Get this guys---------- unbelieveable

[Guest guest]

Most of you know- that I have VEDS- and that I live in chronic pain and am on

many medications, including methadone/morphine and a few others....... Well

today- I woke in such severe pain - even with this high medicine load and I

tried to ignore it, thinking - Oh its just a bad EDS day- well , it didnt let

up and I was beginning to shiver/shake etc........ which only worsened my

pain......... and I am- forced into a wheelchair today as I can barely

move.......... Pain is still pretty severe.

I called my dr. but after hrs and he is off duty so they gave me a diff dr

that is on call that Has never met me.

Get this--------- He asked, " What can I do for you? " I said,,,, Well , I

want advice on which way to go- should I go in to ER or just try something more

of what I have on hand here to see if something can help cut down my pain

level.......

He asked again what I had- and I said " Ehlers Danlos Syndrome " - he said

" Ehlers doesn't cause pain----- it just makes your joints flexible........ "

I said , Excuse me ? He said, thats correct maam------ it doesnt cause pain.

I corrected him then - stating that I have Chronic pain --- etc etc----- he

was like in shock that EDS could do such a thing, grrrrrrrrrrrrr- so he just

suggested upping the methadone for the weekend then contacting my dr on Monday -

and if none of that helped to go into the hospital because he couldn't do

anything over the phone.....

He even rudely asked " Well - what do you thing or what do you WANT to do this

weekend for it...... " Geesh, I wish I had not called him-----so I did take an

extra methadone- cut my morphine in half and took half of it...... ( capsule) so

that was fun. took an extra xanax and quinine and ok yes I drank some

beer....... I couldnt stand the pain anymore------ and I'm still hurting like

*********.

Well, my mother came down to be with me for a while, yesterday I had felt

almost human and was so happy that my meds were finally seeming to be of a

help....... then bam----- can't even move and have pain so severe----- I was

feeling I was at death's door.

After mom left- I came in here ( in wheelchair to my office )- and for some

reason I move my medicine holder and it sounded like there were more meds in it

than should be......... so I peeked......... Guess what........ this fool ( ME )

had morning dose ( the most important one- and the most full one ) still

full........... in other words- I forgot morningn dose....... no wonder I was so

miserable................ so I just took those now........ I feel like a

fool...........

Such a fool........

But I am angrier than hell, scuse my french----- that the doctor on the phone

said EDS causes no pain.......... I wanted to reach through the phone, grab hiim

and let him have a feel of how much I was hurting !!!!!!!!!! What

ignorance...............

Thanks for letting me vent............

Hugs- TJ