Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Hi Mia, My son has the same thing. So severe in fact we have been here for 7 weeks, doing 9 castings, going on 10 friday, and we will be needing surgery. Dr. ponseti has said he has only seen 2 other cases as severe as my son's, who is now 11 months. Dr. Ponseti is the best choice there is. He will contact you personally even being 90. The team he has that works with him is awesome! We have been through several dr.'s and wish we had started with Dr. p. I truly do not recommend Shriners. Coming here to Iowa was the best thing we could have done. If you cannot afford all of it, the mcdonald house will not turn you away if you can't pay. They are awesome here. you don't have to worry about a whole lot of food, there is plenty of it always around. Have you contacted your church to ask for help financially? I also know the university will work out a payment plan for you. dr. p will not turn you away either. If you can do it, come here. You will never regret the choice. Each surgery that your child has, which is what the Shriners would do, possibly 2-3 surgeries as they are atypical, will cause your child to have scar tissue which will become painful later on. The more surgeries, the more scar tissue. And it becomes very very tight. If you have any questions or need any other help, please let me know. We are staying at the Mc house right now. I would not be any other place, even as hard as it is to be here. Overall, the ponseti method when done by him, is cheaper than surgeries. And they will work with you. Lord bless you and your little one!! Wold > > My daughter has bilateral nontypical atypical clubfeet (Dr > Ponseti's > > words). What ever that is. We ended up taking her to Dr Ponseti > > also. His website has information for the Mc house. > > They were very nice and I was able to get in for all of the days I > > needed to, but I ended up staying with my aunt anyway. > > You will probably go into the shoes when treatment is > done. > > Those shoes are not covered by insurance but he takes payments > also. > > http://www.mdorthopaedics.org/default.html I would try to get to > see > > as soon as you get to Iowa so you can get your shoes > on > > order. It takes him awhile to get them made. Make sure they > measure > > her feet before they put the first cast on. I am sure they will > take > > care of all of that stuff for you though. They did for me. Bring > > pictures of your daughters feet at birth. Dr Ponseti was very > > intersted in them. > > Good luck. > > > > Tori 1/30/04 bilateral atypical cf brace 18 hrs > > 12/7/01 non cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Hi Mia, My son has the same thing. So severe in fact we have been here for 7 weeks, doing 9 castings, going on 10 friday, and we will be needing surgery. Dr. ponseti has said he has only seen 2 other cases as severe as my son's, who is now 11 months. Dr. Ponseti is the best choice there is. He will contact you personally even being 90. The team he has that works with him is awesome! We have been through several dr.'s and wish we had started with Dr. p. I truly do not recommend Shriners. Coming here to Iowa was the best thing we could have done. If you cannot afford all of it, the mcdonald house will not turn you away if you can't pay. They are awesome here. you don't have to worry about a whole lot of food, there is plenty of it always around. Have you contacted your church to ask for help financially? I also know the university will work out a payment plan for you. dr. p will not turn you away either. If you can do it, come here. You will never regret the choice. Each surgery that your child has, which is what the Shriners would do, possibly 2-3 surgeries as they are atypical, will cause your child to have scar tissue which will become painful later on. The more surgeries, the more scar tissue. And it becomes very very tight. If you have any questions or need any other help, please let me know. We are staying at the Mc house right now. I would not be any other place, even as hard as it is to be here. Overall, the ponseti method when done by him, is cheaper than surgeries. And they will work with you. Lord bless you and your little one!! Wold > > My daughter has bilateral nontypical atypical clubfeet (Dr > Ponseti's > > words). What ever that is. We ended up taking her to Dr Ponseti > > also. His website has information for the Mc house. > > They were very nice and I was able to get in for all of the days I > > needed to, but I ended up staying with my aunt anyway. > > You will probably go into the shoes when treatment is > done. > > Those shoes are not covered by insurance but he takes payments > also. > > http://www.mdorthopaedics.org/default.html I would try to get to > see > > as soon as you get to Iowa so you can get your shoes > on > > order. It takes him awhile to get them made. Make sure they > measure > > her feet before they put the first cast on. I am sure they will > take > > care of all of that stuff for you though. They did for me. Bring > > pictures of your daughters feet at birth. Dr Ponseti was very > > intersted in them. > > Good luck. > > > > Tori 1/30/04 bilateral atypical cf brace 18 hrs > > 12/7/01 non cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 We were kind of lucky because I live in MN so it is only a 6 hour drive. We are very short on money though because my husband has also had a lot of medical problems. I contacted the Mc house but ended up staying with my aunt who lives 2 hours from Iowa City. We are still making a lot of payments like for the shoes and Dr visits. We brought along our own food in a cooler so we didn't have to eat out. The Mc house has a kitchen and stuff you can use. We even had a garage sale to pay for our gas to drive down. I know that sometimes the churches ect have fundraisers to pay for medical expences. You might be able to look into that too. There are some people on the list that have used Angle flights to fly them. Also if you are willing to be a little flexable with your fly out dates it can help with the cost. Even if you have to stay an extra night at Mc it might be worth it to save money on your flight. You could also look at taking a bus. There is also an Angle bus but I think it is just getting started and I don't know where they all go. Good luck. It will be worth it! Quote Link to comment Share on other sites More sharing options...
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