RE:- Tubs, POTS was:Re: Re: Jill Hand

[Guest guest]

: Something that just occurred to me. My daughter had to take

very tiny doses of Dexedrine at first as could not tolerate more ...like

for a month or more before she could tolerate the larger dose that she

and we could see real results with. Thinking back it was almost as

though her tissues had to adjust to the effects of having

vasoconstriction. Taking tiny doses 3 or 4 times a day for a month or

more that seems to do nothing would take a lot of discipline and using

an alarm watch as a reminder. Bodies adjust slowly and often we expect

24 hr. results with meds. Trying just enough to avoid uncomfortable

crawlies.

I suggest this because I see the midodrine improves her endurance and

ability to enjoy doing simple tasks that she would normally have no

patience for due to fatigue.

Regards, Bernie

RE: Tubs, POTS was:Re: Re: Jill Hand

: My daughter tells me that the scalp crawling only lasts a short

time. It occurs particularly the first am midodrine dose she takes on

Sat. when she avoids the Dexedrine to allow her an improved appetite and

to actually be able to taste and enjoy food. She also get the crawly

scalp some with Dexedrine. It's got to be the vasoconstriction effect

of the drug. Meaghan is very supersensitive and it tells me just how

awful the low BP feels, for her to put up with the scalp crawlies.

Bernie, Toronto, CAN

_____

[Guest guest]

: Something that just occurred to me. My daughter had to take

very tiny doses of Dexedrine at first as could not tolerate more ...like

for a month or more before she could tolerate the larger dose that she

and we could see real results with. Thinking back it was almost as

though her tissues had to adjust to the effects of having

vasoconstriction. Taking tiny doses 3 or 4 times a day for a month or

more that seems to do nothing would take a lot of discipline and using

an alarm watch as a reminder. Bodies adjust slowly and often we expect

24 hr. results with meds. Trying just enough to avoid uncomfortable

crawlies.

I suggest this because I see the midodrine improves her endurance and

ability to enjoy doing simple tasks that she would normally have no

patience for due to fatigue.

Regards, Bernie

RE: Tubs, POTS was:Re: Re: Jill Hand

: My daughter tells me that the scalp crawling only lasts a short

time. It occurs particularly the first am midodrine dose she takes on

Sat. when she avoids the Dexedrine to allow her an improved appetite and

to actually be able to taste and enjoy food. She also get the crawly

scalp some with Dexedrine. It's got to be the vasoconstriction effect

of the drug. Meaghan is very supersensitive and it tells me just how

awful the low BP feels, for her to put up with the scalp crawlies.

Bernie, Toronto, CAN

_____

[Guest guest]

: Something that just occurred to me. My daughter had to take

very tiny doses of Dexedrine at first as could not tolerate more ...like

for a month or more before she could tolerate the larger dose that she

and we could see real results with. Thinking back it was almost as

though her tissues had to adjust to the effects of having

vasoconstriction. Taking tiny doses 3 or 4 times a day for a month or

more that seems to do nothing would take a lot of discipline and using

an alarm watch as a reminder. Bodies adjust slowly and often we expect

24 hr. results with meds. Trying just enough to avoid uncomfortable

crawlies.

I suggest this because I see the midodrine improves her endurance and

ability to enjoy doing simple tasks that she would normally have no

patience for due to fatigue.

Regards, Bernie

RE: Tubs, POTS was:Re: Re: Jill Hand

: My daughter tells me that the scalp crawling only lasts a short

time. It occurs particularly the first am midodrine dose she takes on

Sat. when she avoids the Dexedrine to allow her an improved appetite and

to actually be able to taste and enjoy food. She also get the crawly

scalp some with Dexedrine. It's got to be the vasoconstriction effect

of the drug. Meaghan is very supersensitive and it tells me just how

awful the low BP feels, for her to put up with the scalp crawlies.

Bernie, Toronto, CAN

_____