Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Betty, Iam so sorry for what happened to your son and best wishes in unraveling the mystery. Thanks so much! Sincerely, S. Re: NIH Update/Bonnie > > > > , > > > > I don't know the answer, but I didn't see the first email you sent out. > The > > slow growth might be that you are deficient of a specific collagen, most > > likely one that is prevalent in the skin. I was positive for vascular > type and > > they never said anything about it being slow growing. In fact mine was > back > > within 3 weeks. I am sure there is always a possibility that something is > wrong > > with the sample, or how it has been processed too.....so don't get too > scared. > > > > The collagen sequencing is done first with the skin fibroblasts. If they > > detect a deficiency, then they will look on the DNA for a mutation. > > > > Hang in there and let us know how it goes. > > > > Hugs, > > Sue > > > > > > To learn more about EDS, visit our website: http://www.ceda.ca > > > > Quote Link to comment Share on other sites More sharing options...
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