Re: Caro, good news from new Cerebrovascular specialist

[Guest guest]

Hi all,

Well, I made all my phone calls for tonight.

I am too ... to read email about ... today, but I will improve. I did manage

to keep my specialist appointment yesterday at the JFK Neuroscience Institute

in a large hospital. Gee, I did not know that it was a stroke center. I

supposed they did not know what to make of me. One of the purpose of my visit

was to

get me an MRI or something similar for my colon. Talk about my " weird " body

distracting folks. At least I was not dismissed from the office :-D.

Instead, my new doctor who specialty is Cerebro-vascular medicine gave me a

detailed test for strokes and all that. Even the verbal, memory, reflexes and

pin prick test and the cognitive and thinking parts :-). These tests went well.

I have too many responsibilities these last few days to have time to be

depressed. That might come later :-<.

HA! Pin prick test. He was whacking my arms, legs, feet with pins. I asked

him was it a blunt tip or sharp. I also asked him if it was supposed to hurt ...

and yes, I could feel the pin. No problem with my sense of touch or feel.

Just the sense of pain is " weird. " Hurt? Naaaaa :-D.

And guess what. He rescinded my decades old diagnoses that I had/have TIA

lacuna stoke(s) Daily! Of course we are concerned about my BP so I do << >>

have one. Even I never head of people with BP above 310/200, even if those are

my spikes. My BP drops are not that unusual until you see how low the BP can

drop and how I do not get faint. I just cannot think clearly :-). Just for

seconds as the BP rebounds to " my " normal level.

The nurses had me to lay flat, sit, stand, while they checked my BP. I was my

usual 240/116 or so. Low for me and of course I was not listened to.

So, he had to consider my congenital pelvic problems, unilateral renal

agenesis, nephroptosis, Ehlers-Danlos Syndrome with me and my stretchy blood

vessels

and it's connection to Dysautonomia. Etc. Then we add in the Autonomic

dysfunction symptoms. All went well. I am okay. I did let him know I was

stressed

over the status of my husband.

My next appointment is tests for dysautonomia. Caro

[Guest guest]

Hi all,

Well, I made all my phone calls for tonight.

I am too ... to read email about ... today, but I will improve. I did manage

to keep my specialist appointment yesterday at the JFK Neuroscience Institute

in a large hospital. Gee, I did not know that it was a stroke center. I

supposed they did not know what to make of me. One of the purpose of my visit

was to

get me an MRI or something similar for my colon. Talk about my " weird " body

distracting folks. At least I was not dismissed from the office :-D.

Instead, my new doctor who specialty is Cerebro-vascular medicine gave me a

detailed test for strokes and all that. Even the verbal, memory, reflexes and

pin prick test and the cognitive and thinking parts :-). These tests went well.

I have too many responsibilities these last few days to have time to be

depressed. That might come later :-<.

HA! Pin prick test. He was whacking my arms, legs, feet with pins. I asked

him was it a blunt tip or sharp. I also asked him if it was supposed to hurt ...

and yes, I could feel the pin. No problem with my sense of touch or feel.

Just the sense of pain is " weird. " Hurt? Naaaaa :-D.

And guess what. He rescinded my decades old diagnoses that I had/have TIA

lacuna stoke(s) Daily! Of course we are concerned about my BP so I do << >>

have one. Even I never head of people with BP above 310/200, even if those are

my spikes. My BP drops are not that unusual until you see how low the BP can

drop and how I do not get faint. I just cannot think clearly :-). Just for

seconds as the BP rebounds to " my " normal level.

The nurses had me to lay flat, sit, stand, while they checked my BP. I was my

usual 240/116 or so. Low for me and of course I was not listened to.

So, he had to consider my congenital pelvic problems, unilateral renal

agenesis, nephroptosis, Ehlers-Danlos Syndrome with me and my stretchy blood

vessels

and it's connection to Dysautonomia. Etc. Then we add in the Autonomic

dysfunction symptoms. All went well. I am okay. I did let him know I was

stressed

over the status of my husband.

My next appointment is tests for dysautonomia. Caro