RE: Re: Help with ALA symptoms/NDF-- anyone?

[Guest guest]

We use Culturelle, primarily, but my son's gut was better than most since

he's older, and we did GFCF for two years before chelating.

Barb

[ ] Help with ALA symptoms/NDF--

> anyone?

>>

>>

>> >

>> >

>> > Hello everyone,

>> >

>> > I mostly just lurk on this board, but have been following

> Andy's

>> > DMSA protocol for my almost 7 year old son.

>> > Actually, I did just DMSA for about a year (some 3 days on, 4

> days

>> > off, but mostly 3 on, 11 off) but just started doing ALA only

> three

>> > weeks ago. (I know I probably could have added the ALA

> sooner,

>> > but was afraid of the possibility of moving mercury to the

> brain).

>> > But now I switched to ALA because I found out that my son is

>> > low sulfur (via plasma cysteine test) so I thought the ALA

> would

>> > do him good, not sure why I didn't keep the DMSA with that,

> but I

>> > think it might be too much for him. Anyway, I've only done 2

>> > rounds of ALA thus far, and on the first round, my son started

>> > looking at me, making eye contact when he or I talked--

> which is

>> > huge for him. Usually we have to remind or prompt him to

> look

>> > at us. But anyway, along with that wonderful change, he also

>> > started stimming and showing behaviors that he never really

> did

>> > before. (I think this happened on the off days.) Is this normal

> or

>> > is it a sign of candida or something else? The behaviors

> came

>> > and went (i.e. spinning, covering his ears), but on top of that,

> his

>> > attention has gone downhill significantly in school. If anyone

> has

>> > advice about what this may be, I'd really appreciate your

> input.

>> >

>> > Also, I was just wondering if anyone has any knowledge or

>> > experience with NDF? I noticed someone else asked about

> this

>> > recently as well and I was curious about it. Also, is TTFD or

>> > Autistique recommended by Andy or is he neutral about that?

> I'm

>> > not quite sure.

>> >

>> > Thank you in advance.

>> > Carolyn

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> > ===============================================

> ========

>> >

[Guest guest]

Perhaps Andy can help answer the question on NAC and calcium interference.

I have not heard of that. Sorry I can't explain the whole sulfation thing

either.

I have been learning by bits and pieces myself. Most of the information I

found

on the web drowns you in info that is too deep to absorb. Like never ending

pages of information. I usually take a note and move to another site. I

found helpful

guides in Andy's book and in a few amino acid books I bought. That is a

good start.

Also this group is interesting and you can get helpful answers to your

questions

from the person running this board also.

sulfurstories/

I found myself looking more into the sulfur information because every

symptom

I had that I did a search for on the net had something to do with the

sulfur pathway

being disturbed. For instance, yeast. Very bad memory, included

Alzheimer, MS.

Neuralgia. CFS. IBS. Depression and anxiety.

When I first came on this list NAC was discussed allot and that is when I

think

I learned that many persons need this when chelating with ALA.

the full spelling is N-Acetyl-Cysteine.

The search on doesn't work and it is difficult to pull up old

information.

Perhaps it needs discussed by people who know more, and how to explain it

again.

Andy's book mentions those persons who would do well on it and those who

wouldn't. Also gives you some idea on these wacky liver phases.

I don't have links. I did save a few web pages. One site I think is called

enzymestuff.com. I am at a disadvantage to send a link because my address

bar disappeared. If that link does work click on the Methylation link.

Long page of easy to understand information. Mentions the importance on

including the cofactors and what they are.

Liz D.

> [Original Message]

> From: manjulegolas <cknomura@...>

> < >

> Date: 10/7/2004 12:56:24 PM

> Subject: [ ] Re: Help with ALA symptoms/NDF-- anyone?

>

>

>

> Dear Liz,

>

> Thank you very much for all your info. I wasn't sure about how or

> when to give NAC since I've read somewhere that if it binds with

> calcium it forms some kind of irreversible bond and he takes

> liquid calcium/mag 3x/day -- I'm really clueless about this whole

> methylation, sulfation thing. I've read bits and pieces about it

> here and there, but am totally lost. Could you possibly explain it

> to me in very laymen's terms or is there a website that I could

> visit to learn about this? What are the supporting co-factors to

> give?

>

> Thanks again,

> Carolyn

[Guest guest]

I was able to pull the page up, it is enzymestuff.com and if you

click the words that says " Related Topics/Nutrients " at the top

of the page you will go to another page with different links

on the side. That is where you will find the Methylation link.

This whole site is very informative. Especially begining with

using enzymes and understanding how they in turn produce

our amino acids. Of course sometimes we have to supplement

with amino acids anyway.

I hope that page helps.

Liz D.

> [Original Message]

> From: manjulegolas <cknomura@...>

> < >

> Date: 10/9/2004 3:29:16 AM

> Subject: [ ] Re: Help with ALA symptoms/NDF-- anyone?

>

>

>

> Dear Liz,

>

> Hi again. I will definitely check out the websites. Gee, those

> sulfur symptoms sounds like me! I know I probably have

> candida issues too.

>

> Thanks for the help. Take care,

> Carolyn

[Guest guest]

Carolyn,

I am glad you found the information! You see why it isn't easy

to explain? Really complex but little by little you begin to put

the pieces together. That is a fantastic site for us commoners.

Now read what I posted on the liver phases. I read some information

in my amino acid books but I keep getting lost. It is important to

understand liver phase function and how and when we detox stuff.

I searched on the net for some better explanation than my book but

found this pamphlet that describes it best.

Now it is that methlyation pathway that is a very important detox

pathway. Andy's book mentions how both phases could be disrupted.

Either running to fast or too slow. It can mean something very specific

or each person because it is our detox process. It would be nice if

you can get one of those liver phases testing done. Will stop some

guess work. I found a new health center and want to go there to

see what they can tell me about mine. I already guessed but I could

use some more help.

Liz D.

> [Original Message]

> From: manjulegolas <cknomura@...>

> < >

> Date: 10/12/2004 1:48:28 AM

> Subject: [ ] Re: Help with ALA symptoms/NDF-- anyone?

>

>

>

> Liz,

>

> Cool website! It's the first time I've come across it, believe it or

> not. Thanks a bunch for directing me there. I've had to read the

> methylation part about three times because it really is like greek

> to me, but I think I understand it a bit more. I'm going to check

> out all the other info too.

>

> Carolyn ; )

[Guest guest]

The group will have to jump in here to help you out with those

questions. It seemes we are opposit. I did read something

last year on it and I did forget. If I find any thing I'll post.

Meanwhile......Group?

Liz D.

> [Original Message]

> From: manjulegolas <cknomura@...>

> < >

> Date: 10/12/2004 6:33:15 PM

> Subject: [ ] Re: Help with ALA symptoms/NDF-- anyone?

>

>

>

> Hi Liz,

>

> Okay, according to the info I've read, my guess about my son is

> that he is an over methylator(sp?) since he seems to have high

> histamine (bad food/sinus allergies that leads to asthma

> attacks).

> So if I am right about this, how do I help him? I think it says to

> give more taurine, dmg or tmg, zinc, magnesium, and epsom

> salts? I guess I'd better read your post on liver phases first : )

>

> What about EPD (enzyme potentiated desensitization) shots?

> The site says that it is very effective for food sensitive individuals,

> but I've never heard of anyone talking about this and my son is

> afraid of needles. (Or am I one of the few struggling with food

> allergy triggered ashtma?) If it is safe and effective, I would

> definitely do it.

> Btw-- another subject, but have you tried the high dose vitamin A

> protocol? Are they even still recommending it? I was just

> reading about that on Dana's site, and I do feel that my son has

> regressed after the MMR, so was wondering if I should try this.

> Did Andy ever say anything about this?

> Sorry for all the questions. Look forward to chatting with you

> again : )

>

> Thanks,

> Carolyn

[Guest guest]

I did question you about MSM. Some people can take it and

some can't. But I wanted to add that I suggested to a neighbor

to try it for her arthritis and I read it was good treatment for asthma.

It helped her surprisingly so. She used to wheeze when someone

outside cuts the grass and had to go in the house. The doctor put

her on the strongest medicine that was left and it wasn't helping.

Nobody could believe how well she is on the MSM.

I learned on another group that you could experience headaches

while taking it and if so then you must add molybdenum. Also take

vitamin C with it, it is needed to work and for you to feel right.

Interestingly, MSM is a sulfur manufactured from wood but it doesn't

have action exactly like our sulfur amino acids. So it is hard to say

how this stuff works or how it fits into our system. But when I read

about supporting that Methlyation pathway, molybdenum is a mineral

needed to support that as well. Whatever it does it seems to help

the body detox. Also is a pain reliever. My dog is doing great on it

also.

And you can add it to juice. Especially orange juice that already is

loaded with vitamin C.

Keep digging, you are doing a good job making a connection.

Liz D.

> Okay, according to the info I've read, my guess about my son is

> that he is an over methylator(sp?) since he seems to have high

> histamine (bad food/sinus allergies that leads to asthma

> attacks).

> So if I am right about this, how do I help him? I think it says to

> give more taurine, dmg or tmg, zinc, magnesium, and epsom

> salts? I guess I'd better read your post on liver phases first : )

> Carolyn

[Guest guest]

If you are concerned about toxicity of any supplement, do a search

on " vitamin A toxicity " . You will get clear description on this on the net.

Also do this for your minerals too. Some of our minerals can

get to toxic levels also because not all of them flush out of our body

daily.

I was put on vitamin A when I had candida and I stayed on this supplement.

I didn't get bad toxic symptoms but was surprised that I did qualify as

getting too much of this vitamin. One symptom I remember is for YEARS

having trouble distinguishing purple from blue. I stopped taking large

doses of it and in a few months began seeing the colors right.

I recall a mention on some message board of a rash developing in

kids and this is a clue also. I used to get a rash on my fore arm and

didn't know why. I think it was because of the amount of A I was

taking.

When you read about your immune system needing support you read

how incredible vitamin A is. This is so much emphasis on this that I

think most of us can over do it.

Liz D.

> Btw-- another subject, but have you tried the high dose vitamin A

> protocol? Are they even still recommending it? I was just

> reading about that on Dana's site, and I do feel that my son has

> regressed after the MMR, so was wondering if I should try this.

> Did Andy ever say anything about this?

> Sorry for all the questions. Look forward to chatting with you

> again : )

>

> Thanks,

> Carolyn