RE: Re: what do you think-comments on casts/bar

[Guest guest]

I agree, unfortunately adults aren't always considerate of other people

being different. I talk about Ponseti and his method all the time. I think

some of my friends get tired of hearing my story when I meant new people,

etc... I don't care I love Dr. P and his method. Everything isn't Rosie in

life nor when dealing with clubfeet and it helps to have support to get you

through the tough times. I think that everyone's experience is unique and we

all react to things differently. I think first time parents may also be

dealing with just being a parent as I did with my son and then dealing with

clubfeet, cast shoes, etc... Had it been my second or third child it would

have been easier I think. Motherhood alone takes a lot of getting used too.

One lady that really bothered me was a nurse at the University of IOWA. She

was walking down the hall and we were waiting in a long line to check in for

our appointment. There was about 20 people in a small section and it was

very quiet as we all stood waiting. This nurse walked down the hall noticed

our sons casts and said, Ohhhh your son has casts on.....and that was it.

Why she had to make that statement and why so loud so that everyone could

turn around and stare at us was beyond me. Especially waiting in the line at

the orthopedic ward. People don't always think about how they make others

feel.

Charity and Trenton (8-24-00)

Re: what do you think?

Hi,

While I agree with everything you have said, I am also one of the

moms who eventually took to covering up 's casts when she was

little (can't now since it's summer and she's 11 months old!). I

don't think I did it so much to " hide " them as if I was ashamed as

to be able to get through my grocery trip, etc without having to

explain it 50 times. It has been very upsetting this time around,

the number of dirty looks and " oh, that poor baby broke her

leg " / " HOW did such a little thing break her leg?? " As if I pushed

her down the stairs! So of course as soon as I see THE look, I

immediatley say " It's not broken. She is being treated for a club

foot. " I don't know what's worse, the look of horror before they

know or the look of tremendous belief when they do know. Plus, It

breaks my heart when my older two children keep asking why everyone

thinks broke her leg. I've have nicely explained to them

that unfortunately even adults are not always considerate of other

people being different. I think they get tired of hearing me

explain it over and over again.

Marilouise

9/9/03, LCF, cast #6/2nd series, 2nd tenotomy 8/20/04

Owen and 3/20/99

> No offense but I wonder why some of you are peeved at strangers

asking about your casted or braced baby, and why you feel compelled

to " hide " the casts/brace. wore casts the first six months

of his life in a hot climate, and while I do admit I would get tired

of answering the same old questions (and hearing the same old

stories about their friend/child/relitive who had club feet or

something) - I guess I'd rather they be forthright with their

questions rather than stare from a distance wondering the worst. I

didn't know about Dr. Ponseti back then ya know - but these days

anyone who asks anything (and even some who don't) hear about the

Amazing Ponseti from Iowa City.

>

> In our search for a replacment vehicle today so we could leave to

Iowa tomorrow (tranny went out of the car yesterday) I bet we spoke

to half a dozen people about Dr. Ponseti's touch of love on

Everett's feet. It's an opportunity to educate folks and spread the

word about his work. There is no shame for a parent to tote around

a birth-defected child. Keep in mind " God doesn't make junk " .

Show off your babies, be proud, because your children all arrived

exactly the way God made them. If HE wasn't ashamed to give them to

the world why should we as parents be embarassed to expose their

feet, or annoyed to educate people away from their own ignorance?

>

> Sorry, just my humble two cents worth. 's midwife who

delivered him treated him like junk when his feet came out deformed

as if she took it personal - as if we soiled her reputation by

bearing a child with a birth defect. She disgusted me with her

attitude which really drove home in my heart that God doesn't make

junk no matter what she might think about it.

> s.

[Guest guest]

Hi

My daughter had her friend round the other night and her mum came to pick

her up and Connor had his FAB on. It turns out she is a child

physiotherapist. She asked about Connors brace and I told her Connor was

treated with the Ponseti method and she said she is going to Manchester to

learn it. There is only a few who practice here especially in this part of

the UK. I was so pleased. I told her I would bring Connor to show off his

feet so she is arranging a coffee morning so I can bring him along. I hope

she is prepared for all our files, notes and photos on this - I will be in

my eliment

As for comments from other people, I am afraid I am one of those who

actually thinks it is nobody elses business. I wouldn't dream of asking

someone what is wrong with their child. If they want to tell me then that is

fine. When Connor was in casts I was breastfeeding and we went out for the

day and I subconsciously covered his casts just in case someone thought the

worst. I think i found it hard feeding in public anyway without everyone

staring at his casts aswell....... I definitely have never tried to cover

his foot brace, I just think that it speaks for itself, most people think it

is for clicky hips, but you can see it is for a correction of some sort, so

I am not bothered about that. I just didn't want anyone to think that i had

harmed my baby I suppose.

Rach, Steve & Connor 16 months b/l c/f

-- Re: what do you think?

Hi,

While I agree with everything you have said, I am also one of the

moms who eventually took to covering up 's casts when she was

little (can't now since it's summer and she's 11 months old!). I

don't think I did it so much to " hide " them as if I was ashamed as

to be able to get through my grocery trip, etc without having to

explain it 50 times. It has been very upsetting this time around,

the number of dirty looks and " oh, that poor baby broke her

leg " / " HOW did such a little thing break her leg?? " As if I pushed

her down the stairs! So of course as soon as I see THE look, I

immediatley say " It's not broken. She is being treated for a club

foot. " I don't know what's worse, the look of horror before they

know or the look of tremendous belief when they do know. Plus, It

breaks my heart when my older two children keep asking why everyone

thinks broke her leg. I've have nicely explained to them

that unfortunately even adults are not always considerate of other

people being different. I think they get tired of hearing me

explain it over and over again.

Marilouise

9/9/03, LCF, cast #6/2nd series, 2nd tenotomy 8/20/04

Owen and 3/20/99

> No offense but I wonder why some of you are peeved at strangers

asking about your casted or braced baby, and why you feel compelled

to " hide " the casts/brace. wore casts the first six months

of his life in a hot climate, and while I do admit I would get tired

of answering the same old questions (and hearing the same old

stories about their friend/child/relitive who had club feet or

something) - I guess I'd rather they be forthright with their

questions rather than stare from a distance wondering the worst. I

didn't know about Dr. Ponseti back then ya know - but these days

anyone who asks anything (and even some who don't) hear about the

Amazing Ponseti from Iowa City.

>

> In our search for a replacment vehicle today so we could leave to

Iowa tomorrow (tranny went out of the car yesterday) I bet we spoke

to half a dozen people about Dr. Ponseti's touch of love on

Everett's feet. It's an opportunity to educate folks and spread the

word about his work. There is no shame for a parent to tote around

a birth-defected child. Keep in mind " God doesn't make junk " .

Show off your babies, be proud, because your children all arrived

exactly the way God made them. If HE wasn't ashamed to give them to

the world why should we as parents be embarassed to expose their

feet, or annoyed to educate people away from their own ignorance?

>

> Sorry, just my humble two cents worth. 's midwife who

delivered him treated him like junk when his feet came out deformed

as if she took it personal - as if we soiled her reputation by

bearing a child with a birth defect. She disgusted me with her

attitude which really drove home in my heart that God doesn't make

junk no matter what she might think about it.

> s.

[Guest guest]

Hi

My daughter had her friend round the other night and her mum came to pick

her up and Connor had his FAB on. It turns out she is a child

physiotherapist. She asked about Connors brace and I told her Connor was

treated with the Ponseti method and she said she is going to Manchester to

learn it. There is only a few who practice here especially in this part of

the UK. I was so pleased. I told her I would bring Connor to show off his

feet so she is arranging a coffee morning so I can bring him along. I hope

she is prepared for all our files, notes and photos on this - I will be in

my eliment

As for comments from other people, I am afraid I am one of those who

actually thinks it is nobody elses business. I wouldn't dream of asking

someone what is wrong with their child. If they want to tell me then that is

fine. When Connor was in casts I was breastfeeding and we went out for the

day and I subconsciously covered his casts just in case someone thought the

worst. I think i found it hard feeding in public anyway without everyone

staring at his casts aswell....... I definitely have never tried to cover

his foot brace, I just think that it speaks for itself, most people think it

is for clicky hips, but you can see it is for a correction of some sort, so

I am not bothered about that. I just didn't want anyone to think that i had

harmed my baby I suppose.

Rach, Steve & Connor 16 months b/l c/f

-- Re: what do you think?

Hi,

While I agree with everything you have said, I am also one of the

moms who eventually took to covering up 's casts when she was

little (can't now since it's summer and she's 11 months old!). I

don't think I did it so much to " hide " them as if I was ashamed as

to be able to get through my grocery trip, etc without having to

explain it 50 times. It has been very upsetting this time around,

the number of dirty looks and " oh, that poor baby broke her

leg " / " HOW did such a little thing break her leg?? " As if I pushed

her down the stairs! So of course as soon as I see THE look, I

immediatley say " It's not broken. She is being treated for a club

foot. " I don't know what's worse, the look of horror before they

know or the look of tremendous belief when they do know. Plus, It

breaks my heart when my older two children keep asking why everyone

thinks broke her leg. I've have nicely explained to them

that unfortunately even adults are not always considerate of other

people being different. I think they get tired of hearing me

explain it over and over again.

Marilouise

9/9/03, LCF, cast #6/2nd series, 2nd tenotomy 8/20/04

Owen and 3/20/99

> No offense but I wonder why some of you are peeved at strangers

asking about your casted or braced baby, and why you feel compelled

to " hide " the casts/brace. wore casts the first six months

of his life in a hot climate, and while I do admit I would get tired

of answering the same old questions (and hearing the same old

stories about their friend/child/relitive who had club feet or

something) - I guess I'd rather they be forthright with their

questions rather than stare from a distance wondering the worst. I

didn't know about Dr. Ponseti back then ya know - but these days

anyone who asks anything (and even some who don't) hear about the

Amazing Ponseti from Iowa City.

>

> In our search for a replacment vehicle today so we could leave to

Iowa tomorrow (tranny went out of the car yesterday) I bet we spoke

to half a dozen people about Dr. Ponseti's touch of love on

Everett's feet. It's an opportunity to educate folks and spread the

word about his work. There is no shame for a parent to tote around

a birth-defected child. Keep in mind " God doesn't make junk " .

Show off your babies, be proud, because your children all arrived

exactly the way God made them. If HE wasn't ashamed to give them to

the world why should we as parents be embarassed to expose their

feet, or annoyed to educate people away from their own ignorance?

>

> Sorry, just my humble two cents worth. 's midwife who

delivered him treated him like junk when his feet came out deformed

as if she took it personal - as if we soiled her reputation by

bearing a child with a birth defect. She disgusted me with her

attitude which really drove home in my heart that God doesn't make

junk no matter what she might think about it.

> s.

[Guest guest]

Hi

My daughter had her friend round the other night and her mum came to pick

her up and Connor had his FAB on. It turns out she is a child

physiotherapist. She asked about Connors brace and I told her Connor was

treated with the Ponseti method and she said she is going to Manchester to

learn it. There is only a few who practice here especially in this part of

the UK. I was so pleased. I told her I would bring Connor to show off his

feet so she is arranging a coffee morning so I can bring him along. I hope

she is prepared for all our files, notes and photos on this - I will be in

my eliment

As for comments from other people, I am afraid I am one of those who

actually thinks it is nobody elses business. I wouldn't dream of asking

someone what is wrong with their child. If they want to tell me then that is

fine. When Connor was in casts I was breastfeeding and we went out for the

day and I subconsciously covered his casts just in case someone thought the

worst. I think i found it hard feeding in public anyway without everyone

staring at his casts aswell....... I definitely have never tried to cover

his foot brace, I just think that it speaks for itself, most people think it

is for clicky hips, but you can see it is for a correction of some sort, so

I am not bothered about that. I just didn't want anyone to think that i had

harmed my baby I suppose.

Rach, Steve & Connor 16 months b/l c/f

-- Re: what do you think?

Hi,

While I agree with everything you have said, I am also one of the

moms who eventually took to covering up 's casts when she was

little (can't now since it's summer and she's 11 months old!). I

don't think I did it so much to " hide " them as if I was ashamed as

to be able to get through my grocery trip, etc without having to

explain it 50 times. It has been very upsetting this time around,

the number of dirty looks and " oh, that poor baby broke her

leg " / " HOW did such a little thing break her leg?? " As if I pushed

her down the stairs! So of course as soon as I see THE look, I

immediatley say " It's not broken. She is being treated for a club

foot. " I don't know what's worse, the look of horror before they

know or the look of tremendous belief when they do know. Plus, It

breaks my heart when my older two children keep asking why everyone

thinks broke her leg. I've have nicely explained to them

that unfortunately even adults are not always considerate of other

people being different. I think they get tired of hearing me

explain it over and over again.

Marilouise

9/9/03, LCF, cast #6/2nd series, 2nd tenotomy 8/20/04

Owen and 3/20/99

> No offense but I wonder why some of you are peeved at strangers

asking about your casted or braced baby, and why you feel compelled

to " hide " the casts/brace. wore casts the first six months

of his life in a hot climate, and while I do admit I would get tired

of answering the same old questions (and hearing the same old

stories about their friend/child/relitive who had club feet or

something) - I guess I'd rather they be forthright with their

questions rather than stare from a distance wondering the worst. I

didn't know about Dr. Ponseti back then ya know - but these days

anyone who asks anything (and even some who don't) hear about the

Amazing Ponseti from Iowa City.

>

> In our search for a replacment vehicle today so we could leave to

Iowa tomorrow (tranny went out of the car yesterday) I bet we spoke

to half a dozen people about Dr. Ponseti's touch of love on

Everett's feet. It's an opportunity to educate folks and spread the

word about his work. There is no shame for a parent to tote around

a birth-defected child. Keep in mind " God doesn't make junk " .

Show off your babies, be proud, because your children all arrived

exactly the way God made them. If HE wasn't ashamed to give them to

the world why should we as parents be embarassed to expose their

feet, or annoyed to educate people away from their own ignorance?

>

> Sorry, just my humble two cents worth. 's midwife who

delivered him treated him like junk when his feet came out deformed

as if she took it personal - as if we soiled her reputation by

bearing a child with a birth defect. She disgusted me with her

attitude which really drove home in my heart that God doesn't make

junk no matter what she might think about it.

> s.