Re: Just not gettin better-

[Guest guest]

TJ

Don't give up, we are all here for you. Please take care of yourself and we

look forward to hearing from you soon.

Betty

Just not gettin better-

> Hi Guys-

>

> My doctor appts are spaced normally 3 months apart. I called for my

refill as he makes me do each month. Because I am still in much pain- he

wants me to come in. I have to go in today at 4:15 p.m. I am really

overtired - and upset about it due to fact I havent even been able to sleep

but maybe 2 hrs in last 2 days and now not only being sore from pain and no

sleep- now the trip out which always sets me back 3 days. The mediciiine he

does put me on wont be available to refill after 5 pm , so- whatever happens

I will not be able to get those either.

>

> Many times- to make sure one is properly adjusting to medication levels or

change overs- they put you in the hospitaal. I am not sure if that is what

he has up his sleeve or not. So cant tell you till later........ well

someone will. Mom or one of my kids will let someone know if i cant.

>

> I am off to see if I can try to get at least an hour - I am so doggone

tired .

>

> I honestly feel its just not worth it anymore....... I almsot threw all

medicatins in the trash and all that SSI mumbo jumbo too- and ya know what-

i might still do it. In fact I might just not go to doctor either. he gets

how much for office call and i get 3 days of hurting worse for doing even

more .

>

> Night all- Somone will inform if I am unable to. Stabaliziiing there

taakes about a week or 2- so if u hear from someone other than me- I'll see

yas when I get back.

>

> Take great care...........

> Love Moon

>

>

>

>

> ---

> Outgoing mail is certified Virus Free With AVG.

> Checked by AVG anti-virus system (http://www.grisoft.com).

> Version: 6.0.614 / Virus Database: 393 - Release Date: 3/5/2004

>

>

[Guest guest]

TJ

Don't give up, we are all here for you. Please take care of yourself and we

look forward to hearing from you soon.

Betty

Just not gettin better-

> Hi Guys-

>

> My doctor appts are spaced normally 3 months apart. I called for my

refill as he makes me do each month. Because I am still in much pain- he

wants me to come in. I have to go in today at 4:15 p.m. I am really

overtired - and upset about it due to fact I havent even been able to sleep

but maybe 2 hrs in last 2 days and now not only being sore from pain and no

sleep- now the trip out which always sets me back 3 days. The mediciiine he

does put me on wont be available to refill after 5 pm , so- whatever happens

I will not be able to get those either.

>

> Many times- to make sure one is properly adjusting to medication levels or

change overs- they put you in the hospitaal. I am not sure if that is what

he has up his sleeve or not. So cant tell you till later........ well

someone will. Mom or one of my kids will let someone know if i cant.

>

> I am off to see if I can try to get at least an hour - I am so doggone

tired .

>

> I honestly feel its just not worth it anymore....... I almsot threw all

medicatins in the trash and all that SSI mumbo jumbo too- and ya know what-

i might still do it. In fact I might just not go to doctor either. he gets

how much for office call and i get 3 days of hurting worse for doing even

more .

>

> Night all- Somone will inform if I am unable to. Stabaliziiing there

taakes about a week or 2- so if u hear from someone other than me- I'll see

yas when I get back.

>

> Take great care...........

> Love Moon

>

>

>

>

> ---

> Outgoing mail is certified Virus Free With AVG.

> Checked by AVG anti-virus system (http://www.grisoft.com).

> Version: 6.0.614 / Virus Database: 393 - Release Date: 3/5/2004

>

>

[Guest guest]

TJ

Don't give up, we are all here for you. Please take care of yourself and we

look forward to hearing from you soon.

Betty

Just not gettin better-

> Hi Guys-

>

> My doctor appts are spaced normally 3 months apart. I called for my

refill as he makes me do each month. Because I am still in much pain- he

wants me to come in. I have to go in today at 4:15 p.m. I am really

overtired - and upset about it due to fact I havent even been able to sleep

but maybe 2 hrs in last 2 days and now not only being sore from pain and no

sleep- now the trip out which always sets me back 3 days. The mediciiine he

does put me on wont be available to refill after 5 pm , so- whatever happens

I will not be able to get those either.

>

> Many times- to make sure one is properly adjusting to medication levels or

change overs- they put you in the hospitaal. I am not sure if that is what

he has up his sleeve or not. So cant tell you till later........ well

someone will. Mom or one of my kids will let someone know if i cant.

>

> I am off to see if I can try to get at least an hour - I am so doggone

tired .

>

> I honestly feel its just not worth it anymore....... I almsot threw all

medicatins in the trash and all that SSI mumbo jumbo too- and ya know what-

i might still do it. In fact I might just not go to doctor either. he gets

how much for office call and i get 3 days of hurting worse for doing even

more .

>

> Night all- Somone will inform if I am unable to. Stabaliziiing there

taakes about a week or 2- so if u hear from someone other than me- I'll see

yas when I get back.

>

> Take great care...........

> Love Moon

>

>

>

>

> ---

> Outgoing mail is certified Virus Free With AVG.

> Checked by AVG anti-virus system (http://www.grisoft.com).

> Version: 6.0.614 / Virus Database: 393 - Release Date: 3/5/2004

>

>

[Guest guest]

You take care, now girlfriend! We'll be thinking of and praying for

you.

Love Lana

[Guest guest]

You take care, now girlfriend! We'll be thinking of and praying for

you.

Love Lana

[Guest guest]

You take care, now girlfriend! We'll be thinking of and praying for

you.

Love Lana

[Guest guest]

Hi,

I know exactly how you must be feeling. Just throw it all away, and to heck

with it. It's not helping, so screw it. I feel the same way. I'm doing

everything my drs are telling me to do - meds, mind/body clinic, pt. I thought

it was all starting to work, then I went down hill again. NOTHING is working.

I'm not as bad off as you, but I am in pain, and can't get things done. I just

vacuumed the living room, and I want to go back to bed. Screw it all.

The pain drs say " hurt doesn't mean harm " (at least mine does) - meaning that

with my condition, hurting doesn't mean something sinister has happened. Just

learn to live with it.

Well, that may be good advise, but I'd like to see what he would do. He told me

he had a bad day a few weeks ago - he was stressed and tired - and he took the

afternoon off, took some tylenol and went to bed. Just from a little more

stress than usual. So, how would he handle things if it were every single day

of his life?

I don't think he understands.

My pain is bad - it's like if my dr broke his leg, and nobody did anything about

it. He'd have to lay around in pain, with no help. That would never happen, so

why does it happen for us? The agony of pain is almost unbearable. Every

single hour of every single day. Year after year after year.

Oh, they don't want to have an addict on their hands. And, of course, that's

important. But, we aren't addicts.

They have the medication to help us, but they won't give it to us. It doesn't

make sense.

If I wern't such a good girl (hehe) I'd say screw all the drs, and find what I

needed somewhere else. Know what I mean? But, I'm not about to break the law.

Now, don't think badly of me for saying this, but it has crossed my mind a few

times.

It's like I don't know what else to do.

Why won't they help us? Why can't we get the relief we so desperately need?

I sometimes think I should move to Amsterdam. It's a beautiful city. I've been

there. I could live there. Maybe on a houseboat. And, go and visit the coffe

houses a few times a day. Maybe I'd get relief that way.

I just can't get my head around it all.

Help me feel better! That's all I want. But, no.

It's like dangling a carrot in front of a hungry horse - " here's what you need

to survive, but we aren't REALLY gonna give it to you. Well, maybe just a

nibble! Now, doesn't that make you feel better? "

This is all just talk - I hope you know. The things that run through my mind!

I saw an episode of " Cops " where a guy was caught buying pot. I felt so sorry

for him. He had a morphine pump inplanted in his body. He said he had cronic

pain, and the pump wasn't doing the job. He just couldn't stand it any longer.

He looked like a regular guy. He was obviously miserable.

The poor guy just didn't know what else to do. The point is, he was desperate.

I'm feeling desperate. I'm not giving up though. I keep plugging along, doing

what the drs tell me to do.

Hoping that one day, I'll be feeling better, and can have some fun in my life.

Thank god I have my kids, cause they keep me laughing, and hopeful.

Sorry, now I'm back on that ME ME ME thing. It's all about ME!

It's like that song -

" enough about you, lets talk about me for a minute "

I'm so self absorbed with all this crap, I forget sometimes other are worse off

than me, and I should SNAP OUT OF IT!

Hugs,

[Guest guest]

Hi,

I know exactly how you must be feeling. Just throw it all away, and to heck

with it. It's not helping, so screw it. I feel the same way. I'm doing

everything my drs are telling me to do - meds, mind/body clinic, pt. I thought

it was all starting to work, then I went down hill again. NOTHING is working.

I'm not as bad off as you, but I am in pain, and can't get things done. I just

vacuumed the living room, and I want to go back to bed. Screw it all.

The pain drs say " hurt doesn't mean harm " (at least mine does) - meaning that

with my condition, hurting doesn't mean something sinister has happened. Just

learn to live with it.

Well, that may be good advise, but I'd like to see what he would do. He told me

he had a bad day a few weeks ago - he was stressed and tired - and he took the

afternoon off, took some tylenol and went to bed. Just from a little more

stress than usual. So, how would he handle things if it were every single day

of his life?

I don't think he understands.

My pain is bad - it's like if my dr broke his leg, and nobody did anything about

it. He'd have to lay around in pain, with no help. That would never happen, so

why does it happen for us? The agony of pain is almost unbearable. Every

single hour of every single day. Year after year after year.

Oh, they don't want to have an addict on their hands. And, of course, that's

important. But, we aren't addicts.

They have the medication to help us, but they won't give it to us. It doesn't

make sense.

If I wern't such a good girl (hehe) I'd say screw all the drs, and find what I

needed somewhere else. Know what I mean? But, I'm not about to break the law.

Now, don't think badly of me for saying this, but it has crossed my mind a few

times.

It's like I don't know what else to do.

Why won't they help us? Why can't we get the relief we so desperately need?

I sometimes think I should move to Amsterdam. It's a beautiful city. I've been

there. I could live there. Maybe on a houseboat. And, go and visit the coffe

houses a few times a day. Maybe I'd get relief that way.

I just can't get my head around it all.

Help me feel better! That's all I want. But, no.

It's like dangling a carrot in front of a hungry horse - " here's what you need

to survive, but we aren't REALLY gonna give it to you. Well, maybe just a

nibble! Now, doesn't that make you feel better? "

This is all just talk - I hope you know. The things that run through my mind!

I saw an episode of " Cops " where a guy was caught buying pot. I felt so sorry

for him. He had a morphine pump inplanted in his body. He said he had cronic

pain, and the pump wasn't doing the job. He just couldn't stand it any longer.

He looked like a regular guy. He was obviously miserable.

The poor guy just didn't know what else to do. The point is, he was desperate.

I'm feeling desperate. I'm not giving up though. I keep plugging along, doing

what the drs tell me to do.

Hoping that one day, I'll be feeling better, and can have some fun in my life.

Thank god I have my kids, cause they keep me laughing, and hopeful.

Sorry, now I'm back on that ME ME ME thing. It's all about ME!

It's like that song -

" enough about you, lets talk about me for a minute "

I'm so self absorbed with all this crap, I forget sometimes other are worse off

than me, and I should SNAP OUT OF IT!

Hugs,

[Guest guest]

Hi,

I know exactly how you must be feeling. Just throw it all away, and to heck

with it. It's not helping, so screw it. I feel the same way. I'm doing

everything my drs are telling me to do - meds, mind/body clinic, pt. I thought

it was all starting to work, then I went down hill again. NOTHING is working.

I'm not as bad off as you, but I am in pain, and can't get things done. I just

vacuumed the living room, and I want to go back to bed. Screw it all.

The pain drs say " hurt doesn't mean harm " (at least mine does) - meaning that

with my condition, hurting doesn't mean something sinister has happened. Just

learn to live with it.

Well, that may be good advise, but I'd like to see what he would do. He told me

he had a bad day a few weeks ago - he was stressed and tired - and he took the

afternoon off, took some tylenol and went to bed. Just from a little more

stress than usual. So, how would he handle things if it were every single day

of his life?

I don't think he understands.

My pain is bad - it's like if my dr broke his leg, and nobody did anything about

it. He'd have to lay around in pain, with no help. That would never happen, so

why does it happen for us? The agony of pain is almost unbearable. Every

single hour of every single day. Year after year after year.

Oh, they don't want to have an addict on their hands. And, of course, that's

important. But, we aren't addicts.

They have the medication to help us, but they won't give it to us. It doesn't

make sense.

If I wern't such a good girl (hehe) I'd say screw all the drs, and find what I

needed somewhere else. Know what I mean? But, I'm not about to break the law.

Now, don't think badly of me for saying this, but it has crossed my mind a few

times.

It's like I don't know what else to do.

Why won't they help us? Why can't we get the relief we so desperately need?

I sometimes think I should move to Amsterdam. It's a beautiful city. I've been

there. I could live there. Maybe on a houseboat. And, go and visit the coffe

houses a few times a day. Maybe I'd get relief that way.

I just can't get my head around it all.

Help me feel better! That's all I want. But, no.

It's like dangling a carrot in front of a hungry horse - " here's what you need

to survive, but we aren't REALLY gonna give it to you. Well, maybe just a

nibble! Now, doesn't that make you feel better? "

This is all just talk - I hope you know. The things that run through my mind!

I saw an episode of " Cops " where a guy was caught buying pot. I felt so sorry

for him. He had a morphine pump inplanted in his body. He said he had cronic

pain, and the pump wasn't doing the job. He just couldn't stand it any longer.

He looked like a regular guy. He was obviously miserable.

The poor guy just didn't know what else to do. The point is, he was desperate.

I'm feeling desperate. I'm not giving up though. I keep plugging along, doing

what the drs tell me to do.

Hoping that one day, I'll be feeling better, and can have some fun in my life.

Thank god I have my kids, cause they keep me laughing, and hopeful.

Sorry, now I'm back on that ME ME ME thing. It's all about ME!

It's like that song -

" enough about you, lets talk about me for a minute "

I'm so self absorbed with all this crap, I forget sometimes other are worse off

than me, and I should SNAP OUT OF IT!

Hugs,

[Guest guest]

, I hope you and a lot of others will write some of what you

wrote here, and send it to (Lonestar Rose) to be included in

her book. I know she said what do you want your family and friends

to know, but I think she'll also want, " What do you want your doctor

(s) to know? " Maybe not, but if she doesn't need it, she can toss it

much easier than asking for input from everyone again. I know she'd

appreciate it!

Love Lana

[Guest guest]

TJ Print out this email and show it to him - especially the part where you are

in MORE pain for 3 days...

You could also type out your questions/comments, leave a space for him to PRINT

in his instructions, etc...

Good luck! I hope he finally listens to you and you get different meds!!!

Sometimes I write down what I need to talk to the doc about and/or hand it to

them so they can read it for themselves....

Just not gettin better-

[Guest guest]

TJ Print out this email and show it to him - especially the part where you are

in MORE pain for 3 days...

You could also type out your questions/comments, leave a space for him to PRINT

in his instructions, etc...

Good luck! I hope he finally listens to you and you get different meds!!!

Sometimes I write down what I need to talk to the doc about and/or hand it to

them so they can read it for themselves....

Just not gettin better-

[Guest guest]

TJ Print out this email and show it to him - especially the part where you are

in MORE pain for 3 days...

You could also type out your questions/comments, leave a space for him to PRINT

in his instructions, etc...

Good luck! I hope he finally listens to you and you get different meds!!!

Sometimes I write down what I need to talk to the doc about and/or hand it to

them so they can read it for themselves....

Just not gettin better-

[Guest guest]

In a message dated 3/16/04 11:13:54 AM Eastern Standard Time,

monica-jb@... writes:

<< And, go and visit the coffe houses a few times a day. Maybe I'd get

relief that way. >>

Can I come too?????? What a life.....houseboat... and I hear the coffee

houses offer more than coffee, LOL!!!!!!

Hugs,

Sue