Guest guest Posted January 5, 2002 Report Share Posted January 5, 2002 Helloooo out there? Is this still the Fibro/CFS group? I thought maybe I'd joined a group that I didn't know I'd joined....lol. I am just trying to make it a littler lighter here for everyone. I'm not sure what went on and I don't think I want to anymore though. Seems like we might all be a bit short tempered. I really think it's the weather. I know I feel it to and this is the year that's supposed to better I thought? Anyway, better times and much needed pain free times to everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 To all, I'm not saying who's right or who's wrong I actually must have missed the post that everyone is talking about. What I do want to say is let's get back to why we are all here for Support, Listening and Understanding! We are all suffering with one illness or another and we are all here to help each other, I wish everyone nothing but a painfree day........ Em please don't think that way, that you should have taken more pills we are all here for you so don't ever feel alone or as if you have no one to talk too! I will always be here as I'm sure everyone else will be....... Take care everyone...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 To all, I'm not saying who's right or who's wrong I actually must have missed the post that everyone is talking about. What I do want to say is let's get back to why we are all here for Support, Listening and Understanding! We are all suffering with one illness or another and we are all here to help each other, I wish everyone nothing but a painfree day........ Em please don't think that way, that you should have taken more pills we are all here for you so don't ever feel alone or as if you have no one to talk too! I will always be here as I'm sure everyone else will be....... Take care everyone...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 At 09:43 AM 01/06/2002 -0800, Jeane wrote: >There is a big difference between wallowing in self pity and simply >relating our problems. However, you have an equal right to the way you >think, just as do I. Fortunately, I have a loving and understanding >husband with whom I am able to let my hair down completely. Even then, I >just can't afford to stay down for long . . . it hurts to darn much! I >don't know about you or anyone else, but just smiling and being positive >helps my FMS. Actually, it's the only reliable method I have for feeling >better. Well, I was wondering what your reply would be, and it was pretty much as I suspected. If you have a loving and understanding partner, someone who supports you and loves you and helps you out -- then you are miles upon miles ahead of me. This is the reason I left the list the first time. I know my main problem is depression -- clinical depression. My Kenalog shot two days ago is already working to mask my FM pain. I feel MUCH better, and I'm thankful for that. Believe me. You seem to believe that I can choose how I feel about things, and in some ways you are absolutely correct. I go into work with a smile on my face. I make jokes. I tease the EMTs. I get blankets for patients who are uncomfortable, I sometimes will sit a few minutes (the longest I can be away from my station) with those who are especially afraid or unhappy. I call chaplains, I get pillows, I do everything I can to help out. But I attempted suicide about five weeks ago. Cheerful? I have led a far, far different life from you, almost certainly. I have been a professional opera singer, lived in Switzerland, fought the good fight to audition, get jobs, make enough money to live on. Because I loved singing. I started my own opera company here, and I made it last three years (about 2.5 years more than anyone else had ever managed locally). I loved what I was doing, I loved teaching singing, and I loved my friends. But they moved away. I could not keep the company going single-handedly. I took a job 2000 miles away and raised our circulation by 38%; when I asked for a raise 15 months later, I was told what a great job I'd done, what a difference I had made, and was fired three weeks later. I lost my most beloved aunt a year ago. I went for a year and a half without being able to leave my house, from panic, fear, agoraphobia, that sprang up after a part of me -- the part that let me move to Switzerland at 22, the part that has been a risk-taker, a doer -- simply crumbled after many years of use. If you think that depression and anxiety disorders are matters of choice, you are grossly mistaken. " Wallowing in self-pity " -- what a perfect demonstration of utter lack of understanding. I have acted my way through my life, pretending to be happy, cheerful, everyone's fun girl, great joke-teller, wore my heart on my sleeve, loved a lot and lost a lot. But clinical depression isn't a choice. That horrible sly voice that told me a month ago, Do it, kill yourself, no one will care, you don't matter, you're invisible, wasn't something I chose to hear. I've fought that voice for years. I'm fighting it this very moment. And you say I'm wallowing in self-pity? Perhaps was right. Maybe this list isn't what I thought it was. Words and criticism like yours, Jeane, have a devastating impact on people who are already fragile to begin with. Far from being angry any longer, I feel as if I have simply failed. You make me feel as if I am a loser, a mendicant who's really just dead weight, who likes to feel bad, who wants to make others feel bad, too. And sweetheart, I have fought most of my life against that, fought to help other people, fought to *make a difference*. So are depressed people losers? If we aren't cheerful, are we simply wallowing? Maybe I should have taken more pills a month ago. Then I wouldn't get in the way of cheerful people like Jeane. ~~~~~~~~~~~~~ It is the tale, not he who tells it. I no longer need to punish, deceive or compromise myself. Unless, of course, I want to stay employed. Broccoli is bigger than all of us. ~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 At 09:43 AM 01/06/2002 -0800, Jeane wrote: >There is a big difference between wallowing in self pity and simply >relating our problems. However, you have an equal right to the way you >think, just as do I. Fortunately, I have a loving and understanding >husband with whom I am able to let my hair down completely. Even then, I >just can't afford to stay down for long . . . it hurts to darn much! I >don't know about you or anyone else, but just smiling and being positive >helps my FMS. Actually, it's the only reliable method I have for feeling >better. Well, I was wondering what your reply would be, and it was pretty much as I suspected. If you have a loving and understanding partner, someone who supports you and loves you and helps you out -- then you are miles upon miles ahead of me. This is the reason I left the list the first time. I know my main problem is depression -- clinical depression. My Kenalog shot two days ago is already working to mask my FM pain. I feel MUCH better, and I'm thankful for that. Believe me. You seem to believe that I can choose how I feel about things, and in some ways you are absolutely correct. I go into work with a smile on my face. I make jokes. I tease the EMTs. I get blankets for patients who are uncomfortable, I sometimes will sit a few minutes (the longest I can be away from my station) with those who are especially afraid or unhappy. I call chaplains, I get pillows, I do everything I can to help out. But I attempted suicide about five weeks ago. Cheerful? I have led a far, far different life from you, almost certainly. I have been a professional opera singer, lived in Switzerland, fought the good fight to audition, get jobs, make enough money to live on. Because I loved singing. I started my own opera company here, and I made it last three years (about 2.5 years more than anyone else had ever managed locally). I loved what I was doing, I loved teaching singing, and I loved my friends. But they moved away. I could not keep the company going single-handedly. I took a job 2000 miles away and raised our circulation by 38%; when I asked for a raise 15 months later, I was told what a great job I'd done, what a difference I had made, and was fired three weeks later. I lost my most beloved aunt a year ago. I went for a year and a half without being able to leave my house, from panic, fear, agoraphobia, that sprang up after a part of me -- the part that let me move to Switzerland at 22, the part that has been a risk-taker, a doer -- simply crumbled after many years of use. If you think that depression and anxiety disorders are matters of choice, you are grossly mistaken. " Wallowing in self-pity " -- what a perfect demonstration of utter lack of understanding. I have acted my way through my life, pretending to be happy, cheerful, everyone's fun girl, great joke-teller, wore my heart on my sleeve, loved a lot and lost a lot. But clinical depression isn't a choice. That horrible sly voice that told me a month ago, Do it, kill yourself, no one will care, you don't matter, you're invisible, wasn't something I chose to hear. I've fought that voice for years. I'm fighting it this very moment. And you say I'm wallowing in self-pity? Perhaps was right. Maybe this list isn't what I thought it was. Words and criticism like yours, Jeane, have a devastating impact on people who are already fragile to begin with. Far from being angry any longer, I feel as if I have simply failed. You make me feel as if I am a loser, a mendicant who's really just dead weight, who likes to feel bad, who wants to make others feel bad, too. And sweetheart, I have fought most of my life against that, fought to help other people, fought to *make a difference*. So are depressed people losers? If we aren't cheerful, are we simply wallowing? Maybe I should have taken more pills a month ago. Then I wouldn't get in the way of cheerful people like Jeane. ~~~~~~~~~~~~~ It is the tale, not he who tells it. I no longer need to punish, deceive or compromise myself. Unless, of course, I want to stay employed. Broccoli is bigger than all of us. ~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 At 09:43 AM 01/06/2002 -0800, Jeane wrote: >There is a big difference between wallowing in self pity and simply >relating our problems. However, you have an equal right to the way you >think, just as do I. Fortunately, I have a loving and understanding >husband with whom I am able to let my hair down completely. Even then, I >just can't afford to stay down for long . . . it hurts to darn much! I >don't know about you or anyone else, but just smiling and being positive >helps my FMS. Actually, it's the only reliable method I have for feeling >better. Well, I was wondering what your reply would be, and it was pretty much as I suspected. If you have a loving and understanding partner, someone who supports you and loves you and helps you out -- then you are miles upon miles ahead of me. This is the reason I left the list the first time. I know my main problem is depression -- clinical depression. My Kenalog shot two days ago is already working to mask my FM pain. I feel MUCH better, and I'm thankful for that. Believe me. You seem to believe that I can choose how I feel about things, and in some ways you are absolutely correct. I go into work with a smile on my face. I make jokes. I tease the EMTs. I get blankets for patients who are uncomfortable, I sometimes will sit a few minutes (the longest I can be away from my station) with those who are especially afraid or unhappy. I call chaplains, I get pillows, I do everything I can to help out. But I attempted suicide about five weeks ago. Cheerful? I have led a far, far different life from you, almost certainly. I have been a professional opera singer, lived in Switzerland, fought the good fight to audition, get jobs, make enough money to live on. Because I loved singing. I started my own opera company here, and I made it last three years (about 2.5 years more than anyone else had ever managed locally). I loved what I was doing, I loved teaching singing, and I loved my friends. But they moved away. I could not keep the company going single-handedly. I took a job 2000 miles away and raised our circulation by 38%; when I asked for a raise 15 months later, I was told what a great job I'd done, what a difference I had made, and was fired three weeks later. I lost my most beloved aunt a year ago. I went for a year and a half without being able to leave my house, from panic, fear, agoraphobia, that sprang up after a part of me -- the part that let me move to Switzerland at 22, the part that has been a risk-taker, a doer -- simply crumbled after many years of use. If you think that depression and anxiety disorders are matters of choice, you are grossly mistaken. " Wallowing in self-pity " -- what a perfect demonstration of utter lack of understanding. I have acted my way through my life, pretending to be happy, cheerful, everyone's fun girl, great joke-teller, wore my heart on my sleeve, loved a lot and lost a lot. But clinical depression isn't a choice. That horrible sly voice that told me a month ago, Do it, kill yourself, no one will care, you don't matter, you're invisible, wasn't something I chose to hear. I've fought that voice for years. I'm fighting it this very moment. And you say I'm wallowing in self-pity? Perhaps was right. Maybe this list isn't what I thought it was. Words and criticism like yours, Jeane, have a devastating impact on people who are already fragile to begin with. Far from being angry any longer, I feel as if I have simply failed. You make me feel as if I am a loser, a mendicant who's really just dead weight, who likes to feel bad, who wants to make others feel bad, too. And sweetheart, I have fought most of my life against that, fought to help other people, fought to *make a difference*. So are depressed people losers? If we aren't cheerful, are we simply wallowing? Maybe I should have taken more pills a month ago. Then I wouldn't get in the way of cheerful people like Jeane. ~~~~~~~~~~~~~ It is the tale, not he who tells it. I no longer need to punish, deceive or compromise myself. Unless, of course, I want to stay employed. Broccoli is bigger than all of us. ~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 Jeane wrote: > There is a big difference between wallowing in self pity and simply > relating our problems. However, you have an equal right to the way you > think, just as do I. Fortunately, I have a loving and understanding > husband with whom I am able to let my hair down completely. Even then, I > just can't afford to stay down for long . . . it hurts to darn much! I > don't know about you or anyone else, but just smiling and being positive > helps my FMS. Actually, it's the only reliable method I have for feeling > better. There is a huge difference between wallowing in self pity and finding yourself either clinically depressed or in a really miserable spot in life. I also have a loving, supportive husband, but that made no difference at all when I slid into depression. There was no way " cheer up, and look towards the positive " was possible. I *hated* the way I felt, I certainly had *no* desire to be feeling down, most of the time, I couldn't even tell you *why* I felt so bad, I simply did. It wasn't an equal right to think the way I did, it was a chemical imbalance in my brain. I was very fortunate, the very first antidepressant my doctor put me on worked for me. Others aren't so fortunate, it can take years if at all, to find the right antidepressant for them. I fought the idea that there was anything wrong with me besides feeling a little bit down and kept trying to " cheer myself up " . It didn't work. It wasn't until I found myself on the verge of giving away prized possessions that I realized I had a big problem. For other medical reasons, I went off my antidepressants, and spent a month and a half in total misery, until I could go back on them. If I had only abandoned the notion that I was just fine much earlier, I might have been able to go on them for a while and then get off them, similar to a post partum depression woman might. As it is, because I spent so much time trying to cheer myself up, I'll probably have to be on them for the rest of my life. I know you didn't mean anything bad by what you said, I had no idea what depression really was until I found myself there. I'm sorry if this seems as if it's dumping on you, I really don't mean it that way, just trying to explain how my world looks. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 Jeane wrote: > There is a big difference between wallowing in self pity and simply > relating our problems. However, you have an equal right to the way you > think, just as do I. Fortunately, I have a loving and understanding > husband with whom I am able to let my hair down completely. Even then, I > just can't afford to stay down for long . . . it hurts to darn much! I > don't know about you or anyone else, but just smiling and being positive > helps my FMS. Actually, it's the only reliable method I have for feeling > better. There is a huge difference between wallowing in self pity and finding yourself either clinically depressed or in a really miserable spot in life. I also have a loving, supportive husband, but that made no difference at all when I slid into depression. There was no way " cheer up, and look towards the positive " was possible. I *hated* the way I felt, I certainly had *no* desire to be feeling down, most of the time, I couldn't even tell you *why* I felt so bad, I simply did. It wasn't an equal right to think the way I did, it was a chemical imbalance in my brain. I was very fortunate, the very first antidepressant my doctor put me on worked for me. Others aren't so fortunate, it can take years if at all, to find the right antidepressant for them. I fought the idea that there was anything wrong with me besides feeling a little bit down and kept trying to " cheer myself up " . It didn't work. It wasn't until I found myself on the verge of giving away prized possessions that I realized I had a big problem. For other medical reasons, I went off my antidepressants, and spent a month and a half in total misery, until I could go back on them. If I had only abandoned the notion that I was just fine much earlier, I might have been able to go on them for a while and then get off them, similar to a post partum depression woman might. As it is, because I spent so much time trying to cheer myself up, I'll probably have to be on them for the rest of my life. I know you didn't mean anything bad by what you said, I had no idea what depression really was until I found myself there. I'm sorry if this seems as if it's dumping on you, I really don't mean it that way, just trying to explain how my world looks. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 janissa@... wrote: > Well, I was wondering what your reply would be, and it was pretty much as I > suspected. If you have a loving and understanding partner, someone who > supports you and loves you and helps you out -- then you are miles upon > miles ahead of me. I agree with this, Em, those of us with supportive spouses and families are way ahead of those who have to fight on their own. > > You seem to believe that I can choose how I feel about things, and in some > ways you are absolutely correct. I go into work with a smile on my > face. I make jokes. I tease the EMTs. No one at my work place except for the guy I worked directly with and a lady I ate lunch (and they were only because I told them) with had the slightest idea I was depressed. I had a smile on my face, made jokes with everyone, chatted with people and seemed pretty normal on the face of it. Even on the days, I only made it in because I absolutely forced myself, no one knew how bad I was. You can't judge a book by it's cover. > -- the > part that let me move to Switzerland at 22, the part that has been a > risk-taker, a doer -- simply crumbled after many years of use. I also finally couldn't do it anymore, I realized I needed help. I forced myself through a lot of life, but there was a limit and I hit it. > So are depressed people losers? If we aren't cheerful, are we simply > wallowing? > > Maybe I should have taken more pills a month ago. Then I wouldn't get in > the way of cheerful people like Jeane. No, Em, not taking more pills was a good choice not a bad. It may not feel like that right now, but it's true. Depressed people are neither losers nor wallowing. Anyone who has ever experienced clinical depression or anxiety would never choose to feel like that. I know I sure wouldn't!! Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 janissa@... wrote: > Well, I was wondering what your reply would be, and it was pretty much as I > suspected. If you have a loving and understanding partner, someone who > supports you and loves you and helps you out -- then you are miles upon > miles ahead of me. I agree with this, Em, those of us with supportive spouses and families are way ahead of those who have to fight on their own. > > You seem to believe that I can choose how I feel about things, and in some > ways you are absolutely correct. I go into work with a smile on my > face. I make jokes. I tease the EMTs. No one at my work place except for the guy I worked directly with and a lady I ate lunch (and they were only because I told them) with had the slightest idea I was depressed. I had a smile on my face, made jokes with everyone, chatted with people and seemed pretty normal on the face of it. Even on the days, I only made it in because I absolutely forced myself, no one knew how bad I was. You can't judge a book by it's cover. > -- the > part that let me move to Switzerland at 22, the part that has been a > risk-taker, a doer -- simply crumbled after many years of use. I also finally couldn't do it anymore, I realized I needed help. I forced myself through a lot of life, but there was a limit and I hit it. > So are depressed people losers? If we aren't cheerful, are we simply > wallowing? > > Maybe I should have taken more pills a month ago. Then I wouldn't get in > the way of cheerful people like Jeane. No, Em, not taking more pills was a good choice not a bad. It may not feel like that right now, but it's true. Depressed people are neither losers nor wallowing. Anyone who has ever experienced clinical depression or anxiety would never choose to feel like that. I know I sure wouldn't!! Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 janissa@... wrote: > Well, I was wondering what your reply would be, and it was pretty much as I > suspected. If you have a loving and understanding partner, someone who > supports you and loves you and helps you out -- then you are miles upon > miles ahead of me. I agree with this, Em, those of us with supportive spouses and families are way ahead of those who have to fight on their own. > > You seem to believe that I can choose how I feel about things, and in some > ways you are absolutely correct. I go into work with a smile on my > face. I make jokes. I tease the EMTs. No one at my work place except for the guy I worked directly with and a lady I ate lunch (and they were only because I told them) with had the slightest idea I was depressed. I had a smile on my face, made jokes with everyone, chatted with people and seemed pretty normal on the face of it. Even on the days, I only made it in because I absolutely forced myself, no one knew how bad I was. You can't judge a book by it's cover. > -- the > part that let me move to Switzerland at 22, the part that has been a > risk-taker, a doer -- simply crumbled after many years of use. I also finally couldn't do it anymore, I realized I needed help. I forced myself through a lot of life, but there was a limit and I hit it. > So are depressed people losers? If we aren't cheerful, are we simply > wallowing? > > Maybe I should have taken more pills a month ago. Then I wouldn't get in > the way of cheerful people like Jeane. No, Em, not taking more pills was a good choice not a bad. It may not feel like that right now, but it's true. Depressed people are neither losers nor wallowing. Anyone who has ever experienced clinical depression or anxiety would never choose to feel like that. I know I sure wouldn't!! Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 Yes, I too paste a smile on my face, a performance most of the time. Now that I am close to disability, it is hard for others to understand that this " quick change " has not been quick, just well=concealed, tho not so well at times. I totally agree with you, Darcy, well said! Hang in there, Em, you made the right choice, not taking the pills, please keep writing, there are others out here who know how it is for you right now. Usually, I can't say that to someone, " I know how you feel " , but in this case I do know. Carol -- > > > I agree with this, Em, those of us with supportive spouses and families > are way ahead of those who have to fight on their own. > > >> > of it. Even on the days, I only made it in because I absolutely forced > myself, no one knew how bad I was. You can't judge a book by it's > cover. > > >> - > > No, Em, not taking more pills was a good choice not a bad. It may not > feel like that right now, but it's true. Depressed people are neither > losers nor wallowing. Anyone who has ever experienced clinical > depression or anxiety would never choose to feel like that. I know I > sure wouldn't!! > Darcy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 Yes, I too paste a smile on my face, a performance most of the time. Now that I am close to disability, it is hard for others to understand that this " quick change " has not been quick, just well=concealed, tho not so well at times. I totally agree with you, Darcy, well said! Hang in there, Em, you made the right choice, not taking the pills, please keep writing, there are others out here who know how it is for you right now. Usually, I can't say that to someone, " I know how you feel " , but in this case I do know. Carol -- > > > I agree with this, Em, those of us with supportive spouses and families > are way ahead of those who have to fight on their own. > > >> > of it. Even on the days, I only made it in because I absolutely forced > myself, no one knew how bad I was. You can't judge a book by it's > cover. > > >> - > > No, Em, not taking more pills was a good choice not a bad. It may not > feel like that right now, but it's true. Depressed people are neither > losers nor wallowing. Anyone who has ever experienced clinical > depression or anxiety would never choose to feel like that. I know I > sure wouldn't!! > Darcy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 Yes, I too paste a smile on my face, a performance most of the time. Now that I am close to disability, it is hard for others to understand that this " quick change " has not been quick, just well=concealed, tho not so well at times. I totally agree with you, Darcy, well said! Hang in there, Em, you made the right choice, not taking the pills, please keep writing, there are others out here who know how it is for you right now. Usually, I can't say that to someone, " I know how you feel " , but in this case I do know. Carol -- > > > I agree with this, Em, those of us with supportive spouses and families > are way ahead of those who have to fight on their own. > > >> > of it. Even on the days, I only made it in because I absolutely forced > myself, no one knew how bad I was. You can't judge a book by it's > cover. > > >> - > > No, Em, not taking more pills was a good choice not a bad. It may not > feel like that right now, but it's true. Depressed people are neither > losers nor wallowing. Anyone who has ever experienced clinical > depression or anxiety would never choose to feel like that. I know I > sure wouldn't!! > Darcy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 At 05:13 PM 01/06/2002 -0500, Darcy Stockstill wrote: >There is a huge difference between wallowing in self pity and finding >yourself either clinically depressed or in a really miserable spot in >life. I've been (nicely) told in private correspondence that a lot of people don't understand that clinical depression is chemical, not something you can turn off and on like a lamp. And I agree with her. For me, depression has been a battle literally since I was a small child. Fibromyalgia, OTOH, has been a problem for under two years. I have found a moderately successful treatment for my FM, one that has worked for six months, and I am so vastly pleased I can't even articulate it. What has struck me as ironic and bitter about Jeane's posts is that it is a mirror image of our communal struggle to get the public to recognize fibromyalgia and CFS. As a group we would be up in arms if told we were simply indulging in vague, formless symptoms that had no organic cause. And yet this is essentially what Jeane has said regarding depression. Jeane, along with your cheerful outlook, I encourage you to cultivate compassion. Just because you do not experience something yourself does not mean it is not very, very real. You would not mock a person with cancer because you do not believe it exists. And depression, unfortunately, can be a killer, too. I'm clinically depressed, chronically agoraphobic, and struggling as well with a number of anxiety problems and obsessive-compulsive behaviors. Clearly this is not a battle you share. But it is no less real for that reason. My mother watched me a year ago, awake for 72 hours, constantly weeping and circling the house and hardly able to speak, because of my absolute terror of going alone to Dallas to a friend's wedding. One of my best friends. There was nothing my mother could do, and there was no way for me to control what was happening. With my mother's support and encouragement, I called this friend in tears and explained that I would not be able to attend, and that I would explain the reasons later, since this was a joyous time in his life. Do you honestly think that I wanted to feel that way, or had any control over the fears that dominated my life and continue to pull me in every direction? Do I enjoy feeling that way? I no more enjoy it than you enjoy the pain and frustration of fibromyalgia. And I am fighting it, exactly as I fight my FM, with every weapon at my disposal, and every ounce of determination I possess. Mental illness isn't a choice. Any more than fibromyalgia was a choice. Even when we do not experience what someone else is experiencing, we can at least respect that their experience is valid and serious. ~~~~~~~~~~~~~ It is the tale, not he who tells it. I no longer need to punish, deceive or compromise myself. Unless, of course, I want to stay employed. Broccoli is bigger than all of us. ~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 At 05:13 PM 01/06/2002 -0500, Darcy Stockstill wrote: >There is a huge difference between wallowing in self pity and finding >yourself either clinically depressed or in a really miserable spot in >life. I've been (nicely) told in private correspondence that a lot of people don't understand that clinical depression is chemical, not something you can turn off and on like a lamp. And I agree with her. For me, depression has been a battle literally since I was a small child. Fibromyalgia, OTOH, has been a problem for under two years. I have found a moderately successful treatment for my FM, one that has worked for six months, and I am so vastly pleased I can't even articulate it. What has struck me as ironic and bitter about Jeane's posts is that it is a mirror image of our communal struggle to get the public to recognize fibromyalgia and CFS. As a group we would be up in arms if told we were simply indulging in vague, formless symptoms that had no organic cause. And yet this is essentially what Jeane has said regarding depression. Jeane, along with your cheerful outlook, I encourage you to cultivate compassion. Just because you do not experience something yourself does not mean it is not very, very real. You would not mock a person with cancer because you do not believe it exists. And depression, unfortunately, can be a killer, too. I'm clinically depressed, chronically agoraphobic, and struggling as well with a number of anxiety problems and obsessive-compulsive behaviors. Clearly this is not a battle you share. But it is no less real for that reason. My mother watched me a year ago, awake for 72 hours, constantly weeping and circling the house and hardly able to speak, because of my absolute terror of going alone to Dallas to a friend's wedding. One of my best friends. There was nothing my mother could do, and there was no way for me to control what was happening. With my mother's support and encouragement, I called this friend in tears and explained that I would not be able to attend, and that I would explain the reasons later, since this was a joyous time in his life. Do you honestly think that I wanted to feel that way, or had any control over the fears that dominated my life and continue to pull me in every direction? Do I enjoy feeling that way? I no more enjoy it than you enjoy the pain and frustration of fibromyalgia. And I am fighting it, exactly as I fight my FM, with every weapon at my disposal, and every ounce of determination I possess. Mental illness isn't a choice. Any more than fibromyalgia was a choice. Even when we do not experience what someone else is experiencing, we can at least respect that their experience is valid and serious. ~~~~~~~~~~~~~ It is the tale, not he who tells it. I no longer need to punish, deceive or compromise myself. Unless, of course, I want to stay employed. Broccoli is bigger than all of us. ~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 At 05:13 PM 01/06/2002 -0500, Darcy Stockstill wrote: >There is a huge difference between wallowing in self pity and finding >yourself either clinically depressed or in a really miserable spot in >life. I've been (nicely) told in private correspondence that a lot of people don't understand that clinical depression is chemical, not something you can turn off and on like a lamp. And I agree with her. For me, depression has been a battle literally since I was a small child. Fibromyalgia, OTOH, has been a problem for under two years. I have found a moderately successful treatment for my FM, one that has worked for six months, and I am so vastly pleased I can't even articulate it. What has struck me as ironic and bitter about Jeane's posts is that it is a mirror image of our communal struggle to get the public to recognize fibromyalgia and CFS. As a group we would be up in arms if told we were simply indulging in vague, formless symptoms that had no organic cause. And yet this is essentially what Jeane has said regarding depression. Jeane, along with your cheerful outlook, I encourage you to cultivate compassion. Just because you do not experience something yourself does not mean it is not very, very real. You would not mock a person with cancer because you do not believe it exists. And depression, unfortunately, can be a killer, too. I'm clinically depressed, chronically agoraphobic, and struggling as well with a number of anxiety problems and obsessive-compulsive behaviors. Clearly this is not a battle you share. But it is no less real for that reason. My mother watched me a year ago, awake for 72 hours, constantly weeping and circling the house and hardly able to speak, because of my absolute terror of going alone to Dallas to a friend's wedding. One of my best friends. There was nothing my mother could do, and there was no way for me to control what was happening. With my mother's support and encouragement, I called this friend in tears and explained that I would not be able to attend, and that I would explain the reasons later, since this was a joyous time in his life. Do you honestly think that I wanted to feel that way, or had any control over the fears that dominated my life and continue to pull me in every direction? Do I enjoy feeling that way? I no more enjoy it than you enjoy the pain and frustration of fibromyalgia. And I am fighting it, exactly as I fight my FM, with every weapon at my disposal, and every ounce of determination I possess. Mental illness isn't a choice. Any more than fibromyalgia was a choice. Even when we do not experience what someone else is experiencing, we can at least respect that their experience is valid and serious. ~~~~~~~~~~~~~ It is the tale, not he who tells it. I no longer need to punish, deceive or compromise myself. Unless, of course, I want to stay employed. Broccoli is bigger than all of us. ~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2002 Report Share Posted January 7, 2002 >If you have a loving and understanding partner, someone who >supports you and loves you and helps you out -- then you are miles upon >miles ahead of me. Yes, I am very fortunate, and I realize that . . . but I didn't always have Jim. We've only been together for 4 years. Before that I cared for my late husband Ray, who died slowly and painfully from AIDS-related diseases. He was blind, barely able to speak, wheel-chair bound . . . and he had FMS! We lived in Oklahoma, were very poor, and could not afford nursing care. It was difficult, but we got through each day by making each other laugh. >But I attempted suicide about five weeks ago. Cheerful? I have led a far, >far different life from you, almost certainly. I have been a professional >opera singer, lived in Switzerland, fought the good fight to audition, get >jobs, make enough money to live on. Well, we have something in common. I have MA's in Speech Communication and Theater Arts, and until recently was active in several local musical theater groups as well as doing the occasional " professional " gig. I taught for many years at the college level. OK, so now the FMS is so bad it has effected both my singing and speaking voice. Five years ago I lost my lovely husband, my career, and my hobby/avocation. Excuse me for trying to make the best of the worst situation! I refuse to let anyone or anything get the best of me!! " The seabird struggles in the wind, she topples, balances again. " Joan Baez . . . wonderful words to live by. Jeane aka roseStorm aka Scorpi I used to have a handle on life, but it broke. We fear things in proportion to our ignorance of them. " - Livy, Roman historian (64 B.C.-17 A.D.) Scorpie's World http://www.geocities.com/scorpijeane/ Caught in the Eye of the Red Storm http://www.geocities.com/myredstorm/ Southwest Adventure http://www.geocities.com/swadventure/ Graphics with PANACHE! http://www.geocities.com/graphicswithpanache/ 's Roost http://www.geocities.com/raymondsroost/ In Memory of June Conant Rae http://www.geocities.com/junebug1918/ Rebel Roars http://www.geocities.com/rebelroars/ Zootopia 2000 http://www.geocities.com/zootopia2000/ Kananiopuna's Korner of Paradise http://www.geocities.com/kananiopuna/ -- GENEALOGY SITE My RAE Family Tree http://www.geocities.com/myraetree/ -- GENEALOGY SITE Webmaster for: WHIVRING http://www.geocities.com/raymondsroost/WHIV/ Health & Recovery Webring http://www.geocities.com/raymondsroost/RECOVERY.HTM Ring of Rhetoric http://www.geocities.com/scorpijeane/Rings/ror.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2002 Report Share Posted January 7, 2002 , From someone who also has been diagnosed with Clincal Depression, I hear ya. It is something that never goes away, also even when you are on anti-depressants it still doesn't go away, it evens out a bit but those depressed thoughts are still there they are just easier to deal with on the medication. My mother never understood either that there was something missing in my brain that was why I was so depressed and anti-social. She always and still thinks that I should just snap out of it but I can't unless I am fully medicated. Tara > > >There is a huge difference between wallowing in self pity and finding > >yourself either clinically depressed or in a really miserable spot in > >life. > > I've been (nicely) told in private correspondence that a lot of people > don't understand that clinical depression is chemical, not something you > can turn off and on like a lamp. And I agree with her. > > For me, depression has been a battle literally since I was a small > child. Fibromyalgia, OTOH, has been a problem for under two years. I have > found a moderately successful treatment for my FM, one that has worked for > six months, and I am so vastly pleased I can't even articulate it. > > What has struck me as ironic and bitter about Jeane's posts is that it is a > mirror image of our communal struggle to get the public to recognize > fibromyalgia and CFS. As a group we would be up in arms if told we were > simply indulging in vague, formless symptoms that had no organic > cause. And yet this is essentially what Jeane has said regarding depression. > > Jeane, along with your cheerful outlook, I encourage you to cultivate > compassion. Just because you do not experience something yourself does not > mean it is not very, very real. You would not mock a person with cancer > because you do not believe it exists. And depression, unfortunately, can > be a killer, too. I'm clinically depressed, chronically agoraphobic, and > struggling as well with a number of anxiety problems and > obsessive-compulsive behaviors. Clearly this is not a battle you > share. But it is no less real for that reason. My mother watched me a > year ago, awake for 72 hours, constantly weeping and circling the house and > hardly able to speak, because of my absolute terror of going alone to > Dallas to a friend's wedding. One of my best friends. There was nothing > my mother could do, and there was no way for me to control what was > happening. With my mother's support and encouragement, I called this > friend in tears and explained that I would not be able to attend, and that > I would explain the reasons later, since this was a joyous time in his life. > > Do you honestly think that I wanted to feel that way, or had any control > over the fears that dominated my life and continue to pull me in every > direction? Do I enjoy feeling that way? I no more enjoy it than you enjoy > the pain and frustration of fibromyalgia. And I am fighting it, exactly as > I fight my FM, with every weapon at my disposal, and every ounce of > determination I possess. > > Mental illness isn't a choice. Any more than fibromyalgia was a > choice. Even when we do not experience what someone else is experiencing, > we can at least respect that their experience is valid and serious. > > > > ~~~~~~~~~~~~~ > It is the tale, not he who tells it. > > I no longer need to punish, deceive or compromise myself. > Unless, of course, I want to stay employed. > > Broccoli is bigger than all of us. > ~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2002 Report Share Posted January 7, 2002 Hey Em, I've fought the same battle, will probably continue to fight it my whole life, and I KNOW how bad it sucks first hand. If I hadn't finally gone for help, who knows where or if I would be right now, but what limited me as much as the depression were the attitudes that were passed on to me, that I should be able to " cheer up " and get over it, that I was somehow contributing to my state of mind simply because I was too " weak " to help myself. I don't think anyone who hasn't experienced clinical depression can ever understand what it is like. If they had they would KNOW that no one would ever CHOOSE to be in such a hideously ugly place. When there is no pleasure in anything, when happiness is just a word, when getting out of bed to face the day is an act of monumental proportions, when you live with fear at every turn and your body betrays your every effort, it is like living in hell. It is so miserable some people feel they have no choice but to end their lives. When you add physical pain to that equation, it is a wonder any of us survive, but we do. Em, I know you already know this in your heart, but you are not a failure or a loser, no matter what anyone or your own chemically altered brain says. You know what you have accomplished and contributed, especially to other's suffering. It is terribly unfair that the kindest people seem to be the ones who suffer the most, but the fact is, you are one of the good ones, I have read your posts and heard your story. I wish I could whisper the magic words or possessed the magic balm to heal and protect you, but the best I can do is to tell you I care about you and understand. You are a warm and intelligent woman who has my respect, and I'm sure many others will say the same. I know you don't really want to die, just escape from the misery, and I also know how hard it is to go on lugging around all that physical and emotional pain, but we are an army millions strong, and we would be missed, regardless of what our misfiring brains tell us. My days aren't always filled with joy, but thanks to hitting upon a good combo of medication I have found hope again, I can experience pleasure, I can like the face in the mirror. Now I CAN choose how I react, and my thoughts are rational and not twisted, (for the most part, LOL) Even in my worst FMS flare, I am able to see past it and still have a life, albeit very physically limited, I can dig up something to distract me and switch the focus. I don't remember what route you have taken medically for your depression, I'm not a doctor,but it is obvious it hasn't been beneficial and needs to be pursued further. Feel free to write me if you need to dump, I will be happy to listen, no judgment here. Your friend, Char Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 Jeane wrote: He was blind, barely able to speak, wheel-chair bound . . . and > he had FMS! We lived in Oklahoma, were very poor, and could not afford > nursing care. It was difficult, but we got through each day by making each > other laugh. Jeane, I'm sorry to hear that your first husband had some many problems, but how wonderful that you were able to work together rather than the problems spitting you as so many couples do. > Five years ago I lost > my lovely husband, my career, and my hobby/avocation. Excuse me for trying > to make the best of the worst situation! I refuse to let anyone or > anything get the best of me!! You certainly lost a lot that not a lot of people do. I also went through a lot including the loss of what family my husband and I had left (we have some brothers, but they choose not to want to be a family with the exception of one of my brothers). My husband and I also chose to pull together rather than split apart. Somewhere in all of that loss and stress, it ceased to become my choice on how to react to things. My body physically changed and became depressed. I *couldn't* choose to be happy, no matter how much I tried. My body physically wouldn't let me be happy. I was fortunate to find an antidepressant that worked for me the first try. Now, I'm mostly back to the person I was before I became depressed. Sometimes, I will still become a little depressed for no reason even though I don't want to be, but that doesn't happen very often any more. Yesterday, I was walking through a store similar to what I use to work in during high school and collage. I heard a couple of the clerks talking about another clerk, and the one said to the other " oh, she's so great, she really knows what she is doing " . This made me sad because *I* use to be that person, all the managers loved to have me work for them because I was hard working, dependable and did a great job. That's who I've *always* been, but I'm not that person any more. I was sad for a few more feet and then I said to myself, " well, I'll just have to figure out a new way for me to be appreciated in that kind of a vein " . I chose to be happy because it was better than being sad, but had I not be on antidepressants, I wouldn't have even been able to make that choice. I had a hard time understand depression until I became depressed. I think you deserve a lot of credit for making the best of your situation, please realize not everyone can do that. Thanks Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 Darcy Thank you for you consideration. I agree, antidepressants do help, and sometimes it does seem like we can't do anything. I'm just saying that we cannot give in to all this. When everything is at its worst, we need to pull inside ourselves and find even the tiniest bit of strength and pull it out. " Forcing " a more positive attitude helps to do this. I've just found that if I can " put on " that facade, it eventually becomes real. ACK! It's really difficult to explain. HMMM . . . I guess it's just that I push very hard to not let myself stay down . . . I still get very low, more than I'd like! I have simply determined to not stay there and not go further. Maybe it's a mind over matter thing? I just know it has made a big difference in my life! I used to be an extremely negative person, now I'm not, and I'm so very much happier. >Jeane wrote: > He was blind, barely able to speak, wheel-chair bound . . . and > > he had FMS! We lived in Oklahoma, were very poor, and could not afford > > nursing care. It was difficult, but we got through each day by making each > > other laugh. > >Jeane, I'm sorry to hear that your first husband had some many problems, >but how wonderful that you were able to work together rather than the >problems spitting you as so many couples do. > > > > Five years ago I lost > > my lovely husband, my career, and my hobby/avocation. Excuse me for trying > > to make the best of the worst situation! I refuse to let anyone or > > anything get the best of me!! > >You certainly lost a lot that not a lot of people do. I also went >through a lot including the loss of what family my husband and I had >left (we have some brothers, but they choose not to want to be a family >with the exception of one of my brothers). My husband and I also chose >to pull together rather than split apart. Somewhere in all of that loss >and stress, it ceased to become my choice on how to react to things. My >body physically changed and became depressed. I *couldn't* choose to be >happy, no matter how much I tried. My body physically wouldn't let me be >happy. I was fortunate to find an antidepressant that worked for me the >first try. Now, I'm mostly back to the person I was before I became >depressed. Sometimes, I will still become a little depressed for no >reason even though I don't want to be, but that doesn't happen very >often any more. > >Yesterday, I was walking through a store similar to what I use to work >in during high school and collage. I heard a couple of the clerks >talking about another clerk, and the one said to the other " oh, she's so >great, she really knows what she is doing " . This made me sad because >*I* use to be that person, all the managers loved to have me work for >them because I was hard working, dependable and did a great job. That's >who I've *always* been, but I'm not that person any more. I was sad for >a few more feet and then I said to myself, " well, I'll just have to >figure out a new way for me to be appreciated in that kind of a vein " . >I chose to be happy because it was better than being sad, but had I not >be on antidepressants, I wouldn't have even been able to make that >choice. I had a hard time understand depression until I became >depressed. I think you deserve a lot of credit for making the best of >your situation, please realize not everyone can do that. >Thanks >Darcy > > > >SEND POST TO: fibromyalgia-cfs > >HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html >LIST OWNER: " Missy " Parrot004@...> >UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 Darcy Thank you for you consideration. I agree, antidepressants do help, and sometimes it does seem like we can't do anything. I'm just saying that we cannot give in to all this. When everything is at its worst, we need to pull inside ourselves and find even the tiniest bit of strength and pull it out. " Forcing " a more positive attitude helps to do this. I've just found that if I can " put on " that facade, it eventually becomes real. ACK! It's really difficult to explain. HMMM . . . I guess it's just that I push very hard to not let myself stay down . . . I still get very low, more than I'd like! I have simply determined to not stay there and not go further. Maybe it's a mind over matter thing? I just know it has made a big difference in my life! I used to be an extremely negative person, now I'm not, and I'm so very much happier. >Jeane wrote: > He was blind, barely able to speak, wheel-chair bound . . . and > > he had FMS! We lived in Oklahoma, were very poor, and could not afford > > nursing care. It was difficult, but we got through each day by making each > > other laugh. > >Jeane, I'm sorry to hear that your first husband had some many problems, >but how wonderful that you were able to work together rather than the >problems spitting you as so many couples do. > > > > Five years ago I lost > > my lovely husband, my career, and my hobby/avocation. Excuse me for trying > > to make the best of the worst situation! I refuse to let anyone or > > anything get the best of me!! > >You certainly lost a lot that not a lot of people do. I also went >through a lot including the loss of what family my husband and I had >left (we have some brothers, but they choose not to want to be a family >with the exception of one of my brothers). My husband and I also chose >to pull together rather than split apart. Somewhere in all of that loss >and stress, it ceased to become my choice on how to react to things. My >body physically changed and became depressed. I *couldn't* choose to be >happy, no matter how much I tried. My body physically wouldn't let me be >happy. I was fortunate to find an antidepressant that worked for me the >first try. Now, I'm mostly back to the person I was before I became >depressed. Sometimes, I will still become a little depressed for no >reason even though I don't want to be, but that doesn't happen very >often any more. > >Yesterday, I was walking through a store similar to what I use to work >in during high school and collage. I heard a couple of the clerks >talking about another clerk, and the one said to the other " oh, she's so >great, she really knows what she is doing " . This made me sad because >*I* use to be that person, all the managers loved to have me work for >them because I was hard working, dependable and did a great job. That's >who I've *always* been, but I'm not that person any more. I was sad for >a few more feet and then I said to myself, " well, I'll just have to >figure out a new way for me to be appreciated in that kind of a vein " . >I chose to be happy because it was better than being sad, but had I not >be on antidepressants, I wouldn't have even been able to make that >choice. I had a hard time understand depression until I became >depressed. I think you deserve a lot of credit for making the best of >your situation, please realize not everyone can do that. >Thanks >Darcy > > > >SEND POST TO: fibromyalgia-cfs > >HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html >LIST OWNER: " Missy " Parrot004@...> >UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 Hi , Thank you for the informative posts. It is hard to explain to someone about fibro. I finally quit trying and just don'[t even mention to anyone I have it. I just no longer share how I feel except with one close friend. Noone else seems to understand when we are experiencing. I have been diagnosed bi-polar, panic disorder, insomnia, fibro, chronic bronchitis, chronic back pain, asthma. My husband tells people I've got a " cough " when I have bronchitis or asthma attack. He says " I'm just tired " when I get depressed or agoraphobic. I can't even tell him how I feel becuase he doesn't understand either so why try? That leaves me to fend for myself when I have difficulty functioning, that is why I really enjoy these support groups. I have also enjoyed the Chronic Pain Support Group as well and just recently came here. Thanks for the input. Stop and visit my new web site (my therapy) www.emergingcourageous.com My Helper went back to school and Im trying to figure out how to add my stories. Any ideas? Lovingly< Marilyn --- u2tree2000 u2tree2000@...> wrote: > , > > From someone who also has been diagnosed with > Clincal Depression, I > hear ya. It is something that never goes away, also > even when you are > on anti-depressants it still doesn't go away, it > evens out a bit but > those depressed thoughts are still there they are > just easier to deal > with on the medication. > > My mother never understood either that there was > something missing in > my brain that was why I was so depressed and > anti-social. She always > and still thinks that I should just snap out of it > but I can't unless > I am fully medicated. > > Tara > > > > > >There is a huge difference between wallowing in > self pity and > finding > > >yourself either clinically depressed or in a > really miserable spot > in > > >life. > > > > I've been (nicely) told in private correspondence > that a lot of > people > > don't understand that clinical depression is > chemical, not > something you > > can turn off and on like a lamp. And I agree with > her. > > > > For me, depression has been a battle literally > since I was a small > > child. Fibromyalgia, OTOH, has been a problem for > under two > years. I have > > found a moderately successful treatment for my FM, > one that has > worked for > > six months, and I am so vastly pleased I can't > even articulate it. > > > > What has struck me as ironic and bitter about > Jeane's posts is that > it is a > > mirror image of our communal struggle to get the > public to > recognize > > fibromyalgia and CFS. As a group we would be up > in arms if told we > were > > simply indulging in vague, formless symptoms that > had no organic > > cause. And yet this is essentially what Jeane has > said regarding > depression. > > > > Jeane, along with your cheerful outlook, I > encourage you to > cultivate > > compassion. Just because you do not experience > something yourself > does not > > mean it is not very, very real. You would not > mock a person with > cancer > > because you do not believe it exists. And > depression, > unfortunately, can > > be a killer, too. I'm clinically depressed, > chronically > agoraphobic, and > > struggling as well with a number of anxiety > problems and > > obsessive-compulsive behaviors. Clearly this is > not a battle you > > share. But it is no less real for that reason. > My mother watched > me a > > year ago, awake for 72 hours, constantly weeping > and circling the > house and > > hardly able to speak, because of my absolute > terror of going alone > to > > Dallas to a friend's wedding. One of my best > friends. There was > nothing > > my mother could do, and there was no way for me to > control what was > > happening. With my mother's support and > encouragement, I called > this > > friend in tears and explained that I would not be > able to attend, > and that > > I would explain the reasons later, since this was > a joyous time in > his life. > > > > Do you honestly think that I wanted to feel that > way, or had any > control > > over the fears that dominated my life and continue > to pull me in > every > > direction? Do I enjoy feeling that way? I no > more enjoy it than > you enjoy > > the pain and frustration of fibromyalgia. And I > am fighting it, > exactly as > > I fight my FM, with every weapon at my disposal, > and every ounce of > > determination I possess. > > > > Mental illness isn't a choice. Any more than > fibromyalgia was a > > choice. Even when we do not experience what > someone else is > experiencing, > > we can at least respect that their experience is > valid and serious. > > > > > > > > ~~~~~~~~~~~~~ > > It is the tale, not he who tells it. > > > > I no longer need to punish, deceive or compromise > myself. > > Unless, of course, I want to stay employed. > > > > Broccoli is bigger than all of us. > > ~~~~~~~~~~~~~ > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 Hi: I have decided whenever someone asks about Fibro that I just tell them it is a form of Arthritis only instead of affecting the joints it effects all the muscles, tendons, and ligaments in the entire body. People seem to understand that concept and then I don't have to explain it any further. As for the depression I just say that I suffer from a chemical imbalance that effects my moods like PMS. They seem to understand and accept that discription as well. Of course I don't have the same problems with my diabetes, asthma, coronary artery disease, or other " normal/accepted " medical problems. :>) That is all the explaination I give to the " normals " in this world that ask what is wrong with me. I figure they don't want to know any more and I don't want to try to explain it any further so that way we both are sort of happy. Tina --- Marilyn Pfanstiel emergingcourageous@...> wrote: > Hi , Thank you for the informative posts. It is > hard to explain to someone about fibro. I finally > quit > trying and just don'[t even mention to anyone I have > it. I just no longer share how I feel except with > one > close friend. Noone else seems to understand when we > are experiencing. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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