Re: Irritated in the morning

[Guest guest]

Darcy...

I've had problem with LIGHT and NOISE in the morning since I was a child. My

mother would throw on the light to wake us up for school? And I was so grumpy -

asked her to please not turn on the overhead light - I WOULD get up without it?

She just kept turning it on. I don't own a light bulb over 60 watts - and

morning noise is very disconcerting to me. If I hear the garbage man in the

alley - I'm UPSET immediately. If my phone rings and I'm not " ready for it " -

it upsents me. I go online to stop the phone from working - and to answer

emails, of course. I believe that the " light noise " thing is every bit as

strong in PANIC/ANXIETY as it is in Fibromyalgia. A " cross-over " place, I

think. I do not answer my phone if I'm in an episode and just cannot " talk. " I

don't answer the door. Sometimes I simply must have NO INPUT of any kind as it

makes me have to think and 'deal' and I don't have the brain or emotions to

handle it....this is my take on " lights " and noise....Marsha

Has anyone else noticed being really irritated in the morning by

sounds? I swear, if my cats moan to go out at 7 am or the washing

machine runs at 8 am, it grinds on my nerves horribly!!! But if the

cats are doing the same moaning in the afternoon or the washing machine

starts at 10 am, it's not nearly as wearing on my nerves. Has anyone

else noticed this?

Darcy who is really irritated by a cat who was given two chances to go,

refused both times, and is now yelling loudly to be let out.

[Guest guest]

> Has anyone else noticed being really irritated in the morning by

> soun ds?

Oh-Yes! It seems as if every noise is amplified and grates on my

nerves like fingernails on a chalkboard! This also happens when I get

over-tired during the day & I use it as a sign that I have to rest

for awhile.

[Guest guest]

> Has anyone else noticed being really irritated in the morning by

> soun ds?

Oh-Yes! It seems as if every noise is amplified and grates on my

nerves like fingernails on a chalkboard! This also happens when I get

over-tired during the day & I use it as a sign that I have to rest

for awhile.

[Guest guest]

> Has anyone else noticed being really irritated in the morning by

> soun ds?

Oh-Yes! It seems as if every noise is amplified and grates on my

nerves like fingernails on a chalkboard! This also happens when I get

over-tired during the day & I use it as a sign that I have to rest

for awhile.

[Guest guest]

Thank you Marsha, for explaining something that I haven't been able to

successfully explain to anybody my entire life!! There are many times when

I let the machine get the phone, and I have a large fence with a locked

gate around my house (to keep the dogs in) so people can't walk up to my

door and knock. There are just times when I absolutely cannot deal with

people!! And your explanation below is exactly right. There are times

when I can't even answer emails for a few days at a time until I get myself

" put together " , and I feel very lucky that I have friends that understand

that about me and put up with it.

As for irritated in the morning, I just don't have the time to be. With as

many pets as I have, all of them waking up hungry, I have to wake up fairly

fast and hit the floor ready to fix their breakfasts - doesn't leave much

time to be irritated - but I do find repetitive noises (like one of my

birds having a tantrum or one of the dogs having a barking fit) can

absolutely drive me up a wall and I just suddenly explode our of a quiet

contemplative state :-(

-

At 09:35 AM 1/16/02 -0800, you wrote:

>

> Darcy...

>

> I've had problem with LIGHT and NOISE in the morning since I was a

child. My mother would throw on the light to wake us up for school? And I

was so grumpy - asked her to please not turn on the overhead light - I

WOULD get up without it? She just kept turning it on. I don't own a light

bulb over 60 watts - and morning noise is very disconcerting to me. If I

hear the garbage man in the alley - I'm UPSET immediately. If my phone

rings and I'm not " ready for it " - it upsents me. I go online to stop the

phone from working - and to answer emails, of course. I believe that the

" light noise " thing is every bit as strong in PANIC/ANXIETY as it is in

Fibromyalgia. A " cross-over " place, I think. I do not answer my phone if

I'm in an episode and just cannot " talk. " I don't answer the door.

Sometimes I simply must have NO INPUT of any kind as it makes me have to

think and 'deal' and I don't have the brain or emotions to handle

it....this is my take on " lights " and noise....Marsha

[Guest guest]

Thank you Marsha, for explaining something that I haven't been able to

successfully explain to anybody my entire life!! There are many times when

I let the machine get the phone, and I have a large fence with a locked

gate around my house (to keep the dogs in) so people can't walk up to my

door and knock. There are just times when I absolutely cannot deal with

people!! And your explanation below is exactly right. There are times

when I can't even answer emails for a few days at a time until I get myself

" put together " , and I feel very lucky that I have friends that understand

that about me and put up with it.

As for irritated in the morning, I just don't have the time to be. With as

many pets as I have, all of them waking up hungry, I have to wake up fairly

fast and hit the floor ready to fix their breakfasts - doesn't leave much

time to be irritated - but I do find repetitive noises (like one of my

birds having a tantrum or one of the dogs having a barking fit) can

absolutely drive me up a wall and I just suddenly explode our of a quiet

contemplative state :-(

-

At 09:35 AM 1/16/02 -0800, you wrote:

>

> Darcy...

>

> I've had problem with LIGHT and NOISE in the morning since I was a

child. My mother would throw on the light to wake us up for school? And I

was so grumpy - asked her to please not turn on the overhead light - I

WOULD get up without it? She just kept turning it on. I don't own a light

bulb over 60 watts - and morning noise is very disconcerting to me. If I

hear the garbage man in the alley - I'm UPSET immediately. If my phone

rings and I'm not " ready for it " - it upsents me. I go online to stop the

phone from working - and to answer emails, of course. I believe that the

" light noise " thing is every bit as strong in PANIC/ANXIETY as it is in

Fibromyalgia. A " cross-over " place, I think. I do not answer my phone if

I'm in an episode and just cannot " talk. " I don't answer the door.

Sometimes I simply must have NO INPUT of any kind as it makes me have to

think and 'deal' and I don't have the brain or emotions to handle

it....this is my take on " lights " and noise....Marsha

[Guest guest]

bluskies@... wrote:

> As for irritated in the morning, I just don't have the time to be. With as

> many pets as I have, all of them waking up hungry, I have to wake up fairly

> fast and hit the floor ready to fix their breakfasts - doesn't leave much

> time to be irritated

I didn't mean I'm irritated as I sit around and can't handle things. I

can be irritated while dishing out cat's breakfst. It's just that if

they and all other noises leave me alone for the first couple of hours,

I feel much better that if they started off whining first thing. I

still can get them food, either way, I'd just prefer if they didn't

whine so much while I was doing it.

- but I do find repetitive noises (like one of my

> birds having a tantrum or one of the dogs having a barking fit) can

> absolutely drive me up a wall and I just suddenly explode our of a quiet

> contemplative state :-(

You're welcome to come listen to one of our neighbors barking dogs who

bark over and over and over again. Dane often comments on it when he

comes home, and I'm like " they do that all day long " , and they often do

bark at least on and off during the day. On some days, I really wish I

could muzzle them from long distances.

Darcy

[Guest guest]

Marsha Cole wrote:

> I've had problem with LIGHT and NOISE in the morning since I was a > child.

My mother would throw on the light to wake us up for school? And > I was so

grumpy - asked her to please not turn on the overhead light - I > WOULD >get up

without it? She just kept turning it on.

Sorry to hear that your mother refused to hear you about the overheat

light. I can't imagine using that to get any, but the most stubborn of

kids up. The only time I had that done to me was in boot camp in the

Navy, and it's a nasty way to start your day.

> Sometimes I simply must have NO INPUT of any kind as it makes me have to

>think and 'deal' and I don't have the brain or emotions to handle >it....this

is my take on " lights " and noise....!

I was sensitive to light and noise to some degree in collage, but I just

put it down as " I'm a light sleeper " kind of a thing. It's slowly

gotten worse over time. If I go to a party with lots of people just

talking, by the time I came home, I just go hid in the bedroom by

myself, no cats, no hubby for an hour or so until I feel better.

Darcy

[Guest guest]

It seems that those of us here seem to be really sensitive to things that the

rest of the world are able to overlook. Is that what makes us susceptible to

fibromyalgia?? Maybe?

In a message dated Thu, 17 Jan 2002 7:57:47 AM Eastern Standard Time, Darcy

Stockstill catstamp@...> writes:

>

>

> Marsha Cole wrote:

> > I've had problem with LIGHT and NOISE in the morning since I was a >

child. My mother would throw on the light to wake us up for school? And > I

was so grumpy - asked her to please not turn on the overhead light - I > WOULD

>get up without it? She just kept turning it on.

>

> Sorry to hear that your mother refused to hear you about the overheat

> light. I can't imagine using that to get any, but the most stubborn of

> kids up. The only time I had that done to me was in boot camp in the

> Navy, and it's a nasty way to start your day.

>

> > Sometimes I simply must have NO INPUT of any kind as it makes me have to

>think and 'deal' and I don't have the brain or emotions to handle >it....this

is my take on " lights " and noise....!

>

> I was sensitive to light and noise to some degree in collage, but I just

> put it down as " I'm a light sleeper " kind of a thing. It's slowly

> gotten worse over time. If I go to a party with lots of people just

> talking, by the time I came home, I just go hid in the bedroom by

> myself, no cats, no hubby for an hour or so until I feel better.

>

> Darcy

>

>

> SEND POST TO: fibromyalgia-cfs

>

> HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html

> LIST OWNER: " Missy " Parrot004@...>

> UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe

>

>

>

>

>

>

[Guest guest]

It seems that those of us here seem to be really sensitive to things that the

rest of the world are able to overlook. Is that what makes us susceptible to

fibromyalgia?? Maybe?

In a message dated Thu, 17 Jan 2002 7:57:47 AM Eastern Standard Time, Darcy

Stockstill catstamp@...> writes:

>

>

> Marsha Cole wrote:

> > I've had problem with LIGHT and NOISE in the morning since I was a >

child. My mother would throw on the light to wake us up for school? And > I

was so grumpy - asked her to please not turn on the overhead light - I > WOULD

>get up without it? She just kept turning it on.

>

> Sorry to hear that your mother refused to hear you about the overheat

> light. I can't imagine using that to get any, but the most stubborn of

> kids up. The only time I had that done to me was in boot camp in the

> Navy, and it's a nasty way to start your day.

>

> > Sometimes I simply must have NO INPUT of any kind as it makes me have to

>think and 'deal' and I don't have the brain or emotions to handle >it....this

is my take on " lights " and noise....!

>

> I was sensitive to light and noise to some degree in collage, but I just

> put it down as " I'm a light sleeper " kind of a thing. It's slowly

> gotten worse over time. If I go to a party with lots of people just

> talking, by the time I came home, I just go hid in the bedroom by

> myself, no cats, no hubby for an hour or so until I feel better.

>

> Darcy

>

>

> SEND POST TO: fibromyalgia-cfs

>

> HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html

> LIST OWNER: " Missy " Parrot004@...>

> UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe

>

>

>

>

>

>

[Guest guest]

At 07:41 AM 1/17/02 -0500, you wrote:

>I didn't mean I'm irritated as I sit around and can't handle things. I

>can be irritated while dishing out cat's breakfst. It's just that if

>they and all other noises leave me alone for the first couple of hours,

>I feel much better that if they started off whining first thing. I

>still can get them food, either way, I'd just prefer if they didn't

>whine so much while I was doing it.

Oh, I know exactly what you mean :-) Sometimes I'm cooking the birds'

breakfast and sitting there thinking, 'y'know, it'd probably taste better

if you weren't screaming quite so loud for it'! The dogs usually aren't

that bad about being loud in the morning (although I woke up yesterday

morning to one of them throwing up on my leg - talk about a great way to

wake up!! Blech!) - they just waking me up by sticking a tongue in my ear!!

That's a REALLY sudden way to wake up in the morning .

>You're welcome to come listen to one of our neighbors barking dogs who

>bark over and over and over again. Dane often comments on it when he

>comes home, and I'm like " they do that all day long " , and they often do

>bark at least on and off during the day. On some days, I really wish I

>could muzzle them from long distances.

>Darcy

Thanks Darcy, but I think I'll pass on the neighbors barking dogs! With 10

of my own (yep, I gained a new puppy a couple of weekends ago when somebody

dumped him inside my fence.... ), they make quite enough noise. There

are seven or eight of them in the bedroom with me, and they find it

necessary to bark when the wind blows or a leaf falls off a tree . Good

luck at that long distance muzzling, and let me know if you find an

effective way to do it!! LOL!

-

[Guest guest]

My mother woke me up the same way but it was accompanied by a loud and shrill

(or so it sounded to me) " Rise and Shine! " . I always swore I would never do

that to my own children. Those words still give me the creeps!

Sincerely, Pamela Rauch

[Guest guest]

-- do you know how GOOD it feels to know there are others " out there "

who have some of my own behavior? It validates how I feel to know this about

you. It makes me feel very NOT ALONE in this. I understand that my Fibro.

probably isn't as severe as many of you experience. I'm blanking on the name (

smile ) but the young man who spoke of his illness at 23 - having to deal with

not being understood by those around him just got into my heart - so please,

young man - if you're staying in touch with us - I did " hear you? " And I do

very much care about you.

You members have given me such a broader scope of Fibro. in your lives and how

it relates to your familis; jobs, etc. I HURT for those of you who need to get

that disability and have to fight it! You need it; your condition is valid; and

I pray that you get the legal help to get you disability - just the relief of

that could help your outbreaks of fibro - or the constant " active " condition it

is in your lives.

I used to joke about Panic/Anxiety - " I'd begin a support group, but since

most are agoraphobic, NO ONE would come? " And it was sadly true. No one would

come. But I did meet a couple of other people with Panic/Anxiety and we did

meet here and there to talk about 'us' and how we orchstrate our lives around

avoiding panic attacks.

The guy - in his 40s - had a girlfriend who sang in a band. If she did an

overnight gig - he'd come to her place of entertaining and be there as long as

he could handle the crowd - when he couldn't handle the crowd - he went back to

the SAFE motel room. Eventually - I taught him the keyboard - and he began

" playing with his wife " in a 2 person band! He just dubbed over accompaniment

soundtracks and they sounded great! He got to a place he was more comfortable

and could be in front of an audience. I felt good I got to teach him the

keyboard.

- I think caring for your animals is a good thing. They need you. And

I hope that they give you a lot of comfort. And one more person understands why

I " shut down " and have to be alone for a while. It feels good. It was a gift.

Marsha

email: ivory@...

Thank you Marsha, for explaining something that I haven't been able to

successfully explain to anybody my entire life!! There are many times when

I let the machine get the phone, and I have a large fence with a locked

gate around my house (to keep the dogs in) so people can't walk up to my

door and knock. There are just times when I absolutely cannot deal with

people!! And your explanation below is exactly right. There are times

when I can't even answer emails for a few days at a time until I get myself

" put together " , and I feel very lucky that I have friends that understand

that about me and put up with it.

As for irritated in the morning, I just don't have the time to be. With as

many pets as I have, all of them waking up hungry, I have to wake up fairly

fast and hit the floor ready to fix their breakfasts - doesn't leave much

time to be irritated - but I do find repetitive noises (like one of my

birds having a tantrum or one of the dogs having a barking fit) can

absolutely drive me up a wall and I just suddenly explode our of a quiet

contemplative state :-(

-

[Guest guest]

> Marsha Cole wrote:

> > I've had problem with LIGHT and NOISE in the morning since I was a >

child. My mother would throw on the light to wake us up for school? And >

I was so grumpy - asked her to please not turn on the overhead light - I >

WOULD >get up without it? She just kept turning it on.

>

> Sorry to hear that your mother refused to hear you about the overheat

> light. I can't imagine using that to get any, but the most stubborn of

> kids up. The only time I had that done to me was in boot camp in the

> Navy, and it's a nasty way to start your day.

>

> > Sometimes I simply must have NO INPUT of any kind as it makes me have to

>think and 'deal' and I don't have the brain or emotions to handle

>it....this is my take on " lights " and noise....!

>

> I was sensitive to light and noise to some degree in collage, but I just

> put it down as " I'm a light sleeper " kind of a thing. It's slowly

> gotten worse over time. If I go to a party with lots of people just

> talking, by the time I came home, I just go hid in the bedroom by

> myself, no cats, no hubby for an hour or so until I feel better.

>

> Darcy

Darcy - yes, the light sensitivity has always " been " for me. Only I can

control that now! :-)

I have to have avenues of " escape " from most of the plans I make. I've gone

to " girl dinners' with classmates I knew since the crib? And I enjoy it for

an hour mabye 1 1/2 hrs - and then uneasiness will come in -- feel there's

too much noise and input and I go home then. Most of them understand this

about me. I have to sit on an aisle seat in a theater; I need to be able to

leave and reach my car quickly if I'm anywhere that might start making me

feel uncomfortable. If I've gone to Fourth of July Fireworks celebrations -

I make sure I'm one of the first IN MY CAR and out of the traffic after it

ends. I always have to have an escape route. And this is doubly important

if I'm in a fibro state - I don't travel well . If I visit my

kids/grandchildren it can only be for about 3 days and then I MUST return

home to the place I can " control " input. My own surroundings are very

important to me. And routine and structure in my life is necessary for me

to deal with fibro--I can't enjoy spontaneity often and it usually disturbs

me to have any plan " modified " by someone else. I ALWAYS take my own

vehicle when meeting friends so that I can leave and return home.

And I know this is really no " news " to all of you....Marsha

[Guest guest]

> My mother woke me up the same way but it was accompanied by a loud and

shrill (or so it sounded to me) " Rise and Shine! " . I always swore I would

never do that to my own children. Those words still give me the creeps!

> Sincerely, Pamela Rauch

I NEVER woke my own children this way! Needless to say - I went in early

and gave them 5 minutes to " come awake " and maybe had to go back and prompt

one or two of them -- NEVER used overhead lights, I can tell you that!

Marsha

[Guest guest]

> My mother woke me up the same way but it was accompanied by a loud and

shrill (or so it sounded to me) " Rise and Shine! " . I always swore I would

never do that to my own children. Those words still give me the creeps!

> Sincerely, Pamela Rauch

I NEVER woke my own children this way! Needless to say - I went in early

and gave them 5 minutes to " come awake " and maybe had to go back and prompt

one or two of them -- NEVER used overhead lights, I can tell you that!

Marsha

[Guest guest]

> It seems that those of us here seem to be really sensitive to things that

the rest of the world are able to overlook. Is that what makes us

susceptible to fibromyalgia?? Maybe?

>

....and I wonder--which came first? (The Chicken or the Egg Syndrome?) I

suspect the sensitivity might have come first. In a book on Panic Anxiety

Disorder -- the description of the " personality type " that gets this - is

very similar to fibromyalgia/CF descriptions. I know there's " over-lapping "

in some of these " syndromes? "

Good thought....Marsha

[Guest guest]

HeavnsGirl@... wrote:

>

> It seems that those of us here seem to be really sensitive to things that the

rest of the world are able to overlook. Is that what makes us susceptible to

fibromyalgia?? Maybe?

I really should keep the web sites handy, but do a web search for

" highly sensitive people " and look at what pops up. I'm definitely one!

Darcy

[Guest guest]

Hi Marsha,

I am SO glad that you found our list!! Here you'll find lots of people

that know exactly what you're going through - you'll find people whose

fibro is much less than yours (but no less devastating) and people who are

completely bedridden and have lost hope (but I hope that our list gives

them hope and the will to keep going on!). We have the full spectrum of

fibro here, as well as a large number of CFS, even though we don't talk

about it as much. You have already given alot to the list, and I hope

you'll continue to do so, and I hope that we can all give to you also!

What you accomplished with the keyboard player is nothing less than a

miracle :-) I've only had a few panic/anxiety attacks in my life and

haven't needed to be on medication for it, but it was absolutely terrifying

when it was going on, and I can't imagine anything being able to " get

through to me " and calm me down while it was happening. I think your

ability to work with people with this disorder is wonderful, and hope that

you continue your efforts.

You're correct about my animals - they are absolutely the things that not

only kept me going, but literally kept me alive during the worst of my

disease. I spent over seven years with absolutely no treatment at all - my

doctor told me that there was nothing that he could do for me, I didn't

have the energy or impetus to look for another doctor, so I just basically

gave up and lay there. I was in excruciating pain for that entire time - I

have pictures taken of me during those seven years, and I don't even look

like the same person now. My animals gave me a reason to be. My husband

doesn't feel the same way about them that I do, and I knew that if I didn't

care for them and love them, they wouldn't get care, and if I weren't here,

they would probably be disposed of in the most expedient manner. Every

time I was ready to give up and take my life, I thought about that, and

thought about how confused and sad they would all be if I were suddenly

gone, and that always kept me from making the attempt. Back before I had

pets, I DID make the attempt, several times, and almost succeeded a couple

of times. So, I quite literally owe my companions my life - they needed

me, and because of that, I needed them. Now that I'm finally getting

treatment and feel well for the first time since I was a very small child,

I owe them the very best care that I can give them :-)

Marsha, you are NOT ALONE with your Fibro, or CFS, or anything else that

you may suffer with, and you'll always have people here who will listen to

you, talk with you, cry with you - and I know that you'll be available for

anyone else that needs you too. That's what we're about here, is support

and help (even though we do get a little side-tracked every now and

then ), and we're happy to have you with us! I'm sorry I didn't get back

with you sooner, but it's for the best of reasons - I'm feeling so much

better now, that I'm too BUSY to spend all my day on the computer!! Now

how's that from being bedridden less than a year ago and being online

pretty close to 24 hrs. a day! Everyone, keep up hope, there IS help out

there, but you have to keep up hope and keep on trying - help isn't going

to come to you.

Gentle hugs,

-

mailto:bluskies@...

At 11:03 AM 1/17/02 -0800, you wrote:

>

> -- do you know how GOOD it feels to know there are others " out

there " who have some of my own behavior? It validates how I feel to know

this about you. It makes me feel very NOT ALONE in this. I understand

that my Fibro. probably isn't as severe as many of you experience. I'm

blanking on the name ( smile ) but the young man who spoke of his illness

at 23 - having to deal with not being understood by those around him just

got into my heart - so please, young man - if you're staying in touch with

us - I did " hear you? " And I do very much care about you.

>

> You members have given me such a broader scope of Fibro. in your lives

and how it relates to your familis; jobs, etc. I HURT for those of you who

need to get that disability and have to fight it! You need it; your

condition is valid; and I pray that you get the legal help to get you

disability - just the relief of that could help your outbreaks of fibro -

or the constant " active " condition it is in your lives.

>

> I used to joke about Panic/Anxiety - " I'd begin a support group, but

since most are agoraphobic, NO ONE would come? " And it was sadly true. No

one would come. But I did meet a couple of other people with Panic/Anxiety

and we did meet here and there to talk about 'us' and how we orchstrate our

lives around avoiding panic attacks.

> The guy - in his 40s - had a girlfriend who sang in a band. If she did

an overnight gig - he'd come to her place of entertaining and be there as

long as he could handle the crowd - when he couldn't handle the crowd - he

went back to the SAFE motel room. Eventually - I taught him the keyboard -

and he began " playing with his wife " in a 2 person band! He just dubbed

over accompaniment soundtracks and they sounded great! He got to a place

he was more comfortable and could be in front of an audience. I felt good

I got to teach him the keyboard.

>

> - I think caring for your animals is a good thing. They need

you. And I hope that they give you a lot of comfort. And one more person

understands why I " shut down " and have to be alone for a while. It feels

good. It was a gift.

>

> Marsha

> email: ivory@...

[Guest guest]

wrote:

> I am SO glad that you found our list!! Here you'll find lots of people

> that know exactly what you're going through - you'll find people whose

> fibro is much less than yours (but no less devastating) and people who are

> completely bedridden and have lost hope (but I hope that our list gives

> them hope and the will to keep going on!). We have the full spectrum of

> fibro here, as well as a large number of CFS, even though we don't talk

> about it as much. You have already given alot to the list, and I hope

> you'll continue to do so, and I hope that we can all give to you also!

I'm so glad I found this group. Yesterday I had a counseling appt. I was

also able to get a prescription for some pain med. as I told " Joyce " that I

can't NOT play the piano and deal w/fibro--it's the place I go to FORGET

about fibro pain. I had never used narcotic pain killer for fibro. Because

I was over-medicated for Panic/Anxiety disorder for quite a while and I

FEARED ADDICTION. So we talked being medicated safely w/some narcotic pain

medication during episodes that are challenging. I think I cried during the

whole session. Being on the edge of tears is so typical in fibro.

Anyway - I'm learning so much! I take time to read all the posts and I

thank every one of you who contribute so much to this group.

>

> What you accomplished with the keyboard player is nothing less than a

> miracle :-) I've only had a few panic/anxiety attacks in my life and

> haven't needed to be on medication for it, but it was absolutely

terrifying

> when it was going on, and I can't imagine anything being able to " get

> through to me " and calm me down while it was happening. I think your

> ability to work with people with this disorder is wonderful, and hope that

> you continue your efforts.

It's my HAPPY PLACE. Makes me think of one of my favorite songs as a child:

" Everybody Has a Laughing Place " from SONG OF THE SOUTH...Brer' Rabbit,

etc...a great Disney flick. I thought when in hard places w/fibro -

" where's my laughing place? " Now I can find it here and there.... I do

look up humor in humor sites - as laughter is a great antidote for fibro.

Better shared among friends who know why they need to laugh so badly...

>

> You're correct about my animals - they are absolutely the things that not

> only kept me going, but literally kept me alive during the worst of my

> disease. I spent over seven years with absolutely no treatment at all -

my

> doctor told me that there was nothing that he could do for me, I didn't

> have the energy or impetus to look for another doctor, so I just basically

> gave up and lay there. I was in excruciating pain for that entire time -

I

> have pictures taken of me during those seven years, and I don't even look

> like the same person now. My animals gave me a reason to be. My husband

> doesn't feel the same way about them that I do, and I knew that if I

didn't

> care for them and love them, they wouldn't get care, and if I weren't

here,

> they would probably be disposed of in the most expedient manner. Every

> time I was ready to give up and take my life, I thought about that, and

> thought about how confused and sad they would all be if I were suddenly

> gone, and that always kept me from making the attempt. Back before I had

> pets, I DID make the attempt, several times, and almost succeeded a couple

> of times. So, I quite literally owe my companions my life - they needed

> me, and because of that, I needed them. Now that I'm finally getting

> treatment and feel well for the first time since I was a very small child,

> I owe them the very best care that I can give them :-)

When I picked up my prescription from Safeway - there was a box of puppies

outside getting " new owners " - there was this soulful little brown/white pup

that was " quiet " - not like the others. I cupped her face in my hands and I

wanted her so badly - I live in an apartment and can't have pets. But I

know they comfort us - they need us. They help w/our pain. I'd be

surprised if enyone w/recurring fibro/CF hasn't wanted to be DEAD quite a

few times...too many times...for it seems to steal away our bodies who

betray us and our joy we feel died years back....but I think fibro/CF

sufferers are all survivors. Strong and very very brave.

> Marsha, you are NOT ALONE with your Fibro, or CFS, or anything else that

> you may suffer with, and you'll always have people here who will listen to

> you, talk with you, cry with you - and I know that you'll be available for

> anyone else that needs you too. That's what we're about here, is support

> and help (even though we do get a little side-tracked every now and

> then ), and we're happy to have you with us! I'm sorry I didn't get

back

> with you sooner, but it's for the best of reasons - I'm feeling so much

> better now, that I'm too BUSY to spend all my day on the computer!! Now

> how's that from being bedridden less than a year ago and being online

> pretty close to 24 hrs. a day! Everyone, keep up hope, there IS help out

> there, but you have to keep up hope and keep on trying - help isn't going

> to come to you.

That IS such a good thing! Feeling so good you don't have time for the

computer!

This is a very active supportive group. Every day is like going to

" classes " in learning more and more. I conquered the tremendous fear of

panic attacks for the most part. And when I began to entertain seniors -- I

found they battle what we do? They're very brave. So we have like an

elderly " piano bar " thing happening... We talk if they will talk with me.

We sing. I tell stories. Sometimes get very SILLY and act out stories so

that we can all laugh...since I'm not really performing at all - I'm having

an hour PARTY? I never feel nervous. Because it's an interactive thing -

we're just mostly women coming together in fun....

>

And I appreciate everyone in here....Marsha

[Guest guest]

wrote:

> I am SO glad that you found our list!! Here you'll find lots of people

> that know exactly what you're going through - you'll find people whose

> fibro is much less than yours (but no less devastating) and people who are

> completely bedridden and have lost hope (but I hope that our list gives

> them hope and the will to keep going on!). We have the full spectrum of

> fibro here, as well as a large number of CFS, even though we don't talk

> about it as much. You have already given alot to the list, and I hope

> you'll continue to do so, and I hope that we can all give to you also!

I'm so glad I found this group. Yesterday I had a counseling appt. I was

also able to get a prescription for some pain med. as I told " Joyce " that I

can't NOT play the piano and deal w/fibro--it's the place I go to FORGET

about fibro pain. I had never used narcotic pain killer for fibro. Because

I was over-medicated for Panic/Anxiety disorder for quite a while and I

FEARED ADDICTION. So we talked being medicated safely w/some narcotic pain

medication during episodes that are challenging. I think I cried during the

whole session. Being on the edge of tears is so typical in fibro.

Anyway - I'm learning so much! I take time to read all the posts and I

thank every one of you who contribute so much to this group.

>

> What you accomplished with the keyboard player is nothing less than a

> miracle :-) I've only had a few panic/anxiety attacks in my life and

> haven't needed to be on medication for it, but it was absolutely

terrifying

> when it was going on, and I can't imagine anything being able to " get

> through to me " and calm me down while it was happening. I think your

> ability to work with people with this disorder is wonderful, and hope that

> you continue your efforts.

It's my HAPPY PLACE. Makes me think of one of my favorite songs as a child:

" Everybody Has a Laughing Place " from SONG OF THE SOUTH...Brer' Rabbit,

etc...a great Disney flick. I thought when in hard places w/fibro -

" where's my laughing place? " Now I can find it here and there.... I do

look up humor in humor sites - as laughter is a great antidote for fibro.

Better shared among friends who know why they need to laugh so badly...

>

> You're correct about my animals - they are absolutely the things that not

> only kept me going, but literally kept me alive during the worst of my

> disease. I spent over seven years with absolutely no treatment at all -

my

> doctor told me that there was nothing that he could do for me, I didn't

> have the energy or impetus to look for another doctor, so I just basically

> gave up and lay there. I was in excruciating pain for that entire time -

I

> have pictures taken of me during those seven years, and I don't even look

> like the same person now. My animals gave me a reason to be. My husband

> doesn't feel the same way about them that I do, and I knew that if I

didn't

> care for them and love them, they wouldn't get care, and if I weren't

here,

> they would probably be disposed of in the most expedient manner. Every

> time I was ready to give up and take my life, I thought about that, and

> thought about how confused and sad they would all be if I were suddenly

> gone, and that always kept me from making the attempt. Back before I had

> pets, I DID make the attempt, several times, and almost succeeded a couple

> of times. So, I quite literally owe my companions my life - they needed

> me, and because of that, I needed them. Now that I'm finally getting

> treatment and feel well for the first time since I was a very small child,

> I owe them the very best care that I can give them :-)

When I picked up my prescription from Safeway - there was a box of puppies

outside getting " new owners " - there was this soulful little brown/white pup

that was " quiet " - not like the others. I cupped her face in my hands and I

wanted her so badly - I live in an apartment and can't have pets. But I

know they comfort us - they need us. They help w/our pain. I'd be

surprised if enyone w/recurring fibro/CF hasn't wanted to be DEAD quite a

few times...too many times...for it seems to steal away our bodies who

betray us and our joy we feel died years back....but I think fibro/CF

sufferers are all survivors. Strong and very very brave.

> Marsha, you are NOT ALONE with your Fibro, or CFS, or anything else that

> you may suffer with, and you'll always have people here who will listen to

> you, talk with you, cry with you - and I know that you'll be available for

> anyone else that needs you too. That's what we're about here, is support

> and help (even though we do get a little side-tracked every now and

> then ), and we're happy to have you with us! I'm sorry I didn't get

back

> with you sooner, but it's for the best of reasons - I'm feeling so much

> better now, that I'm too BUSY to spend all my day on the computer!! Now

> how's that from being bedridden less than a year ago and being online

> pretty close to 24 hrs. a day! Everyone, keep up hope, there IS help out

> there, but you have to keep up hope and keep on trying - help isn't going

> to come to you.

That IS such a good thing! Feeling so good you don't have time for the

computer!

This is a very active supportive group. Every day is like going to

" classes " in learning more and more. I conquered the tremendous fear of

panic attacks for the most part. And when I began to entertain seniors -- I

found they battle what we do? They're very brave. So we have like an

elderly " piano bar " thing happening... We talk if they will talk with me.

We sing. I tell stories. Sometimes get very SILLY and act out stories so

that we can all laugh...since I'm not really performing at all - I'm having

an hour PARTY? I never feel nervous. Because it's an interactive thing -

we're just mostly women coming together in fun....

>

And I appreciate everyone in here....Marsha

[Guest guest]

wrote:

> I am SO glad that you found our list!! Here you'll find lots of people

> that know exactly what you're going through - you'll find people whose

> fibro is much less than yours (but no less devastating) and people who are

> completely bedridden and have lost hope (but I hope that our list gives

> them hope and the will to keep going on!). We have the full spectrum of

> fibro here, as well as a large number of CFS, even though we don't talk

> about it as much. You have already given alot to the list, and I hope

> you'll continue to do so, and I hope that we can all give to you also!

I'm so glad I found this group. Yesterday I had a counseling appt. I was

also able to get a prescription for some pain med. as I told " Joyce " that I

can't NOT play the piano and deal w/fibro--it's the place I go to FORGET

about fibro pain. I had never used narcotic pain killer for fibro. Because

I was over-medicated for Panic/Anxiety disorder for quite a while and I

FEARED ADDICTION. So we talked being medicated safely w/some narcotic pain

medication during episodes that are challenging. I think I cried during the

whole session. Being on the edge of tears is so typical in fibro.

Anyway - I'm learning so much! I take time to read all the posts and I

thank every one of you who contribute so much to this group.

>

> What you accomplished with the keyboard player is nothing less than a

> miracle :-) I've only had a few panic/anxiety attacks in my life and

> haven't needed to be on medication for it, but it was absolutely

terrifying

> when it was going on, and I can't imagine anything being able to " get

> through to me " and calm me down while it was happening. I think your

> ability to work with people with this disorder is wonderful, and hope that

> you continue your efforts.

It's my HAPPY PLACE. Makes me think of one of my favorite songs as a child:

" Everybody Has a Laughing Place " from SONG OF THE SOUTH...Brer' Rabbit,

etc...a great Disney flick. I thought when in hard places w/fibro -

" where's my laughing place? " Now I can find it here and there.... I do

look up humor in humor sites - as laughter is a great antidote for fibro.

Better shared among friends who know why they need to laugh so badly...

>

> You're correct about my animals - they are absolutely the things that not

> only kept me going, but literally kept me alive during the worst of my

> disease. I spent over seven years with absolutely no treatment at all -

my

> doctor told me that there was nothing that he could do for me, I didn't

> have the energy or impetus to look for another doctor, so I just basically

> gave up and lay there. I was in excruciating pain for that entire time -

I

> have pictures taken of me during those seven years, and I don't even look

> like the same person now. My animals gave me a reason to be. My husband

> doesn't feel the same way about them that I do, and I knew that if I

didn't

> care for them and love them, they wouldn't get care, and if I weren't

here,

> they would probably be disposed of in the most expedient manner. Every

> time I was ready to give up and take my life, I thought about that, and

> thought about how confused and sad they would all be if I were suddenly

> gone, and that always kept me from making the attempt. Back before I had

> pets, I DID make the attempt, several times, and almost succeeded a couple

> of times. So, I quite literally owe my companions my life - they needed

> me, and because of that, I needed them. Now that I'm finally getting

> treatment and feel well for the first time since I was a very small child,

> I owe them the very best care that I can give them :-)

When I picked up my prescription from Safeway - there was a box of puppies

outside getting " new owners " - there was this soulful little brown/white pup

that was " quiet " - not like the others. I cupped her face in my hands and I

wanted her so badly - I live in an apartment and can't have pets. But I

know they comfort us - they need us. They help w/our pain. I'd be

surprised if enyone w/recurring fibro/CF hasn't wanted to be DEAD quite a

few times...too many times...for it seems to steal away our bodies who

betray us and our joy we feel died years back....but I think fibro/CF

sufferers are all survivors. Strong and very very brave.

> Marsha, you are NOT ALONE with your Fibro, or CFS, or anything else that

> you may suffer with, and you'll always have people here who will listen to

> you, talk with you, cry with you - and I know that you'll be available for

> anyone else that needs you too. That's what we're about here, is support

> and help (even though we do get a little side-tracked every now and

> then ), and we're happy to have you with us! I'm sorry I didn't get

back

> with you sooner, but it's for the best of reasons - I'm feeling so much

> better now, that I'm too BUSY to spend all my day on the computer!! Now

> how's that from being bedridden less than a year ago and being online

> pretty close to 24 hrs. a day! Everyone, keep up hope, there IS help out

> there, but you have to keep up hope and keep on trying - help isn't going

> to come to you.

That IS such a good thing! Feeling so good you don't have time for the

computer!

This is a very active supportive group. Every day is like going to

" classes " in learning more and more. I conquered the tremendous fear of

panic attacks for the most part. And when I began to entertain seniors -- I

found they battle what we do? They're very brave. So we have like an

elderly " piano bar " thing happening... We talk if they will talk with me.

We sing. I tell stories. Sometimes get very SILLY and act out stories so

that we can all laugh...since I'm not really performing at all - I'm having

an hour PARTY? I never feel nervous. Because it's an interactive thing -

we're just mostly women coming together in fun....

>

And I appreciate everyone in here....Marsha

[Guest guest]

magnificent_industries wrote:

>

> I personally don't think sensitivity has a role in this. I know a

> lot of people that are more sensitive than I am and they are as

> healthy as a bug.

Not sensitive as in " gee, don't mention dating to her, she just broke up

with her boyfriend. " The lady who started this " highly sensitive

people " research has a theory that 10% of the population is physically

wired (neurologically) in such a way that that they receive input as

stronger than the rest of the population. In other words, on a scale of

1-10 with 10 being the loudest, if the average person hears a rock

concert as a 7, sensitive people hear it as a 10. I didn't suggest it

had anything to do with causing fibro, I suggested those that have a

sensitivity to light and/or sound might want to do a web search to read

about it and see if they felt it applied to them. Those who don't have

a sensitivity to light and/or sound, but still have fibro, can simply

ignore that suggestion unless they are curious. I don't think

sensitivity causes fibromyalgia.

Darcy

[Guest guest]

magnificent_industries wrote:

>

> I personally don't think sensitivity has a role in this. I know a

> lot of people that are more sensitive than I am and they are as

> healthy as a bug.

Not sensitive as in " gee, don't mention dating to her, she just broke up

with her boyfriend. " The lady who started this " highly sensitive

people " research has a theory that 10% of the population is physically

wired (neurologically) in such a way that that they receive input as

stronger than the rest of the population. In other words, on a scale of

1-10 with 10 being the loudest, if the average person hears a rock

concert as a 7, sensitive people hear it as a 10. I didn't suggest it

had anything to do with causing fibro, I suggested those that have a

sensitivity to light and/or sound might want to do a web search to read

about it and see if they felt it applied to them. Those who don't have

a sensitivity to light and/or sound, but still have fibro, can simply

ignore that suggestion unless they are curious. I don't think

sensitivity causes fibromyalgia.

Darcy

[Guest guest]

magnificent_industries wrote:

>

> I personally don't think sensitivity has a role in this. I know a

> lot of people that are more sensitive than I am and they are as

> healthy as a bug.

Not sensitive as in " gee, don't mention dating to her, she just broke up

with her boyfriend. " The lady who started this " highly sensitive

people " research has a theory that 10% of the population is physically

wired (neurologically) in such a way that that they receive input as

stronger than the rest of the population. In other words, on a scale of

1-10 with 10 being the loudest, if the average person hears a rock

concert as a 7, sensitive people hear it as a 10. I didn't suggest it

had anything to do with causing fibro, I suggested those that have a

sensitivity to light and/or sound might want to do a web search to read

about it and see if they felt it applied to them. Those who don't have

a sensitivity to light and/or sound, but still have fibro, can simply

ignore that suggestion unless they are curious. I don't think

sensitivity causes fibromyalgia.

Darcy