Re: Re: ... copies of past due notices ... using the right keywords

[Guest guest]

Sorry so late in response- and sorry for the confusion as well but no I never

made any amount as I was " stay at home mom " did work for

no monetary fee for my x for many years but that didnt count as it was never

written down or paid for ( Kicks self )- I just meant my lawyer told me that

even if a person makes up to 800 dollars a month - as long as it is not over

that amount- they can still apply for SSI. Many that make that amount do not

try because

they think if they have any income at all coming into their house that they

can't get SSI.

Wow you have a high rent amount whew- but I do know what you mean- the amount

allowed doesn't really cover everything needed to be covered.

I am not sure if you would qualify for it or not- they are so picky now a days

--------- all you can do is try............ it never hurts to try ( the way I

see it anyhow ).

I too- have seen where both couples received SSI or SSD-

I am not sure what happened since this letter- as I have not been feeling well

and my mother has not either but I do want you to know- Im still keeping you in

my prayers and I sure hope these people see the light and get you the proper

help you need......... sounds like they are helping more than they did which is

good- but sure seems like there should be more than this for you out there.

Hugs -------------- TJ

In a message dated 4/10/2004 4:36:58 PM Eastern Daylight Time,

moondancer@... writes:

> I am sorry but am totally misunderstanding the part about you making above

> the SSI limit-were you making over 800 dollars? per month?

Yes, But ... subtract rent of 940, Medicare and other stuff. You get sick and

the final SSD is in a range you barely can keep the place you are at.

Or, I just do not qualify for SSI at all. I have/had no resources or a

working car after over ten years of being sent home on disability almost every

year.

And, this recent disability is for five years. With a fixed income, how am I

supposed to replace my car, pay car insurance and all those extra things that

happen?

> I mean I'm sure his income was included in the calculations but I have seen

> many couples where both have SSI or SSD........ So I totally don't

> understand what they are trying there.

His income was ZERO. But that meant nothing they said. He said he was

disabled and had not worked since 1997. That also meant nothing. They said my

income

for family of two, was two much. But if the second person in my house was a

child I would have gotten a benefit. If Bill was not my < > spouse I

could

get benefits. If I had a room mate living with me each could get benefits.

But, not the spouse.

> I like your idea about rare disease discrimination.............. that was

> definitely rude and unfair treatment........ No matter what you have,

visible

> or not, rudeness should make them lose their jobs...

>

> Have you talked to your social worker about that.......... I e-mail mine

> often......... she normally answers me right back....... that comes in handy

> ........

I do not know if she is the Internet type. All this is so new considering

I've been ignored ... my whole life until two days before Bill passed. I do

not

remember who, but I was told to call the cancer doctor office and say I was in

crisis. They called me back to ask why. I told them Bill was MY caretaker.

They told me but he is dying! He has been in hospital on and off for two

months.

They asked me what was my disability. I told them.

This nurse of course had no clue what EDS was, but she knew what Autonomic

Dysreflexia and Autonomic Dysfunction was and was horrified! She called a

social

worker. Weird. After all this time all it took was for my hubby to be dying

:-<. But, I am told not to go there. Because of these events, suddenly I was

interviewed by Aging groups and ended up with meal on wheels and a one time

rental assistance. This only after they watched me pay ALL my RENT bill and

NOT be

able to pay for Bills funeral. I suppose, now they believed me. That, by the

time I got my SSD and subtracted rent, Medicare, medical insurance, mandatory

utilities, Bills prescriptions, my prescriptions, cancer pain medicine, phone,

taxi to hospital, doctor office visits, chemo therapy visits, etc. I was

" pass " broke. You notice food was not on that list. Nor payment to some twenty

or

thirty doctors after all those months of hospital meals, test, x-rays, MRI,

scans, etc., etc. I now know I was and still is medical indigent. Talk about

needing the right keywords to get help.

> Keeping all of your situations in my prayers ............

> Hugs and Love- TJ

Thanks

[Guest guest]

Sorry so late in response- and sorry for the confusion as well but no I never

made any amount as I was " stay at home mom " did work for

no monetary fee for my x for many years but that didnt count as it was never

written down or paid for ( Kicks self )- I just meant my lawyer told me that

even if a person makes up to 800 dollars a month - as long as it is not over

that amount- they can still apply for SSI. Many that make that amount do not

try because

they think if they have any income at all coming into their house that they

can't get SSI.

Wow you have a high rent amount whew- but I do know what you mean- the amount

allowed doesn't really cover everything needed to be covered.

I am not sure if you would qualify for it or not- they are so picky now a days

--------- all you can do is try............ it never hurts to try ( the way I

see it anyhow ).

I too- have seen where both couples received SSI or SSD-

I am not sure what happened since this letter- as I have not been feeling well

and my mother has not either but I do want you to know- Im still keeping you in

my prayers and I sure hope these people see the light and get you the proper

help you need......... sounds like they are helping more than they did which is

good- but sure seems like there should be more than this for you out there.

Hugs -------------- TJ

In a message dated 4/10/2004 4:36:58 PM Eastern Daylight Time,

moondancer@... writes:

> I am sorry but am totally misunderstanding the part about you making above

> the SSI limit-were you making over 800 dollars? per month?

Yes, But ... subtract rent of 940, Medicare and other stuff. You get sick and

the final SSD is in a range you barely can keep the place you are at.

Or, I just do not qualify for SSI at all. I have/had no resources or a

working car after over ten years of being sent home on disability almost every

year.

And, this recent disability is for five years. With a fixed income, how am I

supposed to replace my car, pay car insurance and all those extra things that

happen?

> I mean I'm sure his income was included in the calculations but I have seen

> many couples where both have SSI or SSD........ So I totally don't

> understand what they are trying there.

His income was ZERO. But that meant nothing they said. He said he was

disabled and had not worked since 1997. That also meant nothing. They said my

income

for family of two, was two much. But if the second person in my house was a

child I would have gotten a benefit. If Bill was not my < > spouse I

could

get benefits. If I had a room mate living with me each could get benefits.

But, not the spouse.

> I like your idea about rare disease discrimination.............. that was

> definitely rude and unfair treatment........ No matter what you have,

visible

> or not, rudeness should make them lose their jobs...

>

> Have you talked to your social worker about that.......... I e-mail mine

> often......... she normally answers me right back....... that comes in handy

> ........

I do not know if she is the Internet type. All this is so new considering

I've been ignored ... my whole life until two days before Bill passed. I do

not

remember who, but I was told to call the cancer doctor office and say I was in

crisis. They called me back to ask why. I told them Bill was MY caretaker.

They told me but he is dying! He has been in hospital on and off for two

months.

They asked me what was my disability. I told them.

This nurse of course had no clue what EDS was, but she knew what Autonomic

Dysreflexia and Autonomic Dysfunction was and was horrified! She called a

social

worker. Weird. After all this time all it took was for my hubby to be dying

:-<. But, I am told not to go there. Because of these events, suddenly I was

interviewed by Aging groups and ended up with meal on wheels and a one time

rental assistance. This only after they watched me pay ALL my RENT bill and

NOT be

able to pay for Bills funeral. I suppose, now they believed me. That, by the

time I got my SSD and subtracted rent, Medicare, medical insurance, mandatory

utilities, Bills prescriptions, my prescriptions, cancer pain medicine, phone,

taxi to hospital, doctor office visits, chemo therapy visits, etc. I was

" pass " broke. You notice food was not on that list. Nor payment to some twenty

or

thirty doctors after all those months of hospital meals, test, x-rays, MRI,

scans, etc., etc. I now know I was and still is medical indigent. Talk about

needing the right keywords to get help.

> Keeping all of your situations in my prayers ............

> Hugs and Love- TJ

Thanks