Re: Dental/Orthodontic issues

[Guest guest]

Can anyone steer me toward some good info to share with dentists and

orthodontists. My two oldest and I already have TMJ so I know to

warn them about that. Tabitah (6) is going to need a 'spreader'

soon because her palate is too high and narrow - Naomi (10) already

had it done (thus the tmj). The dentist is recommending braces for

Rebekah ... the novacaine didn't work well.

....(my mom > and brother have a lot of peridontal issues and I'm

starting to get a receeding gum line despite doing all the 'right'

things')

-------------------

Dental problems seem to go hand-in-hand with EDS.

It is very typical that the novacaine doesn't work well, or some

times, at all. I generally need at least double and sometimes triple

the amount of novacaine they normally use when I have dental work

done.

As for peridontal issues, been there, done that, including the full

mouth peridontal surgery several years ago. If you are not already

taking it, you might want to consider supplementation with COQ-10.

I have read a number of reports stating that it is good for

periodontal problems and have been advised to take it myself by both

doctors and dentists. I have had much fewer problems with receding

and bleeding gum lines since I started taking it 2-3 years ago.

You commented about Naomi having the spreader, thus the TMJ, and

that braces have been recommended for Rebekah. Be aware that the

braces can also cause or contribute to TMJ.

As for treating TMJ, I have found cranialsacral therapy to be

particularly effective. There are also specific Jin Shin Do

acupressure and Polarity Therapy releases that I have used on people

with good results. The acupressure and polarity techniques are both

done working outside the mouth. Some of the cranialsacral work

involves working intra-orally. Depending on local turf wars, this

can sometimes require that the work be done by a dentist or

orthodontist trained in the technique. As an example, in the state

of Washington, massage therapists are not legally allowed to work

intra-orally. The only reason (and I do mean the ONLY reason) is

that the dental profession claims this as their sole domain. I have

personally been trained in the technique and would not for a heart-

beat hestitate to do it on friends or family if the need arose. I

would not even consider doing it for hire with someone I did not

know.

Let me know if you would like more info on any of the three

modalities for TMJ work and/or help in locating someone in your area

trained to do them.

[Guest guest]

Can anyone steer me toward some good info to share with dentists and

orthodontists. My two oldest and I already have TMJ so I know to

warn them about that. Tabitah (6) is going to need a 'spreader'

soon because her palate is too high and narrow - Naomi (10) already

had it done (thus the tmj). The dentist is recommending braces for

Rebekah ... the novacaine didn't work well.

....(my mom > and brother have a lot of peridontal issues and I'm

starting to get a receeding gum line despite doing all the 'right'

things')

-------------------

Dental problems seem to go hand-in-hand with EDS.

It is very typical that the novacaine doesn't work well, or some

times, at all. I generally need at least double and sometimes triple

the amount of novacaine they normally use when I have dental work

done.

As for peridontal issues, been there, done that, including the full

mouth peridontal surgery several years ago. If you are not already

taking it, you might want to consider supplementation with COQ-10.

I have read a number of reports stating that it is good for

periodontal problems and have been advised to take it myself by both

doctors and dentists. I have had much fewer problems with receding

and bleeding gum lines since I started taking it 2-3 years ago.

You commented about Naomi having the spreader, thus the TMJ, and

that braces have been recommended for Rebekah. Be aware that the

braces can also cause or contribute to TMJ.

As for treating TMJ, I have found cranialsacral therapy to be

particularly effective. There are also specific Jin Shin Do

acupressure and Polarity Therapy releases that I have used on people

with good results. The acupressure and polarity techniques are both

done working outside the mouth. Some of the cranialsacral work

involves working intra-orally. Depending on local turf wars, this

can sometimes require that the work be done by a dentist or

orthodontist trained in the technique. As an example, in the state

of Washington, massage therapists are not legally allowed to work

intra-orally. The only reason (and I do mean the ONLY reason) is

that the dental profession claims this as their sole domain. I have

personally been trained in the technique and would not for a heart-

beat hestitate to do it on friends or family if the need arose. I

would not even consider doing it for hire with someone I did not

know.

Let me know if you would like more info on any of the three

modalities for TMJ work and/or help in locating someone in your area

trained to do them.

[Guest guest]

Out of curiosity, have any of you had problems with delayed dental

development? I still had 5 baby teeth as a sophmore in high school.

One finally became loose and I was able to pull it, but had to have

the other 4 baby teeth pulled (yes, as a sophmore!!). Then, one of

the permanent teeth wouldn't grow in so I had to have oral surgery to

pull it into place. I'm the only person I've ever know to have

issues like this, so I was wondering if this may be an EDS thing or

just some strange thing to happen only to me. (Earlier there was a

post about someone being called a mutant... I've always been known by

my family and friends as the " medical anomaly. " )

>

> Dental problems seem to go hand-in-hand with EDS.

>

[Guest guest]

Out of curiosity, have any of you had problems with delayed dental

development? I still had 5 baby teeth as a sophmore in high school.

One finally became loose and I was able to pull it, but had to have

the other 4 baby teeth pulled (yes, as a sophmore!!). Then, one of

the permanent teeth wouldn't grow in so I had to have oral surgery to

pull it into place. I'm the only person I've ever know to have

issues like this, so I was wondering if this may be an EDS thing or

just some strange thing to happen only to me. (Earlier there was a

post about someone being called a mutant... I've always been known by

my family and friends as the " medical anomaly. " )

>

> Dental problems seem to go hand-in-hand with EDS.

>

[Guest guest]

Out of curiosity, have any of you had problems with delayed dental

development? I still had 5 baby teeth as a sophmore in high school.

One finally became loose and I was able to pull it, but had to have

the other 4 baby teeth pulled (yes, as a sophmore!!). Then, one of

the permanent teeth wouldn't grow in so I had to have oral surgery to

pull it into place. I'm the only person I've ever know to have

issues like this, so I was wondering if this may be an EDS thing or

just some strange thing to happen only to me. (Earlier there was a

post about someone being called a mutant... I've always been known by

my family and friends as the " medical anomaly. " )

>

> Dental problems seem to go hand-in-hand with EDS.

>

[Guest guest]

Yes, I know absolutely that Naomi's TMJ came from the spreader. Not

sure if Rebekah's is due to regular dental work or from grinding her

teeth.

Our chiropractor is wonderful (unlike many of those mentioned

previously on this board) and she has done craniosacral on the girls

and me resulting in control of the tmj. (Naomi's headaches are

gone!!) I realize we will always be susceptible to tmj problems. We

know all about the inra-oral work - and do it ourselves when

necessary.

Our chiro also does acupressure and polarity work with us.

I don't know anything about Jin Shin Do but I plan to get the book

you recommend soon as possible. When I do I'm sure I'll have

questions for ya :-)

Is there a book on polarity work that you recommend?

What do you think of the Touch for Health (thie) book? - I've done

some of that and was thinking about getting the book.

Thanks for the info about the CoQ10 - I've heard good things about

it, but never in conjunction with peridontal issues. I'll be sure to

tell my mom - she always had trouble with gums and breaking teeth.

I wasn't terribly thrilled with the idea of Rebekah getting braces

before we discovered the EDS problem, and now with what I've read I'm

even more reluctant. She only has one tooth that is slighly out of

line, it's not overlapping or interferring with her bite so cleaning

the teeth and eating shouldn't be a problem - and I hope she never

becomes vain enough that one tooth slightly out of line becomes an

issue (right now it doesn't bother her at all and she doesn't want

braces). I haven't spoken with the orthodontist about braces for

her, but the dentist sure is pushing them. I have a lot of faith

that I will be able to discuss the issue with the orthodontist since

in the past they have explained everything in detail and are very

concerned with tmj issues (he wasn't the orthodontist that caused the

tmj in Naomi)

>

> Can anyone steer me toward some good info to share with dentists

and

> orthodontists. My two oldest and I already have TMJ so I know to

> warn them about that. Tabitah (6) is going to need a 'spreader'

> soon because her palate is too high and narrow - Naomi (10) already

> had it done (thus the tmj). The dentist is recommending braces for

> Rebekah ... the novacaine didn't work well.

> ...(my mom > and brother have a lot of peridontal issues and I'm

> starting to get a receeding gum line despite doing all the 'right'

> things')

>

> -------------------

>

> Dental problems seem to go hand-in-hand with EDS.

>

> It is very typical that the novacaine doesn't work well, or some

> times, at all. I generally need at least double and sometimes

triple

> the amount of novacaine they normally use when I have dental work

> done.

>

> As for peridontal issues, been there, done that, including the full

> mouth peridontal surgery several years ago. If you are not already

> taking it, you might want to consider supplementation with COQ-10.

> I have read a number of reports stating that it is good for

> periodontal problems and have been advised to take it myself by

both

> doctors and dentists. I have had much fewer problems with receding

> and bleeding gum lines since I started taking it 2-3 years ago.

>

> You commented about Naomi having the spreader, thus the TMJ, and

> that braces have been recommended for Rebekah. Be aware that the

> braces can also cause or contribute to TMJ.

>

> As for treating TMJ, I have found cranialsacral therapy to be

> particularly effective. There are also specific Jin Shin Do

> acupressure and Polarity Therapy releases that I have used on

people

> with good results. The acupressure and polarity techniques are

both

> done working outside the mouth. Some of the cranialsacral work

> involves working intra-orally. Depending on local turf wars, this

> can sometimes require that the work be done by a dentist or

> orthodontist trained in the technique. As an example, in the state

> of Washington, massage therapists are not legally allowed to work

> intra-orally. The only reason (and I do mean the ONLY reason) is

> that the dental profession claims this as their sole domain. I

have

> personally been trained in the technique and would not for a heart-

> beat hestitate to do it on friends or family if the need arose. I

> would not even consider doing it for hire with someone I did not

> know.

>

> Let me know if you would like more info on any of the three

> modalities for TMJ work and/or help in locating someone in your

area

> trained to do them.

[Guest guest]

- I haven't read about 's tmj - I'll look for it next.

Yes, horrible intense pain - Naomi's was in her ears and the muscles

below the ears. Rebekah's affects her ears, too, everything is

loud - even the quiet sounds feel like someone is hitting you over

the head. Mine always shows up higher - close to my eyes/sinuses. I

used to have my husband put his hands on the sides of my head and

push as hard as he could - helped for a minute or two. I still have

tinnitus, sometimes worse, sometimes better.

> Hey -

> Don't know if you have read any of my long, boring posts about my

's TMJ - dx'd today.

> Do you guys suffer from intense pain from your TMJ?

> I mean INTENSE - like a terrible ear infection.

> Hugs,

>

>

>

[Guest guest]

Intersting, it was also one of my canines that wouldn't come in,

although it was in the right spot and pointed in the right

direction. I had the same type of procedure to pull it in, but since

it was much closer to the gumline than your daughters, they just had

to fold up the gum like a venetian blind (their description, not

mine), attach a metal knob, wire it to the rest of my braces and

viola, it came down. Sounds like your daughter went through a huge

ordeal! So maybe this wasn't just a weird only-happens-to-me sort of

thing.

P.S. I have a permanent retainer glued on the inside of my middle

top 4 teeth. Once she gets it, she'll hardly know she has it. I

wish I had gotten one for the bottom teeth too, instead of trying to

remember to wear the removable retainer. It would have been a lot

easier.

> My daughter didn't have delayed dental problems, but both

her permanent canine teeth didn't come in.

[Guest guest]

Intersting, it was also one of my canines that wouldn't come in,

although it was in the right spot and pointed in the right

direction. I had the same type of procedure to pull it in, but since

it was much closer to the gumline than your daughters, they just had

to fold up the gum like a venetian blind (their description, not

mine), attach a metal knob, wire it to the rest of my braces and

viola, it came down. Sounds like your daughter went through a huge

ordeal! So maybe this wasn't just a weird only-happens-to-me sort of

thing.

P.S. I have a permanent retainer glued on the inside of my middle

top 4 teeth. Once she gets it, she'll hardly know she has it. I

wish I had gotten one for the bottom teeth too, instead of trying to

remember to wear the removable retainer. It would have been a lot

easier.

> My daughter didn't have delayed dental problems, but both

her permanent canine teeth didn't come in.

[Guest guest]

> She's got the permanent retainer glued to her bottom teeth, Now,

we just have to get the permanent one glued to her top teeth.

>

------------

Speaking as a father who survived raising one teenage daughter (and

I KNOW I am going to catch it big time for this one), have you ever

considered having them glue the mouth shut while they are gluing the

retainers? Sure puts a quick stop to all the teenage chatter and

constant questions of " can I have this, can I do that and what do

you mean I can't go outside wearing this? "

[Guest guest]

> She's got the permanent retainer glued to her bottom teeth, Now,

we just have to get the permanent one glued to her top teeth.

>

------------

Speaking as a father who survived raising one teenage daughter (and

I KNOW I am going to catch it big time for this one), have you ever

considered having them glue the mouth shut while they are gluing the

retainers? Sure puts a quick stop to all the teenage chatter and

constant questions of " can I have this, can I do that and what do

you mean I can't go outside wearing this? "

[Guest guest]

> She's got the permanent retainer glued to her bottom teeth, Now,

we just have to get the permanent one glued to her top teeth.

>

------------

Speaking as a father who survived raising one teenage daughter (and

I KNOW I am going to catch it big time for this one), have you ever

considered having them glue the mouth shut while they are gluing the

retainers? Sure puts a quick stop to all the teenage chatter and

constant questions of " can I have this, can I do that and what do

you mean I can't go outside wearing this? "