Re: Glad to be here, among friends!!!!!

[Guest guest]

Welcome Babs,

WOOHOO a fellow NYer. I am in upstate in a suburb outside of

Rochester. Feel free to jump into any and all conversations, jokes,

etc. We are more of a family here than a support group but none the

less we offer alot of support =)

If you ever have any questions please do not hesitate to ask, also

you may want to check out 's site she did up for us lots of

information there. Unfortunetly passed away a few weeks ago

but her kind family is allowing to keep the site up and going for the

time being, Bless their hearts. The site addy is

http://www.itzarion.com/lupusgroup.html I look forward to getting to

know you better. BTW feel free to go on and on anytime you want - we

don't mind =)

Take care hon and keep in touch.

Huggles

Deanna

Owner

> Hi everyone,

> Thank you for the wonderful welcomes. I'm so happy to find people

> who know what I'm going through. I was diagnosed with Discoid

Lupus

> in 1979, followed by systemic in 1980. I have renal, cardiac,

joint

> involment, and now lung, I was diagnosed with BOOP pneumonia last

> March. I'm 50 years, and right now because of the BOOP I am not

> working. I have been on oxygen this past year. I thank God every

> day for the help, and support of my family and friends. I know I

> woud be up the creek without them. I've been very luck with my

> doctors too. I live on Long Island, NY and we have great hospitals

> here. I believe in taking one day at a time. You all know how

> frustrating it gets. If you let me I can go on forever LOL.

> so I'll close for now

> Take care everyone

> Hugs Babs