Re: DMPS-Allergic Reaction???

[Guest guest]

His lips have been chapped lately but I did notice them to be a bit red

today.

If this is an allergic reaction to DMPS, it is horrible news. We had finally

found something that was working well enough for him with minimal yeast

issues. The DMSA was causing lots of yeast so we switched. ALA alone was the

worst

with no progress. Can this sort of reaction occur even with positive progress

happening??? What is the link for the dmps backfires website?

Andy, do you concur that this could be an allergic reaction to DMPS??

Does this mean we need to stop DMPS altogether? If so, I don't know what to

do for him.

Michele

In a message dated 1/29/04 6:45:32 PM Eastern Standard Time,

writes:

<< From: " merrywbee " <maryandphilip@...>

Subject: Re: Round 21 with DMPS & red spots

Eh, not normal. This is what happened to my son only it happened on

round three and not as far in the game as yours. You probably should

stop using it. It is an allergic type of reaction. Do some internet

searching on erythema multiforme and stevens-johnson syndrome. The

red marks and the reddening around the eyes are what happened to my

son but he also got very bright red lips, too. Did your son get red

lips at all? For Ethan, it started on round one, very mild, but by

round three it was pretty severe and thankfully we stopped using it.

Other kids have had this happen to them before (and there are some

things on the dmpsbackfires website that refer to this I think -

can't remember for sure- been doing a lot of reading on dmps since

this happened). Anyhow, other kids have bounced back just fine but

not Ethan. He still has problems stemming from this -- in fact right

now his lips are very red and swollen again, eyes itchy, and it just

comes and goes...

I had some email communications with a compounding pharmacist in

oregon who said that this is not an uncommon reaction to dmps. She

herself had it, too.

W

> In the middle of round 21 with DMPS my son has developed some red

spots on

> the trunk of his body & his diaper area. He also has red marks

around his eyes &

> the rims & inner corners of his eyes look red as well. I remember

some red

> marks last time with chelation too but not this bad.

>

> Is this a detox thing & normal?

>

> (He's well supplement, getting milk thistle, being chelated on

Andy's

> schedule etc).

>

> Thanks, Michele

>>

[Guest guest]

Allergic reactions can happen to anything at any time. The body can

become sensitized to it over time. I used to be able to be around

cats, and then at a certain point I became allergic to them. Same

thing for Ethan. When he was little he could be around cats, now he

goes in to a home where there are cats and he's having an allergic

reaction almost immediately.

If I were you, I would stop. I honestly am so glad that my dh did

not give Ethan his next dose in that particular round (I was napping)

because I really think we would have had to go to the hospital had he

given him more of it. It's an extreme reaction, but I have an

extremely sensitive kid. Your child might just have the same red

marks, etc. as he did this round, and for the next ten rounds. It

might get really serious on the next round or you might go ten more

rounds before it is as bad as my son's reaction was on that last

round. Hard to say.

Some people have talked about using bioset to " clear " a supplement.

Don't know if it would work in this situation or not.

From the DMPS backfires website, Ethan had a few things that meant he

probably should NOT have used it. Such as asthma. I also should

have thought twice about it now seeing that it has propane in it. I

had researched dmps years ago and decided against it, but he was

pretty yeasty with dmsa so I decided to try it and didn't really

recall the reasons why I had veto'd it in the past. Well, now we are

in the same boat as you. What to use... right now, he tolerates a

certain brand of colostrum and it is really really helping him.

Other than the red lips issue coming and going and his asthma being

worse now, this colostrum is making him so consistently 'good' that

it's pretty much all I'm going to be using with him for a while. Re:

DMPS, some kids do really well on it, he didn't.

And yes, the reaction can happen despite the progress. Behaviorally,

Ethan was doing great with those three rounds.

Here's the website you asked for...

http://www.dmpsbackfire.com/reports/default.shtml

Some of the testimonials are from IV dmps, and some are from oral

dmps.

W

> His lips have been chapped lately but I did notice them to be a bit

red

> today.

>

> If this is an allergic reaction to DMPS, it is horrible news. We

had finally

> found something that was working well enough for him with minimal

yeast

> issues.

[Guest guest]

W...My son is very sensitive as well. It's been very tough

getting him on the right supps etc that he can tolerate. He's tested

metal toxic, especially mercury, & this has to come out but now how

to do that? He couldn't tolerate ALA at all, & was very sensitive &

yeasty with DMSA. I had tried a colostrum of some sort a while ago &

he couldn't tolerate it. He doesn't have asthma though. I haven't

been able to speak to the dr we got the Rx for DMPS about this yet.

This is very discouraging.

Thanks for letting me know your experiences. I did cut the round a

bit short & will not do anything else until we know more.

Michele

> > His lips have been chapped lately but I did notice them to be a

bit

> red

> > today.

> >

> > If this is an allergic reaction to DMPS, it is horrible news. We

> had finally

> > found something that was working well enough for him with minimal

> yeast

> > issues.

[Guest guest]

> I also should

> have thought twice about it now seeing that it has propane in it.

When speaking with his doc I asked him about this & he said he has no

knowledge of DMPS having propane in it. Where did you get that info?

Thanks, Michele

[Guest guest]

From the dmps backfires website. It says:

Dimercapto-propane sulfonate (DMPS)

W

> > I also should

> > have thought twice about it now seeing that it has propane in

it.

>

> When speaking with his doc I asked him about this & he said he has

no

> knowledge of DMPS having propane in it. Where did you get that info?

> Thanks, Michele