Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 Welcome to the group/family hon... Please feel free to ask ANY and ALL questions. Also be sure to check out 's website - it has valuable info that is a MUST for us all. She does have a section on how to explain Lupus to family and friends. That site addy is http://www.itzarion.com/lupusgroup.html Please remember NO 2 Lupus patients are alike, but we have all been there so don't feel any question is too dumb to ask. I look forward to getting to know you better. Feel free to whine, bitch, moan, cry, yell, etc. we are here for you, we are your shoulders... Well I will write more later, I need to get back to the couch as my migraine is killing me. Take care and again welcome aboard. PS how sweet to be sharing your birthday with your son and of all days this year - mothers day... Hugs Deanna > Hello Fellow Lupies! > > Thank you for the wonderful e-mails of support. I am so new at this > and am not sure what is going on with my body. I was just diagnosed > about 1.5 months ago. I am taking Plaquenil, but am in such pain, and > the brain fog/dizziness/fatigue is almost unbearable. > > First of all, a little background. I am 40 years old, I have a > wonderful husband and soon-to-be-15-year-old son (he has to share his > birthday with his Mom on Mother's Day this year, but is SO excited about > getting his learner's permit). We live in Woodstock, Georgia, about 20 > miles northwest of Atlanta. We have 2 great dogs, Keeshonds, that are > like our children. I work for our county school system, and have a > fabulous team of co-workers. > > My only problems with Lupus have been many, many urinary tract > infections, terrible joint and muscle pain, unbearable fatigue, and > fogginess. I have not had any tests to determine other problems, but my > last urinalysis showed protein in my urine, along with other things that > I didn't know what they were. Not sure how much I like my > rheumatologist yet, he seems to be very nonchalant with me. > > Thanks for listening! I am feeling better knowing that I have sources > of information, as well as comraderie out there, since no one I know has > been diagnosed with Lupus before, and haven't even told most of my > friends or family yet, since I don't know much about it. > > I can't wait to hear from you, as I have more questions that I can > count. I look forward to getting to know all of you and hearing your > stories. > > Cheryl Quote Link to comment Share on other sites More sharing options...
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