Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 -Anne, sometimes it takes a long time to diagnose lupus and sometimes it shows right up, depending on the person and the tests I have noticed. There are a lot of people in this group on Plaquenil and methotrexate so I don't think that is a bad idea. Sometimes though, it takes a while for the meds to get things under control, don't give up. There are other people in the group also who can tell you the exact test to dx lupus, I don't know much about that part. Feel free to jump in and ask a question or answer someone elses anytime! a C How is a Lupus diagnosis reached? Does it sound like I do have it? The doctor has me on Plaquenil and methotrexate because he said they help RA and Lupus, too. Does this sound reasonable? Any advice/info would be most appreciated! -Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 JULIE-ANNE..... THE BEST WAY I KNOW TO BEGIN TO UNDERSTAND LUPUS AND ALL THE OTHER AUTOIMMUNE DISEASES IS TO VISIT THE ITZARION WEBSITE.....BRENDA `RION' SEWELL PUT TOGETHER A WONDERFUL PLACE FOR US TO GO TO FOR ANSWERS TO QUESTIONS THAT YOU SOMETIMES DON'T EVEN KNOW ENOUGH TO ASK.....http://www.itzarion.com/lupusgroup.htmlWHERE IN TEXAS DO YOU LIVE.?....I LIVE IN ARLINGTON, TEXAS Newby Hi all!I'm brand new to the world of autoimmune diseases and could sure use some advice/help!I'd been feeling lousy since last fall. It started with what the doctor said was the flu, but I only had severe joint pain and a high fever and rash. It never really went away. I was told I probably had either Lyme Disease or Epstein-Barr, but both tests came back negative. I get unexplained red bumps on my cheeks that come and go at will and I developed nodules on my elbows.My hands are a mess. Ten years ago, I moved to Texas because I couldn't tolerate the cold -- I'd get horrible headaches, lose balance and my fingers and toes turn bluish white and get horribly stiff in cold weather and even cold air conditioning. It takes forever for them to warm up!Two weeks ago, I was diagnosed with Rheumatoid Arthritis and Fibromyalgia. My doctor ran a panel for Lupus recently and told me on Friday that some of the Lupus tests were positive but the ANA is negative. He's going to continue to monitor this situation. (My RF is positive and the C-RP was really high a few weeks ago.)How is a Lupus diagnosis reached? Does it sound like I do have it? The doctor has me on Plaquenil and methotrexate because he said they help RA and Lupus, too. Does this sound reasonable?Any advice/info would be most appreciated!-Anne"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Welcome to the group. I am 36 have 3 kids, 2 dogs and 1 guinea pig. My dogs are australian shepherds. We live in Michigan. I think you will enjoy this group, it's a nice place to find support and to support others who need it!!! Looking forward to getting to know you... Quote Link to comment Share on other sites More sharing options...
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