Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 Hi All, Just thought I would write and ask you whether or not in FMS or CFS 17 hours sleep is normal... Firstly I will explain, the last few months I have been that bad with my FMS or what ever it is that most of the time I have been going to bed between 12am to 3am, and sleeping all the way through to most of the time dinner time the next day.... but on many occasions its got to Teatime 6pm. My normal week would consist of getting up at 1am/6pm. BUT: This week I have really tried this week: Monday I got up at 1pm Tuesday I got up at 8:15am Wednesday I got up at 8:15am Thursday I got up at 8:15am Friday I got up at 10am. Saturday (2day) I got up at 7pm. I obviously know that this isn't right and that I shouldn't need that mush sleep, (here I go, trying to make excuses) but I woke up with a migraine that made me feel sick and dizzy, and I just couldn't cope being around anyone at all, plus my legs were in agony and my back was killing me..... also its that time of month and I had pains from that plus ibs pains as well. I just didn't feel like I had any fight left in me anymore, especially after this week. I feel very upset and confused and so is my hubby.... the hubby part I won't go into detail about.. but I feel like I can't cope anymore with the pain I am going through and the upset it is causing my family. I just want to die and put everyone out of their misery.... I know that this isn't the right attitude to take and maybe we both need someone to talk to about it, but what other option is there.... I don't seem to be able to keep fighting this and I am losing faith in myself. I know my hubby isn't handling this very well, but for some reason he doesn't want to know how I feel and how emotional I am right now..... I think that he thinks that because I have tried this week that I should be able to do it ever day, I think he ants me to be perfect and I can't. I love him to pieces and this illness is pushing us apart. Sorry can't type anymore tears running down face here and can't see the keys... lucky I can just about touch type. hug's Odette XxxxX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 Hi All, Many thanks for all your replies and I hope that I have the perseverance to do some of the things that you mentioned. To answer some of your questions: Yes I am on antidepressants, the well talked about Efexor 150mg (the well talked about, on some groups anyway) this is the rest of the stuff I am on: Dihydrocodeine (DF118) 30mg, 2*3 a day, epam 2mg, 1*3 a day Thyroxine 50micrograms, 2per day Zolpidem (StilNoct) 5mgs 1-2 at night. Ibuprofen 600mg 1*3 a day As far as my faith in Christianity is right now, is nearly zilch, I am a BAC (Born Again Christian) and I have had so many people pray for me that it sickens me to know that God can't or won't heal me. I am losing Faith day by day as my illness gets worse. I am going to make a appointment to see the doc on Monday morning, and I have asked hubby to come and he has said yes he would. As far as my hubby talking to anyone, you have got to be joking.... he won't even read up about this..... He says " what's the point in me wasting my time just to find out that you suffer from this and that, when I already know you do " . I cried myself to sleep last night and he never budged even to ask what was wrong, not that he couldn't tell at all.... especially when most of the time I sniff a lot.... I managed to get up at 3pm today 11 hrs sleep in total. I come down stairs to be ignored and my kids driving me up the wall with their bickering...... plus Dogs looking at you with sad eyes waiting for attention.... At 5pm I had, had enough and went upstairs and cried my eyes out again, this time he did come up and sit with me. He asked what was wrong so I told him the truth, and he didn't like it and decided that I was blaming him and that what he was doing wasn't good enough... That's not what I meant, all I want to do is to explain how I feel to him without him taking it personally. All I probably just need someone to give me a big hug and sit with me and hold me while I let it all out. This is a really bad month/week and I don't know whether I can cope with any more like this, especially with out the love support of my family. Many thanks for letting me vent...... Hugs Odette XXXXX 17hrs sleep?? Hi All, Just thought I would write and ask you whether or not in FMS or CFS 17 hours sleep is normal... Firstly I will explain, the last few months I have been that bad with my FMS or what ever it is that most of the time I have been going to bed between 12am to 3am, and sleeping all the way through to most of the time dinner time the next day.... but on many occasions its got to Teatime 6pm. My normal week would consist of getting up at 1am/6pm. BUT: This week I have really tried this week: Monday I got up at 1pm Tuesday I got up at 8:15am Wednesday I got up at 8:15am Thursday I got up at 8:15am Friday I got up at 10am. Saturday (2day) I got up at 7pm. I obviously know that this isn't right and that I shouldn't need that mush sleep, (here I go, trying to make excuses) but I woke up with a migraine that made me feel sick and dizzy, and I just couldn't cope being around anyone at all, plus my legs were in agony and my back was killing me..... also its that time of month and I had pains from that plus ibs pains as well. I just didn't feel like I had any fight left in me anymore, especially after this week. I feel very upset and confused and so is my hubby.... the hubby part I won't go into detail about.. but I feel like I can't cope anymore with the pain I am going through and the upset it is causing my family. I just want to die and put everyone out of their misery.... I know that this isn't the right attitude to take and maybe we both need someone to talk to about it, but what other option is there.... I don't seem to be able to keep fighting this and I am losing faith in myself. I know my hubby isn't handling this very well, but for some reason he doesn't want to know how I feel and how emotional I am right now..... I think that he thinks that because I have tried this week that I should be able to do it ever day, I think he ants me to be perfect and I can't. I love him to pieces and this illness is pushing us apart. Sorry can't type anymore tears running down face here and can't see the keys... lucky I can just about touch type. hug's Odette XxxxX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 Hi All, Many thanks for all your replies and I hope that I have the perseverance to do some of the things that you mentioned. To answer some of your questions: Yes I am on antidepressants, the well talked about Efexor 150mg (the well talked about, on some groups anyway) this is the rest of the stuff I am on: Dihydrocodeine (DF118) 30mg, 2*3 a day, epam 2mg, 1*3 a day Thyroxine 50micrograms, 2per day Zolpidem (StilNoct) 5mgs 1-2 at night. Ibuprofen 600mg 1*3 a day As far as my faith in Christianity is right now, is nearly zilch, I am a BAC (Born Again Christian) and I have had so many people pray for me that it sickens me to know that God can't or won't heal me. I am losing Faith day by day as my illness gets worse. I am going to make a appointment to see the doc on Monday morning, and I have asked hubby to come and he has said yes he would. As far as my hubby talking to anyone, you have got to be joking.... he won't even read up about this..... He says " what's the point in me wasting my time just to find out that you suffer from this and that, when I already know you do " . I cried myself to sleep last night and he never budged even to ask what was wrong, not that he couldn't tell at all.... especially when most of the time I sniff a lot.... I managed to get up at 3pm today 11 hrs sleep in total. I come down stairs to be ignored and my kids driving me up the wall with their bickering...... plus Dogs looking at you with sad eyes waiting for attention.... At 5pm I had, had enough and went upstairs and cried my eyes out again, this time he did come up and sit with me. He asked what was wrong so I told him the truth, and he didn't like it and decided that I was blaming him and that what he was doing wasn't good enough... That's not what I meant, all I want to do is to explain how I feel to him without him taking it personally. All I probably just need someone to give me a big hug and sit with me and hold me while I let it all out. This is a really bad month/week and I don't know whether I can cope with any more like this, especially with out the love support of my family. Many thanks for letting me vent...... Hugs Odette XXXXX 17hrs sleep?? Hi All, Just thought I would write and ask you whether or not in FMS or CFS 17 hours sleep is normal... Firstly I will explain, the last few months I have been that bad with my FMS or what ever it is that most of the time I have been going to bed between 12am to 3am, and sleeping all the way through to most of the time dinner time the next day.... but on many occasions its got to Teatime 6pm. My normal week would consist of getting up at 1am/6pm. BUT: This week I have really tried this week: Monday I got up at 1pm Tuesday I got up at 8:15am Wednesday I got up at 8:15am Thursday I got up at 8:15am Friday I got up at 10am. Saturday (2day) I got up at 7pm. I obviously know that this isn't right and that I shouldn't need that mush sleep, (here I go, trying to make excuses) but I woke up with a migraine that made me feel sick and dizzy, and I just couldn't cope being around anyone at all, plus my legs were in agony and my back was killing me..... also its that time of month and I had pains from that plus ibs pains as well. I just didn't feel like I had any fight left in me anymore, especially after this week. I feel very upset and confused and so is my hubby.... the hubby part I won't go into detail about.. but I feel like I can't cope anymore with the pain I am going through and the upset it is causing my family. I just want to die and put everyone out of their misery.... I know that this isn't the right attitude to take and maybe we both need someone to talk to about it, but what other option is there.... I don't seem to be able to keep fighting this and I am losing faith in myself. I know my hubby isn't handling this very well, but for some reason he doesn't want to know how I feel and how emotional I am right now..... I think that he thinks that because I have tried this week that I should be able to do it ever day, I think he ants me to be perfect and I can't. I love him to pieces and this illness is pushing us apart. Sorry can't type anymore tears running down face here and can't see the keys... lucky I can just about touch type. hug's Odette XxxxX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 Hi All, Many thanks for all your replies and I hope that I have the perseverance to do some of the things that you mentioned. To answer some of your questions: Yes I am on antidepressants, the well talked about Efexor 150mg (the well talked about, on some groups anyway) this is the rest of the stuff I am on: Dihydrocodeine (DF118) 30mg, 2*3 a day, epam 2mg, 1*3 a day Thyroxine 50micrograms, 2per day Zolpidem (StilNoct) 5mgs 1-2 at night. Ibuprofen 600mg 1*3 a day As far as my faith in Christianity is right now, is nearly zilch, I am a BAC (Born Again Christian) and I have had so many people pray for me that it sickens me to know that God can't or won't heal me. I am losing Faith day by day as my illness gets worse. I am going to make a appointment to see the doc on Monday morning, and I have asked hubby to come and he has said yes he would. As far as my hubby talking to anyone, you have got to be joking.... he won't even read up about this..... He says " what's the point in me wasting my time just to find out that you suffer from this and that, when I already know you do " . I cried myself to sleep last night and he never budged even to ask what was wrong, not that he couldn't tell at all.... especially when most of the time I sniff a lot.... I managed to get up at 3pm today 11 hrs sleep in total. I come down stairs to be ignored and my kids driving me up the wall with their bickering...... plus Dogs looking at you with sad eyes waiting for attention.... At 5pm I had, had enough and went upstairs and cried my eyes out again, this time he did come up and sit with me. He asked what was wrong so I told him the truth, and he didn't like it and decided that I was blaming him and that what he was doing wasn't good enough... That's not what I meant, all I want to do is to explain how I feel to him without him taking it personally. All I probably just need someone to give me a big hug and sit with me and hold me while I let it all out. This is a really bad month/week and I don't know whether I can cope with any more like this, especially with out the love support of my family. Many thanks for letting me vent...... Hugs Odette XXXXX 17hrs sleep?? Hi All, Just thought I would write and ask you whether or not in FMS or CFS 17 hours sleep is normal... Firstly I will explain, the last few months I have been that bad with my FMS or what ever it is that most of the time I have been going to bed between 12am to 3am, and sleeping all the way through to most of the time dinner time the next day.... but on many occasions its got to Teatime 6pm. My normal week would consist of getting up at 1am/6pm. BUT: This week I have really tried this week: Monday I got up at 1pm Tuesday I got up at 8:15am Wednesday I got up at 8:15am Thursday I got up at 8:15am Friday I got up at 10am. Saturday (2day) I got up at 7pm. I obviously know that this isn't right and that I shouldn't need that mush sleep, (here I go, trying to make excuses) but I woke up with a migraine that made me feel sick and dizzy, and I just couldn't cope being around anyone at all, plus my legs were in agony and my back was killing me..... also its that time of month and I had pains from that plus ibs pains as well. I just didn't feel like I had any fight left in me anymore, especially after this week. I feel very upset and confused and so is my hubby.... the hubby part I won't go into detail about.. but I feel like I can't cope anymore with the pain I am going through and the upset it is causing my family. I just want to die and put everyone out of their misery.... I know that this isn't the right attitude to take and maybe we both need someone to talk to about it, but what other option is there.... I don't seem to be able to keep fighting this and I am losing faith in myself. I know my hubby isn't handling this very well, but for some reason he doesn't want to know how I feel and how emotional I am right now..... I think that he thinks that because I have tried this week that I should be able to do it ever day, I think he ants me to be perfect and I can't. I love him to pieces and this illness is pushing us apart. Sorry can't type anymore tears running down face here and can't see the keys... lucky I can just about touch type. hug's Odette XxxxX Quote Link to comment Share on other sites More sharing options...
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