Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Thanks for the update, Lana. What would we do without you to keep track of everyone and rally around those in need? -Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Thanks for the update, Lana. What would we do without you to keep track of everyone and rally around those in need? -Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Thanks for the update, Lana. What would we do without you to keep track of everyone and rally around those in need? -Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 > Thanks for the update, Lana. What would we do without you to keep track of > everyone and rally around those in need? Probably not worry so much! LOL! But thanks Barb, for the compliment. Love Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 > Thanks for the update, Lana. What would we do without you to keep track of > everyone and rally around those in need? Probably not worry so much! LOL! But thanks Barb, for the compliment. Love Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 > Thanks for the update, Lana. What would we do without you to keep track of > everyone and rally around those in need? Probably not worry so much! LOL! But thanks Barb, for the compliment. Love Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 > Probably not worry so much! LOL! But thanks Barb, for the > compliment. Perhaps, but worry is okay when it means you are concerned for others. -Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Lana, Thank goodness she's a little better. I can't believe she is not dehydrated though. Maybe the nexium will help soothe her bowel and stomach. Did he give her anything for the nausea and vomiting? Well you too have a Great weekend and a Happy Mother's Day! Something is still not right here. Love, GOOD NEWS-re: > Hi everyone, > > Sis called me just a little bit ago. She did make it into her family > doctor, and surprisingly, the results are not horrible, and are on > the upswing! Her potassium level had risen to 4!! That's the > highest it has been in months! I think the normal range is 3.5-5.5, > so it is within normal limits. > > Her doctor thought that it rose because of the liquid potassium and > the slow release potassium pills. Even though her body was having > problems with the liquid potassium, especially along with IBS, she > was able to retain some potassium from that. He said that he thought > the liquid potassium had irritated her digestive and bowel system and > made it red and inflamed, and that the slow release pills should not > irritate her system like the liquid did. > > Surprisingly, she is not dehydrated either, according to her doctor, > though he didn't really give her any numbers except the potassium > level. He said her conscious patient effort of trying to sip all day > long was enough to ward off the dehydration. He said the rest of her > blood tests looked 'OK'. She asked him if he thought she needed to > see a nephrologist, (she informed him of Dr. Francomono's suggestion) > and he said that if her potassium level had not been within a normal > range, that yes, he would have recommended that. > > The plan is that she is to take Nexium 3 times a day, an hour before > meals and cut down the potassium to two pills a day, until her tummy > settles down and the IBS settles down and is ready to accept more. > She will slowly work back up to the six pills that she was taking > before her appointment. She is to go back in two weeks (at the most) > and have another blood test. If this does not work, they will need > to decide what to do next. I am sending this same email to Dr. > Francomono, as Sis said that if Dr. Francomono did not agree with Dr. > 's plan, that she would not hesitate to do anything Dr. > Francomono suggests, as her primary doctor is only a general > practioner. > > As for Lennie, he does have Bronchitis (AGAIN) and was given > antibiotics. He had been on some antibiotics for the same thing only > a few weeks ago, but dove down drastically again. He does not have > to work this weekend, so hopefully, he will feel much better by > Monday, with some rest and medicine in his body. > > Sis said when the doctor was speaking to Lennie, that she seriously > looked at him and said that she understood an injection of Thorazine > would help drastically! (Thorazine is an anti psychotic drug). The > doctor said that he would give her a quart jar and a dirty needle for > him. LOL! I asked her if Lennie understood what was being said, and > he said, " As you can tell, doctor, she's not too sick to still be > wicked! " So Sis hasn't lost her sense of humor OR her tremendous > will to live. Thank God! > > I will be calling her again at the first of next week and will let > you all know how she's doing, but she made me promise to tell you all > THANK YOU SO MUCH for your prayers and positive thoughts, and that > she felt that was a huge part of her being much better by this > morning! I thank you all as well! You guys have helped so many of > us in this fashion! Personally, I consider you all to be MY primary > and spiritual doctors MOST of the time! > > I hope you all have a great weekend! > > Much love, > Lana > > > > > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Lana, Thank goodness she's a little better. I can't believe she is not dehydrated though. Maybe the nexium will help soothe her bowel and stomach. Did he give her anything for the nausea and vomiting? Well you too have a Great weekend and a Happy Mother's Day! Something is still not right here. Love, GOOD NEWS-re: > Hi everyone, > > Sis called me just a little bit ago. She did make it into her family > doctor, and surprisingly, the results are not horrible, and are on > the upswing! Her potassium level had risen to 4!! That's the > highest it has been in months! I think the normal range is 3.5-5.5, > so it is within normal limits. > > Her doctor thought that it rose because of the liquid potassium and > the slow release potassium pills. Even though her body was having > problems with the liquid potassium, especially along with IBS, she > was able to retain some potassium from that. He said that he thought > the liquid potassium had irritated her digestive and bowel system and > made it red and inflamed, and that the slow release pills should not > irritate her system like the liquid did. > > Surprisingly, she is not dehydrated either, according to her doctor, > though he didn't really give her any numbers except the potassium > level. He said her conscious patient effort of trying to sip all day > long was enough to ward off the dehydration. He said the rest of her > blood tests looked 'OK'. She asked him if he thought she needed to > see a nephrologist, (she informed him of Dr. Francomono's suggestion) > and he said that if her potassium level had not been within a normal > range, that yes, he would have recommended that. > > The plan is that she is to take Nexium 3 times a day, an hour before > meals and cut down the potassium to two pills a day, until her tummy > settles down and the IBS settles down and is ready to accept more. > She will slowly work back up to the six pills that she was taking > before her appointment. She is to go back in two weeks (at the most) > and have another blood test. If this does not work, they will need > to decide what to do next. I am sending this same email to Dr. > Francomono, as Sis said that if Dr. Francomono did not agree with Dr. > 's plan, that she would not hesitate to do anything Dr. > Francomono suggests, as her primary doctor is only a general > practioner. > > As for Lennie, he does have Bronchitis (AGAIN) and was given > antibiotics. He had been on some antibiotics for the same thing only > a few weeks ago, but dove down drastically again. He does not have > to work this weekend, so hopefully, he will feel much better by > Monday, with some rest and medicine in his body. > > Sis said when the doctor was speaking to Lennie, that she seriously > looked at him and said that she understood an injection of Thorazine > would help drastically! (Thorazine is an anti psychotic drug). The > doctor said that he would give her a quart jar and a dirty needle for > him. LOL! I asked her if Lennie understood what was being said, and > he said, " As you can tell, doctor, she's not too sick to still be > wicked! " So Sis hasn't lost her sense of humor OR her tremendous > will to live. Thank God! > > I will be calling her again at the first of next week and will let > you all know how she's doing, but she made me promise to tell you all > THANK YOU SO MUCH for your prayers and positive thoughts, and that > she felt that was a huge part of her being much better by this > morning! I thank you all as well! You guys have helped so many of > us in this fashion! Personally, I consider you all to be MY primary > and spiritual doctors MOST of the time! > > I hope you all have a great weekend! > > Much love, > Lana > > > > > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Lana, Thank goodness she's a little better. I can't believe she is not dehydrated though. Maybe the nexium will help soothe her bowel and stomach. Did he give her anything for the nausea and vomiting? Well you too have a Great weekend and a Happy Mother's Day! Something is still not right here. Love, GOOD NEWS-re: > Hi everyone, > > Sis called me just a little bit ago. She did make it into her family > doctor, and surprisingly, the results are not horrible, and are on > the upswing! Her potassium level had risen to 4!! That's the > highest it has been in months! I think the normal range is 3.5-5.5, > so it is within normal limits. > > Her doctor thought that it rose because of the liquid potassium and > the slow release potassium pills. Even though her body was having > problems with the liquid potassium, especially along with IBS, she > was able to retain some potassium from that. He said that he thought > the liquid potassium had irritated her digestive and bowel system and > made it red and inflamed, and that the slow release pills should not > irritate her system like the liquid did. > > Surprisingly, she is not dehydrated either, according to her doctor, > though he didn't really give her any numbers except the potassium > level. He said her conscious patient effort of trying to sip all day > long was enough to ward off the dehydration. He said the rest of her > blood tests looked 'OK'. She asked him if he thought she needed to > see a nephrologist, (she informed him of Dr. Francomono's suggestion) > and he said that if her potassium level had not been within a normal > range, that yes, he would have recommended that. > > The plan is that she is to take Nexium 3 times a day, an hour before > meals and cut down the potassium to two pills a day, until her tummy > settles down and the IBS settles down and is ready to accept more. > She will slowly work back up to the six pills that she was taking > before her appointment. She is to go back in two weeks (at the most) > and have another blood test. If this does not work, they will need > to decide what to do next. I am sending this same email to Dr. > Francomono, as Sis said that if Dr. Francomono did not agree with Dr. > 's plan, that she would not hesitate to do anything Dr. > Francomono suggests, as her primary doctor is only a general > practioner. > > As for Lennie, he does have Bronchitis (AGAIN) and was given > antibiotics. He had been on some antibiotics for the same thing only > a few weeks ago, but dove down drastically again. He does not have > to work this weekend, so hopefully, he will feel much better by > Monday, with some rest and medicine in his body. > > Sis said when the doctor was speaking to Lennie, that she seriously > looked at him and said that she understood an injection of Thorazine > would help drastically! (Thorazine is an anti psychotic drug). The > doctor said that he would give her a quart jar and a dirty needle for > him. LOL! I asked her if Lennie understood what was being said, and > he said, " As you can tell, doctor, she's not too sick to still be > wicked! " So Sis hasn't lost her sense of humor OR her tremendous > will to live. Thank God! > > I will be calling her again at the first of next week and will let > you all know how she's doing, but she made me promise to tell you all > THANK YOU SO MUCH for your prayers and positive thoughts, and that > she felt that was a huge part of her being much better by this > morning! I thank you all as well! You guys have helped so many of > us in this fashion! Personally, I consider you all to be MY primary > and spiritual doctors MOST of the time! > > I hope you all have a great weekend! > > Much love, > Lana > > > > > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Did he give > her anything for the nausea and vomiting? ......Well, from what she says, the Nexium is supposed to help with the nausea. Hopefully that will then stop the vomiting. Something is still not right here. ......You are correct, . Dr. Francomono wrote me back saying we need to find out WHY the potassium is so hard to manage and why she needs to be given such high levels. Sis and I both agree. Sis told me to give Dr. Francomono her family doctor's number, which I did, and Dr. Francomono is going to call him Monday to suggest that Sis keep the appt. next Fri. with the nephrologist she had set up. They will strategize together. Hopefully, that will lead to a doctor who can solve this mystery! I don't plan to do much this weekend, so I expect it to be a nice Mother's Day - thanks !! Hope you are feeling better! How did the exam turn out??? Love Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Hey Lana, Have definitely keep the appointment with the Nephrologist and if she can take coping of all the recent Potassium levels plus the other electrolytes too, and any other lab work. Her Dr. can fax them to the new Dr., but I find sometimes it just doesn't get there unless you hand carry it. She still needs something for Nausea and Vomiting. The Nexium is an H2 agonist, in other words it decreases the HCL(hydrochloric acid) in the stomach, that will alleviate some of the inflammation from the liquid potassium and the HCL eroding her tummy and inflaming it but it will not alleviate nausea and vomiting. Have her get some popsicles too and maybe some Gatorade. You can make ice cubes with the Gatorade to suck on, if one has the old fashioned ice cube trays. As for me I still hurt, I see Ortho next Wed. Larry is done with school. Alleluia!!!! Our wedding anniversary is tomorrow.Take Care. Love, Re: GOOD NEWS-re: > > Did he give > > her anything for the nausea and vomiting? > > .....Well, from what she says, the Nexium is supposed to help with > the nausea. Hopefully that will then stop the vomiting. > > Something is still not right here. > > .....You are correct, . Dr. Francomono wrote me back saying we > need to find out WHY the potassium is so hard to manage and why she > needs to be given such high levels. Sis and I both agree. Sis told > me to give Dr. Francomono her family doctor's number, which I did, > and Dr. Francomono is going to call him Monday to suggest that Sis > keep the appt. next Fri. with the nephrologist she had set up. They > will strategize together. Hopefully, that will lead to a doctor who > can solve this mystery! > > I don't plan to do much this weekend, so I expect it to be a nice > Mother's Day - thanks !! Hope you are feeling better! How did > the exam turn out??? > > Love Lana > > > > > > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 You know, , I forgot to tell you, she is drinking/or trying to drink Gatoraid. I do think she will hand carry any records, as she's dealt with enough doctors to know that things just don't get sent as they should. I'll tell her about the popcicles, good idea!!! HAPPY ANNIVERSARY!!! Marriage for any length of time is tough in my opinion, and deserves a Pat on the back!!! Love Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Lana, Thanks for the Pats on my back, just make them gentle one! Lol! Bye TTYL. Love, Re: GOOD NEWS-re: > You know, , I forgot to tell you, she is drinking/or trying to > drink Gatoraid. I do think she will hand carry any records, as she's > dealt with enough doctors to know that things just don't get sent as > they should. I'll tell her about the popcicles, good idea!!! > > HAPPY ANNIVERSARY!!! Marriage for any length of time is tough in my > opinion, and deserves a Pat on the back!!! > > > > Love Lana > > > > > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Oh I am so glad that things have revealed themselves in a better way! This is good news! I am relieved and hope that thing stay on this course. Poor Lennie, I hope he can rest this weekend and allow for some healing!! Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Thanks Jill, I'll keep you informed. Love Lana 0 :-) Re: GOOD NEWS-re: Oh I am so glad that things have revealed themselves in a better way! This is good news! I am relieved and hope that thing stay on this course. Poor Lennie, I hope he can rest this weekend and allow for some healing!! Jill To learn more about EDS, visit our website: http://www.ehlersdanlos.ca _____ Quote Link to comment Share on other sites More sharing options...
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