Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 TJ- What an ordeal. Hoping and praying for the best for you. {{{{{{hugs}}}}}} Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 TJ- What an ordeal. Hoping and praying for the best for you. {{{{{{hugs}}}}}} Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 TJ- What an ordeal. Hoping and praying for the best for you. {{{{{{hugs}}}}}} Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 Hi TJ, Sounds like everything went well!!!!! Hang in there. Talk soon. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 TJ, From reading your message I truly believe you will get a favorable response and your award from SSI. I think it sounded very well from what you described. Lots of Hugs! S. The Hearing > Sorry I did not write sooner- > > Wowzers- that ride seemed forever and pain whew baby....... I sit in the back seat of my new car that I can't drive any longer - so I can keep my legs up........ Carsick---- u name it......... I felt it. > > We got there on time and sat for what seemed like forever in the waiting room ( with my lawyer )- guess he had not given some much needed papers to the Judge so the Judge could read them beforehand- so when Judge was done with the people / person before me- he had to have time to read my info then called us in....... Gosh- don't think we got home till after noon even. > > Well- I decided on the wheelchair , instead of the scooter and good thing, mercy the room wasn't that big............ definitely would have damaged someone. > > My mother went in as well, she sat in the back to be witness if Judge wanted to get any questions from her but he did not. > > My mouth kept drying out- I was in pain, tired- etc.......... and he'd ask questions to the fuzzy Moon/TJ headed dry lipped thing......... I'd answer to the best of my ability...... My lawyer finally gave me a glass of water as I was almost not able to speak due to the dry mouth..... guess thats from one of my many medications. > > The Judge welcomed and swore My lawyer and I in and the vocational expert. > > ( By the way- I wore a pull over turtle neck- windbreaker pants - ( one of my sons --------- geeeeeesh those things are noisey......... but nice if you spill something on yourself because, they don't retain the liquid! I also had on my slip on sandal shoes ( only thing I've been really able to get on my feet in 2 yrs and just started wearing those about a year ago -if that ) ---- and a camaflouge pullover jacket ( my sons ) > > My nails were cut and naked, blek---- but good for court ...... > I wore no makeup- blek but hey I was lucky and no one saw me that knew me except for my parents. ( whew ) > > Once welcomed in Judge asked me if I wanted to be called by my married name- which no married woman who took her maiden name back would want...... so I said no please - I prefer my maiden name........ he thanked me- I had just got my ss card changed over approx a month ago- this is something that never crossed my mind that needed to be done......... I completely forgot due to the illness and all the hearings with my x I guess. > > So , he did refer to me with maiden name.... > > He then asked me questions such as. > How old I was? > When was my birthdate? > Am I working? > Did I work since I claimed I was dis-abled? > Did I work before that? > And when/where > Do you have children? > How many? > How many live in your house? > Is your house one level? > If not - do you go up and down steps? > Then the questions of what made me feel I was unable to work now......? ( Chronic pain - was my answer ) > There was no mention of EDS at all - nor VEDS........ > Then he turned to my lawyer and said, I am now going to turn the questioning over to the lawyer- thank you much for coming...... > > I figured at this point he meant- he was going to question the lawyer and my lawyer was going to do the answering...... but instead my lawyer questioned me LOL...... > More water please...... > > My lawyer sat right beside me and asked me many questions- medications were listed ...... avinza had to be explained as they not knew what that was...... > I was asked if my doctor or if I thought my doctor may be trying to over medicate me or possibly get me addicted to the medications...... Geesh- at first I wasn't sure what to say to that one...... What dr would purposely harm a patient, then I thought to myself- hmmmmmmmm many do it....... look at my son! So my answer was: > > No- I really highly doubt that Dr. Ginther would do such. He is very well mannered , careful and thoughtful of my condition and basically wanted to help my chronic pain level so I could get some relief and perhaps with hope some pain relief. > > Let see - what else did he ask- What was the first disabling happening to me ( the double aneurysms- compartmental syndrome ) > What happened and how long did it take you to heal after that surgery? ( I was in a wheelchair and in a lot of pain- and I did not recover- I have no feeling in much of that leg on the inner side- it is basically dead now..... ) > You had a mishap with your other leg shortly after is that correct? ( Yes it is) > What happened and when? ( I was getting out of a truck to go to my dr appointment and barely knicked my knee on my " walker " - as I was using a walker to get around at that time- and my knee /leg swelled up approx 3 times normal size ) > Did you end up having an operation on it? ( Yes I did ) > How long was it after your aneurysm surgery? ( about 4 months ) > How do you feel this operation has disabled you? ( In many ways- I no longer am able to bend it nor walk much without pain ) > How do you get around in your house? ( Depending on the severity of my pain, I choose the scooter- wheelchair, cane and or furniture such as counters for propping self ) > Do you go up steps? ( No , I do not ) > Do you drive? ( No , I do not ) > You had another happening to your right leg right? ( Yes I did ) > Tell me about it- ( A cell phone was on my keyboard tray and barely knicked my leg- and my leg swelled about 3 x normal size ) > Did you go to the hospital ( Yes I did ) > Did it get infected, ( Yes, drs let that go approx 3 months and it became infected- so had to have it cut out ) > How long did you end up waiting for that to heal ( It still isn't totally healed, it heals, but re opens during too much stress-etc. ) > How long does it last when it re- opens? ( Approx 2 weeks - ) > How and who treats you for that ? ( Dr Ginther and we use a cream and bandages ) > Do you cook/clean/vacuum? ( No- I do not) > Who does these things for you? ( My son and my mother ) > How often do you see Mom ( she cleans approx every two days but if I need her to- she would do it dailly as I see her every day- she lives only a field away ) > How are you paying for items now? ( Welfare- it was all I could do at the time ) > Who does your shopping ( Mom and Dad pick up my groceries ) > How long can you sit, with your feet down, on a small stool ( Not long at all ) > How many times in a 15 minute period do you feel you put your feet up higher for elevation........ ( O gosh- hmmmmmm- I would guesstimate about 10 times, most likelly more) > How long can you stand ( No longer than a minute without severe pain ) > You have pain in more areas than just your legs , is that correct? ( Yes- thats correct ) > Where else do you have pain? ( Everywhere- ) > Do you feel your medications effect you? ( I am not sure but imagine they are causing some of my problems such as the foggy head feeling and chronic tiredness- yet I will lay down but can't sleep due to the pain. ) > How many times do you think you nap during a day? ( O gosh ) > On a bad day? How many bad days would you say you have ? ( Most everyday is bad and I'd say approximately 5 times a day I lay down and sometimes I will be lucky enough to catch a few hours of sleep but most times not , so I will get up to try to do something to help take my mind off the pain ) > What type of things do you do in a 24 hr period.? ( Not much of anything really- I can no longer put the amount of time into my interests as I once could- I read books for a little bit but lose interest- I will read e-mail off and on- but can't sit at the computer for long periods..... I love to mess around with graphics on my computer to help take my mind off pain but really almost cant sit long enough in one sitting to accomplish anything there anymore either ) > > I'm sure I am leaving out a few questions but gosh can't remember more right now- I just felt rotten and couldnt even stand whilst there , so the not being able to get up for even my normal minute about drove me nuts as my legs were in just too much pain from the drive. > > I do know I was asked about prior jobs- which really I had none. I worked part time sub at school, depending where they needed me- playground teacher- teachers aid, sub teach- english teachers sub- and then some but was not often , not even enough to do taxes with. > > When married, approx 85 to 92 - we owned a machine shop and pet shop, I ran and did both- secretarial and such and even ran parts- I was asked how much I lifted then, and I said not much, my then husband did the lifting, I just ran the machine....... I also had my 3 kids with me at all times....... But never received a paycheck. I was co-owner without monetary benefits. I was just there to help. > > ( Grrrrrrrrrrrrrrr, I could kick myself for that, if I could raise my legs that high that is......... I put so much time in for him to help and for no money yet----- oh dropping that subject - it only stresses me ) > > Ok, this was about it, then the vocational expert was asked questions by the Judge- many things they spoke were so foreign to me- She did question the machine shop/pet shop- but when she realized how that went then the Judge and she finished up with basically, she felt that TJ could not really have any type of work suitable for her condition and especially the medication amount- my limitations, the dangerousness and the napping per day. > > Judge asked if my lawyer agreed with her, he said yes. > > Judge thanked us for coming and out we all went. What a long excruciating ride....... Mercyyyyyyyyyyyyyyyyyyyy. ( actually its approx 30 min but by the time I get in/out of a darn vehicle and the carsick feeling, it felt like 3 or 4 there and 3 or 4 back...... > > My lawyer feels that it went well- we will most likely hear from him in a couple mnths he said. He said ' I dont want you to keep checking mailbox everyday hoping it will be there tomorrow..... but that he felt instead of the usual six month waiting period that he feels we will know within a couple of months. > > There- how's that for a book ? > > Its a bite typing with short nails, I think I went from typing approx 120 wpm to 4 letters per minute, wow how do people type with no nails........ > > Waiting for them to grow back!!!!!! > > Oh- also- unbeknownst to me, my son Kenny that had passed away in 97 due to ruptured aneurysm did have much info input into this hearing....... they said that it was genetic, progressively worsens and basically no cure. > > Hope all of you are as well as can be............ > Hugs- TJ > > > > > > God Bless And Hugs- Love Moon > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 I am glad that your hearing is over with TJ, it certainly sounds as though it was a positive thing in terms of the questions, your answers and the voc rehab questions and comments! I hope you hear sooner then they predicted! I am sure you are happy to have this all finished now, I know it's been a huge stress for you. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Thanks - here's hoping....... either way though- whatever will be , will be............ Hugssssssssss TJ God Bless And Hugs- Love Moon The Hearing > Sorry I did not write sooner- > > Wowzers- that ride seemed forever and pain whew baby....... I sit in the back seat of my new car that I can't drive any longer - so I can keep my legs up........ Carsick---- u name it......... I felt it. > > We got there on time and sat for what seemed like forever in the waiting room ( with my lawyer )- guess he had not given some much needed papers to the Judge so the Judge could read them beforehand- so when Judge was done with the people / person before me- he had to have time to read my info then called us in....... Gosh- don't think we got home till after noon even. > > Well- I decided on the wheelchair , instead of the scooter and good thing, mercy the room wasn't that big............ definitely would have damaged someone. > > My mother went in as well, she sat in the back to be witness if Judge wanted to get any questions from her but he did not. > > My mouth kept drying out- I was in pain, tired- etc.......... and he'd ask questions to the fuzzy Moon/TJ headed dry lipped thing......... I'd answer to the best of my ability...... My lawyer finally gave me a glass of water as I was almost not able to speak due to the dry mouth..... guess thats from one of my many medications. > > The Judge welcomed and swore My lawyer and I in and the vocational expert. > > ( By the way- I wore a pull over turtle neck- windbreaker pants - ( one of my sons --------- geeeeeesh those things are noisey......... but nice if you spill something on yourself because, they don't retain the liquid! I also had on my slip on sandal shoes ( only thing I've been really able to get on my feet in 2 yrs and just started wearing those about a year ago -if that ) ---- and a camaflouge pullover jacket ( my sons ) > > My nails were cut and naked, blek---- but good for court ...... > I wore no makeup- blek but hey I was lucky and no one saw me that knew me except for my parents. ( whew ) > > Once welcomed in Judge asked me if I wanted to be called by my married name- which no married woman who took her maiden name back would want...... so I said no please - I prefer my maiden name........ he thanked me- I had just got my ss card changed over approx a month ago- this is something that never crossed my mind that needed to be done......... I completely forgot due to the illness and all the hearings with my x I guess. > > So , he did refer to me with maiden name.... > > He then asked me questions such as. > How old I was? > When was my birthdate? > Am I working? > Did I work since I claimed I was dis-abled? > Did I work before that? > And when/where > Do you have children? > How many? > How many live in your house? > Is your house one level? > If not - do you go up and down steps? > Then the questions of what made me feel I was unable to work now......? ( Chronic pain - was my answer ) > There was no mention of EDS at all - nor VEDS........ > Then he turned to my lawyer and said, I am now going to turn the questioning over to the lawyer- thank you much for coming...... > > I figured at this point he meant- he was going to question the lawyer and my lawyer was going to do the answering...... but instead my lawyer questioned me LOL...... > More water please...... > > My lawyer sat right beside me and asked me many questions- medications were listed ...... avinza had to be explained as they not knew what that was...... > I was asked if my doctor or if I thought my doctor may be trying to over medicate me or possibly get me addicted to the medications...... Geesh- at first I wasn't sure what to say to that one...... What dr would purposely harm a patient, then I thought to myself- hmmmmmmmm many do it....... look at my son! So my answer was: > > No- I really highly doubt that Dr. Ginther would do such. He is very well mannered , careful and thoughtful of my condition and basically wanted to help my chronic pain level so I could get some relief and perhaps with hope some pain relief. > > Let see - what else did he ask- What was the first disabling happening to me ( the double aneurysms- compartmental syndrome ) > What happened and how long did it take you to heal after that surgery? ( I was in a wheelchair and in a lot of pain- and I did not recover- I have no feeling in much of that leg on the inner side- it is basically dead now..... ) > You had a mishap with your other leg shortly after is that correct? ( Yes it is) > What happened and when? ( I was getting out of a truck to go to my dr appointment and barely knicked my knee on my " walker " - as I was using a walker to get around at that time- and my knee /leg swelled up approx 3 times normal size ) > Did you end up having an operation on it? ( Yes I did ) > How long was it after your aneurysm surgery? ( about 4 months ) > How do you feel this operation has disabled you? ( In many ways- I no longer am able to bend it nor walk much without pain ) > How do you get around in your house? ( Depending on the severity of my pain, I choose the scooter- wheelchair, cane and or furniture such as counters for propping self ) > Do you go up steps? ( No , I do not ) > Do you drive? ( No , I do not ) > You had another happening to your right leg right? ( Yes I did ) > Tell me about it- ( A cell phone was on my keyboard tray and barely knicked my leg- and my leg swelled about 3 x normal size ) > Did you go to the hospital ( Yes I did ) > Did it get infected, ( Yes, drs let that go approx 3 months and it became infected- so had to have it cut out ) > How long did you end up waiting for that to heal ( It still isn't totally healed, it heals, but re opens during too much stress-etc. ) > How long does it last when it re- opens? ( Approx 2 weeks - ) > How and who treats you for that ? ( Dr Ginther and we use a cream and bandages ) > Do you cook/clean/vacuum? ( No- I do not) > Who does these things for you? ( My son and my mother ) > How often do you see Mom ( she cleans approx every two days but if I need her to- she would do it dailly as I see her every day- she lives only a field away ) > How are you paying for items now? ( Welfare- it was all I could do at the time ) > Who does your shopping ( Mom and Dad pick up my groceries ) > How long can you sit, with your feet down, on a small stool ( Not long at all ) > How many times in a 15 minute period do you feel you put your feet up higher for elevation........ ( O gosh- hmmmmmm- I would guesstimate about 10 times, most likelly more) > How long can you stand ( No longer than a minute without severe pain ) > You have pain in more areas than just your legs , is that correct? ( Yes- thats correct ) > Where else do you have pain? ( Everywhere- ) > Do you feel your medications effect you? ( I am not sure but imagine they are causing some of my problems such as the foggy head feeling and chronic tiredness- yet I will lay down but can't sleep due to the pain. ) > How many times do you think you nap during a day? ( O gosh ) > On a bad day? How many bad days would you say you have ? ( Most everyday is bad and I'd say approximately 5 times a day I lay down and sometimes I will be lucky enough to catch a few hours of sleep but most times not , so I will get up to try to do something to help take my mind off the pain ) > What type of things do you do in a 24 hr period.? ( Not much of anything really- I can no longer put the amount of time into my interests as I once could- I read books for a little bit but lose interest- I will read e-mail off and on- but can't sit at the computer for long periods..... I love to mess around with graphics on my computer to help take my mind off pain but really almost cant sit long enough in one sitting to accomplish anything there anymore either ) > > I'm sure I am leaving out a few questions but gosh can't remember more right now- I just felt rotten and couldnt even stand whilst there , so the not being able to get up for even my normal minute about drove me nuts as my legs were in just too much pain from the drive. > > I do know I was asked about prior jobs- which really I had none. I worked part time sub at school, depending where they needed me- playground teacher- teachers aid, sub teach- english teachers sub- and then some but was not often , not even enough to do taxes with. > > When married, approx 85 to 92 - we owned a machine shop and pet shop, I ran and did both- secretarial and such and even ran parts- I was asked how much I lifted then, and I said not much, my then husband did the lifting, I just ran the machine....... I also had my 3 kids with me at all times....... But never received a paycheck. I was co-owner without monetary benefits. I was just there to help. > > ( Grrrrrrrrrrrrrrr, I could kick myself for that, if I could raise my legs that high that is......... I put so much time in for him to help and for no money yet----- oh dropping that subject - it only stresses me ) > > Ok, this was about it, then the vocational expert was asked questions by the Judge- many things they spoke were so foreign to me- She did question the machine shop/pet shop- but when she realized how that went then the Judge and she finished up with basically, she felt that TJ could not really have any type of work suitable for her condition and especially the medication amount- my limitations, the dangerousness and the napping per day. > > Judge asked if my lawyer agreed with her, he said yes. > > Judge thanked us for coming and out we all went. What a long excruciating ride....... Mercyyyyyyyyyyyyyyyyyyyy. ( actually its approx 30 min but by the time I get in/out of a darn vehicle and the carsick feeling, it felt like 3 or 4 there and 3 or 4 back...... > > My lawyer feels that it went well- we will most likely hear from him in a couple mnths he said. He said ' I dont want you to keep checking mailbox everyday hoping it will be there tomorrow..... but that he felt instead of the usual six month waiting period that he feels we will know within a couple of months. > > There- how's that for a book ? > > Its a bite typing with short nails, I think I went from typing approx 120 wpm to 4 letters per minute, wow how do people type with no nails........ > > Waiting for them to grow back!!!!!! > > Oh- also- unbeknownst to me, my son Kenny that had passed away in 97 due to ruptured aneurysm did have much info input into this hearing....... they said that it was genetic, progressively worsens and basically no cure. > > Hope all of you are as well as can be............ > Hugs- TJ > > > > > > God Bless And Hugs- Love Moon > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Thanks - here's hoping....... either way though- whatever will be , will be............ Hugssssssssss TJ God Bless And Hugs- Love Moon The Hearing > Sorry I did not write sooner- > > Wowzers- that ride seemed forever and pain whew baby....... I sit in the back seat of my new car that I can't drive any longer - so I can keep my legs up........ Carsick---- u name it......... I felt it. > > We got there on time and sat for what seemed like forever in the waiting room ( with my lawyer )- guess he had not given some much needed papers to the Judge so the Judge could read them beforehand- so when Judge was done with the people / person before me- he had to have time to read my info then called us in....... Gosh- don't think we got home till after noon even. > > Well- I decided on the wheelchair , instead of the scooter and good thing, mercy the room wasn't that big............ definitely would have damaged someone. > > My mother went in as well, she sat in the back to be witness if Judge wanted to get any questions from her but he did not. > > My mouth kept drying out- I was in pain, tired- etc.......... and he'd ask questions to the fuzzy Moon/TJ headed dry lipped thing......... I'd answer to the best of my ability...... My lawyer finally gave me a glass of water as I was almost not able to speak due to the dry mouth..... guess thats from one of my many medications. > > The Judge welcomed and swore My lawyer and I in and the vocational expert. > > ( By the way- I wore a pull over turtle neck- windbreaker pants - ( one of my sons --------- geeeeeesh those things are noisey......... but nice if you spill something on yourself because, they don't retain the liquid! I also had on my slip on sandal shoes ( only thing I've been really able to get on my feet in 2 yrs and just started wearing those about a year ago -if that ) ---- and a camaflouge pullover jacket ( my sons ) > > My nails were cut and naked, blek---- but good for court ...... > I wore no makeup- blek but hey I was lucky and no one saw me that knew me except for my parents. ( whew ) > > Once welcomed in Judge asked me if I wanted to be called by my married name- which no married woman who took her maiden name back would want...... so I said no please - I prefer my maiden name........ he thanked me- I had just got my ss card changed over approx a month ago- this is something that never crossed my mind that needed to be done......... I completely forgot due to the illness and all the hearings with my x I guess. > > So , he did refer to me with maiden name.... > > He then asked me questions such as. > How old I was? > When was my birthdate? > Am I working? > Did I work since I claimed I was dis-abled? > Did I work before that? > And when/where > Do you have children? > How many? > How many live in your house? > Is your house one level? > If not - do you go up and down steps? > Then the questions of what made me feel I was unable to work now......? ( Chronic pain - was my answer ) > There was no mention of EDS at all - nor VEDS........ > Then he turned to my lawyer and said, I am now going to turn the questioning over to the lawyer- thank you much for coming...... > > I figured at this point he meant- he was going to question the lawyer and my lawyer was going to do the answering...... but instead my lawyer questioned me LOL...... > More water please...... > > My lawyer sat right beside me and asked me many questions- medications were listed ...... avinza had to be explained as they not knew what that was...... > I was asked if my doctor or if I thought my doctor may be trying to over medicate me or possibly get me addicted to the medications...... Geesh- at first I wasn't sure what to say to that one...... What dr would purposely harm a patient, then I thought to myself- hmmmmmmmm many do it....... look at my son! So my answer was: > > No- I really highly doubt that Dr. Ginther would do such. He is very well mannered , careful and thoughtful of my condition and basically wanted to help my chronic pain level so I could get some relief and perhaps with hope some pain relief. > > Let see - what else did he ask- What was the first disabling happening to me ( the double aneurysms- compartmental syndrome ) > What happened and how long did it take you to heal after that surgery? ( I was in a wheelchair and in a lot of pain- and I did not recover- I have no feeling in much of that leg on the inner side- it is basically dead now..... ) > You had a mishap with your other leg shortly after is that correct? ( Yes it is) > What happened and when? ( I was getting out of a truck to go to my dr appointment and barely knicked my knee on my " walker " - as I was using a walker to get around at that time- and my knee /leg swelled up approx 3 times normal size ) > Did you end up having an operation on it? ( Yes I did ) > How long was it after your aneurysm surgery? ( about 4 months ) > How do you feel this operation has disabled you? ( In many ways- I no longer am able to bend it nor walk much without pain ) > How do you get around in your house? ( Depending on the severity of my pain, I choose the scooter- wheelchair, cane and or furniture such as counters for propping self ) > Do you go up steps? ( No , I do not ) > Do you drive? ( No , I do not ) > You had another happening to your right leg right? ( Yes I did ) > Tell me about it- ( A cell phone was on my keyboard tray and barely knicked my leg- and my leg swelled about 3 x normal size ) > Did you go to the hospital ( Yes I did ) > Did it get infected, ( Yes, drs let that go approx 3 months and it became infected- so had to have it cut out ) > How long did you end up waiting for that to heal ( It still isn't totally healed, it heals, but re opens during too much stress-etc. ) > How long does it last when it re- opens? ( Approx 2 weeks - ) > How and who treats you for that ? ( Dr Ginther and we use a cream and bandages ) > Do you cook/clean/vacuum? ( No- I do not) > Who does these things for you? ( My son and my mother ) > How often do you see Mom ( she cleans approx every two days but if I need her to- she would do it dailly as I see her every day- she lives only a field away ) > How are you paying for items now? ( Welfare- it was all I could do at the time ) > Who does your shopping ( Mom and Dad pick up my groceries ) > How long can you sit, with your feet down, on a small stool ( Not long at all ) > How many times in a 15 minute period do you feel you put your feet up higher for elevation........ ( O gosh- hmmmmmm- I would guesstimate about 10 times, most likelly more) > How long can you stand ( No longer than a minute without severe pain ) > You have pain in more areas than just your legs , is that correct? ( Yes- thats correct ) > Where else do you have pain? ( Everywhere- ) > Do you feel your medications effect you? ( I am not sure but imagine they are causing some of my problems such as the foggy head feeling and chronic tiredness- yet I will lay down but can't sleep due to the pain. ) > How many times do you think you nap during a day? ( O gosh ) > On a bad day? How many bad days would you say you have ? ( Most everyday is bad and I'd say approximately 5 times a day I lay down and sometimes I will be lucky enough to catch a few hours of sleep but most times not , so I will get up to try to do something to help take my mind off the pain ) > What type of things do you do in a 24 hr period.? ( Not much of anything really- I can no longer put the amount of time into my interests as I once could- I read books for a little bit but lose interest- I will read e-mail off and on- but can't sit at the computer for long periods..... I love to mess around with graphics on my computer to help take my mind off pain but really almost cant sit long enough in one sitting to accomplish anything there anymore either ) > > I'm sure I am leaving out a few questions but gosh can't remember more right now- I just felt rotten and couldnt even stand whilst there , so the not being able to get up for even my normal minute about drove me nuts as my legs were in just too much pain from the drive. > > I do know I was asked about prior jobs- which really I had none. I worked part time sub at school, depending where they needed me- playground teacher- teachers aid, sub teach- english teachers sub- and then some but was not often , not even enough to do taxes with. > > When married, approx 85 to 92 - we owned a machine shop and pet shop, I ran and did both- secretarial and such and even ran parts- I was asked how much I lifted then, and I said not much, my then husband did the lifting, I just ran the machine....... I also had my 3 kids with me at all times....... But never received a paycheck. I was co-owner without monetary benefits. I was just there to help. > > ( Grrrrrrrrrrrrrrr, I could kick myself for that, if I could raise my legs that high that is......... I put so much time in for him to help and for no money yet----- oh dropping that subject - it only stresses me ) > > Ok, this was about it, then the vocational expert was asked questions by the Judge- many things they spoke were so foreign to me- She did question the machine shop/pet shop- but when she realized how that went then the Judge and she finished up with basically, she felt that TJ could not really have any type of work suitable for her condition and especially the medication amount- my limitations, the dangerousness and the napping per day. > > Judge asked if my lawyer agreed with her, he said yes. > > Judge thanked us for coming and out we all went. What a long excruciating ride....... Mercyyyyyyyyyyyyyyyyyyyy. ( actually its approx 30 min but by the time I get in/out of a darn vehicle and the carsick feeling, it felt like 3 or 4 there and 3 or 4 back...... > > My lawyer feels that it went well- we will most likely hear from him in a couple mnths he said. He said ' I dont want you to keep checking mailbox everyday hoping it will be there tomorrow..... but that he felt instead of the usual six month waiting period that he feels we will know within a couple of months. > > There- how's that for a book ? > > Its a bite typing with short nails, I think I went from typing approx 120 wpm to 4 letters per minute, wow how do people type with no nails........ > > Waiting for them to grow back!!!!!! > > Oh- also- unbeknownst to me, my son Kenny that had passed away in 97 due to ruptured aneurysm did have much info input into this hearing....... they said that it was genetic, progressively worsens and basically no cure. > > Hope all of you are as well as can be............ > Hugs- TJ > > > > > > God Bless And Hugs- Love Moon > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Thanks - here's hoping....... either way though- whatever will be , will be............ Hugssssssssss TJ God Bless And Hugs- Love Moon The Hearing > Sorry I did not write sooner- > > Wowzers- that ride seemed forever and pain whew baby....... I sit in the back seat of my new car that I can't drive any longer - so I can keep my legs up........ Carsick---- u name it......... I felt it. > > We got there on time and sat for what seemed like forever in the waiting room ( with my lawyer )- guess he had not given some much needed papers to the Judge so the Judge could read them beforehand- so when Judge was done with the people / person before me- he had to have time to read my info then called us in....... Gosh- don't think we got home till after noon even. > > Well- I decided on the wheelchair , instead of the scooter and good thing, mercy the room wasn't that big............ definitely would have damaged someone. > > My mother went in as well, she sat in the back to be witness if Judge wanted to get any questions from her but he did not. > > My mouth kept drying out- I was in pain, tired- etc.......... and he'd ask questions to the fuzzy Moon/TJ headed dry lipped thing......... I'd answer to the best of my ability...... My lawyer finally gave me a glass of water as I was almost not able to speak due to the dry mouth..... guess thats from one of my many medications. > > The Judge welcomed and swore My lawyer and I in and the vocational expert. > > ( By the way- I wore a pull over turtle neck- windbreaker pants - ( one of my sons --------- geeeeeesh those things are noisey......... but nice if you spill something on yourself because, they don't retain the liquid! I also had on my slip on sandal shoes ( only thing I've been really able to get on my feet in 2 yrs and just started wearing those about a year ago -if that ) ---- and a camaflouge pullover jacket ( my sons ) > > My nails were cut and naked, blek---- but good for court ...... > I wore no makeup- blek but hey I was lucky and no one saw me that knew me except for my parents. ( whew ) > > Once welcomed in Judge asked me if I wanted to be called by my married name- which no married woman who took her maiden name back would want...... so I said no please - I prefer my maiden name........ he thanked me- I had just got my ss card changed over approx a month ago- this is something that never crossed my mind that needed to be done......... I completely forgot due to the illness and all the hearings with my x I guess. > > So , he did refer to me with maiden name.... > > He then asked me questions such as. > How old I was? > When was my birthdate? > Am I working? > Did I work since I claimed I was dis-abled? > Did I work before that? > And when/where > Do you have children? > How many? > How many live in your house? > Is your house one level? > If not - do you go up and down steps? > Then the questions of what made me feel I was unable to work now......? ( Chronic pain - was my answer ) > There was no mention of EDS at all - nor VEDS........ > Then he turned to my lawyer and said, I am now going to turn the questioning over to the lawyer- thank you much for coming...... > > I figured at this point he meant- he was going to question the lawyer and my lawyer was going to do the answering...... but instead my lawyer questioned me LOL...... > More water please...... > > My lawyer sat right beside me and asked me many questions- medications were listed ...... avinza had to be explained as they not knew what that was...... > I was asked if my doctor or if I thought my doctor may be trying to over medicate me or possibly get me addicted to the medications...... Geesh- at first I wasn't sure what to say to that one...... What dr would purposely harm a patient, then I thought to myself- hmmmmmmmm many do it....... look at my son! So my answer was: > > No- I really highly doubt that Dr. Ginther would do such. He is very well mannered , careful and thoughtful of my condition and basically wanted to help my chronic pain level so I could get some relief and perhaps with hope some pain relief. > > Let see - what else did he ask- What was the first disabling happening to me ( the double aneurysms- compartmental syndrome ) > What happened and how long did it take you to heal after that surgery? ( I was in a wheelchair and in a lot of pain- and I did not recover- I have no feeling in much of that leg on the inner side- it is basically dead now..... ) > You had a mishap with your other leg shortly after is that correct? ( Yes it is) > What happened and when? ( I was getting out of a truck to go to my dr appointment and barely knicked my knee on my " walker " - as I was using a walker to get around at that time- and my knee /leg swelled up approx 3 times normal size ) > Did you end up having an operation on it? ( Yes I did ) > How long was it after your aneurysm surgery? ( about 4 months ) > How do you feel this operation has disabled you? ( In many ways- I no longer am able to bend it nor walk much without pain ) > How do you get around in your house? ( Depending on the severity of my pain, I choose the scooter- wheelchair, cane and or furniture such as counters for propping self ) > Do you go up steps? ( No , I do not ) > Do you drive? ( No , I do not ) > You had another happening to your right leg right? ( Yes I did ) > Tell me about it- ( A cell phone was on my keyboard tray and barely knicked my leg- and my leg swelled about 3 x normal size ) > Did you go to the hospital ( Yes I did ) > Did it get infected, ( Yes, drs let that go approx 3 months and it became infected- so had to have it cut out ) > How long did you end up waiting for that to heal ( It still isn't totally healed, it heals, but re opens during too much stress-etc. ) > How long does it last when it re- opens? ( Approx 2 weeks - ) > How and who treats you for that ? ( Dr Ginther and we use a cream and bandages ) > Do you cook/clean/vacuum? ( No- I do not) > Who does these things for you? ( My son and my mother ) > How often do you see Mom ( she cleans approx every two days but if I need her to- she would do it dailly as I see her every day- she lives only a field away ) > How are you paying for items now? ( Welfare- it was all I could do at the time ) > Who does your shopping ( Mom and Dad pick up my groceries ) > How long can you sit, with your feet down, on a small stool ( Not long at all ) > How many times in a 15 minute period do you feel you put your feet up higher for elevation........ ( O gosh- hmmmmmm- I would guesstimate about 10 times, most likelly more) > How long can you stand ( No longer than a minute without severe pain ) > You have pain in more areas than just your legs , is that correct? ( Yes- thats correct ) > Where else do you have pain? ( Everywhere- ) > Do you feel your medications effect you? ( I am not sure but imagine they are causing some of my problems such as the foggy head feeling and chronic tiredness- yet I will lay down but can't sleep due to the pain. ) > How many times do you think you nap during a day? ( O gosh ) > On a bad day? How many bad days would you say you have ? ( Most everyday is bad and I'd say approximately 5 times a day I lay down and sometimes I will be lucky enough to catch a few hours of sleep but most times not , so I will get up to try to do something to help take my mind off the pain ) > What type of things do you do in a 24 hr period.? ( Not much of anything really- I can no longer put the amount of time into my interests as I once could- I read books for a little bit but lose interest- I will read e-mail off and on- but can't sit at the computer for long periods..... I love to mess around with graphics on my computer to help take my mind off pain but really almost cant sit long enough in one sitting to accomplish anything there anymore either ) > > I'm sure I am leaving out a few questions but gosh can't remember more right now- I just felt rotten and couldnt even stand whilst there , so the not being able to get up for even my normal minute about drove me nuts as my legs were in just too much pain from the drive. > > I do know I was asked about prior jobs- which really I had none. I worked part time sub at school, depending where they needed me- playground teacher- teachers aid, sub teach- english teachers sub- and then some but was not often , not even enough to do taxes with. > > When married, approx 85 to 92 - we owned a machine shop and pet shop, I ran and did both- secretarial and such and even ran parts- I was asked how much I lifted then, and I said not much, my then husband did the lifting, I just ran the machine....... I also had my 3 kids with me at all times....... But never received a paycheck. I was co-owner without monetary benefits. I was just there to help. > > ( Grrrrrrrrrrrrrrr, I could kick myself for that, if I could raise my legs that high that is......... I put so much time in for him to help and for no money yet----- oh dropping that subject - it only stresses me ) > > Ok, this was about it, then the vocational expert was asked questions by the Judge- many things they spoke were so foreign to me- She did question the machine shop/pet shop- but when she realized how that went then the Judge and she finished up with basically, she felt that TJ could not really have any type of work suitable for her condition and especially the medication amount- my limitations, the dangerousness and the napping per day. > > Judge asked if my lawyer agreed with her, he said yes. > > Judge thanked us for coming and out we all went. What a long excruciating ride....... Mercyyyyyyyyyyyyyyyyyyyy. ( actually its approx 30 min but by the time I get in/out of a darn vehicle and the carsick feeling, it felt like 3 or 4 there and 3 or 4 back...... > > My lawyer feels that it went well- we will most likely hear from him in a couple mnths he said. He said ' I dont want you to keep checking mailbox everyday hoping it will be there tomorrow..... but that he felt instead of the usual six month waiting period that he feels we will know within a couple of months. > > There- how's that for a book ? > > Its a bite typing with short nails, I think I went from typing approx 120 wpm to 4 letters per minute, wow how do people type with no nails........ > > Waiting for them to grow back!!!!!! > > Oh- also- unbeknownst to me, my son Kenny that had passed away in 97 due to ruptured aneurysm did have much info input into this hearing....... they said that it was genetic, progressively worsens and basically no cure. > > Hope all of you are as well as can be............ > Hugs- TJ > > > > > > God Bless And Hugs- Love Moon > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 I am glad the hearing is over too- especially the ride- sitting sideways in a back seat when you are the type to get carsick is not a good combinatioon LOL. Would be nice to hear sooner than later indeed...... the stress part was not knowing what to expect........ and definitely it was a relief to know there was really not much to do for it- I wasted many hours on recoreds that they don't even use. But at least, hopefully, what I learned there helps some of you not to go through so much stress and extra material saving up when its inadmissable in the hearing room to begin with. Now I can finally put that full drawer full of papers away...........in fact, I should have done that 2 yrs ago............ they have no bearing/no purpose on the hearing itself. God Bless And Hugs- Love Moon Re: The Hearing I am glad that your hearing is over with TJ, it certainly sounds as though it was a positive thing in terms of the questions, your answers and the voc rehab questions and comments! I hope you hear sooner then they predicted! I am sure you are happy to have this all finished now, I know it's been a huge stress for you. Jill To learn more about EDS, visit our website: http://members.rogers.com/ceda2/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 I am glad the hearing is over too- especially the ride- sitting sideways in a back seat when you are the type to get carsick is not a good combinatioon LOL. Would be nice to hear sooner than later indeed...... the stress part was not knowing what to expect........ and definitely it was a relief to know there was really not much to do for it- I wasted many hours on recoreds that they don't even use. But at least, hopefully, what I learned there helps some of you not to go through so much stress and extra material saving up when its inadmissable in the hearing room to begin with. Now I can finally put that full drawer full of papers away...........in fact, I should have done that 2 yrs ago............ they have no bearing/no purpose on the hearing itself. God Bless And Hugs- Love Moon Re: The Hearing I am glad that your hearing is over with TJ, it certainly sounds as though it was a positive thing in terms of the questions, your answers and the voc rehab questions and comments! I hope you hear sooner then they predicted! I am sure you are happy to have this all finished now, I know it's been a huge stress for you. Jill To learn more about EDS, visit our website: http://members.rogers.com/ceda2/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Thanks Sue- Yes- so far all seems to sound ok....... Will definitely share the news, either good or bad - when I hear anything :-) Hugs and Take Care- TJ God Bless And Hugs- Love Moon Re: The Hearing Hi TJ, Sounds like everything went well!!!!! Hang in there. Talk soon. Hugs, Sue To learn more about EDS, visit our website: http://members.rogers.com/ceda2/ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
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