Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Mojo, Thank you for listening. I guess I needed to whine a little bit. -. Re: /Having a bad day... , I am so sorry you are having a bad time. Hopefully this flare will end soon. You have mentioned protein in your urine, but do you know what your creatinine level is? Creatinine is more important than the protein. I was diagnosed in 1887 and since then my lowest 24 hour protein was over 4 gr. It went up to as high as 11 gr about a year and a half ago when I was put on chemo. It wasn't the protein so much that decided the chemo, it was the creatinine. That is what shows how much toxins are being left behind in your bloodstream. I agree in a long term protein is no good. They used to not worry about it, but now they have research that says extended protein will damage your kidneys. I think that was my case, but it did take years. I was on 6 monthly cytoxan IV and then 6 quarterly treatments. A total of 18 months. My nephrologist says this is generally the protocol with cytoxan, unless there are other circumstances. It is good to be finally done with it, I hope I never have to do it again. Good luck , watch out for yourself and hopefully you'll have a better visit come July. Mojo Quote Link to comment Share on other sites More sharing options...
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