Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 In a message dated 12/7/2004 6:38:45 PM Eastern Standard Time, RSD-CRPSofAmerica writes: THERE ARE A FEW SIMPLE THINGS THAT HELP WITH RSD AND THATS IT!! AND "NEUROTTIN IS "NOT" FOR RSD"!!! Amey, With all due respect, I totally disagree. Neurontin has helped me so much with the burning pain. Without it I would not be able to function on the level that I do. Maybe it does not work for you but we are all different. You say that Topamax is OK but not Neurontin. They are both from the same class of drugs, miscellaneous anticonvulsants and are very similar. There is nothing wrong with off label use it is legal and is done all of the time. I say YES to Neurontin but hey, that's just me! Take care, Love Jai Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 > In a message dated 12/7/2004 6:38:45 PM Eastern Standard Time, > RSD-CRPSofAmerica writes: > THERE ARE A FEW SIMPLE THINGS THAT HELP WITH RSD AND THATS IT!! > AND " NEUROTTIN IS " NOT " FOR RSD " !!! Amey - I'm in agreement with many others here in the group on many levels...first, doctors, hospitals and drug companies are going to make money anyway, if I happen to stumble on something that works for me while they're raking in the bucks, who cares? Secondly, I also agree with others in the group that hardline negativity has no benefit in this group. Save it for your therapist. People with this disease need hope and I say let us get it any way we can. Third point, I was on high doses of Neurontin for a few years and it was impressive in the way it kept certain elements of my pain in check. The only reason I discontinued it was I did experience some of the short-term memory problems that are a side effect of the drug. Unfortunately, as long as I have to work for a living, I need that part of my brain to function normally, so I have to take a different approach to managing my pain. Please call on whomever you need to speak with so you can feel a bit more at ease about your situation because your post indicates that you're pretty uncomfortable. Peace, love and pain relief!!! Cliff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 > In a message dated 12/7/2004 6:38:45 PM Eastern Standard Time, > RSD-CRPSofAmerica writes: > THERE ARE A FEW SIMPLE THINGS THAT HELP WITH RSD AND THATS IT!! > AND " NEUROTTIN IS " NOT " FOR RSD " !!! Amey - I'm in agreement with many others here in the group on many levels...first, doctors, hospitals and drug companies are going to make money anyway, if I happen to stumble on something that works for me while they're raking in the bucks, who cares? Secondly, I also agree with others in the group that hardline negativity has no benefit in this group. Save it for your therapist. People with this disease need hope and I say let us get it any way we can. Third point, I was on high doses of Neurontin for a few years and it was impressive in the way it kept certain elements of my pain in check. The only reason I discontinued it was I did experience some of the short-term memory problems that are a side effect of the drug. Unfortunately, as long as I have to work for a living, I need that part of my brain to function normally, so I have to take a different approach to managing my pain. Please call on whomever you need to speak with so you can feel a bit more at ease about your situation because your post indicates that you're pretty uncomfortable. Peace, love and pain relief!!! Cliff Quote Link to comment Share on other sites More sharing options...
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