Guest guest Report post Posted February 10, 2002 Dear , Hello and welcome. I just read your BIO and I had just had to reply. You said you got very sick in the Soviet Union. You got better off and on and then new symptoms appeared. **I started the same way. Got a very bad influenza (lasted 3-4 months), then felt better then worse again. > > > Male/female: Male > > > What are the symptoms? > > IBS > Joint pain > Migraines > Horrible sleep patterns > Perpetual fatigue > Chronic kidney stones > I too, have all the above except Kidney stones, and my headaches get bad, but have never been doagnosed with migraines...I have interupted sleep and I always feel tired and I too feel like I have been run over by a truck! I was recently diagnosed (July 2001) with Chronic Fatigue Syndrome. I get an ongoing sore throat that has lasted for 4 months at a time. This is a primary symptom of CFS. I have been sick for approx. 4 years, but not diagnosed till last Feb. (1 year now) with FMS. My doctor (GP) still says if I get 8 hrs. sleep a night, I would be fine. He is is big denial. He won't prescribe anything for me for pain except (Celebrex) for the joint/muscle stiffness and Ibuphrohen 600mg. for pain. I have a Rhumeotologist appointment again in March and I am going to insist she put me on a pain med, b/c I don't see why I should suffer there is no need. If you could get your GP to refer you to a Rhumey with a good reputation, this is my suggestion to you. They seem to be more familiar with CFS/FMS. , when you mentioned Carbs, play a role in the disturbance of your symptoms, what did you mean by that? I too, am a carb junkie and I crave them if go too long without. Spicy foods are a NO NO now too b/c of the IBS, and I always loved HOT spicy foods. I am sorry you are suffering all these problems at such a young age, but since you mentioned, your mom had FM and your sister has MS, I do believe that FM is somewhat hereditiary. Good luck , Carolyn in Canada > Hi. Just joining the group. My name is and > I'm just joining to find community and hopefully some > direction in finding a doctor who can help me. I'm > one-year-old son. > > 28, I live in the Boston area, and I'm married with a > > > Age range: 28 > > > Male/female: Male > > > What are the symptoms? > > IBS > Joint pain > Migraines > Horrible sleep patterns > Perpetual fatigue > Chronic kidney stones > > > > Has you illness been diagnosed? > > no. my mother has been diagnosed and my sister has > MS, i have been to too many doctors who gave me no > help (at best) or thought i was psychosomatic or > hypochondriac or refused to see me (the worst) because > they couldn't figure out what my problem was. i would > like to find a doctor who is experienced with FMS. > > > How long did you suffer before you got help? > > > > Is there a time that you can remember when it > > started? > > it started when i was almost 20. i was travelling in > the soviet union and got very sick. after i got back, > over the course of a year i simultaneously got better > and got worse. the initial sickness healed somewhat > over a few months, but new symptoms appeared. > > > Some of us have found lack of exercise we are > > overweight. Have you found this to be a problem > > also? > > i am not overweight. exercise is a double-edged sword > with me. it improves some symptoms while aggravating > others. > > > > Are you on disability? no > > > If you are any pointers for others trying to get on > > disability? > > > > What have you found that helps ease the pain, warm > > baths, medications etc.? > > pain killers agravate the IBS. warm showers help relax > the overactive GI system, but usually it's hard to > stand too long in the shower--i need a shower with a > padded tub. ;-) > > > > Do you have sleep problems? How do you deal with it? > > yes. i wake up numerous times in the course of each > night, sometimes i am unable to get back to sleep. > every morning i wake up feeling like i got hit by a > truck. i never feel rested. so far no > solution/treatment. > > > Do you have family that understands your illness? > > yes. as mentioned my mother has FMS and my sister has > MS. > > > Some have found certain foods causes problems with > > CFS or Fibro, have you? > > too many carbs messes me up which is a pain because > i'm binary about carbs--i either crave them like crazy > or i am completely revulsed by them. plus normal IBS > problems with spicy, greasy or dairy foods. > > > What type of Doctor have you found that has helped > > you the most? > > so far none. i have had experiences with doctors > ranging from useless to horrible. i know i need to be > treated but need to find a doctor who i can trust and > who can help me. > > > > __________________________________________________ > Quote Share this post Link to post Share on other sites
