Severely autistic 3 year old

[Guest guest]

My daughter,n is 3 years old and non verbal. She was diagnosed

at 20 months and put on an intensive behavioural program that has

produced little results. She was put on Nystatin for 3 months and for

the first time the fog seemed to lift. An unchallenged fecal test

revealed that she is very high (95th percentile) for antimony and

berrilium. Her lead and other heavy metals are also high. Copper

levels are reasonable. The Dan doctor in Vancouver doesn't want to

chelate. He feels that she is too young and is afraid to poison her.

I am frustrated. I feel that the heavy metals are partly responsible

for her condition. I was wondering what the alternatives are. What

are the misgivings regarding NDF and PCA? I have searched the

archives and couldn't find any refrences.

[Guest guest]

A lot of little ones are doing great on the transdermal DMPS. My son

is four and is doing fine with it. Get on the chelating kids list. A

lot of two year olds are doing fine with it. Kristy

On Nov 7, 2004, at 12:03 PM, janineweeks wrote:

>

> My daughter,n is 3 years old and non verbal. She was diagnosed

> at 20 months and put on an intensive behavioural program that has

> produced little results. She was put on Nystatin for 3 months and for

> the first time the fog seemed to lift. An unchallenged fecal test

> revealed that she is very high (95th percentile) for antimony and

> berrilium. Her lead and other heavy metals are also high. Copper

> levels are reasonable. The Dan doctor in Vancouver doesn't want to

> chelate. He feels that she is too young and is afraid to poison her.

> I am frustrated. I feel that the heavy metals are partly responsible

> for her condition. I was wondering what the alternatives are. What

> are the misgivings regarding NDF and PCA? I have searched the

> archives and couldn't find any refrences.

>

>

>

>

>

> =======================================================

>

[Guest guest]

I think the thing to do is roll the dice and get a hair test done. It doesn't

hurt as there's no needles. Then when you get them you can apply the results to

Andy's counting rules to see what's up.

The test is the Doctor's Data Inc. " Hair Elements " test. DDI has two hair tests

the other is the " toxic elements " test. You don't want that one. Check the FAQ

for this group which was posted earlier today.

Another easy thing to do is to try the gluten-free casein-free diet. You can

start that by removing all dairy from the diet. If you see some positive results

consider removing all grains as well.

[ ] Severely autistic 3 year old

My daughter,n is 3 years old and non verbal. She was diagnosed

at 20 months and put on an intensive behavioural program that has

produced little results. She was put on Nystatin for 3 months and for

the first time the fog seemed to lift. An unchallenged fecal test

revealed that she is very high (95th percentile) for antimony and

berrilium. Her lead and other heavy metals are also high. Copper

levels are reasonable. The Dan doctor in Vancouver doesn't want to

chelate. He feels that she is too young and is afraid to poison her.

I am frustrated. I feel that the heavy metals are partly responsible

for her condition. I was wondering what the alternatives are. What

are the misgivings regarding NDF and PCA? I have searched the

archives and couldn't find any refrences.

=======================================================

[Guest guest]

My son was diagnosed severely autistic at 21 month old. I started

chelation when he was 23 mo with DMSA, and then I added ALA. A few

months later, he was no more speech delayed (he went from occasional

grunting to talking in full sentences). I followed Andy's protocol

(very low dose every 3-4h). He is almost 3 1/2 yo now and still has

issues (social, play skills) but compared to where he was, it feels

like a miracle! Do not wait to chelate, the younger the child is, the

best.

Do a hair test if you want to make sure about mercury poisonning.

>

> My daughter,n is 3 years old and non verbal. She was diagnosed

> at 20 months and put on an intensive behavioural program that has

> produced little results. She was put on Nystatin for 3 months and

for

> the first time the fog seemed to lift. An unchallenged fecal test

> revealed that she is very high (95th percentile) for antimony and

> berrilium. Her lead and other heavy metals are also high. Copper

> levels are reasonable. The Dan doctor in Vancouver doesn't want to

> chelate. He feels that she is too young and is afraid to poison

her.

> I am frustrated. I feel that the heavy metals are partly

responsible

> for her condition. I was wondering what the alternatives are. What

> are the misgivings regarding NDF and PCA? I have searched the

> archives and couldn't find any refrences.

[Guest guest]

PCA and NDF are expensive and useless. NDF may be dangerous to boot.

You will have to do a bit of research to figure out which chelators

you are comfortable with and suit your daughter's needs best. But in

the meantime you can start on Ojibwa Tea which keeps yeast down and

helps liver and bile function. Some people believe it also removes

metals (although failriy slowly).

You wil need to build up liver and bile function before starting

chelating. Phosphatidylchline, milk thistle, glycien and taurine can

help with this, although some people can react badly to glycine or

taurine, so be careful when trying these. PhosChol is very expensive,

but vrp.com sells it cheaper than most. If this is still too

expensive, just try lecithin but make sure you buy it from a store

that keeps it in the fridge.

Re chelators, several have strong merits. For mercury I think ALA is

generally best and safest, but there is a lot to be said with

starting on DMPS as its eight-hour schedule is easier to handle than

the 3-hour dosing of ALA. After your kid starts improving and you get

more energy, you could add in ALA. DMSA is also very good if lead is

an issue.

Also, are you getting the diet right? You can make enormous changes

just by excluding hydrogenated fats, dumping gluten, switching from

cows milk to sheep & goats dairy products, and adding in Houston

enzymes.

Steve

[Guest guest]

> My daughter,n is 3 years old and non verbal. She was diagnosed

> at 20 months and put on an intensive behavioural program that has

> produced little results.

My son was very low functioning at age 3. The ABA program really did

not help him until I had begun addressing his biomedical issues.

She was put on Nystatin for 3 months and for

> the first time the fog seemed to lift.

Here is more info on how to keep yeast away

http://www.danasview.net/yeast.htm

An unchallenged fecal test

> revealed that she is very high (95th percentile) for antimony and

> berrilium. Her lead and other heavy metals are also high. Copper

> levels are reasonable.

Consider removing sources of current exposures

http://www.danasview.net/metals.htm

>>The Dan doctor in Vancouver doesn't want to

> chelate. He feels that she is too young and is afraid to poison her.

> I am frustrated.

I chelated my #4 [major food intolerance issues, but not yet autistic]

starting when she was age 2-1/2. I started with 10 mg ALA per dose.

I feel that the heavy metals are partly responsible

> for her condition. I was wondering what the alternatives are. What

> are the misgivings regarding NDF and PCA?

Last I checked, those are ALA-based. It is much cheaper to just go to

your local health food store and buy ALA.

I have read more success stories with PCA than I have with NDF.

Good luck.

Dana

[Guest guest]

Janine,

I really think your best bet is to start chelating her ASAP. The metals are

not doing good things staying in her body. Just study the files of this list

very carefully so you can decide on the safest protocol. Realize that

chelating is a long, bumpy ride (a marathon, not a sprint) during which

parents fight yeast, and all kinds of other things, but may children are

coming out on the other side of this with wonderful results.

Barb

[ ] Severely autistic 3 year old

>

>

> My daughter,n is 3 years old and non verbal. She was diagnosed

> at 20 months and put on an intensive behavioural program that has

> produced little results. She was put on Nystatin for 3 months and for

> the first time the fog seemed to lift. An unchallenged fecal test

> revealed that she is very high (95th percentile) for antimony and

> berrilium. Her lead and other heavy metals are also high. Copper

> levels are reasonable. The Dan doctor in Vancouver doesn't want to

> chelate. He feels that she is too young and is afraid to poison her.

> I am frustrated. I feel that the heavy metals are partly responsible

> for her condition. I was wondering what the alternatives are. What

> are the misgivings regarding NDF and PCA? I have searched the

> archives and couldn't find any refrences.

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

IF I WAS YOU I START CHELATING HER IMMEDIATLY!

CHECK THIS WEBSITE

http://home.earthlink.net/~reversingautism/id1.html

jromkema <jromkema@...> wrote:Janine,

I really think your best bet is to start chelating her ASAP. The metals are

not doing good things staying in her body. Just study the files of this list

very carefully so you can decide on the safest protocol. Realize that

chelating is a long, bumpy ride (a marathon, not a sprint) during which

parents fight yeast, and all kinds of other things, but may children are

coming out on the other side of this with wonderful results.

Barb

[ ] Severely autistic 3 year old

>

>

> My daughter,n is 3 years old and non verbal. She was diagnosed

> at 20 months and put on an intensive behavioural program that has

> produced little results. She was put on Nystatin for 3 months and for

> the first time the fog seemed to lift. An unchallenged fecal test

> revealed that she is very high (95th percentile) for antimony and

> berrilium. Her lead and other heavy metals are also high. Copper

> levels are reasonable. The Dan doctor in Vancouver doesn't want to

> chelate. He feels that she is too young and is afraid to poison her.

> I am frustrated. I feel that the heavy metals are partly responsible

> for her condition. I was wondering what the alternatives are. What

> are the misgivings regarding NDF and PCA? I have searched the

> archives and couldn't find any refrences.

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

>

> My daughter,n is 3 years old and non verbal. She was

diagnosed

> at 20 months and put on an intensive behavioural program that has

> produced little results. She was put on Nystatin for 3 months and

for

> the first time the fog seemed to lift. An unchallenged fecal test

> revealed that she is very high (95th percentile) for antimony and

> berrilium. Her lead and other heavy metals are also high. Copper

> levels are reasonable. The Dan doctor in Vancouver doesn't want to

> chelate. He feels that she is too young and is afraid to poison

her.

> I am frustrated. I feel that the heavy metals are partly

responsible

> for her condition. I was wondering what the alternatives are. What

> are the misgivings regarding NDF and PCA? I have searched the

> archives and couldn't find any refrences.

First, if you want to search the archives, you need to search

mach beyond what pressing SEARCH one time will get you.

Read about it here:

http://home.earthlink.net/~moriam/HOW_TO_groups.html

Look for info on searching.

Okay, misgivings about NDF and PCA: expensive, less consistently

helpful than low-frequent-oral-doses of ala (dmsa/dmps).

I'm not sure if negative reactions are more common or not---

there are always some negative reactions to anything and I

don't have a feeling of a large enough data sample for me to

guess. (This means I think I've read some negative reports,

but I don't know enough to know how common this is.)

As for " what your alternatives are " this is a great question.

There are many alternatives. Here is one that I think well of:

http://home.earthlink.net/~moriam/Andy_dose_sched.html

You could also get a hair test done:

http://home.earthlink.net/~moriam/HOW_TO_hair_test.html

Other options available to you are many many many.

In terms of things I would recommend, they are listed already.

There are many other products (besides NDF and PCA)

(and I do not recommend any of them). I have been seeing

ads for some of them lately. There are also many doctors in

the world, and you could find one more supportive if you want

to spend time and effort and money on that. (I don't recommend

for or against this, I think it is sorta kinda personal preference.

Support is helpful wherever you can get it...... and some

doctors may provide it, while others may be anti-supportive.)

good wishes,

Moria

[Guest guest]

Hi Janine,

Are you talking about Vancouver, B.C.?

If so who is your DAN Dr.?

Thanks,

Jen

Vancouver, B.C.

> >

> > My daughter,n is 3 years old and non verbal. She was

> diagnosed

> > at 20 months and put on an intensive behavioural program that has

> > produced little results. She was put on Nystatin for 3 months and

> for

> > the first time the fog seemed to lift. An unchallenged fecal test

> > revealed that she is very high (95th percentile) for antimony and

> > berrilium. Her lead and other heavy metals are also high. Copper

> > levels are reasonable. The Dan doctor in Vancouver doesn't want

to

> > chelate. He feels that she is too young and is afraid to poison

> her.

> > I am frustrated. I feel that the heavy metals are partly

> responsible

> > for her condition. I was wondering what the alternatives are.

What

> > are the misgivings regarding NDF and PCA? I have searched the

> > archives and couldn't find any refrences.

>

> First, if you want to search the archives, you need to search

> mach beyond what pressing SEARCH one time will get you.

> Read about it here:

> http://home.earthlink.net/~moriam/HOW_TO_groups.html

> Look for info on searching.

>

> Okay, misgivings about NDF and PCA: expensive, less consistently

> helpful than low-frequent-oral-doses of ala (dmsa/dmps).

> I'm not sure if negative reactions are more common or not---

> there are always some negative reactions to anything and I

> don't have a feeling of a large enough data sample for me to

> guess. (This means I think I've read some negative reports,

> but I don't know enough to know how common this is.)

>

> As for " what your alternatives are " this is a great question.

> There are many alternatives. Here is one that I think well of:

> http://home.earthlink.net/~moriam/Andy_dose_sched.html

> You could also get a hair test done:

> http://home.earthlink.net/~moriam/HOW_TO_hair_test.html

>

> Other options available to you are many many many.

> In terms of things I would recommend, they are listed already.

> There are many other products (besides NDF and PCA)

> (and I do not recommend any of them). I have been seeing

> ads for some of them lately. There are also many doctors in

> the world, and you could find one more supportive if you want

> to spend time and effort and money on that. (I don't recommend

> for or against this, I think it is sorta kinda personal preference.

> Support is helpful wherever you can get it...... and some

> doctors may provide it, while others may be anti-supportive.)

>

> good wishes,

> Moria