fibromyalgia questionaire

[Guest guest]

Welcome to our list. It is a good one. Loving, caring and supportive. I

have a question for you. What is over active spinal nerves?

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

[Guest guest]

Age range:32

Male/female: Female

What are the symptoms? (A)- I have all over muscular

pain as well as some neurological symptoms, tremors,

double vision, headaches, unable to sleep because of

pain. I have also been diagnosed with over active

spinal nerves.

Has you illness been diagnosed? (A)- It was suggested

by a rheumatologist in march 01 I had fibromyalgia.

How long was it that you suffered before you found out

what was wrong? (A)- I believe I have had FMS for at

least 5 years.

If Fibto-CFS How long have you been suffering with it?

(A)- N/A

Is there a time that you can remember when it started?

(A)- My condition has got worse over the past year but

it became more noticeable to me sept 00.

Some of us have found lack of exercise we are

overweight. Have you found this to be a problem also?

(A)- I have gained about 1 stone in the past year due

to lack of ability to exercise and having no energy.

Are you on disability? (A)- No

If you are any pointers for others trying to get on

disability?

What have you found that helps ease the pain, warm

baths, medications

etc.? (A)- I have been on Tramadol for 18 months. I

take 100mg in the morning and 200mg in the evening, I

also take 300mg of Quinine to control muscle spasms. I

recently attended the Pain Clinic and I have just

started on a course of acupunture as well as

homeopathic remedies of Bryonia and Rhustox,

recommended by consultant at hospital. Other things I

have tried is massage', hot baths and gentle

stretching to ease muscular pain.

Do you have sleep problems? yes

How do you deal with it? (A)- I must admit I don't

cope with it very well. I can be woken up by the

slightest sound and if i'm in pain then I don't sleep

at all.

Do you have family that understands your illness? (A)-

My partner has been brilliant and attends all

appointments with me. We had just got together when I

had a major attack and ended up in hospital it

frightened the life out of him but he then saw how

severe FMS could be. The rest of my family are very

supportive of my condition.

Some have found certain foods causes problems with CFS

or Fibor, have you? (A)- I have a found that too much

gluten can upset my stomache, so I stay away from

gluten based products.

What type of Dr have you found that has helped you the

most? (A)- The most helpful have been my GP and Pain

Clinic consultant. I saw a neurologist who said I was

suffering from stress and didnot believe I had the

symptoms I was describing. I am currently waiting to

see a rheumatologist, so I will leave my verdict until

I see them. Over all I get the impression that a lot

of doctors do not believe that FMS/CFS are actual

illnesses, and I work in a hospital.

I hope this has been a help and look forward to

hearing from other FMS sufferers.

Yours

Trish Nicoll

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