Re: Sue - marfan

[Guest guest]

Hi Sue, LoL - guess I'm just one of those odd bods that don't fit the

criteria agian! I thought I was just marfanoid habitus too but

apparently I do actually have a Marfan/EDS mutation. What can I say -

I'm just a mutant!! ;-)

Love and hugs....Jo

xx

[Guest guest]

Hi Sue, LoL - guess I'm just one of those odd bods that don't fit the

criteria agian! I thought I was just marfanoid habitus too but

apparently I do actually have a Marfan/EDS mutation. What can I say -

I'm just a mutant!! ;-)

Love and hugs....Jo

xx

[Guest guest]

In a message dated 4/5/04 5:20:02 PM Eastern Daylight Time,

sicklizard@... writes:

<< What can I say -

I'm just a mutant!! ;-) >>

Yeah, aren't we all!!!! LOL!!!!

Hugs,

Sue

[Guest guest]

LoL - Sue, I'm just waiting for the call from the X-men to don a

latex suit and go save the world with Hugh Jackman! ;-)

Love....Jo

xx

[Guest guest]

Hi Jo. How did you get the Marfan/EDS mutation verified and where? A

Dr. has said my 17 yr. daughter has EDS hypermobile with marfans. It

seem strange to me that there is so much confusion re terms when often

different diagnoses are have very specific criteria. Comments please

anyone.

Kind regards, Bernie, Toronto, Canada

Re: Sue - marfan

Hi Sue, LoL - guess I'm just one of those odd bods that don't fit the

criteria agian! I thought I was just marfanoid habitus too but

apparently I do actually have a Marfan/EDS mutation. What can I say -

I'm just a mutant!! ;-)

Love and hugs....Jo

xx

To learn more about EDS, visit our website:

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