Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 Hi to all! I live in Levittown, PA. 2 months ago I called Dr. Schawtzman's office to make an appointment with him. They told me he is booked until 2006 and that they would contact me in 05 to set up an appointment. I recieve the forms (many) 2 weeks ago and my appointment is set for March, 2006!! LOL This was before he aired on our local TV show. The day he was on TV I had an appointment with my PC doc. He mentioned it was on TV that morning and I showed him my letter from Dr. Schawtzman. My doc said " that is too dangerous, they put you in a coma. Well, that shows how much docs pay attention to RSD. Dr. Schawtzman does not put you in a complete coma, only simi one. Well, anyhow, after I found out it wouldn't be until 06, I called the doc that they told me was also FDA approved to do this treatment. Come to find out it is Dr. Getson in NJ that has RSD in his hand. WOW! So I have an appointment with Dr. Getson in March of next year. I decided to call a podiatrist to have my foot looked at as I have been having so much burning pain and swelling in it and it is traveling up my leg and to the other foot. Come to find out podiatrists don't except my Medicare Keystone 65. So this Doctor said he had a doctor that he recommends for RSD and guess who it was? Dr. Getson! Small world! I am going to make appointments today for my anestesiologist (pain mangement),and xrays and MRI on my foot. I told my doc I wanted my left leg cut off from the knee down! my back pain is always a 7 to a 10. I know so many of you are so much more advanced in your RSD and feel so bad. As far as what Amey had said, I pray constantly for a cure for all of us. And HOPE! What works for one may not work for another. I have passed on blocks myself because any needle that goes in my back feels like ...OUCH!! Hurts bad. But, I think that is only because the few that I have had , they had hit a nerve. Any hoot, we all HOPE and PRAY for the CURE. I will tell you all why they put this program on our local news station. A news anchor in Philly hurt her leg and just found out she has RSD. So, I guess we all had to wait until " someone important " got it!! Figures!!! Sorry about this post becoming a novel, but I have been keeping up with all the post and wanted to jump in with this latest news. I do want to get the ketimine infusion and am willing to be a guinie sp? pig for us. So If I zoon out, I love you all!!! LOL I want to be a mom and grandmom and do somethings and if this can increase my quality of life, I will do it. Right now my life is Zoloft, clonisapam, 2 750 mg vicoden a day, and heating pad, bed, pain, burning, and am now going to go back to amatripiline to see if it helps my back and sleep. I love you guys and I read every post! Chrissy, my prayers are with you. Pam, thanks for the CHRISTMAS card! I will say MERRY CHRISTMAS to all and A Happy Holiday to everyone that agrees with all this stuff about taking CHRIST out of CHRISTMAS! ( Can you tell I ain't liking this stuf? LOL) I am one of the 82% of Cristians in the US and I love the other 16% because they are God's children. I just found out last Christmas at my granddaughter's " Holiday Celabration " at her school that they could not sing any songs thant mentioned GOD or CHRIST! I was shocked! Now they are trying to take GOD out of the Declaration of Independence! This world is bleak........ God Bless you all, have a painfree Holiday, and a better New Year. Nannyshere aka Janet... Praying for the CURE. Quote Link to comment Share on other sites More sharing options...
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