Re: Oregonians

[Guest guest]

lynlorraine wrote:

… Weather will be a challenge with

the two passes for the winter.

Lin wrote:

.. My parents went over to Bend … I always loved to go visit them

… interview for our local paper about this disease...

… he didn't believe that RSD can spread

… just sympathy pain, a nice way to say it is in your head.

… We can still plan to meet it may have to wait until springtime.

--- Hi again Lin!

Do you ever have reason to come to Bend? Yes, it is beautiful

country over here. I do love it. I moved here from Grass Valley,

CA in 1993, one year prior to developing RSD. It was such a drastic

change from the landscape of Grass Valley.

What a great idea to interview with the newspaper. How did that

come about? At the time I was diagnosed with RSD I put an ad in the

local paper for anyone who had or was interested in RSD. I received

two calls from that ad. Your interview may help others to recognize

and understand RSD/CRPS.

The " it's all just in your head " belief system has got to

be stamped

out. It seems that this belief is based on ignorance and

misinformation. It is no more in your head than diabetes! People

don't go around accusing diabetics that it is all in their heads.

It is difficult enough to cope with the pain. Having to convince

people everyday that it is real causes unbelievable suffering on top

of the pain. My patience wears thin on this one, grumble, grumble

…… ..

I'd like very much to plan to meet. We will let the weather

dictate

the " when " and we can consider the " where " . In the

mean time we can

get to know each other through this wonderful group. I am glad to

be here. Just knowing I have a source of many contacts has given me

strength to keep my spirit up in this recurrence of RSD.- Lyn