Guest guest Posted March 11, 2004 Report Share Posted March 11, 2004 Well, I just returned from my appointment with the rheumatologist. I wasn't surprised that he diagnosed me with EDS, but I was shocked that he said I had type X. Granted, he admited that he didn't know a lot about EDS, and when I asked about (former) type III, he said nope, I've got type X. Silly me didn't bring the current nosology because I figured I easily fell into the HEDS category, and if not HEDS, then I was the classical type, so I wasn't too concerned about changes to the nosology. I'm not going to be too concerned yet, because the rheumatologist said he was going to put a call into UCLA and to other doctors in the local area to see if anyone knows more about EDS and wants to take me as a patient. I'm just assuming he got the types mixed up (especially since he seemed to be using the old nosology), and I'll get a correct classification from whomever I am referred to. But I thought I'd share and get some input from y'all. I can't even find any info on type X, as it has apparently only been seen in one family... Thanks! Quote Link to comment Share on other sites More sharing options...
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