Re: Re: Re: Re: Spina Bifida and EDS?

[Guest guest]

Thanks Jill

Have you met anyone who actually has both? Chairi malformation sometimes

seen in SB (I think I have that right) so it would seem that it would be

seen with SB as well?

The physical problem I am thinking of that is not EDS is the bones not fully

formed at birth; not fully formed cartildge in my one daughters face (it did

not fully form until she was about 7) and the other had a enlarged soft spot

that did not fully close until she was about 2, neither were premature; in

fact the first was a ten month baby. SB was suspected for me when I was

about 4 years old; but never persued.

Thanks for the reply

On 4/5/04 5:23 PM, " ceda " ceda > wrote:

>

> Subject: Re: Re: Re: Spina Bifida and EDS?

>

> I know that a few people I have encountered have been diagnosed with spina

> bifida as an error before EDS was diagnosed in them

>

> Jill

[Guest guest]

Oh my! AJ, what a history you all have there.

No, I do not know anyone with both, the people I was referring to had been

misdiagnosed with SB and then later, it was understood to be EDS.

Jill