> much experience of B&R even here.

>

> Simon

>

> Is antithyroid drug induced depression the 'long dark tea time

> of methimazole'....

>

> If we don't have any fans you're all going to

> think I'm bonkers now.

[Guest guest]

Hi Simon,

It took so long to lose the Inderal b/c the first Endo left me on

them and put me on methimazole, then didn't test me for 14 weeks!

That's why I went HypO. That doctor told me just to " stop taking the

Inderal " . I said, " But I need to wean off. " He said " No you

don't " . So I stayed on Inderal a few more weeks until I saw a new

Endo.

What is " block and replace " ? I wish I could somehow regulate myself

by taking the dose I feel I need. Wishful thinking that's all.

> >

> > Is this really that hard to get us regulated?

>

> It really does vary. Having relapsed a few years after surgery I

> have two totally difference experiences of going hyper.

>

> The first time it was comparitively easy to " fix " , and I had a

> stable dose sorted inside 3 months, the second time the doctor

> was relying on TSH and made me hypo. Getting back from hypo was

> so slow, as you keep reducing the drug, and feeling it isn't

> getting anywhere, and then I developed other problems.

>

> Maybe you are a '10mg methimazole a day' person, but dropping

> the betablockers and the medication together must make it harder

> for both you and the doctor to judge, I'm surprised it took so

> long to lose Inderal if you've been hypo.

>

> I was stable on 15mg methimazole first time for quite a while,

> so don't look at going back to 10mg of methimazole as a

> retrograde step, just get the right dose and you may find in a

> few months it needs to drop again.

>

> Is your new doctor open to block and replace, as that may be an

> easier way to regulate levels, although I don't think there is

> much experience of B&R even here.

>

> Simon

>

> Is antithyroid drug induced depression the 'long dark tea time

> of methimazole'....

>

> If we don't have any fans you're all going to

> think I'm bonkers now.

[Guest guest]

wrote:

>

> It took so long to lose the Inderal b/c the first Endo left me on

> them and put me on methimazole, then didn't test me for 14 weeks!

> That's why I went HypO.

Eek - not too surprising you went hypo.

> That doctor told me just to " stop taking the

> Inderal " . I said, " But I need to wean off. " He said " No you

> don't " . So I stayed on Inderal a few more weeks until I saw a new

> Endo.

Probably wise. I went on and off propranolol as needed, with no

weening, if it is small doses for short periods I don't think

weening is that important, but I guess it depends how healthy

your heart is.

> What is " block and replace " ? I wish I could somehow regulate myself

> by taking the dose I feel I need. Wishful thinking that's all.

Block and replace is where you take a dose of antithyroid drugs

to make you hypo, and then take thyroid hormones (thyroxine and

cytomel) to replace the missing hormone.

The theory is you get the benefits (?) of easier treatment

following surgery or RAI, without the surgery or RAI.

The down side is larger doses of antithyroid drugs.

One unexpected upside was higher remission rates in some studies

using this protocol. Several studies have reported remission

rates around 60% which is about 20% up on just taking the

antithyroid drugs, but the jury is still out on whether the

effect is just from the treatment, or perhaps something else.

I think we are a long way from taking the dose we need, I

suppose in theory an artificial thyroid could release T4/T3 in

response to TSH, although by the time people get around to that

level of engineering we'll probably have a cure, or at least

nanobots to track the rogue antibodies down.

[Guest guest]

wrote:

>

> It took so long to lose the Inderal b/c the first Endo left me on

> them and put me on methimazole, then didn't test me for 14 weeks!

> That's why I went HypO.

Eek - not too surprising you went hypo.

> That doctor told me just to " stop taking the

> Inderal " . I said, " But I need to wean off. " He said " No you

> don't " . So I stayed on Inderal a few more weeks until I saw a new

> Endo.

Probably wise. I went on and off propranolol as needed, with no

weening, if it is small doses for short periods I don't think

weening is that important, but I guess it depends how healthy

your heart is.

> What is " block and replace " ? I wish I could somehow regulate myself

> by taking the dose I feel I need. Wishful thinking that's all.

Block and replace is where you take a dose of antithyroid drugs

to make you hypo, and then take thyroid hormones (thyroxine and

cytomel) to replace the missing hormone.

The theory is you get the benefits (?) of easier treatment

following surgery or RAI, without the surgery or RAI.

The down side is larger doses of antithyroid drugs.

One unexpected upside was higher remission rates in some studies

using this protocol. Several studies have reported remission

rates around 60% which is about 20% up on just taking the

antithyroid drugs, but the jury is still out on whether the

effect is just from the treatment, or perhaps something else.

I think we are a long way from taking the dose we need, I

suppose in theory an artificial thyroid could release T4/T3 in

response to TSH, although by the time people get around to that

level of engineering we'll probably have a cure, or at least

nanobots to track the rogue antibodies down.

[Guest guest]

wrote:

>

> It took so long to lose the Inderal b/c the first Endo left me on

> them and put me on methimazole, then didn't test me for 14 weeks!

> That's why I went HypO.

Eek - not too surprising you went hypo.

> That doctor told me just to " stop taking the

> Inderal " . I said, " But I need to wean off. " He said " No you

> don't " . So I stayed on Inderal a few more weeks until I saw a new

> Endo.

Probably wise. I went on and off propranolol as needed, with no

weening, if it is small doses for short periods I don't think

weening is that important, but I guess it depends how healthy

your heart is.

> What is " block and replace " ? I wish I could somehow regulate myself

> by taking the dose I feel I need. Wishful thinking that's all.

Block and replace is where you take a dose of antithyroid drugs

to make you hypo, and then take thyroid hormones (thyroxine and

cytomel) to replace the missing hormone.

The theory is you get the benefits (?) of easier treatment

following surgery or RAI, without the surgery or RAI.

The down side is larger doses of antithyroid drugs.

One unexpected upside was higher remission rates in some studies

using this protocol. Several studies have reported remission

rates around 60% which is about 20% up on just taking the

antithyroid drugs, but the jury is still out on whether the

effect is just from the treatment, or perhaps something else.

I think we are a long way from taking the dose we need, I

suppose in theory an artificial thyroid could release T4/T3 in

response to TSH, although by the time people get around to that

level of engineering we'll probably have a cure, or at least

nanobots to track the rogue antibodies down.

[Guest guest]

Hi -

I find it easier to wean off the ATD and leave the beta

blocker dosage the same until I see what my levels are

doing. THEN try to slowly wean off the beta blocker. I'm

still struggling with weaning off both, and it is a delicate

balancing act, that's for sure!

Remember that the beta blocker will " mask " hyper symptoms.

That means that you can be feeling better lowering the ATD,

but the beta blocker may be giving you a false sense of

security.

I'm also finding that people on methimazole seem to need the

beta blocker more than those on PTU. (If I'm wrong here,

please don't throw too many tomatoes - they make me hyper - LOL)

PTU allegedly helps block the conversion of T4 to T3 (70 percent

of the T3 supply), whereas MMI supposedly does not. The beta blocker

seems to help " curb " the T3 when on MMI (Tap).

I've been down to 3 mg/da of Tap, but still could not go lower than

30 mg/da of inderal without getting heart palps.

So don't be too hasty about dropping the beta blocker until you

have a grip on the thyroid levels and ATD dosage. This isn't

easy, but you will learn how to juggle these meds to your best

advantage. If you have a thyroid disorder, NEVER drop the beta

blocker cold turkey, unless there is an allergy issue involved.

AND the doctor needs to listen to YOU, not to his textbook!

Best Wishes,

Granny Chris

> Ok, I was hypO from too much methimazole (30mg). New dr. weaned me

> down. At 10mg all last week, I seemed to be doing better. Then

> yesterday, I went to 5 mg and took the very last of the Inderal (I

> was being weaned off after 4 months). Last nite.. Bam! I woke up

> with a start, scared to death I was dying; my heart is racing and I

> am breathing hard. I have that nawing axiety in my body and it's

> driving me crazy!

>

> I will give me doctor a call.

>

> Is this really that hard to get us regulated? I hate this disease

so

> much and what it's doing to my body.

>

> Did I tell ya to of the memory loss? Huh? What was that? Oh,

yeah,

> I keep loosing my memory. I feel like an idiot half the time.

Gosh,

> I'm only 37.

>

> Any advice on getting meds regulated is appreciated. Thanks.

>

> (in Indiana)

[Guest guest]

Hi -

I find it easier to wean off the ATD and leave the beta

blocker dosage the same until I see what my levels are

doing. THEN try to slowly wean off the beta blocker. I'm

still struggling with weaning off both, and it is a delicate

balancing act, that's for sure!

Remember that the beta blocker will " mask " hyper symptoms.

That means that you can be feeling better lowering the ATD,

but the beta blocker may be giving you a false sense of

security.

I'm also finding that people on methimazole seem to need the

beta blocker more than those on PTU. (If I'm wrong here,

please don't throw too many tomatoes - they make me hyper - LOL)

PTU allegedly helps block the conversion of T4 to T3 (70 percent

of the T3 supply), whereas MMI supposedly does not. The beta blocker

seems to help " curb " the T3 when on MMI (Tap).

I've been down to 3 mg/da of Tap, but still could not go lower than

30 mg/da of inderal without getting heart palps.

So don't be too hasty about dropping the beta blocker until you

have a grip on the thyroid levels and ATD dosage. This isn't

easy, but you will learn how to juggle these meds to your best

advantage. If you have a thyroid disorder, NEVER drop the beta

blocker cold turkey, unless there is an allergy issue involved.

AND the doctor needs to listen to YOU, not to his textbook!

Best Wishes,

Granny Chris

> Ok, I was hypO from too much methimazole (30mg). New dr. weaned me

> down. At 10mg all last week, I seemed to be doing better. Then

> yesterday, I went to 5 mg and took the very last of the Inderal (I

> was being weaned off after 4 months). Last nite.. Bam! I woke up

> with a start, scared to death I was dying; my heart is racing and I

> am breathing hard. I have that nawing axiety in my body and it's

> driving me crazy!

>

> I will give me doctor a call.

>

> Is this really that hard to get us regulated? I hate this disease

so

> much and what it's doing to my body.

>

> Did I tell ya to of the memory loss? Huh? What was that? Oh,

yeah,

> I keep loosing my memory. I feel like an idiot half the time.

Gosh,

> I'm only 37.

>

> Any advice on getting meds regulated is appreciated. Thanks.

>

> (in Indiana)

[Guest guest]

Hi -

I find it easier to wean off the ATD and leave the beta

blocker dosage the same until I see what my levels are

doing. THEN try to slowly wean off the beta blocker. I'm

still struggling with weaning off both, and it is a delicate

balancing act, that's for sure!

Remember that the beta blocker will " mask " hyper symptoms.

That means that you can be feeling better lowering the ATD,

but the beta blocker may be giving you a false sense of

security.

I'm also finding that people on methimazole seem to need the

beta blocker more than those on PTU. (If I'm wrong here,

please don't throw too many tomatoes - they make me hyper - LOL)

PTU allegedly helps block the conversion of T4 to T3 (70 percent

of the T3 supply), whereas MMI supposedly does not. The beta blocker

seems to help " curb " the T3 when on MMI (Tap).

I've been down to 3 mg/da of Tap, but still could not go lower than

30 mg/da of inderal without getting heart palps.

So don't be too hasty about dropping the beta blocker until you

have a grip on the thyroid levels and ATD dosage. This isn't

easy, but you will learn how to juggle these meds to your best

advantage. If you have a thyroid disorder, NEVER drop the beta

blocker cold turkey, unless there is an allergy issue involved.

AND the doctor needs to listen to YOU, not to his textbook!

Best Wishes,

Granny Chris

> Ok, I was hypO from too much methimazole (30mg). New dr. weaned me

> down. At 10mg all last week, I seemed to be doing better. Then

> yesterday, I went to 5 mg and took the very last of the Inderal (I

> was being weaned off after 4 months). Last nite.. Bam! I woke up

> with a start, scared to death I was dying; my heart is racing and I

> am breathing hard. I have that nawing axiety in my body and it's

> driving me crazy!

>

> I will give me doctor a call.

>

> Is this really that hard to get us regulated? I hate this disease

so

> much and what it's doing to my body.

>

> Did I tell ya to of the memory loss? Huh? What was that? Oh,

yeah,

> I keep loosing my memory. I feel like an idiot half the time.

Gosh,

> I'm only 37.

>

> Any advice on getting meds regulated is appreciated. Thanks.

>

> (in Indiana)

[Guest guest]

Hi ,

>>>I was hypO from too much methimazole (30mg). New dr. weaned me

down. At 10mg all last week, I seemed to be doing better. Then

yesterday, I went to 5 mg and took the very last of the Inderal (I

was being weaned off after 4 months). Last nite.. Bam! I woke up

with a start, scared to death I was dying; my heart is racing and I

am breathing hard. I have that nawing axiety in my body and it's

driving me crazy!<<<

Being cut from 30mg of MMI to 10mg is a big cut, and I think cutting it back

to 5mg after only one week could be a big part of what has thrown you for a

loop. Cutting back SLOWLY is KEY to attaining remission and keeping you off

the roller coaster from hell ride. Pam L learned and shared with us, 3-4

weeks on each new level, labs, then if labs show time to cut back, another

very small cut is warranted.

I think your doing it too fast, but that is just my opinion.

As for the Beta blocker, it usually takes at least a month to safely wean

from this also. I wonder if the weaning of both drugs at the same time, and

done in large cuts is what has caused this for you.

Also, at 10 or even 5mg of MMI, I do hope your still taking it twice a day.

If only one time a day, then your leaving your body uncovered for at least

12 hours. If you taking it in the morning it could be why you woke up with

the problems last night.

I'm glad your calling your new doc! Hopefully he will have you increase

back to 10mg and then if YOU split that to every 12 hours, you may just find

yourself leveling off a bit.

Let us know what happens when you speak to your doctor...and talk to him

about weaning SLOWLY!

Good luck,

Jody

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[Guest guest]

Hi again ,

>>>What is " block and replace " ?<<<

BRT or block and replace therapy is when high doses of ATD is used to block

completely the thyroid of making more hormone and putting a patient on

replacement hormone to keep them from going hypO. This is done for 3-5

years in European countries where remission rates are much higher than in

this country. Do a search of the archives on BRT, there are many posts on

this that will explain it more in the archives. This is a very condensed

explanation.

>>>I wish I could somehow regulate myself by taking the dose I feel I

>>>need.<<<

, in time you will learn more of what your body is telling you, you

will learn when you need labs and when to cut AFTER labs are taken, but this

is after a lot of research and self-education and really listening to what

your body is telling you. No one new to graves, or even in the first year or

so should be dosing themselves, in my opinion...and then cuts or increases

should only be done AFTER labs are done to see exactly what is going on with

the body. When new patients begin self dosing, it usually ends with a much

worse cycle of this ride your on right now.

I know your not new to graves, it has been a few months, but you still have

so much to learn to begin to have the kind of insite and communication with

your body to do it with very little highs and lows. No matter how much we

wish we could 'hurry' this along, it takes time, and a lot of research and

listening to the body and regular labs.

On the memory thing...your mind will come back as you get euthyroid so have

patients with yourself on this! I remember when I was very hypO I couldn't

even remember what my car keys were called and they were sitting right in

front of me, could only say 'you know, the things that make the car run'...I

broke down and cried for a long time. This WILL get much much better!!!

I still have the brain fog from time to time, just Sunday in the mediboard

chat, I couldn't remember the word 'culture' and Simon had to help me out

with that...could explain what it was for, but not what it was. It really

does get better!!! HypO is the WORST, but coming out of it takes time. I am

still coming out of the hell of being there for 5/6 weeks in July and

August. I am much much better than I was, but the hypO pain is still with

me at times and the brain fog.

Take care,

Jody

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

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[Guest guest]

Hi again ,

>>>What is " block and replace " ?<<<

BRT or block and replace therapy is when high doses of ATD is used to block

completely the thyroid of making more hormone and putting a patient on

replacement hormone to keep them from going hypO. This is done for 3-5

years in European countries where remission rates are much higher than in

this country. Do a search of the archives on BRT, there are many posts on

this that will explain it more in the archives. This is a very condensed

explanation.

>>>I wish I could somehow regulate myself by taking the dose I feel I

>>>need.<<<

, in time you will learn more of what your body is telling you, you

will learn when you need labs and when to cut AFTER labs are taken, but this

is after a lot of research and self-education and really listening to what

your body is telling you. No one new to graves, or even in the first year or

so should be dosing themselves, in my opinion...and then cuts or increases

should only be done AFTER labs are done to see exactly what is going on with

the body. When new patients begin self dosing, it usually ends with a much

worse cycle of this ride your on right now.

I know your not new to graves, it has been a few months, but you still have

so much to learn to begin to have the kind of insite and communication with

your body to do it with very little highs and lows. No matter how much we

wish we could 'hurry' this along, it takes time, and a lot of research and

listening to the body and regular labs.

On the memory thing...your mind will come back as you get euthyroid so have

patients with yourself on this! I remember when I was very hypO I couldn't

even remember what my car keys were called and they were sitting right in

front of me, could only say 'you know, the things that make the car run'...I

broke down and cried for a long time. This WILL get much much better!!!

I still have the brain fog from time to time, just Sunday in the mediboard

chat, I couldn't remember the word 'culture' and Simon had to help me out

with that...could explain what it was for, but not what it was. It really

does get better!!! HypO is the WORST, but coming out of it takes time. I am

still coming out of the hell of being there for 5/6 weeks in July and

August. I am much much better than I was, but the hypO pain is still with

me at times and the brain fog.

Take care,

Jody

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

,

If you are on the Inderal, and cost is a factor here, maybe switching to the

generic form of it, the propananl would be the way to go for your beta

blocker.

is so right about making changes with one thing at a time. I do not

add supplements except one at a time now, and I stay on each for 1-2 months

before adding another one. I made the mistake of adding several at one

time, reacted to one of them, didn't know which one so quit them all for

over a year before I got brave enough to begin adding them back, one at a

time.

This could be part of what is going on with you, dropping both drugs at the

same time, your body is confused and you really don't know which one is

making life miserable and scary for you.

Jody

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

No, the cost isn't a factor. I didn't need to be on Inderal

anymore. I was extremely tired. I agree dropping both things so

quickly has really messed with my body.

Waiting to hear from doc.

> ,

> If you are on the Inderal, and cost is a factor here, maybe

switching to the

> generic form of it, the propananl would be the way to go for

your beta

> blocker.

>

> is so right about making changes with one thing at a time. I

do not

> add supplements except one at a time now, and I stay on each for 1-

2 months

> before adding another one. I made the mistake of adding several at

one

> time, reacted to one of them, didn't know which one so quit them

all for

> over a year before I got brave enough to begin adding them back,

one at a

> time.

>

> This could be part of what is going on with you, dropping both

drugs at the

> same time, your body is confused and you really don't know which

one is

> making life miserable and scary for you.

> Jody

>

>

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

[Guest guest]

No, the cost isn't a factor. I didn't need to be on Inderal

anymore. I was extremely tired. I agree dropping both things so

quickly has really messed with my body.

Waiting to hear from doc.

> ,

> If you are on the Inderal, and cost is a factor here, maybe

switching to the

> generic form of it, the propananl would be the way to go for

your beta

> blocker.

>

> is so right about making changes with one thing at a time. I

do not

> add supplements except one at a time now, and I stay on each for 1-

2 months

> before adding another one. I made the mistake of adding several at

one

> time, reacted to one of them, didn't know which one so quit them

all for

> over a year before I got brave enough to begin adding them back,

one at a

> time.

>

> This could be part of what is going on with you, dropping both

drugs at the

> same time, your body is confused and you really don't know which

one is

> making life miserable and scary for you.

> Jody

>

>

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

[Guest guest]

No, the cost isn't a factor. I didn't need to be on Inderal

anymore. I was extremely tired. I agree dropping both things so

quickly has really messed with my body.

Waiting to hear from doc.

> ,

> If you are on the Inderal, and cost is a factor here, maybe

switching to the

> generic form of it, the propananl would be the way to go for

your beta

> blocker.

>

> is so right about making changes with one thing at a time. I

do not

> add supplements except one at a time now, and I stay on each for 1-

2 months

> before adding another one. I made the mistake of adding several at

one

> time, reacted to one of them, didn't know which one so quit them

all for

> over a year before I got brave enough to begin adding them back,

one at a

> time.

>

> This could be part of what is going on with you, dropping both

drugs at the

> same time, your body is confused and you really don't know which

one is

> making life miserable and scary for you.

> Jody

>

>

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

[Guest guest]

>

I remember when I was very hypO I couldn't

> even remember what my car keys were called and they were sitting

right in

> front of me, could only say 'you know, the things that make the car

run'...I

> broke down and cried for a long time. This WILL get much much

better!!!

>

Gosh Jody, I am that bad! Thanks for letting me know that I'm not

crazy, have a brain tumor or am dying. It's embarrassing!

[Guest guest]

,

Best advice is to slow down the changes, you're making them too rapidly, I

think--although you don't mention how long it took to get to 10 mg., so I am

assuming the doc cut you from 30 straight to 10? Only the one week on 10 and

then you dropped to 5 AND stopped the beta blocker all at once, and you

expect your body to know which end is up? Yikes!!!

Go back to 10 if you seemed to be OK on it; but it sounds to me like you

dropped too far too fast going from 30 to 10 in the first place, then didn't

give your body a chance to normalize on 10 mg. before decreasing again. You

may need to go back to 15, to get stable. I take 15 now and have for 3

months plus, because I dropped too far and a few other circumstances sent me

back out of whack as well. And I was almost in remission, on 1.25 mg. a day.

You need to give your body a minimum of a month on each dosage change, and

when you get below 15mg., my advice is to drop by 2.5 mg. at a time, unless

you have severe hypO symptoms on a dose. The longer you take to wean down,

being absolutely sure you have remained stable for a month on a dose (that

is, that the dose has worked as expected for a full month), the more likely

you'll be to keep things under control.

GD is not a monster, it's just a little gremlin. If you keep it in it's cage

properly, it won't bite you. But, forget to padlock the door it's smart

enough to escape and wreak havoc!

Terry

>

> Reply-To: graves_support

> Date: Tue, 17 Sep 2002 13:21:06 -0000

> To: graves_support

> Subject: I'm on a rollercoaster

>

> Ok, I was hypO from too much methimazole (30mg). New dr. weaned me

> down. At 10mg all last week, I seemed to be doing better. Then

> yesterday, I went to 5 mg and took the very last of the Inderal (I

> was being weaned off after 4 months). Last nite.. Bam! I woke up

> with a start, scared to death I was dying; my heart is racing and I

> am breathing hard. I have that nawing axiety in my body and it's

> driving me crazy!

>

> I will give me doctor a call.

>

> Is this really that hard to get us regulated? I hate this disease so

> much and what it's doing to my body.

>

> Did I tell ya to of the memory loss? Huh? What was that? Oh, yeah,

> I keep loosing my memory. I feel like an idiot half the time. Gosh,

> I'm only 37.

>

> Any advice on getting meds regulated is appreciated. Thanks.

>

> (in Indiana)

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list do not have the endorsement of

> the listowner. I have no input as to what ads are attached to emails.

> ------------------------------------------------------------------------------

> --------

>

>

[Guest guest]

EXCELLENT ADVICE TERRY!!! Everyone who is taking ATDs should pay

heed to this!!

Granny Chris

> ,

>

> Best advice is to slow down the changes, you're making them too

rapidly, I

> think--although you don't mention how long it took to get to 10

mg., so I am

> assuming the doc cut you from 30 straight to 10? Only the one week

on 10 and

> then you dropped to 5 AND stopped the beta blocker all at once, and

you

> expect your body to know which end is up? Yikes!!!

>

> Go back to 10 if you seemed to be OK on it; but it sounds to me

like you

> dropped too far too fast going from 30 to 10 in the first place,

then didn't

> give your body a chance to normalize on 10 mg. before decreasing

again. You

> may need to go back to 15, to get stable. I take 15 now and have

for 3

> months plus, because I dropped too far and a few other

circumstances sent me

> back out of whack as well. And I was almost in remission, on 1.25

mg. a day.

> You need to give your body a minimum of a month on each dosage

change, and

> when you get below 15mg., my advice is to drop by 2.5 mg. at a

time, unless

> you have severe hypO symptoms on a dose. The longer you take to

wean down,

> being absolutely sure you have remained stable for a month on a

dose (that

> is, that the dose has worked as expected for a full month), the

more likely

> you'll be to keep things under control.

>

> GD is not a monster, it's just a little gremlin. If you keep it in

it's cage

> properly, it won't bite you. But, forget to padlock the door it's

smart

> enough to escape and wreak havoc!

>

> Terry

>

> > From: " "

> > Reply-To: graves_support@y...

> > Date: Tue, 17 Sep 2002 13:21:06 -0000

> > To: graves_support@y...

> > Subject: I'm on a rollercoaster

> >

> > Ok, I was hypO from too much methimazole (30mg). New dr. weaned

me

> > down. At 10mg all last week, I seemed to be doing better. Then

> > yesterday, I went to 5 mg and took the very last of the Inderal (I

> > was being weaned off after 4 months). Last nite.. Bam! I woke up

> > with a start, scared to death I was dying; my heart is racing and

I

> > am breathing hard. I have that nawing axiety in my body and it's

> > driving me crazy!

> >

> > I will give me doctor a call.

> >

> > Is this really that hard to get us regulated? I hate this

disease so

> > much and what it's doing to my body.

> >

> > Did I tell ya to of the memory loss? Huh? What was that? Oh,

yeah,

> > I keep loosing my memory. I feel like an idiot half the time.

Gosh,

> > I'm only 37.

> >

> > Any advice on getting meds regulated is appreciated. Thanks.

> >

> > (in Indiana)

> >

> >

> >

> > -------------------------------------

> > The Graves' list is intended for informational purposes only and

is not

> > intended to replace expert medical care.

> > Please consult your doctor before changing or trying new

treatments.

> > ----------------------------------------

> > DISCLAIMER

> >

> > Advertisments placed on this yahoo groups list do not have the

endorsement of

> > the listowner. I have no input as to what ads are attached to

emails.

> > ------------------------------------------------------------------

------------

> > --------

> >

> >

[Guest guest]

EXCELLENT ADVICE TERRY!!! Everyone who is taking ATDs should pay

heed to this!!

Granny Chris

> ,

>

> Best advice is to slow down the changes, you're making them too

rapidly, I

> think--although you don't mention how long it took to get to 10

mg., so I am

> assuming the doc cut you from 30 straight to 10? Only the one week

on 10 and

> then you dropped to 5 AND stopped the beta blocker all at once, and

you

> expect your body to know which end is up? Yikes!!!

>

> Go back to 10 if you seemed to be OK on it; but it sounds to me

like you

> dropped too far too fast going from 30 to 10 in the first place,

then didn't

> give your body a chance to normalize on 10 mg. before decreasing

again. You

> may need to go back to 15, to get stable. I take 15 now and have

for 3

> months plus, because I dropped too far and a few other

circumstances sent me

> back out of whack as well. And I was almost in remission, on 1.25

mg. a day.

> You need to give your body a minimum of a month on each dosage

change, and

> when you get below 15mg., my advice is to drop by 2.5 mg. at a

time, unless

> you have severe hypO symptoms on a dose. The longer you take to

wean down,

> being absolutely sure you have remained stable for a month on a

dose (that

> is, that the dose has worked as expected for a full month), the

more likely

> you'll be to keep things under control.

>

> GD is not a monster, it's just a little gremlin. If you keep it in

it's cage

> properly, it won't bite you. But, forget to padlock the door it's

smart

> enough to escape and wreak havoc!

>

> Terry

>

> > From: " "

> > Reply-To: graves_support@y...

> > Date: Tue, 17 Sep 2002 13:21:06 -0000

> > To: graves_support@y...

> > Subject: I'm on a rollercoaster

> >

> > Ok, I was hypO from too much methimazole (30mg). New dr. weaned

me

> > down. At 10mg all last week, I seemed to be doing better. Then

> > yesterday, I went to 5 mg and took the very last of the Inderal (I

> > was being weaned off after 4 months). Last nite.. Bam! I woke up

> > with a start, scared to death I was dying; my heart is racing and

I

> > am breathing hard. I have that nawing axiety in my body and it's

> > driving me crazy!

> >

> > I will give me doctor a call.

> >

> > Is this really that hard to get us regulated? I hate this

disease so

> > much and what it's doing to my body.

> >

> > Did I tell ya to of the memory loss? Huh? What was that? Oh,

yeah,

> > I keep loosing my memory. I feel like an idiot half the time.

Gosh,

> > I'm only 37.

> >

> > Any advice on getting meds regulated is appreciated. Thanks.

> >

> > (in Indiana)

> >

> >

> >

> > -------------------------------------

> > The Graves' list is intended for informational purposes only and

is not

> > intended to replace expert medical care.

> > Please consult your doctor before changing or trying new

treatments.

> > ----------------------------------------

> > DISCLAIMER

> >

> > Advertisments placed on this yahoo groups list do not have the

endorsement of

> > the listowner. I have no input as to what ads are attached to

emails.

> > ------------------------------------------------------------------

------------

> > --------

> >

> >

[Guest guest]

EXCELLENT ADVICE TERRY!!! Everyone who is taking ATDs should pay

heed to this!!

Granny Chris

> ,

>

> Best advice is to slow down the changes, you're making them too

rapidly, I

> think--although you don't mention how long it took to get to 10

mg., so I am

> assuming the doc cut you from 30 straight to 10? Only the one week

on 10 and

> then you dropped to 5 AND stopped the beta blocker all at once, and

you

> expect your body to know which end is up? Yikes!!!

>

> Go back to 10 if you seemed to be OK on it; but it sounds to me

like you

> dropped too far too fast going from 30 to 10 in the first place,

then didn't

> give your body a chance to normalize on 10 mg. before decreasing

again. You

> may need to go back to 15, to get stable. I take 15 now and have

for 3

> months plus, because I dropped too far and a few other

circumstances sent me

> back out of whack as well. And I was almost in remission, on 1.25

mg. a day.

> You need to give your body a minimum of a month on each dosage

change, and

> when you get below 15mg., my advice is to drop by 2.5 mg. at a

time, unless

> you have severe hypO symptoms on a dose. The longer you take to

wean down,

> being absolutely sure you have remained stable for a month on a

dose (that

> is, that the dose has worked as expected for a full month), the

more likely

> you'll be to keep things under control.

>

> GD is not a monster, it's just a little gremlin. If you keep it in

it's cage

> properly, it won't bite you. But, forget to padlock the door it's

smart

> enough to escape and wreak havoc!

>

> Terry

>

> > From: " "

> > Reply-To: graves_support@y...

> > Date: Tue, 17 Sep 2002 13:21:06 -0000

> > To: graves_support@y...

> > Subject: I'm on a rollercoaster

> >

> > Ok, I was hypO from too much methimazole (30mg). New dr. weaned

me

> > down. At 10mg all last week, I seemed to be doing better. Then

> > yesterday, I went to 5 mg and took the very last of the Inderal (I

> > was being weaned off after 4 months). Last nite.. Bam! I woke up

> > with a start, scared to death I was dying; my heart is racing and

I

> > am breathing hard. I have that nawing axiety in my body and it's

> > driving me crazy!

> >

> > I will give me doctor a call.

> >

> > Is this really that hard to get us regulated? I hate this

disease so

> > much and what it's doing to my body.

> >

> > Did I tell ya to of the memory loss? Huh? What was that? Oh,

yeah,

> > I keep loosing my memory. I feel like an idiot half the time.

Gosh,

> > I'm only 37.

> >

> > Any advice on getting meds regulated is appreciated. Thanks.

> >

> > (in Indiana)

> >

> >

> >

> > -------------------------------------

> > The Graves' list is intended for informational purposes only and

is not

> > intended to replace expert medical care.

> > Please consult your doctor before changing or trying new

treatments.

> > ----------------------------------------

> > DISCLAIMER

> >

> > Advertisments placed on this yahoo groups list do not have the

endorsement of

> > the listowner. I have no input as to what ads are attached to

emails.

> > ------------------------------------------------------------------

------------

> > --------

> >

> >