Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Hey a, I laugh when you describe Karl...... is very much a structured person...he hates change! But like you I'm use to it and over look it pretty much. I chalk it up to being 18 and wanting to be on his own. Like you I have learned to deal with it and I don't find it a problem anymore. He has learned it is better to agree with me than buck the system because as he puts it " I hold the key to his freedom"...*L* Your a great Mom and I admire you so much! Congrats on Felicity! That's great! Love you! Becky azToy2@... wrote: In a message dated 5/31/2004 9:33:23 PM US Mountain Standard Time, b.ellington@... writes: Hmmm, thinking of the amount of time my Karl spent in the time out corner, I am going to go out on a limb here and say,,,, if he is easy to get along with, it's probably NOT ODD lol. It's strange because we have lived with it for so long, that I don't really think of it much, we just have to raise him a lot differently than our other kids. He has to have everything VERY structured. If you have lunch at 12:00 then that's when he eats, not five till or five after. He just can't handle it. If you know that he loves burritos so you just make one for him for lunch, he will say that he wanted peanut butter and jelly even though he hates that. Just because whatever he can have, he wants the oppposite. Whatever you give him, it's NEVER enough. If he has one ice cream, he wants two, if you let him stay up till 10, he want's it to be 11, and so on and so on. Goofy kid. Thankfully like I said, we have lots of grown ups here so I can always take a time out myself. Before we got our babies, because they couldn't get to concept, I used to have a "mom's in time out" sign that I would stick on my back when it was getting a little rough. Those kids would not have talked to me at that time if the house was on fire, I think. They knew that they had pushed to far and I needed a break. Just ten minutes, but enough to breathe. Now they are all older and when they see Karl cranking up they run for the hills and play video games or go outside. a C Dorothy, Good Luck with the med review! I was also told had ODD....but I really don't think he does. He's pretty easy to get along with. Good Luck! Becky "The LUPIES Store" Come check out our store... http://www.cafepress.com/thelupies "The LUPIES Web Page" http://www.itzarion.com/lupusgroup.html "The LUPIES online photo albums!" Check out what your fellow Lupies look like... http://www.picturetrail.com/lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Hey a, I laugh when you describe Karl...... is very much a structured person...he hates change! But like you I'm use to it and over look it pretty much. I chalk it up to being 18 and wanting to be on his own. Like you I have learned to deal with it and I don't find it a problem anymore. He has learned it is better to agree with me than buck the system because as he puts it " I hold the key to his freedom"...*L* Your a great Mom and I admire you so much! Congrats on Felicity! That's great! Love you! Becky azToy2@... wrote: In a message dated 5/31/2004 9:33:23 PM US Mountain Standard Time, b.ellington@... writes: Hmmm, thinking of the amount of time my Karl spent in the time out corner, I am going to go out on a limb here and say,,,, if he is easy to get along with, it's probably NOT ODD lol. It's strange because we have lived with it for so long, that I don't really think of it much, we just have to raise him a lot differently than our other kids. He has to have everything VERY structured. If you have lunch at 12:00 then that's when he eats, not five till or five after. He just can't handle it. If you know that he loves burritos so you just make one for him for lunch, he will say that he wanted peanut butter and jelly even though he hates that. Just because whatever he can have, he wants the oppposite. Whatever you give him, it's NEVER enough. If he has one ice cream, he wants two, if you let him stay up till 10, he want's it to be 11, and so on and so on. Goofy kid. Thankfully like I said, we have lots of grown ups here so I can always take a time out myself. Before we got our babies, because they couldn't get to concept, I used to have a "mom's in time out" sign that I would stick on my back when it was getting a little rough. Those kids would not have talked to me at that time if the house was on fire, I think. They knew that they had pushed to far and I needed a break. Just ten minutes, but enough to breathe. Now they are all older and when they see Karl cranking up they run for the hills and play video games or go outside. a C Dorothy, Good Luck with the med review! I was also told had ODD....but I really don't think he does. He's pretty easy to get along with. Good Luck! Becky "The LUPIES Store" Come check out our store... http://www.cafepress.com/thelupies "The LUPIES Web Page" http://www.itzarion.com/lupusgroup.html "The LUPIES online photo albums!" Check out what your fellow Lupies look like... http://www.picturetrail.com/lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Hey a, I laugh when you describe Karl...... is very much a structured person...he hates change! But like you I'm use to it and over look it pretty much. I chalk it up to being 18 and wanting to be on his own. Like you I have learned to deal with it and I don't find it a problem anymore. He has learned it is better to agree with me than buck the system because as he puts it " I hold the key to his freedom"...*L* Your a great Mom and I admire you so much! Congrats on Felicity! That's great! Love you! Becky azToy2@... wrote: In a message dated 5/31/2004 9:33:23 PM US Mountain Standard Time, b.ellington@... writes: Hmmm, thinking of the amount of time my Karl spent in the time out corner, I am going to go out on a limb here and say,,,, if he is easy to get along with, it's probably NOT ODD lol. It's strange because we have lived with it for so long, that I don't really think of it much, we just have to raise him a lot differently than our other kids. He has to have everything VERY structured. If you have lunch at 12:00 then that's when he eats, not five till or five after. He just can't handle it. If you know that he loves burritos so you just make one for him for lunch, he will say that he wanted peanut butter and jelly even though he hates that. Just because whatever he can have, he wants the oppposite. Whatever you give him, it's NEVER enough. If he has one ice cream, he wants two, if you let him stay up till 10, he want's it to be 11, and so on and so on. Goofy kid. Thankfully like I said, we have lots of grown ups here so I can always take a time out myself. Before we got our babies, because they couldn't get to concept, I used to have a "mom's in time out" sign that I would stick on my back when it was getting a little rough. Those kids would not have talked to me at that time if the house was on fire, I think. They knew that they had pushed to far and I needed a break. Just ten minutes, but enough to breathe. Now they are all older and when they see Karl cranking up they run for the hills and play video games or go outside. a C Dorothy, Good Luck with the med review! I was also told had ODD....but I really don't think he does. He's pretty easy to get along with. Good Luck! Becky "The LUPIES Store" Come check out our store... http://www.cafepress.com/thelupies "The LUPIES Web Page" http://www.itzarion.com/lupusgroup.html "The LUPIES online photo albums!" Check out what your fellow Lupies look like... http://www.picturetrail.com/lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Thanks Becky, we rejoice over every little milestone, literally, lol a C Your a great Mom and I admire you so much! Congrats on Felicity! That's great! Love you! Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 a C., Well, your innards sound like mine were. I had had a seven-plus pound cyst and left ovary removed at the age of 29, and then at 35 had to have a complete hysterectomy. The rest of my innards had done something very similar to yours, but an additional "growth" of blood vessels, nerves and odd bits and pieces had grown like an octopus and attached itself to the outside of the uterine wall, and then like Ivy started choking everything off. Very weird. Almost like Invasion of the Body Snatchers...I started looking for pods in the basement. Anyhow, when the surgery was over, my OB/GYN stood clear against the wall away from the foot of my hospital bed and said, "Well, Mike, there's good news and bad news. The good news is that there is no sign of cancer. (He then told me about the strange growths they removed.) The bad news is that I think I felt some gall stones while I was looking around in there." Strangely, my gall bladder has never given me any trouble, and the latest tests last month show no stones. Isn't that funny? So, our bodies are just strange, strange, strange. I really believe that Lupus causes some of the most off-the-wall things to happen inside us. No wonder doctors can't figure it out. WE don't know what's happening to us half the time, either. My Rheumy says she thinks as I do that until the medical profession understands that a form of alien invastion has taken place in our bodies, they will never begin to understand the nature of Lupus. That is it much more than "just an autoimmune problem", as so many docs are so fond of saying. She is involved in a lot of research projects, and I always pump her for information when I'm in for my visits. I bet I get a call from her pretty soon when she gets copies of all the tests that are being done on me these days. She keeps up on her patients pretty well. More than can be said for a lot of them. Don't know what set me talking this morning. Guess I missed out for two days and had to say a lot to make up for it. LOL Take care, honey. Love, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 a C., Well, your innards sound like mine were. I had had a seven-plus pound cyst and left ovary removed at the age of 29, and then at 35 had to have a complete hysterectomy. The rest of my innards had done something very similar to yours, but an additional "growth" of blood vessels, nerves and odd bits and pieces had grown like an octopus and attached itself to the outside of the uterine wall, and then like Ivy started choking everything off. Very weird. Almost like Invasion of the Body Snatchers...I started looking for pods in the basement. Anyhow, when the surgery was over, my OB/GYN stood clear against the wall away from the foot of my hospital bed and said, "Well, Mike, there's good news and bad news. The good news is that there is no sign of cancer. (He then told me about the strange growths they removed.) The bad news is that I think I felt some gall stones while I was looking around in there." Strangely, my gall bladder has never given me any trouble, and the latest tests last month show no stones. Isn't that funny? So, our bodies are just strange, strange, strange. I really believe that Lupus causes some of the most off-the-wall things to happen inside us. No wonder doctors can't figure it out. WE don't know what's happening to us half the time, either. My Rheumy says she thinks as I do that until the medical profession understands that a form of alien invastion has taken place in our bodies, they will never begin to understand the nature of Lupus. That is it much more than "just an autoimmune problem", as so many docs are so fond of saying. She is involved in a lot of research projects, and I always pump her for information when I'm in for my visits. I bet I get a call from her pretty soon when she gets copies of all the tests that are being done on me these days. She keeps up on her patients pretty well. More than can be said for a lot of them. Don't know what set me talking this morning. Guess I missed out for two days and had to say a lot to make up for it. LOL Take care, honey. Love, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 a C., Well, your innards sound like mine were. I had had a seven-plus pound cyst and left ovary removed at the age of 29, and then at 35 had to have a complete hysterectomy. The rest of my innards had done something very similar to yours, but an additional "growth" of blood vessels, nerves and odd bits and pieces had grown like an octopus and attached itself to the outside of the uterine wall, and then like Ivy started choking everything off. Very weird. Almost like Invasion of the Body Snatchers...I started looking for pods in the basement. Anyhow, when the surgery was over, my OB/GYN stood clear against the wall away from the foot of my hospital bed and said, "Well, Mike, there's good news and bad news. The good news is that there is no sign of cancer. (He then told me about the strange growths they removed.) The bad news is that I think I felt some gall stones while I was looking around in there." Strangely, my gall bladder has never given me any trouble, and the latest tests last month show no stones. Isn't that funny? So, our bodies are just strange, strange, strange. I really believe that Lupus causes some of the most off-the-wall things to happen inside us. No wonder doctors can't figure it out. WE don't know what's happening to us half the time, either. My Rheumy says she thinks as I do that until the medical profession understands that a form of alien invastion has taken place in our bodies, they will never begin to understand the nature of Lupus. That is it much more than "just an autoimmune problem", as so many docs are so fond of saying. She is involved in a lot of research projects, and I always pump her for information when I'm in for my visits. I bet I get a call from her pretty soon when she gets copies of all the tests that are being done on me these days. She keeps up on her patients pretty well. More than can be said for a lot of them. Don't know what set me talking this morning. Guess I missed out for two days and had to say a lot to make up for it. LOL Take care, honey. Love, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 Hey, Keep us posted on what is up with this. I hope your pain subsides soon! Love, Becky azToy2@... wrote: MM, I forgot I wasn't going to mention it cause it seems minor but my DR is worried because I have had unexplained weight loss for several months now, over fifty pounds, and even though I sure like that part, I still can't eat right since they took my gal bladder and am still having God awful pain from the ruptured cysts from weeks ago. I don't know what the chest x-ray was for, but he took a ton of bloodwork and is having me see a gastric DR again as well as an ob because he says that they have tried in the ER three times and can't find the ovary they left during the hysterectomy. He thinks that this is more that just cysts because they never saw them, just a bunch of unexplained fluid or he thinks that ovary might be twisted around. Especially when he found out the reason for the hysterectomy was the bleeding for a solid year and that when they did an ultra sound things looked okay, but once they got inside they found that every thing in my female parts was fused to my other organs and it was a terrible mess. I used to have lovely photos that they gave me, lol. Anyway, sorry, didn't mean for that one to go so long, see you can never shut me up! lol I am sorry you got a hang over, specially if you didn't get the party part, That stinks! a C "The LUPIES Store" Come check out our store... http://www.cafepress.com/thelupies "The LUPIES Web Page" http://www.itzarion.com/lupusgroup.html "The LUPIES online photo albums!" Check out what your fellow Lupies look like... http://www.picturetrail.com/lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 Hey, Keep us posted on what is up with this. I hope your pain subsides soon! Love, Becky azToy2@... wrote: MM, I forgot I wasn't going to mention it cause it seems minor but my DR is worried because I have had unexplained weight loss for several months now, over fifty pounds, and even though I sure like that part, I still can't eat right since they took my gal bladder and am still having God awful pain from the ruptured cysts from weeks ago. I don't know what the chest x-ray was for, but he took a ton of bloodwork and is having me see a gastric DR again as well as an ob because he says that they have tried in the ER three times and can't find the ovary they left during the hysterectomy. He thinks that this is more that just cysts because they never saw them, just a bunch of unexplained fluid or he thinks that ovary might be twisted around. Especially when he found out the reason for the hysterectomy was the bleeding for a solid year and that when they did an ultra sound things looked okay, but once they got inside they found that every thing in my female parts was fused to my other organs and it was a terrible mess. I used to have lovely photos that they gave me, lol. Anyway, sorry, didn't mean for that one to go so long, see you can never shut me up! lol I am sorry you got a hang over, specially if you didn't get the party part, That stinks! a C "The LUPIES Store" Come check out our store... http://www.cafepress.com/thelupies "The LUPIES Web Page" http://www.itzarion.com/lupusgroup.html "The LUPIES online photo albums!" Check out what your fellow Lupies look like... http://www.picturetrail.com/lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 Hey, Keep us posted on what is up with this. I hope your pain subsides soon! Love, Becky azToy2@... wrote: MM, I forgot I wasn't going to mention it cause it seems minor but my DR is worried because I have had unexplained weight loss for several months now, over fifty pounds, and even though I sure like that part, I still can't eat right since they took my gal bladder and am still having God awful pain from the ruptured cysts from weeks ago. I don't know what the chest x-ray was for, but he took a ton of bloodwork and is having me see a gastric DR again as well as an ob because he says that they have tried in the ER three times and can't find the ovary they left during the hysterectomy. He thinks that this is more that just cysts because they never saw them, just a bunch of unexplained fluid or he thinks that ovary might be twisted around. Especially when he found out the reason for the hysterectomy was the bleeding for a solid year and that when they did an ultra sound things looked okay, but once they got inside they found that every thing in my female parts was fused to my other organs and it was a terrible mess. I used to have lovely photos that they gave me, lol. Anyway, sorry, didn't mean for that one to go so long, see you can never shut me up! lol I am sorry you got a hang over, specially if you didn't get the party part, That stinks! a C "The LUPIES Store" Come check out our store... http://www.cafepress.com/thelupies "The LUPIES Web Page" http://www.itzarion.com/lupusgroup.html "The LUPIES online photo albums!" Check out what your fellow Lupies look like... http://www.picturetrail.com/lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 LOL you know what? I am going to try my best this summer to take care of these problems I have been having while all of our older kids are home and can help a little. I like it when people send me long posts, that way I am not the only one and also you described so closely what I went through that it feels nice to have someone almost like me! My sister inlaw was here the other day and was complaining that her period lasts a whole seven days and her friends don't. I was like, lady, do you know what I would have done to have normal ones? I started at thirteen and had my first cyst and my appendix out at fourteen and it was trouble since. I jumped for joy when they did my hysterectomy. It sounds like you are doing better, is that the case? Or wishful thinking on my part? a C Don't know what set me talking this morning. Guess I missed out for two days and had to say a lot to make up for it. LOL Take care, honey. Love, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 LOL you know what? I am going to try my best this summer to take care of these problems I have been having while all of our older kids are home and can help a little. I like it when people send me long posts, that way I am not the only one and also you described so closely what I went through that it feels nice to have someone almost like me! My sister inlaw was here the other day and was complaining that her period lasts a whole seven days and her friends don't. I was like, lady, do you know what I would have done to have normal ones? I started at thirteen and had my first cyst and my appendix out at fourteen and it was trouble since. I jumped for joy when they did my hysterectomy. It sounds like you are doing better, is that the case? Or wishful thinking on my part? a C Don't know what set me talking this morning. Guess I missed out for two days and had to say a lot to make up for it. LOL Take care, honey. Love, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 LOL you know what? I am going to try my best this summer to take care of these problems I have been having while all of our older kids are home and can help a little. I like it when people send me long posts, that way I am not the only one and also you described so closely what I went through that it feels nice to have someone almost like me! My sister inlaw was here the other day and was complaining that her period lasts a whole seven days and her friends don't. I was like, lady, do you know what I would have done to have normal ones? I started at thirteen and had my first cyst and my appendix out at fourteen and it was trouble since. I jumped for joy when they did my hysterectomy. It sounds like you are doing better, is that the case? Or wishful thinking on my part? a C Don't know what set me talking this morning. Guess I missed out for two days and had to say a lot to make up for it. LOL Take care, honey. Love, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 a C., Well, I am not hungover any more and that's a plus. I am still so tired I look like Tim Conway in the old Carol Burnett show when he played that old man whose feet were going like sixty, but he was only making about an inch an hour. LOL I'll be glad when I get some answers and know where I stand with any possible surgeries, etc. I am not good at waiting in limbo. Not a patient patient at all. I also celebrated when I had my hysterectomy. I went t hrough hell from the age of twelve on up. I was never so glad to see anything go away as that uterus. Never missed it a bit, either. Hugs, MM Quote Link to comment Share on other sites More sharing options...
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