Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Wow, Deanna, you have so much going on and you keep an awesome sense of humor! That's key in this, isn't it? I haven't yet passed the depression stage for more than maybe an hour. What is osteonecrosis? Why can't they fix it BEFORE the knee is a total wreck? I don't get it! I wouldn't worry about the second opinion. Lots of insurances require it and surgeons are used to it! It's nothing personal and you have to do what's best for yourself! About your rash, do you mind my asking what it looks like? I've had this recurring rash on my thighs for several years and no doctor has been able to tell me what it is. It's a cluster of flat, circular lesions that turn scaly and sometimes look purple-ish. They just show up for no reason, hang out awhile and then leave when they're ready. Nothing helps. Hope your knee gives you a break! -Anne > Hey all, > Just wanted to drop a semi quick update for you all. > > Had to go see orthopedic surgeon Tuesday for the osteonecrosis in my > right knee for more films. (I haven't been able to literally move my > knee for hour's different times during the week - so we wanted to see if > the osteonecrosis had gotten worse) Films didn't show much of the > disease worsening but he did say that what I was experiencing was from > gas build up and such from the dead bone - He made it sound good :-) > Anyways he said there was nothing he can do for it - that I am to > continue to just sit and wait for the knee to crumble so I can get a > knee replacement. HELLO!!!!!! That does not sit well with me Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 Dear Deanna, I'm so sorry to read about all the pain you are in.....and now you have psoriasis too? When will you get a break? ......I know a little bit about Psoriasis.....my youngest son has it ......and it can really be terrible. He has to use several different ointments for it ......and several times a day To keep it under control.......If he runs out of his meds.....and it is very expensive, so sometimes he just can't afford it ......it comes back with a vengeance......it takes a long time to get it under control again. One of the ointment he uses is Elidel......but you have to use it several times a day ......and if it is as bad as yours seems to have gotten it will take a while for it to work. So I hope your dermatologist will recognize it for what it is and give you some Medications that will work....My son suffers terribly with his ......it gets in his hair and scalp also ....... Good luck .....and give those doctor's grief till they do something for you......as I know you will.......You `Fiesty Little Wench' Love- C. update, MM, Rhonda, & Hey all, Just wanted to drop a semi quick update for you all. Had to go see orthopedic surgeon Tuesday for the osteonecrosis in my right knee for more films. (I haven’t been able to literally move my knee for hour’s different times during the week – so we wanted to see if the osteonecrosis had gotten worse) Films didn’t show much of the disease worsening but he did say that what I was experiencing was from gas build up and such from the dead bone – He made it sound good J Anyways he said there was nothing he can do for it – that I am to continue to just sit and wait for the knee to crumble so I can get a knee replacement. HELLO!!!!!! That does not sit well with me – I love this surgeon to death and he has known me since 97 before I got sick and he has seen me through everything – He is even Mike’s surgeon for both his workers comp accidents and knows our health history to a “T” anyways I made some phone calls and I am going to see another Surgeon for his opinion over at Strong Hosp in Aug. I haven’t had the nerve to tell my current surgeon – I don’t want to upset him but I just want a 2nd opinion. If this new surgeon says I have to sit and wait – well then I guess that is what I will have to do – its just so damn painful – and I have enough pain going on elsewhere to have to deal with more J I have to get my films from this surgeon to take with me to the new one plus the last progress report – so my current surgeon will know I am getting a 2nd opinion L So for the osteonecrosis I get to continue to use crutches and/or the walker when the knee is acting up really bad, keep it elevated as much as possible, and ice it as much as possible – oh yeah and to continue to sit and wait. Grrrrr Now I have been dealing with my dermatologist for 6 months know on what he just says is eczema but I keep telling him the stuff he is giving me isn’t not cutting it and this is more that just eczema well I did some research and from the looks of it this is Psoriasis – it has spread all over (elbows, knee’s, forearms, neck, scalp, and now my butt cheeks) No comment from you Miss J Rheumy gave me some samples of Elidel and I put it on some of the areas and it seems to have helped some but not enough – I go to the derm tomorrow and I am not going to be nice anymore to him – I don’t have the $$ to keep throwing away for stupid scripts that don’t do jack shit!!!! He will do something tomorrow and I will tell him that or I will take my itchy, scaly ass elsewhere J Hmmm well I continue to up my dosages of the Cellcept as rheumy has written and am know on 750 mg. another week I go up 250 mg. more. I haven’t noticed if it is working or not yet – can’t remember if this is one of the meds that take several weeks to kick in – but I do know I so miss my methotrexate!!!! (I hated the shots but damn that shit was a miracle drug for me) I just hope this med works as well if not better and I so hope it helps this eczema /psoriasis situation because apparently the methotrexate was L The fibro is kicking my butt lately but who knows if it’s the fibro or a combination of health issues, but the weather hasn’t helped. We have been having high humidity here and you southern states can keep it J I still prefer this weather over snow though J We just had a thunderstorm come through and it has cooled down a lot since then – thank god we have a cold front coming in J Migraine hit me this evening so I am taking my migrahealth to help alleviate it J So glad I got this drug. You have to order it through a website but my neurologist who specializes in migraines highly recommends it and I have been able to control my migraines since starting it J I know there are messages I needed to reply to on the board but I can’t get to them right now – but should be able to tomorrow. Welcome to all the new members. MM glad all went well with the procedure yesterday. Just please take it easy, try not to stress, and be careful… Rhonda & – I go to Dr. Pryhuber rheumatology assoc. heck I can’t remember their entire name but it is he and Tammi Slotzhauer that have the practice but are not taking any new patients – They are too far away from both of you anyways – They are in Irondiquoite. Rhonda I suggest if you can getting into the place where goes – I have heard some good things about Dr. Condemi but would not give up my Rheumy for the world – he is the bomb!!!! Okay that’s it for now the knee is really killing me now that I haven’t had it elevated for awhile – uggggg Will write more tomorrow. God bless you all and goodnight… Hugs, Deanna "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 Dear Deanna, I'm so sorry to read about all the pain you are in.....and now you have psoriasis too? When will you get a break? ......I know a little bit about Psoriasis.....my youngest son has it ......and it can really be terrible. He has to use several different ointments for it ......and several times a day To keep it under control.......If he runs out of his meds.....and it is very expensive, so sometimes he just can't afford it ......it comes back with a vengeance......it takes a long time to get it under control again. One of the ointment he uses is Elidel......but you have to use it several times a day ......and if it is as bad as yours seems to have gotten it will take a while for it to work. So I hope your dermatologist will recognize it for what it is and give you some Medications that will work....My son suffers terribly with his ......it gets in his hair and scalp also ....... Good luck .....and give those doctor's grief till they do something for you......as I know you will.......You `Fiesty Little Wench' Love- C. update, MM, Rhonda, & Hey all, Just wanted to drop a semi quick update for you all. Had to go see orthopedic surgeon Tuesday for the osteonecrosis in my right knee for more films. (I haven’t been able to literally move my knee for hour’s different times during the week – so we wanted to see if the osteonecrosis had gotten worse) Films didn’t show much of the disease worsening but he did say that what I was experiencing was from gas build up and such from the dead bone – He made it sound good J Anyways he said there was nothing he can do for it – that I am to continue to just sit and wait for the knee to crumble so I can get a knee replacement. HELLO!!!!!! That does not sit well with me – I love this surgeon to death and he has known me since 97 before I got sick and he has seen me through everything – He is even Mike’s surgeon for both his workers comp accidents and knows our health history to a “T” anyways I made some phone calls and I am going to see another Surgeon for his opinion over at Strong Hosp in Aug. I haven’t had the nerve to tell my current surgeon – I don’t want to upset him but I just want a 2nd opinion. If this new surgeon says I have to sit and wait – well then I guess that is what I will have to do – its just so damn painful – and I have enough pain going on elsewhere to have to deal with more J I have to get my films from this surgeon to take with me to the new one plus the last progress report – so my current surgeon will know I am getting a 2nd opinion L So for the osteonecrosis I get to continue to use crutches and/or the walker when the knee is acting up really bad, keep it elevated as much as possible, and ice it as much as possible – oh yeah and to continue to sit and wait. Grrrrr Now I have been dealing with my dermatologist for 6 months know on what he just says is eczema but I keep telling him the stuff he is giving me isn’t not cutting it and this is more that just eczema well I did some research and from the looks of it this is Psoriasis – it has spread all over (elbows, knee’s, forearms, neck, scalp, and now my butt cheeks) No comment from you Miss J Rheumy gave me some samples of Elidel and I put it on some of the areas and it seems to have helped some but not enough – I go to the derm tomorrow and I am not going to be nice anymore to him – I don’t have the $$ to keep throwing away for stupid scripts that don’t do jack shit!!!! He will do something tomorrow and I will tell him that or I will take my itchy, scaly ass elsewhere J Hmmm well I continue to up my dosages of the Cellcept as rheumy has written and am know on 750 mg. another week I go up 250 mg. more. I haven’t noticed if it is working or not yet – can’t remember if this is one of the meds that take several weeks to kick in – but I do know I so miss my methotrexate!!!! (I hated the shots but damn that shit was a miracle drug for me) I just hope this med works as well if not better and I so hope it helps this eczema /psoriasis situation because apparently the methotrexate was L The fibro is kicking my butt lately but who knows if it’s the fibro or a combination of health issues, but the weather hasn’t helped. We have been having high humidity here and you southern states can keep it J I still prefer this weather over snow though J We just had a thunderstorm come through and it has cooled down a lot since then – thank god we have a cold front coming in J Migraine hit me this evening so I am taking my migrahealth to help alleviate it J So glad I got this drug. You have to order it through a website but my neurologist who specializes in migraines highly recommends it and I have been able to control my migraines since starting it J I know there are messages I needed to reply to on the board but I can’t get to them right now – but should be able to tomorrow. Welcome to all the new members. MM glad all went well with the procedure yesterday. Just please take it easy, try not to stress, and be careful… Rhonda & – I go to Dr. Pryhuber rheumatology assoc. heck I can’t remember their entire name but it is he and Tammi Slotzhauer that have the practice but are not taking any new patients – They are too far away from both of you anyways – They are in Irondiquoite. Rhonda I suggest if you can getting into the place where goes – I have heard some good things about Dr. Condemi but would not give up my Rheumy for the world – he is the bomb!!!! Okay that’s it for now the knee is really killing me now that I haven’t had it elevated for awhile – uggggg Will write more tomorrow. God bless you all and goodnight… Hugs, Deanna "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies Quote Link to comment Share on other sites More sharing options...
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