Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Hi Stacey, If he has the old type VI, (Kyphoscliosos type) then according to the EDS literature it is diagnosed by a urine test. If you want the article for this post me off line and I will sent to to you. kindest regards, Joyce R At 12:23 AM 24/02/2004, you wrote: >Hey Everyone > >I was just talking to my cousin and apparently her best friends son >has EDS (I am assuming Type 6, sh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 Hi Stacey, Kyphoscoliosis formally type VI EDS can be diagnosed through a urine sample, and vascular EDS formally type IV, Arthrochalasia formally type VII A & B, and Dermatosparaxis formally EDS type VII C can be diagnosed through a skin biopsy. Thats according to http://www.ednf.org/typesofeds.html Hope that helped! I'm on route to finding a good EDS/HMS geneicist to get at least the urine test done and maybe the biopsy if it deemed fit to get some of these ruled out. Although we're pretty sure its HMS/EDS which there is no 'test' for! :-/ Bye for now, -Rhea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 Hi Joyce That would be great for the article, the mother of the boy does not have internet access so I was looking for some good articles for my cousin to print for her. my email that you can send it too is panss_27(at)hotmail.com (And dont worry this is a junk mail account so I am not too concerned about spam mail by posting it on here ) Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 Hi Joyce That would be great for the article, the mother of the boy does not have internet access so I was looking for some good articles for my cousin to print for her. my email that you can send it too is panss_27(at)hotmail.com (And dont worry this is a junk mail account so I am not too concerned about spam mail by posting it on here ) Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 Hi Joyce That would be great for the article, the mother of the boy does not have internet access so I was looking for some good articles for my cousin to print for her. my email that you can send it too is panss_27(at)hotmail.com (And dont worry this is a junk mail account so I am not too concerned about spam mail by posting it on here ) Stacey Quote Link to comment Share on other sites More sharing options...
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