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Kirk

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Rita,

Good advice! I do and do and do one day when I feel good and then

the next day I pay for it so I try to stay somewhere in the middle

and do a little each day and try not to overdo but try to keep

moving! I feel like I am progressing too and it is VERY frustrating.

How long have you had this Kirk? I am 41 and have had it for around

13 or so years. Do you have a spouse or someone that helps you?

Keep talking and hope it helps some!

Sue Me

>

> Take it slow, listen to your body and don't force it to do what

it's incapable of physically doing. There are days when I get up,

eat, shower and do absolutely nothing, because my body won't move,

and the next day I have so much energy you can't hold me down.

>

> Sorry about the rambling, but you sound so desperate, sure hope I

have helped a little.

>

> Good Luck!

> Rita

>

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Rita,

Good advice! I do and do and do one day when I feel good and then

the next day I pay for it so I try to stay somewhere in the middle

and do a little each day and try not to overdo but try to keep

moving! I feel like I am progressing too and it is VERY frustrating.

How long have you had this Kirk? I am 41 and have had it for around

13 or so years. Do you have a spouse or someone that helps you?

Keep talking and hope it helps some!

Sue Me

>

> Take it slow, listen to your body and don't force it to do what

it's incapable of physically doing. There are days when I get up,

eat, shower and do absolutely nothing, because my body won't move,

and the next day I have so much energy you can't hold me down.

>

> Sorry about the rambling, but you sound so desperate, sure hope I

have helped a little.

>

> Good Luck!

> Rita

>

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Rita,

Good advice! I do and do and do one day when I feel good and then

the next day I pay for it so I try to stay somewhere in the middle

and do a little each day and try not to overdo but try to keep

moving! I feel like I am progressing too and it is VERY frustrating.

How long have you had this Kirk? I am 41 and have had it for around

13 or so years. Do you have a spouse or someone that helps you?

Keep talking and hope it helps some!

Sue Me

>

> Take it slow, listen to your body and don't force it to do what

it's incapable of physically doing. There are days when I get up,

eat, shower and do absolutely nothing, because my body won't move,

and the next day I have so much energy you can't hold me down.

>

> Sorry about the rambling, but you sound so desperate, sure hope I

have helped a little.

>

> Good Luck!

> Rita

>

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Hi Kirk, Hang in there. I went thru some emotinal things about five

weeks ago. For me, i hade to get things off my chest from years back.

If you are a veteran, the V A will get you a chair or a scooter. The

group is here for you to vent anything you need to. When i fall,

depending on how serius it is, i try and laugh and make a joke of it.

So hang in there, life is worth all the pain.

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