Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Alas, I too have broken through the tikosyn wall...;( I've tolerated tikosyn far better than the others and would like to continue. I am meeting with my cardiologist today to discuss a few things: 1. I started in AFIB and after taking my next dose of Tikosyn, I converted to Flutter. In the past when this happens, I tend to stay in flutter and have to be cardioverted to get back to NSR. My doctor is suggesting that I have the right side ablation for Flutter so that in the future I will not convert from Afib into Flutter and the chances of converting from Afib to NSR would be more likely. I've talked to an EP at the Washington Hospital Center who feels this is a reasonable treatment. However, It is my personal goal to attempt to make it for a couple more years so that the ablation treatments today can continue to improve. My question is to ask if others in this forum have had this same advice and/or did you take it and what were the results? 2. I am also curious as to if there are others that are on tikosyn that also take other meds to help control the heart rhythm? Sorry for the lengthy post but I want to be better armed to speak to the Drs. After all, it is not their hearts that is getting scarred....! Thanks, Bob Pike Raichel wrote: Hi , (remember me? We're both scheduled at the CC in the fall of 2006.) Sorry to hear you've had some breakthrough episodes with the Tikosyn. What does your doctor say about it? I had lots of breakthrough episodes with Tikosyn, as well, so I know how you must feel. Are you on the max dose? Are the episodes milder? Hang in there; my EP told me it might take a few months for remodeling to take place. Sandy, NC, Tambocor kevinofcalif wrote: > I started Tikosyn 2 weeks ago. I was in NSR for 3 days and had a > minor doublet, triplet type event for a few hours then converted back > to NSR. > > 4 days later I had a bad afib event that took 30 hours to convert > back to NSR. > > > Then 3 days later I had a short afib event that converted back in 3 > hours. > > > 3 days later I went into afib at 1000 at night, and am still in it > nearly 60 hours later. Anyone else have a similar experince with > Tikosyn? > > Web Page - http://www.afibsupport.com List owner: AFIBsupport-owner For help on how to use the group, including how to drive it via email, send a blank email to AFIBsupport-help Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 I take 1000mcg Tikosyn and 100 mg Atenelol per day. I have also had events while on Tikosyn, but I too tolerate it very well, and would like to continue on it until I have my own ablation, which will hopefully be sometime this spring/early summer. As for a flutter ablation... I believe that they are quite common place, and much more refined than the afib ablation. When I spoke with the Dr. about my own ablation for afib, they said they automatically do a flutter ablation on the way out " just in case " . I dont' know much about the actual flutter procedure, but from the description, it sounded like they just make one pass at a certain point in your right atruim, and that's it! Stef 2. I am also curious as to if there are others that are on tikosyn that also take other meds to help control the heart rhythm? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Stef, Thanks for the info. I will ask my cardiologist Friday about antenlol prior to my cardioversion. With regard to your upcoming abation, where will it be and performed by whom? Best Regards, Bob Quarter Acre Orchids wrote: I take 1000mcg Tikosyn and 100 mg Atenelol per day. I have also had events while on Tikosyn, but I too tolerate it very well, and would like to continue on it until I have my own ablation, which will hopefully be sometime this spring/early summer. As for a flutter ablation... I believe that they are quite common place, and much more refined than the afib ablation. When I spoke with the Dr. about my own ablation for afib, they said they automatically do a flutter ablation on the way out " just in case " . I dont' know much about the actual flutter procedure, but from the description, it sounded like they just make one pass at a certain point in your right atruim, and that's it! Stef 2. I am also curious as to if there are others that are on tikosyn that also take other meds to help control the heart rhythm? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 I think the idea is that Tikosyn controls the rhythm, and Atenelol controls the rate.. I know that on 100 mg of Atenelol my morning rate is about 48 and my bedtime rate is usually between 56 and 65. I don't notice being tired, but I do yawn ALL the time...h doesn't seem to keep me from doing things.. I think people must think I'm either sleep deprived, or just bored listening to them.. sometimes it's embarrassing! My doctor thinks that a slow heart is less likely to pop into afib, and if it does, the afib will be slower... my afib is always 150+.. even on the atenelol, but perhaps it makes events less likely? who knows anymore... Good luck with the cardioversion! Stef Deyermond wrote: Stef, Thanks for the info. I will ask my cardiologist Friday about antenlol prior to my cardioversion. With regard to your upcoming abation, where will it be and performed by whom? Best Regards, Bob Quarter Acre Orchids wrote: I take 1000mcg Tikosyn and 100 mg Atenelol per day. I have also had events while on Tikosyn, but I too tolerate it very well, and would like to continue on it until I have my own ablation, which will hopefully be sometime this spring/early summer. As for a flutter ablation... I believe that they are quite common place, and much more refined than the afib ablation. When I spoke with the Dr. about my own ablation for afib, they said they automatically do a flutter ablation on the way out " just in case " . I dont' know much about the actual flutter procedure, but from the description, it sounded like they just make one pass at a certain point in your right atruim, and that's it! Stef 2. I am also curious as to if there are others that are on tikosyn that also take other meds to help control the heart rhythm? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 I think the idea is that Tikosyn controls the rhythm, and Atenelol controls the rate.. I know that on 100 mg of Atenelol my morning rate is about 48 and my bedtime rate is usually between 56 and 65. I don't notice being tired, but I do yawn ALL the time...h doesn't seem to keep me from doing things.. I think people must think I'm either sleep deprived, or just bored listening to them.. sometimes it's embarrassing! My doctor thinks that a slow heart is less likely to pop into afib, and if it does, the afib will be slower... my afib is always 150+.. even on the atenelol, but perhaps it makes events less likely? who knows anymore... Good luck with the cardioversion! Stef Deyermond wrote: Stef, Thanks for the info. I will ask my cardiologist Friday about antenlol prior to my cardioversion. With regard to your upcoming abation, where will it be and performed by whom? Best Regards, Bob Quarter Acre Orchids wrote: I take 1000mcg Tikosyn and 100 mg Atenelol per day. I have also had events while on Tikosyn, but I too tolerate it very well, and would like to continue on it until I have my own ablation, which will hopefully be sometime this spring/early summer. As for a flutter ablation... I believe that they are quite common place, and much more refined than the afib ablation. When I spoke with the Dr. about my own ablation for afib, they said they automatically do a flutter ablation on the way out " just in case " . I dont' know much about the actual flutter procedure, but from the description, it sounded like they just make one pass at a certain point in your right atruim, and that's it! Stef 2. I am also curious as to if there are others that are on tikosyn that also take other meds to help control the heart rhythm? Quote Link to comment Share on other sites More sharing options...
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