Fw: marginal ulcer

[Guest guest]

This is not h.pylori or other ulcer, only our SPECIFIC kind

*************

OK, yes, have had them many times. Marginal ulcer. OK, you know the stoma? The

OUTLET from the pouch where the intestine attaches TO the pouch? You with me?

OK, make puckered up lips. Look in the mirror. Now, make the opening about as

big as a nickel. Still got it? HOLD that position. Now, put your finger in the

opening. Wherever your finger is touching, THAT is the " margin " of where the

intestine has been attached to the pouch. The stoma or anastamosis. We will

call it a stoma.

OK, so now we know WHERE it is. WHY did they not see it pre-op? It wasn't there

yet. You didn't have a stoma. WHY did it appear so quickly? In a distal like

mine, they can appear within 24 hours. Usually do within 7 days. 's

probably did, as she had the symptoms right from the start. Nausea and/or

vomiting, everything tastes metallic, water feels like sandpaper, might be pain

that feels like you've been kicked, might have back pain------- with me, just

nausea & finally, the kicked pain.

So, now we know WHERE it is and WHY it is there. Or how it got there. AS to why

you? Some do, some don't. The hunk of intestine that is now the stoma WAS

further down the food chain and accustomed to receiving processed foods, all

nice 'n wrapped in saliva & gastric juices. Now, it has been cut and sent to

the front of the line where it is receiving unprocessed anything. YOW! Freak

out! Irritation! Turn everything bright right! Reject! Reject! And so it

swells. And so the opening is now no longer nickel sized. Now you have to

stick your pinky finger in, then a pencil, then a pencil lead as the ulcer

swells & eats up that once nickel sized hole.

FURTHER, while we had your lips puckered & fully functional, in order to move

the food from the pouch, your stoma (lips) make like fish-lips and open/close

(peristalsis), which pulls the food down into the intestine and moves it on down

the line, conveyor belt fashion. That is how it SHOULD work?

Ever had a canker sore? Well, NOW, your nickel is pencil sized, and what

opening is left has now surrounded by a canker sore. White, rigid, it refuses to

perform the peristalsis action.

So, now you know why the food just sits there & does not want to go down.

If you don't clear shortly, be sure to remind your doc that you are malabsorbing

and might need a larger dose of the Nexium. We take TRIPLE the Prilosec to get

any result at all. They also give us Carrafate (gen Sucralfate) for use at

night only, which does not enter the blood stream, but pours a cooling blanket

of healing on that wounded tissue.

Yes, left unattended, they can perforate and then what a mess. However, caught

on time, they are manageable. I think I've had 8 or so. But then, I was an

ulcer factory pre-op, too. So, not a big surprise in my case.

Did I explain it? Or do only I know what I mean? LOL!

Thanks,

Puyallup, WA (state)

Website: www.vitalady.com

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Ulcer..help! (Long)

Hi everyone! My name is Patti..I am 35 years old and had a LAP RNY on

July 12th of this year. I am now 23 days postop and have had some

complications. Just over a week ago I began to have problems getting

my food and liquids down. That went on for a good week and after

trying 3 different meds I was put back in the hospital this past

Wednesday to have an EGD done. I was in so much pain prior to being

admitted. As soon as I was admitted..they started an IV with pepcid

and compazine..I actually began to feel so much better that I didn't

even need the Morphine that my doc ordered for me. I finally had my

EGD done yesterday morning. I was totally out for the test and it

really was a piece of cake. When I came to..I remember asking the doc

who did it what he had found. I thought that it would be a simple

dilation and then i'd be better. BUT he proceeded to tell me that I

had what they call a Gastro Jejenul Anastomatic Ulcer...and that it

was big..now I really had no idea what that was..after I was sent

back to my room no doctor came to see me to explain what was found. I

was told that my surgeon had discharged me to go home..which I knew

would happen..He was in surgery and I see him Tuesday so I knew I

wouldnt see him afterwards..I did however expect one of my gastro

docs to at least have the courtesy to come explain what they found to

me. I was put on full liquids for the next month and i take Nexium 2x

a day..I go back to the doc on the 29th and then another EGD to see

how my ulcer is healing. Thing is..the " diet " if you can call it that

was a mixtire of TWO diet..I got a VBG diet..which was mostly solid

foods..which of course i cant eat..and a standard liquid diet..which

of course I cant eat alot of that either because of the sugar and

acid in the products..so I'm pissed! LOL..anyways has anyone had

anything similar? I mean I know its serious but i'm nervous now..i've

heard bad things about these kinds of ulcers..I cannot believe that

when I went for my Upper GI and had my surgery that NOONE caught

it..IF it was there prior to surgery..can it develop so fast? it's

just 3 weeks..any in[put would be appreciated..thanks so much!

Patti

http://www.geocities.com/dumblond35