Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Shandi writes, I wonder what happened to the girl who went to U2 concerts, hockey games, and trips to Boston every month You know I was just wondering about her today. I don't think that we have heard from her for a while. Maybe she was one of those that go upset about things that they could not post about and left to join one of those other groups. I, myself, could never figure out how she could do all that she did either. If I tried it, I would be in bed for a month. Take care, Irene Books may well be the only true magic Alice Hoffman. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 > Hi , > > Hmm, do you happen to like U2 and hockey too? Listening to U2 is one > of the few things that keep me grounded or calm. I have hundreds of > songs on my pc; music is very therapuetic. You sound like you know > what I am going through a lot. My fears of being alone are that > maybe I won't be able to get out of bed someday or be too tired to > do something and I won't be able to help myself. Thanks for making > me feel welcome here ...hope you'll share here too as well. A > great group here. > > Shandi > > Hi Shandi, Yeah, I find music to be very therapeutic, especially U2. I'm trying very hard to share more with this group. Telling things that are going on in my liffe, or symptoms, is very easy. Telling how I feel about it is very hard for me. But I'm trying. Part of the problem is I don't want my friends to get sick of hearing me go on and on about my fibro problems. And part of it is not wanting to admit to myself that fibro is limiting what I can do. And part of it is I'm afraid if I do let go and dump some this out, once I start, I won't be able to stop, and how will I ever regain control? Anyway, today the weather is sunny and beautiful here today. It doesn't seem to be making any differnece in the way I feel though. I wish this major flare up I've been having for the past few months would die down. The sooner the better. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Hi , Always glad to share with a fellow U2 fan. I think sharing in here is great; before I found this place, I felt I was honestly going insane. I wondered how something that won't kill you could feel this god awful, I felt out of control of my body and thought it had to be something horrible. This is such a good place for reassurance and comfort. When it comes to sharing with friends, do you have some friends that truly understand? I have one, but even though she says to talk about it whenever I want, I don't always believe she can tolerate my complaints or venting. I hope you have a friend around you can trust and who is really selfless enough to listen. I think we all deserve that. You seem like a good listener, so I hope someone returns the favor for you. As for losing control, and letting it all spill out, this is the place to do it, and it may ease the burden a little. *hugs to * Shandi > > Hi , > > > > Hmm, do you happen to like U2 and hockey too? Listening to U2 is > one > > of the few things that keep me grounded or calm. I have hundreds of > > songs on my pc; music is very therapuetic. You sound like you know > > what I am going through a lot. My fears of being alone are that > > maybe I won't be able to get out of bed someday or be too tired to > > do something and I won't be able to help myself. Thanks for making > > me feel welcome here ...hope you'll share here too as well. A > > great group here. > > > > Shandi > > > > > Hi Shandi, > > Yeah, I find music to be very therapeutic, especially U2. I'm trying > very hard to share more with this group. Telling things that are > going on in my liffe, or symptoms, is very easy. Telling how I feel > about it is very hard for me. But I'm trying. Part of the problem is > I don't want my friends to get sick of hearing me go on and on about > my fibro problems. And part of it is not wanting to admit to myself > that fibro is limiting what I can do. And part of it is I'm afraid if > I do let go and dump some this out, once I start, I won't be able to > stop, and how will I ever regain control? > > Anyway, today the weather is sunny and beautiful here today. It > doesn't seem to be making any differnece in the way I feel though. I > wish this major flare up I've been having for the past few months > would die down. The sooner the better. > > Take care, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 You touched on some things that are very familiar to me, like not having patience with people who purposely put themselves through heck (drinking, overexertion, etc) and then complain. You wonder why anyone would choose that? Sounds like you have a wonderful husband; also you seem to be right when you indicate only fibro sufferers (or those with other chronic problems) understand on the level we do. Sometimes it makes me feel isolated from " normal " people. another hard part is realizing all the overwhelming things you need to do to cope with an illness and not having the energy or focus to do them. Like I know I should apply for disability, and I want to, but then I think god, how can I do all that? Self-esteem is a tough one. There's no doubt that physically something is lost and if you've been active, this feels bad. Inside, I know I'm the same, but people don't see me the same. Hope someone is there bolstering your self-esteem! I find myself sitting here sometimes thinking " what have I become " and feeling bad until I tell myself I just can't help it; I cannot control that I have this problem. Not easy to keep in mind all the time. Shandi > In a message dated 04/11/2002 10:32:01 AM Central Daylight Time, > angel_of_harlemu2@y... writes: > > > > When it comes to sharing with friends, do you have some friends that > > truly understand? I have one, but even though she says to talk about > > it whenever I want, I don't always believe she can tolerate my > > complaints or venting. I hope you have a friend around you can trust > > and who is really selfless enough to listen. I think we all deserve > > that. You seem like a good listener, so I hope someone returns the > > favor for you. As for losing control, and letting it all spill out, > > this is the place to do it, and it may ease the burden a little. > > > > *hugs to * > > Shandi > > exactly, as much as I love my husband, he doesn't understand. He *chooses* > to abuse his body by weight lifting, and then comes around me and complains > about how much he hurts. When really, to me, it's bragging. He just doesn't > understand, and though he listens, unless someone is or has been where we > are, they CANNOT understand the depression, anguish, mental confussion, loss > of self, loss of self esteem, and PAIN that we live in day in and day out. > You guys do. I may not say it all the time, but just listening to you guys > makes me feel better. I have " sisters and brothers " who know what's going > on. > (and I love U2 also LOL, my fave albumn is October) > ~*Meredith*~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 You touched on some things that are very familiar to me, like not having patience with people who purposely put themselves through heck (drinking, overexertion, etc) and then complain. You wonder why anyone would choose that? Sounds like you have a wonderful husband; also you seem to be right when you indicate only fibro sufferers (or those with other chronic problems) understand on the level we do. Sometimes it makes me feel isolated from " normal " people. another hard part is realizing all the overwhelming things you need to do to cope with an illness and not having the energy or focus to do them. Like I know I should apply for disability, and I want to, but then I think god, how can I do all that? Self-esteem is a tough one. There's no doubt that physically something is lost and if you've been active, this feels bad. Inside, I know I'm the same, but people don't see me the same. Hope someone is there bolstering your self-esteem! I find myself sitting here sometimes thinking " what have I become " and feeling bad until I tell myself I just can't help it; I cannot control that I have this problem. Not easy to keep in mind all the time. Shandi > In a message dated 04/11/2002 10:32:01 AM Central Daylight Time, > angel_of_harlemu2@y... writes: > > > > When it comes to sharing with friends, do you have some friends that > > truly understand? I have one, but even though she says to talk about > > it whenever I want, I don't always believe she can tolerate my > > complaints or venting. I hope you have a friend around you can trust > > and who is really selfless enough to listen. I think we all deserve > > that. You seem like a good listener, so I hope someone returns the > > favor for you. As for losing control, and letting it all spill out, > > this is the place to do it, and it may ease the burden a little. > > > > *hugs to * > > Shandi > > exactly, as much as I love my husband, he doesn't understand. He *chooses* > to abuse his body by weight lifting, and then comes around me and complains > about how much he hurts. When really, to me, it's bragging. He just doesn't > understand, and though he listens, unless someone is or has been where we > are, they CANNOT understand the depression, anguish, mental confussion, loss > of self, loss of self esteem, and PAIN that we live in day in and day out. > You guys do. I may not say it all the time, but just listening to you guys > makes me feel better. I have " sisters and brothers " who know what's going > on. > (and I love U2 also LOL, my fave albumn is October) > ~*Meredith*~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 You touched on some things that are very familiar to me, like not having patience with people who purposely put themselves through heck (drinking, overexertion, etc) and then complain. You wonder why anyone would choose that? Sounds like you have a wonderful husband; also you seem to be right when you indicate only fibro sufferers (or those with other chronic problems) understand on the level we do. Sometimes it makes me feel isolated from " normal " people. another hard part is realizing all the overwhelming things you need to do to cope with an illness and not having the energy or focus to do them. Like I know I should apply for disability, and I want to, but then I think god, how can I do all that? Self-esteem is a tough one. There's no doubt that physically something is lost and if you've been active, this feels bad. Inside, I know I'm the same, but people don't see me the same. Hope someone is there bolstering your self-esteem! I find myself sitting here sometimes thinking " what have I become " and feeling bad until I tell myself I just can't help it; I cannot control that I have this problem. Not easy to keep in mind all the time. Shandi > In a message dated 04/11/2002 10:32:01 AM Central Daylight Time, > angel_of_harlemu2@y... writes: > > > > When it comes to sharing with friends, do you have some friends that > > truly understand? I have one, but even though she says to talk about > > it whenever I want, I don't always believe she can tolerate my > > complaints or venting. I hope you have a friend around you can trust > > and who is really selfless enough to listen. I think we all deserve > > that. You seem like a good listener, so I hope someone returns the > > favor for you. As for losing control, and letting it all spill out, > > this is the place to do it, and it may ease the burden a little. > > > > *hugs to * > > Shandi > > exactly, as much as I love my husband, he doesn't understand. He *chooses* > to abuse his body by weight lifting, and then comes around me and complains > about how much he hurts. When really, to me, it's bragging. He just doesn't > understand, and though he listens, unless someone is or has been where we > are, they CANNOT understand the depression, anguish, mental confussion, loss > of self, loss of self esteem, and PAIN that we live in day in and day out. > You guys do. I may not say it all the time, but just listening to you guys > makes me feel better. I have " sisters and brothers " who know what's going > on. > (and I love U2 also LOL, my fave albumn is October) > ~*Meredith*~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 , Favorite Album is Tree, I like the hits of course, With or Without You etc, but Red Hill Mining Town off JT really gets to me. Bad is an incredible song! I have also recently worn out two All That You Can't Leave Behind CD's, lol. Stuck In a Moment makes me cry pretty well, it reflects how I feel sometimes. I got to see them in concert last June, the most amazing night of my life. They did an acoustic version of one of my Rattle and Hum faves, Angel of Harlem that made my night. I can sometimes even feel like a teenager gushing about how cool Bono is Who else do you like for music? Music may not get rid of my burning pain or bring back my agility by any means, but it soothes my mind; the lyrics, especially those of U2, really help. When it comes to hockey...most people in Maine cheer for the Boston Bruins, but I like the Vancouver Canucks. I will cheer for the Red Wings though, I like Fedorov and Yzerman well. Shandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 , Favorite Album is Tree, I like the hits of course, With or Without You etc, but Red Hill Mining Town off JT really gets to me. Bad is an incredible song! I have also recently worn out two All That You Can't Leave Behind CD's, lol. Stuck In a Moment makes me cry pretty well, it reflects how I feel sometimes. I got to see them in concert last June, the most amazing night of my life. They did an acoustic version of one of my Rattle and Hum faves, Angel of Harlem that made my night. I can sometimes even feel like a teenager gushing about how cool Bono is Who else do you like for music? Music may not get rid of my burning pain or bring back my agility by any means, but it soothes my mind; the lyrics, especially those of U2, really help. When it comes to hockey...most people in Maine cheer for the Boston Bruins, but I like the Vancouver Canucks. I will cheer for the Red Wings though, I like Fedorov and Yzerman well. Shandi Quote Link to comment Share on other sites More sharing options...
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