The continuing saga of the Byrnes family.......

[Guest guest]

When I say not a day goes by when something doesn't happen, I am NOT

exaggerating.

went back to school today. He had been home in bed for 3 days with a

severe headache. I took him to the dr yesterday, and he said it may be cluster

headaches, and told me to take him to a neurologist. His headache subsided with

his allergy meds (I think) and a few doses of Tylenol codeine that his dr gave

him.

So, another dr appt added to my calendar. If you saw my calendar, you wouldn't

believe it. I have at least one dr or pt appt every day. Sometimes as many as

4. Every single day. And, it's been like that for the last 2 years. I'm not

kidding.

went to school this morning, happy as can be. (She's got a new boy

" interest " , so that makes school more fun).

I just got back from the school. They called to tell me was flat on the

floor with a terrible muscle spasm.

When I got there, I reminded her what her pt told her to do when her back

spasms, and she did that, and took a valium, so she's feeling a bit better now.

Now she's in a hot shower. I so wish we had a darn hot tub. She can't tolerate

ice at all. And, every time this happens, her eyes hurt badly. That is

perplexing to the drs. I just figure it cause it's all connected - the

connective tissue - the collagen that we don't have. I don't know.

I'm glad it happened again at school, as morbid as that may sound. This is the

4th time it's happened there. The school nurse was there, and it happened

during class time, so one of her teacher's saw it, along with all her class

mates. I hear she scared a few of them.

I talked with the nurse, saying I wish this had happened during 's

keyboarding class, since I'm having so much trouble getting through to that

teacher.

The nurse said she's going go talk with that teacher right away, and explain

things to her, and tell her she CANNOT allow her to lower 's grade because

of her posture, and having to move around a lot.

She also asked me to get some info for her to help her understand it better, so

that she can talk with all of 's teachers. I know some of you have posted

lots of articles for this reason, but I completely cleaned out my mailbox. So,

if anyone (Bonnie) has something that explains easily and understandibly what we

deal with (Barbs letter is great, but I need more), I'd appreciate it. I don't

want to bombard them with too much stuff, or they probably won't read it.

So, that's the good part of it.

Yesterday, My pain dr wanted to put me in the hospital for " respite " . He told

me to go home and take a valium and go to bed, and see if things start to get

better. If they don't, he wants me in the hospital. I never cry, but

yesterday, I completely lost it in his office. I'm so embarrassed about it.

It's just not me. It's like someting took over my body, and I couldn't control

it.

Thanks goodness my husband was home this morning. I got a flat tire, and he

just finished changing it when the school called. So, he went with me. It's

only the 2nd time he's seen having a spasm. It's like he doesn't even

realize what's going on, cause he's working so much.

Anyway, I feel like I've been handling things pretty well over the last 2 years,

but yesterday, I think I was close to a breakdown. Just having my husband here

when something happens, and him helping me, takes a lot of pressure off me.

So, hopefully, I can avoid the hospital. Maybe my husband will understand that

if he doesn't stop working so much, and start helping me with all our troubles,

his lovely wife will be put away. It's not a mental hospital. But, I'm sure it

involves a lot of psychological and psychiatric help. My pain dr won't say I'm

crazy. He says I'm " having a normal reaction to an abnormal situation " . I just

can't do it alone any more. He wants me to have help.

I guess that's not too much to ask - now is it?

Your chronically tired, chronically hurting, over extended, stressed out, mom of

3 sick children, wife of an overworked husband, looney friend,

If I didn't have you guys to moan to, I'd probably have been in the hospital

months ago.