Re: Shelby/ a z/fibromyalgia

[Guest guest]

Ok, I'm not one

to talk about my condition much, but since you are talking about

fibro........ I want to know if either of you expierience loss of

balance or incontinence? I also can't seem to hold onto stuff....like

when I am doing dishes ( I keep breaking my good glasses) Just curious

azToy2@... wrote:

In a message dated 6/3/2004 10:58:32 PM US

Mountain Standard Time, cruisinshelby@... writes:

Shelby? Are you my long lost twin ?? I was dx'd with fibro two years

ago to, for the same reason and then last year with the lupus but I

swear I have more fibro pain than lupus pain all the time unless I take

my avinza.

a C

Fibromyalgia

two years ago. The only way I can describe it is

that for some darn reason, I seem to hurt everywhere, all of the

time, for no reason. It's like I got a sports injury sans sport! So

lame, I know. Well, I hope I helped, or at least gave you something

to ask the doctor about. Good luck!

Shelby

"The LUPIES Store" Come check out our store...

http://www.cafepress.com/thelupies

"The LUPIES Web Page"

http://www.itzarion.com/lupusgroup.html

"The LUPIES online photo albums!"

Check out what your fellow Lupies look like...

http://www.picturetrail.com/lupies

[Guest guest]

Hi ladies,

I'm in the soup, too. I was diagnosed with RA and fibro, with Lupus

diagnosis pending. For the life of me, I can't figure out which

disease is causing what problem! My doctor said the muscle spasms and

muscle aches are mostly fibro, the joint swelling and problems with

my hands are RA and maybe Lupus, and the numbness/tingling and

sensitivity to cold in my hands and feet are probably Lupus.

As for treatment, I'm taking Plaquenil and methotrexate, which are

common for RA and Lupus, and Celebrex for RA. I'm starting physical

therapy which will help all three. The non-steroidal anti-

inflammatories which are good for fibro interact with my other stuff

so for pain I'm taking Unum (Tramadol) as needed. Confusing!!!

-Anne

>

> > In a message dated 6/3/2004 10:58:32 PM US Mountain Standard

Time,

> > cruisinshelby@y... writes:

> >

> > Shelby? Are you my long lost twin ?? I was dx'd with fibro two

> > years ago to, for the same reason and then last year with the

lupus

> > but I swear I have more fibro pain than lupus pain all the time

unless

> > I take my avinza.

> > a C

> >

> >> Fibromyalgia two years ago. The only way I can describe it is

> >> that for some darn reason, I seem to hurt everywhere, all of the

> >> time, for no reason. It's like I got a sports injury sans

sport! So

> >> lame, I know. Well, I hope I helped, or at least gave you

something

> >> to ask the doctor about. Good luck!

> >>

> >> Shelby

> >

> >

> >

> >

> >

> > " The LUPIES Store " Come check out our store...

> > http://www.cafepress.com/thelupies

> >

> > " The LUPIES Web Page "

> > http://www.itzarion.com/lupusgroup.html

> >

> > " The LUPIES online photo albums! "

> > Check out what your fellow Lupies look like...

> > http://www.picturetrail.com/lupies

> >

> >

> >

[Guest guest]

Yes, very much with the balance thing. I had to use a walker for about four or five months a while back. It was right when they found my lupus, but to be honest I have had a problem with dropping things or getting wobbly for a long time before my bloodwork showed lupus. I haven't ever had the other problem though. Maybe I will get lucky and skip that one.

a C

Ok, I'm not one to talk about my condition much, but since you are talking about fibro........ I want to know if either of you expierience loss of balance or incontinence? I also can't seem to hold onto stuff....like when I am doing dishes ( I keep breaking my good glasses) Just curious

[Guest guest]

Yes, very much with the balance thing. I had to use a walker for about four or five months a while back. It was right when they found my lupus, but to be honest I have had a problem with dropping things or getting wobbly for a long time before my bloodwork showed lupus. I haven't ever had the other problem though. Maybe I will get lucky and skip that one.

a C

Ok, I'm not one to talk about my condition much, but since you are talking about fibro........ I want to know if either of you expierience loss of balance or incontinence? I also can't seem to hold onto stuff....like when I am doing dishes ( I keep breaking my good glasses) Just curious

[Guest guest]

Yes, very much with the balance thing. I had to use a walker for about four or five months a while back. It was right when they found my lupus, but to be honest I have had a problem with dropping things or getting wobbly for a long time before my bloodwork showed lupus. I haven't ever had the other problem though. Maybe I will get lucky and skip that one.

a C

Ok, I'm not one to talk about my condition much, but since you are talking about fibro........ I want to know if either of you expierience loss of balance or incontinence? I also can't seem to hold onto stuff....like when I am doing dishes ( I keep breaking my good glasses) Just curious

[Guest guest]

Welcome to our fibro club -Anne, lol. I know what you mean, it's real hard to tell which pain is from which dx. I was already taking neurontin for my fibro when they found the lupus so my DR just kept me on that and icreased it.

a C

[Guest guest]

Hey, this is Shelby... sorry, but I have crappy dial-up so I don't

get online as often as I'd like. YES I drop stuff and I hate it! I

never know it's coming either! It's like all of the sudden my

muscles or tendons just let go, like an electrical pulse said to let

go and there goes another glass! I've gotta wonder if my brain is

just totally confused. I asked my doctors about it, but they said it

might just be muscle fatigue. Whatever, I think my brain just sends

out bad signals! Sorry you have a bummer brain, too!

Shelby

>

> > In a message dated 6/3/2004 10:58:32 PM US Mountain Standard

Time,

> > cruisinshelby@y... writes:

> >

> > Shelby? Are you my long lost twin ?? I was dx'd with fibro two

> > years ago to, for the same reason and then last year with the

lupus

> > but I swear I have more fibro pain than lupus pain all the time

unless

> > I take my avinza.

> > a C

> >

> >> Fibromyalgia two years ago. The only way I can describe it is

> >> that for some darn reason, I seem to hurt everywhere, all of the

> >> time, for no reason. It's like I got a sports injury sans

sport! So

> >> lame, I know. Well, I hope I helped, or at least gave you

something

> >> to ask the doctor about. Good luck!

> >>

> >> Shelby

> >

> >

> >

> >

> >

> > " The LUPIES Store " Come check out our store...

> > http://www.cafepress.com/thelupies

> >

> > " The LUPIES Web Page "

> > http://www.itzarion.com/lupusgroup.html

> >

> > " The LUPIES online photo albums! "

> > Check out what your fellow Lupies look like...

> > http://www.picturetrail.com/lupies

> >

> >

> >

[Guest guest]

Hey, this is Shelby... sorry, but I have crappy dial-up so I don't

get online as often as I'd like. YES I drop stuff and I hate it! I

never know it's coming either! It's like all of the sudden my

muscles or tendons just let go, like an electrical pulse said to let

go and there goes another glass! I've gotta wonder if my brain is

just totally confused. I asked my doctors about it, but they said it

might just be muscle fatigue. Whatever, I think my brain just sends

out bad signals! Sorry you have a bummer brain, too!

Shelby

>

> > In a message dated 6/3/2004 10:58:32 PM US Mountain Standard

Time,

> > cruisinshelby@y... writes:

> >

> > Shelby? Are you my long lost twin ?? I was dx'd with fibro two

> > years ago to, for the same reason and then last year with the

lupus

> > but I swear I have more fibro pain than lupus pain all the time

unless

> > I take my avinza.

> > a C

> >

> >> Fibromyalgia two years ago. The only way I can describe it is

> >> that for some darn reason, I seem to hurt everywhere, all of the

> >> time, for no reason. It's like I got a sports injury sans

sport! So

> >> lame, I know. Well, I hope I helped, or at least gave you

something

> >> to ask the doctor about. Good luck!

> >>

> >> Shelby

> >

> >

> >

> >

> >

> > " The LUPIES Store " Come check out our store...

> > http://www.cafepress.com/thelupies

> >

> > " The LUPIES Web Page "

> > http://www.itzarion.com/lupusgroup.html

> >

> > " The LUPIES online photo albums! "

> > Check out what your fellow Lupies look like...

> > http://www.picturetrail.com/lupies

> >

> >

> >

[Guest guest]

Hey, this is Shelby... sorry, but I have crappy dial-up so I don't

get online as often as I'd like. YES I drop stuff and I hate it! I

never know it's coming either! It's like all of the sudden my

muscles or tendons just let go, like an electrical pulse said to let

go and there goes another glass! I've gotta wonder if my brain is

just totally confused. I asked my doctors about it, but they said it

might just be muscle fatigue. Whatever, I think my brain just sends

out bad signals! Sorry you have a bummer brain, too!

Shelby

>

> > In a message dated 6/3/2004 10:58:32 PM US Mountain Standard

Time,

> > cruisinshelby@y... writes:

> >

> > Shelby? Are you my long lost twin ?? I was dx'd with fibro two

> > years ago to, for the same reason and then last year with the

lupus

> > but I swear I have more fibro pain than lupus pain all the time

unless

> > I take my avinza.

> > a C

> >

> >> Fibromyalgia two years ago. The only way I can describe it is

> >> that for some darn reason, I seem to hurt everywhere, all of the

> >> time, for no reason. It's like I got a sports injury sans

sport! So

> >> lame, I know. Well, I hope I helped, or at least gave you

something

> >> to ask the doctor about. Good luck!

> >>

> >> Shelby

> >

> >

> >

> >

> >

> > " The LUPIES Store " Come check out our store...

> > http://www.cafepress.com/thelupies

> >

> > " The LUPIES Web Page "

> > http://www.itzarion.com/lupusgroup.html

> >

> > " The LUPIES online photo albums! "

> > Check out what your fellow Lupies look like...

> > http://www.picturetrail.com/lupies

> >

> >

> >

[Guest guest]

Hey, this is Shelby... sorry, but I have crappy dial-up so I don't

get online as often as I'd like. YES I drop stuff and I hate it! I

never know it's coming either! It's like all of the sudden my

muscles or tendons just let go, like an electrical pulse said to let

go and there goes another glass! I've gotta wonder if my brain is

just totally confused. I asked my doctors about it, but they said it

might just be muscle fatigue. Whatever, I think my brain just sends

out bad signals! Sorry you have a bummer brain, too!

Shelby

>

> > In a message dated 6/3/2004 10:58:32 PM US Mountain Standard

Time,

> > cruisinshelby@y... writes:

> >

> > Shelby? Are you my long lost twin ?? I was dx'd with fibro two

> > years ago to, for the same reason and then last year with the

lupus

> > but I swear I have more fibro pain than lupus pain all the time

unless

> > I take my avinza.

> > a C

> >

> >> Fibromyalgia two years ago. The only way I can describe it is

> >> that for some darn reason, I seem to hurt everywhere, all of the

> >> time, for no reason. It's like I got a sports injury sans

sport! So

> >> lame, I know. Well, I hope I helped, or at least gave you

something

> >> to ask the doctor about. Good luck!

> >>

> >> Shelby

> >

> >

> >

> >

> >

> > " The LUPIES Store " Come check out our store...

> > http://www.cafepress.com/thelupies

> >

> > " The LUPIES Web Page "

> > http://www.itzarion.com/lupusgroup.html

> >

> > " The LUPIES online photo albums! "

> > Check out what your fellow Lupies look like...

> > http://www.picturetrail.com/lupies

> >

> >

> >

[Guest guest]

Hey, this is Shelby... sorry, but I have crappy dial-up so I don't

get online as often as I'd like. YES I drop stuff and I hate it! I

never know it's coming either! It's like all of the sudden my

muscles or tendons just let go, like an electrical pulse said to let

go and there goes another glass! I've gotta wonder if my brain is

just totally confused. I asked my doctors about it, but they said it

might just be muscle fatigue. Whatever, I think my brain just sends

out bad signals! Sorry you have a bummer brain, too!

Shelby

>

> > In a message dated 6/3/2004 10:58:32 PM US Mountain Standard

Time,

> > cruisinshelby@y... writes:

> >

> > Shelby? Are you my long lost twin ?? I was dx'd with fibro two

> > years ago to, for the same reason and then last year with the

lupus

> > but I swear I have more fibro pain than lupus pain all the time

unless

> > I take my avinza.

> > a C

> >

> >> Fibromyalgia two years ago. The only way I can describe it is

> >> that for some darn reason, I seem to hurt everywhere, all of the

> >> time, for no reason. It's like I got a sports injury sans

sport! So

> >> lame, I know. Well, I hope I helped, or at least gave you

something

> >> to ask the doctor about. Good luck!

> >>

> >> Shelby

> >

> >

> >

> >

> >

> > " The LUPIES Store " Come check out our store...

> > http://www.cafepress.com/thelupies

> >

> > " The LUPIES Web Page "

> > http://www.itzarion.com/lupusgroup.html

> >

> > " The LUPIES online photo albums! "

> > Check out what your fellow Lupies look like...

> > http://www.picturetrail.com/lupies

> >

> >

> >