Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Greetings My Fellow Lupies, I just got back from my first visit with my new Rheumatologist.......and guess what..... "I DON'T HAVE LUPUS !!" He didn't examine me or do any lab work .....he just read my Medical files from my other doctors. Now my Nephrologist and my PCP have both told me that all the markers for Lupus were negative which meant that my Lupus was not active.....But THIS doctor said that I am in `REMISSION'....which means that I don't have Lupus anymore.....and probably won't have a recurrance again! He told me that I have Fibromyalgia, and Sjogren's Syndrom.......MY MOUTH IS STILL HANGING OPEN!....... He also said that I don't need to avoid the sun or U.V. rays.....since I don't have Lupus .....He also said that most Lupus Patients don't have Photosensitivity anyway ! .....MOUTH GETTING WIDER......He asked me if I get a rash or flu-like symtoms or fever when I am in the sun......I said I don't test it .....since I was diagnosed with Lupus ....and was told not to go in the sun without sunscreen and a hat and long sleeves....that's what I do. He said he doesn't restrict his Lupus patient from going in the sun unless they have ......something..... I can't remember what he called it that indicates photosensitivity..........He took my blood pressure....which was 150/70......listened to my chest.......pressed on my left ankle and said the slight edema was caused by Norvasc, my blood pressure medication.......He told me to keep seeing my Nephrologist, but my kidney involvment was caused by high blood pressure not Lupus.....Cause I don't have Lupus ! He lowered my dose of Prednisone to 71/2 mg. a day, told me to keep taking all my other meds as usual, and come back in 3 Months........I'm not surprised that he told me that I have Fibromyalgia and Sjogren's Syndrome.......But I don't have Lupus Anymore??? Have I found anotherOr am I a miracle???? Quote Link to comment Share on other sites More sharing options...
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