Re: Spoke to SSI Lawyer this morn- Please Read-

[Guest guest]

TJ,

Very important, under SSA law for definitions for permanent qualifications

for benefits, there is law 14.06, undifferentiated connective tissue

disorders, which EDS meets all the qualifications for. As for your son not

being relative to the case, well HOGWASH! It has caused some degree of

depression in your life! Golly gee wiz, wouldn't it make anyone depressed

who lost a child tragically. Why a new lawyer? Use everything you have!

Hugs and well wishes!

Love,

Spoke to SSI Lawyer this morn- Please Read-

> Well-

> I had a call last night from my SSI lawyer that told me to phone another

lawyer- one that lives closer to me- so I did do that first thing when I

woke.

>

> He seems very nice........ I explained much to him- about my website

containing some relevant information and about this egroup and etc.

>

> Well- he said, he does know the Judge and he feels that we have a case but

that the below would not be able to be used in the case-

>

> 1. EDS facts- They do not want nor allow information about what EDS and

what EDS causes to be involved- what they want is How EDS effects TJ.

>

> 2.Websites- egroups- etc...... my sons death, will not be of any help

either as it does not state what EDS is doing in My life.

>

> There is more but at moment I can not remember.... fuzz head TJ.

>

> He will be coming here to visit me April 1.... so I have time then to

gather past information that SSI did not get since the denial....

>

> I did mention that there was a definition on the SSI site that qualified

EDS for SSI....... but do you think I could remember it while we spoke for

nearly an hour on the phone? No.... Anyone have any idea where and what

that information was?

>

> Gosh........ at this moment thats all I can even remember- if I remember

something later...... will send thru...... I'm gonna go shower and see if it

relaxes my pain level some.

>

> Hope everyone is having as good of a day as possible-

> Hugs- TJ

>

>

>

> God Bless And Hugs- Love Moon

>

>

> ---

> Outgoing mail is certified Virus Free With AVG.

> Checked by AVG anti-virus system (http://www.grisoft.com).

> Version: 6.0.614 / Virus Database: 393 - Release Date: 3/5/2004

>

>

[Guest guest]

TJ,

Very important, under SSA law for definitions for permanent qualifications

for benefits, there is law 14.06, undifferentiated connective tissue

disorders, which EDS meets all the qualifications for. As for your son not

being relative to the case, well HOGWASH! It has caused some degree of

depression in your life! Golly gee wiz, wouldn't it make anyone depressed

who lost a child tragically. Why a new lawyer? Use everything you have!

Hugs and well wishes!

Love,

Spoke to SSI Lawyer this morn- Please Read-

> Well-

> I had a call last night from my SSI lawyer that told me to phone another

lawyer- one that lives closer to me- so I did do that first thing when I

woke.

>

> He seems very nice........ I explained much to him- about my website

containing some relevant information and about this egroup and etc.

>

> Well- he said, he does know the Judge and he feels that we have a case but

that the below would not be able to be used in the case-

>

> 1. EDS facts- They do not want nor allow information about what EDS and

what EDS causes to be involved- what they want is How EDS effects TJ.

>

> 2.Websites- egroups- etc...... my sons death, will not be of any help

either as it does not state what EDS is doing in My life.

>

> There is more but at moment I can not remember.... fuzz head TJ.

>

> He will be coming here to visit me April 1.... so I have time then to

gather past information that SSI did not get since the denial....

>

> I did mention that there was a definition on the SSI site that qualified

EDS for SSI....... but do you think I could remember it while we spoke for

nearly an hour on the phone? No.... Anyone have any idea where and what

that information was?

>

> Gosh........ at this moment thats all I can even remember- if I remember

something later...... will send thru...... I'm gonna go shower and see if it

relaxes my pain level some.

>

> Hope everyone is having as good of a day as possible-

> Hugs- TJ

>

>

>

> God Bless And Hugs- Love Moon

>

>

> ---

> Outgoing mail is certified Virus Free With AVG.

> Checked by AVG anti-virus system (http://www.grisoft.com).

> Version: 6.0.614 / Virus Database: 393 - Release Date: 3/5/2004

>

>

[Guest guest]

TJ,

It should fit under the connective tissue category.

Hugs,

Sue

[Guest guest]

TJ,

It should fit under the connective tissue category.

Hugs,

Sue

[Guest guest]

TJ,

It should fit under the connective tissue category.

Hugs,

Sue

[Guest guest]

Dumb judges! This is too hard, huh? I will pray for you TJ!

Love Lana

Spoke to SSI Lawyer this morn- Please Read-

Well-

I had a call last night from my SSI lawyer that told me to phone another

lawyer- one that lives closer to me- so I did do that first thing when I

woke.

He seems very nice........ I explained much to him- about my website

containing some relevant information and about this egroup and etc.

Well- he said, he does know the Judge and he feels that we have a case but

that the below would not be able to be used in the case-

1. EDS facts- They do not want nor allow information about what EDS and what

EDS causes to be involved- what they want is How EDS effects TJ.

2.Websites- egroups- etc...... my sons death, will not be of any help either

as it does not state what EDS is doing in My life.

There is more but at moment I can not remember.... fuzz head TJ.

He will be coming here to visit me April 1.... so I have time then to gather

past information that SSI did not get since the denial....

I did mention that there was a definition on the SSI site that qualified EDS

for SSI....... but do you think I could remember it while we spoke for

nearly an hour on the phone? No.... Anyone have any idea where and what

that information was?

Gosh........ at this moment thats all I can even remember- if I remember

something later...... will send thru...... I'm gonna go shower and see if it

relaxes my pain level some.

Hope everyone is having as good of a day as possible-

Hugs- TJ

God Bless And Hugs- Love Moon

---

Outgoing mail is certified Virus Free With AVG.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.614 / Virus Database: 393 - Release Date: 3/5/2004

[Guest guest]

Thanks -

Do believe that is just what I needed...... Will write it down- he is coming

here for an appointment on April 1 to help me prepare for the hearing.

I believe the reason for a difference in lawyers is that the one I had , I

located on the net and the firm was based in L.A. I wondered if he was going to

fly here to Michigan or what to be at the hearing. I am fine with the change-

this man seems very nice and told me not to be nervous etc....... he has

comforted me some.

But he stated that things have changed and I do know from taking legal assisting

that the laws change so frequently that it is indeed hard to keep up with them-

one day something is legal while the next day it is entirely the opposite.

The reason he said that the information about my sons passing may not help

really is due to the fact that he passed undiagnosed- yet his autopsy reveals

aneurysms which are hard to deny that it isnt related to what I have. He

basically said that we can have the info on hand but that the Judge is not going

to go by what EDS consists of but what EDS does to TJ herself........ what EDS

has created limitations on for me in my life........

Definitely there would be a degree of depression and I do believe that the

doctor had that written on his diagnosis so am not worried there......

From the sounds of it, any material I bring to back up EDS would do me no good-

only information on myself from doctor/hospital stays and such are needed.

Thanks for the well wishes. I have given up worrying about this. If it goes

through it goes through - if it does not then it does not. I can sit and stew

and worry and all it is going to do is make me miserable. Whatever happens

happens and life will go on either way so I prefer to live it daily without the

worrying and just take it one day at a time and deal with whatever comes at me

at the time.

Thanksfor the response and the SSA law.

Hugs to you-

TJ

TJ,

Very important, under SSA law for definitions for permanent qualifications

for benefits, there is law 14.06, undifferentiated connective tissue

disorders, which EDS meets all the qualifications for. As for your son not

being relative to the case, well HOGWASH! It has caused some degree of

depression in your life! Golly gee wiz, wouldn't it make anyone depressed

who lost a child tragically. Why a new lawyer? Use everything you have!

Hugs and well wishes!

Love,

Spoke to SSI Lawyer this morn- Please Read-

> Well-

> I had a call last night from my SSI lawyer that told me to phone another

lawyer- one that lives closer to me- so I did do that first thing when I

woke.

>

> He seems very nice........ I explained much to him- about my website

containing some relevant information and about this egroup and etc.

>

> Well- he said, he does know the Judge and he feels that we have a case but

that the below would not be able to be used in the case-

>

> 1. EDS facts- They do not want nor allow information about what EDS and

what EDS causes to be involved- what they want is How EDS effects TJ.

>

> 2.Websites- egroups- etc...... my sons death, will not be of any help

either as it does not state what EDS is doing in My life.

>

> There is more but at moment I can not remember.... fuzz head TJ.

>

> He will be coming here to visit me April 1.... so I have time then to

gather past information that SSI did not get since the denial....

>

> I did mention that there was a definition on the SSI site that qualified

EDS for SSI....... but do you think I could remember it while we spoke for

nearly an hour on the phone? No.... Anyone have any idea where and what

that information was?

>

> Gosh........ at this moment thats all I can even remember- if I remember

something later...... will send thru...... I'm gonna go shower and see if it

relaxes my pain level some.

>

> Hope everyone is having as good of a day as possible-

> Hugs- TJ

>

>

>

> God Bless And Hugs- Love Moon

>

>

> ---

> Outgoing mail is certified Virus Free With AVG.

> Checked by AVG anti-virus system (http://www.grisoft.com).

> Version: 6.0.614 / Virus Database: 393 - Release Date: 3/5/2004

>

>

[Guest guest]

Thanks Sue-

You know too- I just remembered- he stated that even though it may be listed

there- that it doesnt guarantee that it will help.... He said most of those are

listed there but usually do not make anything really pass through as they want

to know specifics of what the illness does to the person - not what the listed

illness can cause.

Hugs, TJ

God Bless And Hugs- Love Moon

Re: Spoke to SSI Lawyer this morn- Please Read-

TJ,

It should fit under the connective tissue category.

Hugs,

Sue

To learn more about EDS, visit our website: http://members.rogers.com/ceda2/

------------------------------------------------------------------------------

[Guest guest]

Thanks Sue-

You know too- I just remembered- he stated that even though it may be listed

there- that it doesnt guarantee that it will help.... He said most of those are

listed there but usually do not make anything really pass through as they want

to know specifics of what the illness does to the person - not what the listed

illness can cause.

Hugs, TJ

God Bless And Hugs- Love Moon

Re: Spoke to SSI Lawyer this morn- Please Read-

TJ,

It should fit under the connective tissue category.

Hugs,

Sue

To learn more about EDS, visit our website: http://members.rogers.com/ceda2/

------------------------------------------------------------------------------

[Guest guest]

Thanks Lana-

Well- in some ways- it does make it difficult....... I mean- no backup material

allowed from web or egroups or history in my life to explain EDS allowed.......

I do find that quite odd , but they only need what its doing to me so I guess

what EDS may in the future add to what its doing to me doesn't count until it

does it to me...... eh?

Hugs TJ

Dumb judges! This is too hard, huh? I will pray for you TJ!

Love Lana

Spoke to SSI Lawyer this morn- Please Read-

Well-

I had a call last night from my SSI lawyer that told me to phone another

lawyer- one that lives closer to me- so I did do that first thing when I

woke.

He seems very nice........ I explained much to him- about my website

containing some relevant information and about this egroup and etc.

Well- he said, he does know the Judge and he feels that we have a case but

that the below would not be able to be used in the case-

1. EDS facts- They do not want nor allow information about what EDS and what

EDS causes to be involved- what they want is How EDS effects TJ.

2.Websites- egroups- etc...... my sons death, will not be of any help either

as it does not state what EDS is doing in My life.

There is more but at moment I can not remember.... fuzz head TJ.

He will be coming here to visit me April 1.... so I have time then to gather

past information that SSI did not get since the denial....

I did mention that there was a definition on the SSI site that qualified EDS

for SSI....... but do you think I could remember it while we spoke for

nearly an hour on the phone? No.... Anyone have any idea where and what

that information was?

Gosh........ at this moment thats all I can even remember- if I remember

something later...... will send thru...... I'm gonna go shower and see if it

relaxes my pain level some.

Hope everyone is having as good of a day as possible-

Hugs- TJ

God Bless And Hugs- Love Moon

---

Outgoing mail is certified Virus Free With AVG.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.614 / Virus Database: 393 - Release Date: 3/5/2004

[Guest guest]

TJ --

I wanted you to know that I wish you all the best with the SSI. From postings I

have read, I know it is not an easy thing to get, but you do deserve it and need

it -- so stay with it and you will succeed.

All the best,

Love, Patti

Re: Spoke to SSI Lawyer this morn- Please Read-

---

Outgoing mail is certified Virus Free With AVG.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.614 / Virus Database: 393 - Release Date: 3/5/2004

[Guest guest]

TJ --

I wanted you to know that I wish you all the best with the SSI. From postings I

have read, I know it is not an easy thing to get, but you do deserve it and need

it -- so stay with it and you will succeed.

All the best,

Love, Patti

Re: Spoke to SSI Lawyer this morn- Please Read-

---

Outgoing mail is certified Virus Free With AVG.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.614 / Virus Database: 393 - Release Date: 3/5/2004

[Guest guest]

He's coming here on April 1st....... to sort through my medical papers and he's

taking them for me so I have less to deal with :-)

God Bless And Hugs- Love Moon

Spoke to SSI Lawyer this morn- Please Read-

Well-

I had a call last night from my SSI lawyer that told me to phone another

lawyer- one that lives closer to me- so I did do that first thing when I

woke.

He seems very nice........ I explained much to him- about my website

containing some relevant information and about this egroup and etc.

Well- he said, he does know the Judge and he feels that we have a case but

that the below would not be able to be used in the case-

1. EDS facts- They do not want nor allow information about what EDS and

what

EDS causes to be involved- what they want is How EDS effects TJ.

2.Websites- egroups- etc...... my sons death, will not be of any help

either

as it does not state what EDS is doing in My life.

There is more but at moment I can not remember.... fuzz head TJ.

He will be coming here to visit me April 1.... so I have time then to

gather

past information that SSI did not get since the denial....

I did mention that there was a definition on the SSI site that qualified

EDS

for SSI....... but do you think I could remember it while we spoke for

nearly an hour on the phone? No.... Anyone have any idea where and what

that information was?

Gosh........ at this moment thats all I can even remember- if I remember

something later...... will send thru...... I'm gonna go shower and see if

it

relaxes my pain level some.

Hope everyone is having as good of a day as possible-

Hugs- TJ

God Bless And Hugs- Love Moon

---

Outgoing mail is certified Virus Free With AVG.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.614 / Virus Database: 393 - Release Date: 3/5/2004

[Guest guest]

I'd still take stuff just in case, TJ....

Spoke to SSI Lawyer this morn- Please Read-

Well-

I had a call last night from my SSI lawyer that told me to phone another

lawyer- one that lives closer to me- so I did do that first thing when I

woke.

He seems very nice........ I explained much to him- about my website

containing some relevant information and about this egroup and etc.

Well- he said, he does know the Judge and he feels that we have a case but

that the below would not be able to be used in the case-

1. EDS facts- They do not want nor allow information about what EDS and what

EDS causes to be involved- what they want is How EDS effects TJ.

2.Websites- egroups- etc...... my sons death, will not be of any help either

as it does not state what EDS is doing in My life.

There is more but at moment I can not remember.... fuzz head TJ.

He will be coming here to visit me April 1.... so I have time then to gather

past information that SSI did not get since the denial....

I did mention that there was a definition on the SSI site that qualified EDS

for SSI....... but do you think I could remember it while we spoke for

nearly an hour on the phone? No.... Anyone have any idea where and what

that information was?

Gosh........ at this moment thats all I can even remember- if I remember

something later...... will send thru...... I'm gonna go shower and see if it

relaxes my pain level some.

Hope everyone is having as good of a day as possible-

Hugs- TJ

God Bless And Hugs- Love Moon

---

Outgoing mail is certified Virus Free With AVG.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.614 / Virus Database: 393 - Release Date: 3/5/2004