Re: Tubs, POTS was:Re: Re: Jill Hand

[Guest guest]

: My daughter tells me that the scalp crawling only lasts a short

time. It occurs particularly the first am midodrine dose she takes on

Sat. when she avoids the Dexedrine to allow her an improved appetite and

to actually be able to taste and enjoy food. She also get the crawly

scalp some with Dexedrine. It's got to be the vasoconstriction effect

of the drug. Meaghan is very supersensitive and it tells me just how

awful the low BP feels, for her to put up with the scalp crawlies.

Bernie, Toronto, CAN

Tubs, POTS was:Re: Re: Jill Hand

* Midodrine makes my scalp feel like it is crawling!! I

understand totally

about the baths also. In fact, I can't take showers in the morning when

my bp is

at its lowest without an episode. I'd be lucky to make it to my bed to

pass

out. I hadn't thought of the cold water trick!! I'll have to try that. I

have

often laid there wondering how I was going to get up and out safely!!

*

[Guest guest]

I wish that the creepy crawly scalp did stop for me but the longer I was on

it, the worse it got. I stopped it and then tried to start back and it was

worse than ever the very first dose. I just couldn't tolerate it. I agree that

it

was the constrictions of things in the head and that bothered me too

considering that the last 3 generations of women on my mom's side(she died at

49) all

had strokes. I know that it probably has nothing to do with that but it still

just felt awful. I remember going to a movie and not being able to stand

sitting there feeling it!

I wish I could take it! Glad your daughter can! My bp on TUesday was down in

the bottom of the bucket even after laying flat for a while.

In a message dated 4/9/2004 4:40:38 PM Eastern Daylight Time,

bfhalkett@... writes:

: My daughter tells me that the scalp crawling only lasts a short

time. It occurs particularly the first am midodrine dose she takes on

Sat. when she avoids the Dexedrine to allow her an improved appetite and

to actually be able to taste and enjoy food. She also get the crawly

scalp some with Dexedrine. It's got to be the vasoconstriction effect

of the drug. Meaghan is very supersensitive and it tells me just how

awful the low BP feels, for her to put up with the scalp crawlies.

Bernie, Toronto, CAN