Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 It's good to see your name on line... I'm sorry the Remicade hasn't helped you much. I have been on it for a year and it has helped me a lot. I am tapering down off the Prednisone and am begining to get my life back. I feel blessed ( and guilty) I think of you often but haven't been on line for 6 months or so.... Take care Bobbie p.s. how are your dogs? - oh yeah and too..... > > > Hi , > > > > is the only other Vet on the list--at least the > > only one I know of. As > > far as sarcoidosis being caused by the Gulf War-- > > anything is possible. > > > > Since they don't know what causes sarcoidosis, and > > it doesn't have a cure-- > > I'm sure the Feds aren't going to take any action ot > > help--at least not without > > a fight. We have over 350 people on this site, and > > there seems to be alot of > > us that worked in the medical field, or were > > teachers. > > > > I spent 17 years in medical administration--working > > for MD's that treated a > > fair amount of missionaires from all over the world. > > One thought is that this > > may have a rogue TB like virus that starts up our > > immune systems, and then the > > immune system decides our body is the enemy--and > > continues it's attack, even > > after the initial problem is gone. > > > > Stress seems to play a huge part in all the > > auto-immune diseases--and then > > add the dust and sand and chemicals that you were > > exposed to in the GW-- and > > you've got a problem. > > > > Is your sarcoidosis just in your lungs, or is it > > systemic and neuro? Let us > > know how we can help. > > > > Sincerely, > > Tracie > > NS Co-owner/moderator > > > > > > > __________________________________________ > Yahoo! DSL - Something to write home about. > Just $16.99/mo. or less. > dsl.yahoo.com > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > NS CHAT:- Has been cancelled for now. > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
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