Guest guest Posted May 4, 2004 Report Share Posted May 4, 2004 Just to add my two cents worth. Angelman relates the following regarding his discovery of " his " syndrome: " The history of medicine is full of interesting stories about the discovery of illnesses. The saga of Angelman's Syndrome is one such story. It was purely by chance that nearly thirty years ago three handicapped children were admitted at various times to my children's ward in England. They had a variety of disabilities and although at first sight they seemed to be suffering from different conditions I felt that there was a common cause for their illness. The diagnosis was purely a clinical one because In spite of technical investigations, which today are more refined, I was unable to establish scientific proof that the three children all had the same handicap. In view of this I hesitated to write about them in the medical journals. However, when on holiday in Italy 1 happened to see an oil painting in the Castelvecchio museum in Verona called . . . a Boy with a Puppet. The boy's laughing face and the fact that my patients exhibited jerky movements gave me the idea of writing an article about the three children with a title of Puppet Children. It was not a name that pleased all parents but it served as a means of combining the three little patients into a single group. Later the name was changed to Angelman syndrome. This article was published in 1965 and after some initial interest lay almost forgotten until the early eighties. " Personal correspondence, 1991 The picture referred to is by Gian Francesco Caroto (1480-1555. The point of me sharing this with you all is because, YOU all have a child that was poisoned by mercury, If you have a child with Autism and you chelate this child, And he gets better from removing mercury from his body, What does this tell you? Like the article mentioned.. " The history of medicine is full of interesting stories about the discovery of illnesses. " Harry Angelman didnt do any testing...He used observation!! When you watch a child go from being autistic to being a healthy child from chelation this is observation. This is FACTS. Why doesnt the FDA and the CDC see this...Im sure there not blind, I just dont know how they can sleep at night knowing they are allowing more and more children to suffer. Human nature is a funny thing, I believe some are born without a concience. Donna > > >>>> We know that mercury does accumulate in the body and in the > > brain. > > > > Okay, Jo just posted twice that it did not stay in the brain (the new > > information presented)...this is a contradiction that needs > > addressing. So...does it or does it not > > It does. To assert otherwise requires either a complete lack of > relevant technical knowledge which would lead a reasonable person to > not offer opinions, or otherwise some disturbance of consciousness or > cognition. > > >...and how is this known either way? > > By cutting open dead people and analyzing their brains long after > poisoning occurred. > > In a scientific sense, the only facts are repeated observations and > this one is all over the literature as observed by many investigators. > One does have to actually read it rather than just abstracts on > medline, though. > > > It might be unknowable either way and all of this is > > speculation. But both views are presented as fact. > > One view is factual, the other depends on ignorant arrogance or > misperception of reality. This one is not open to question for any > reasonable person who checks. > > > >>>> We know that DMSA is an anti-oxidant that removes heavy metals > > from the body. The thought expressed last weekend in NY, as I > > understood it, is that other anti-oxidants will also help the body > > to rid itself of heavy metals, > > Another delusion. > > > especially when used as part of a > > protocol designed to increase glutathione production. > > Yet another delusion, though this one is somewhat less nutso since it > only depends on people not knowing much physiology (e. g. as any DAN! > doctor who injects glutathione clearly demonstrates they do not) and > possibly getting confused about the details of what happens in > experimental conditions described in journal papers versus the actual > conditions inside toxic people. Even those few who read the journal > papers are sometimes confused (those who read abstracts have no hope of > figuring it out) since to read a journal paper, as anything else, > requires a lot of relevant background knowledge. > > > I didn't realize that there was a stance by some that anti- oxidants > > or any other detox mechanism could *not* remove some metals as part > > of all the gunk they remove. > > Now you do. Some of us believe in portraying scientific reality > accurately in hopes people can use it to get better rather than > blathering out marketing blurbs that basically say everything works as > long as you pay a doctor a lot of money to prescribe it. > > > To name just one easy example: Isn't > > that why ALA is given and ALA is referred to as the universal > > antioxidant? > > No. > > ALA is given since it is a chelator selective for mercury, arsenic and > related metals, and removes them from inside cells, specifically brain > cells. > > Another entirely separate effect of ALA is that it exports reducing > equivalents from the mitochondria and elevates cysteine levels, which > is how it has its antioxidant effect. > > It is NOT a universal antioxidant, it is a specific and selective one. > Piling marketing pitches on top of each other is not helpful in > assisting those who want to get their kids better rather than enrich > doctors and supplement companies. > > > So maybe it was just new for those folks. > > Reality is new for a lot of folks in medicine. Look at how many > doctors are still in denial about thimerosal and vaccines causing > autism. > > > >>>> Noone is saying this is gospel and nothing applies to everyone > > > > Great. That seems very consistent with human beings and history. > > This is not strictly correct. Some general rules do apply. Nobody can > pick up a caddilac with one hand. Nobody can swallow a gram of cyanide > and survive. Nobody can hold their breath for a day. There are the > things all humans have in common (they can or can't do it) and the > things that not everyone has in common. The issue is when someone > idiotically insists everyone is the same and so there is nothing > relevant that some people can do and others can't, e. g. some people > can be injected with lots of thimerosal and not get brain damage, so > thimerosal must be safe for humans, or some people can chelate with 10 > mg/kg DMSA every 8 hours and not get worse brain damage so everyone > can. > > > But > > it was presented as fact without this huge and very important > > disclaimer - that it is just proposed theory and speculation at this > > point, right? > > In a scientific sense, no theories are ever facts. Only observations > are facts, and then only if repeatable. So the real question is > whether the theory was presented as scientifically legitimate when it > is contradicted by observations the presenter just doesn't like, or > whether a simpler theory is adequate to explain the facts. > > > If not, a great deal of explanation is being left out. > > This is usually the case. However at some point it becomes the > listerner's obligation to go learn it since it is unreasonable to > expect the presnter to spoon feed everyone with remedial knowledge. > The presenter's obligation stops at the point where they have clearly > and completely explained their theory and the factual (observational) > basis of it. > > > And it makes it sound like the 'researchers' really don't know what > > is going on, > > As a rule, if people knew what was going on they wouldn't be doing > resarch. Which is not to say anything critical of them, it is to point > out the tautology that research is the process of learning, and when > engaged in it one has not learned the answers yet. Areas of current > research are exactly the areas of great confusion (in medicine and all > other fields) and it is unreasonable to expect it to all be sorted out. > > >or back-peddling, or retracting things that were > > previously stated as facts. > > The confusion as to what " fact " means is important here. > > All scientific theories are falsifiable, the fate of most of them is to > be falsified promptly. The legitimate scientist is the first one to > point out that the theory they advanced last week has now been > falsified by observations and needs a replacement theory. > > > And if those things were wrong, how do we > > know that other things stated as fact aren't also wrong. This is the > > slippery slope. > > It helps a lot to understand the basic philosophy behind the > discussion, e. g. that scienice does not hvae any true theories. > > It also helps to study and understand as best you can. > > There is always risk and uncertainty. Decisionmaking in the face of > uncertainty is always scary. > > My experience has been that intelligence is a lot less of an issue than > being intellectually calm and open minded. Figuring things out the > first time is very hard, but checking to see if they are right is a lot > easier. Kinda like solving integral or differential equations. Most > anyone with a year or two of calculus can check and tell the solution > is correct, yet many seemingly simple ones stay unsolved for centuries > awaiting a stroke of genius. Once it hits, lots of people can check. > > People who focus on what is going on, what is real observation, does it > make sense, can get this figured out adequately in most cases to make a > lot of progress. It all starts with the realization that obsrvations > are facts, theories are not. > > > . > > Andy . . .. . . . . . . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2004 Report Share Posted May 4, 2004 > The point of me sharing this with you all is because, YOU all have a > child that was poisoned by mercury, If you have a child with Autism > and you chelate this child, And he gets better from removing mercury > from his body, What does this tell you? Like the article > mentioned.. " The history of medicine is full of interesting stories > about the discovery of illnesses. " Harry Angelman didnt do any > testing...He used observation!! He practiced scientific medicine. > When you watch a child go from being autistic to being a healthy > child from chelation this is observation. This is FACTS. Why doesnt > the FDA and the CDC see this...Im sure there not blind, Choices: They are satanically evil (I don't for a moment believe this); They have a religious belief in their " system, " which makes the psychotic delusion that what they see in front of them didn't actually happen socially acceptable and lets them ignore the stories of nonbelievers. > I just dont > know how they can sleep at night knowing they are allowing more and > more children to suffer. Denial is quite powerful. Delusions even more so. > Human nature is a funny thing, Yes, and due to it those who don't know history are doomed to repeat it. Unfortunately the rest of us are along for the ride if they passed laws in their favor, as happened in medicine. > I believe some are born without a concience. The problem with evil is its sheer banality. It mostly consists of going along with what is happening, working togehter with your colleagues, and not making everyone uncomfortable with tough questions and moral discussions of whether what you are doing really is right. It is the same way DAN! continues to support their insane chelation protocol even though most members of the protocol committee who developed it have since abandoned it. They just go through the motions and act out of respect and concern for each other's feelings. They're not hurting kids because they are bad people any more than the pediatricians who vaccinated them or the FDA and CDC people who got the vaccines approved and mandated did it because of being bad people. In order to make progress (moral or technical) hard questions have to be asked that usually result in the answer of " I shouldn't have been doing it that way. " Most people aren't comfortable thinking about that kind of thing. They'd rather just have rules and procedures to follow. Which is how we got in this mess in the first place, and how a lot of doctors are perpetuating it, on both sides of the maintstream- alternative divide. > Donna Andy . . . . .. . . . . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2004 Report Share Posted May 4, 2004 My impression was that DMSA is not an antioxidant, that it actually causes oxidative stress and this is why it should be taken in conjunction with antioxidants and other supps. Many mercury-toxic adults believe mercury stayed in their brains and chelation is removing it. My observations of chelation on my son are that it is a very different process than dosing with antioxidants. I know a blind alley when I see one and I'm not going to waste time on these ideas, even though I believe the Jill protocol itself is worth investigating. No doubt antioxidants that boost glutathione would help a long and slow detox that might eventually, one day, lead to the excretion of heavy metals. But do you really want to take decades to treat a very nasty problem? Even chelation in conjunction with antioxidants can take years to reach its full effect. Adults can make their own decisions, but childhood is too short and too precious to waste with dithering. I know what's working and I'm going to stick with it. I'm always looking for ways to fine-tune my son's treatment but I'm not going to throw the baby out with the bathwater. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 Hi Donna, what exactly is Angelmans syndrome and does anyone know its cause? [ ] Re: Fact, fantasy and psychotic delusion. They are different. Just to add my two cents worth. Angelman relates the following regarding his discovery of " his " syndrome: " The history of medicine is full of interesting stories about the discovery of illnesses. The saga of Angelman's Syndrome is one such story. It was purely by chance that nearly thirty years ago three handicapped children were admitted at various times to my children's ward in England. They had a variety of disabilities and although at first sight they seemed to be suffering from different conditions I felt that there was a common cause for their illness. The diagnosis was purely a clinical one because In spite of technical investigations, which today are more refined, I was unable to establish scientific proof that the three children all had the same handicap. In view of this I hesitated to write about them in the medical journals. However, when on holiday in Italy 1 happened to see an oil painting in the Castelvecchio museum in Verona called . . . a Boy with a Puppet. The boy's laughing face and the fact that my patients exhibited jerky movements gave me the idea of writing an article about the three children with a title of Puppet Children. It was not a name that pleased all parents but it served as a means of combining the three little patients into a single group. Later the name was changed to Angelman syndrome. This article was published in 1965 and after some initial interest lay almost forgotten until the early eighties. " Personal correspondence, 1991 The picture referred to is by Gian Francesco Caroto (1480-1555. The point of me sharing this with you all is because, YOU all have a child that was poisoned by mercury, If you have a child with Autism and you chelate this child, And he gets better from removing mercury from his body, What does this tell you? Like the article mentioned.. " The history of medicine is full of interesting stories about the discovery of illnesses. " Harry Angelman didnt do any testing...He used observation!! When you watch a child go from being autistic to being a healthy child from chelation this is observation. This is FACTS. Why doesnt the FDA and the CDC see this...Im sure there not blind, I just dont know how they can sleep at night knowing they are allowing more and more children to suffer. Human nature is a funny thing, I believe some are born without a concience. Donna > > >>>> We know that mercury does accumulate in the body and in the > > brain. > > > > Okay, Jo just posted twice that it did not stay in the brain (the new > > information presented)...this is a contradiction that needs > > addressing. So...does it or does it not > > It does. To assert otherwise requires either a complete lack of > relevant technical knowledge which would lead a reasonable person to > not offer opinions, or otherwise some disturbance of consciousness or > cognition. > > >...and how is this known either way? > > By cutting open dead people and analyzing their brains long after > poisoning occurred. > > In a scientific sense, the only facts are repeated observations and > this one is all over the literature as observed by many investigators. > One does have to actually read it rather than just abstracts on > medline, though. > > > It might be unknowable either way and all of this is > > speculation. But both views are presented as fact. > > One view is factual, the other depends on ignorant arrogance or > misperception of reality. This one is not open to question for any > reasonable person who checks. > > > >>>> We know that DMSA is an anti-oxidant that removes heavy metals > > from the body. The thought expressed last weekend in NY, as I > > understood it, is that other anti-oxidants will also help the body > > to rid itself of heavy metals, > > Another delusion. > > > especially when used as part of a > > protocol designed to increase glutathione production. > > Yet another delusion, though this one is somewhat less nutso since it > only depends on people not knowing much physiology (e. g. as any DAN! > doctor who injects glutathione clearly demonstrates they do not) and > possibly getting confused about the details of what happens in > experimental conditions described in journal papers versus the actual > conditions inside toxic people. Even those few who read the journal > papers are sometimes confused (those who read abstracts have no hope of > figuring it out) since to read a journal paper, as anything else, > requires a lot of relevant background knowledge. > > > I didn't realize that there was a stance by some that anti- oxidants > > or any other detox mechanism could *not* remove some metals as part > > of all the gunk they remove. > > Now you do. Some of us believe in portraying scientific reality > accurately in hopes people can use it to get better rather than > blathering out marketing blurbs that basically say everything works as > long as you pay a doctor a lot of money to prescribe it. > > > To name just one easy example: Isn't > > that why ALA is given and ALA is referred to as the universal > > antioxidant? > > No. > > ALA is given since it is a chelator selective for mercury, arsenic and > related metals, and removes them from inside cells, specifically brain > cells. > > Another entirely separate effect of ALA is that it exports reducing > equivalents from the mitochondria and elevates cysteine levels, which > is how it has its antioxidant effect. > > It is NOT a universal antioxidant, it is a specific and selective one. > Piling marketing pitches on top of each other is not helpful in > assisting those who want to get their kids better rather than enrich > doctors and supplement companies. > > > So maybe it was just new for those folks. > > Reality is new for a lot of folks in medicine. Look at how many > doctors are still in denial about thimerosal and vaccines causing > autism. > > > >>>> Noone is saying this is gospel and nothing applies to everyone > > > > Great. That seems very consistent with human beings and history. > > This is not strictly correct. Some general rules do apply. Nobody can > pick up a caddilac with one hand. Nobody can swallow a gram of cyanide > and survive. Nobody can hold their breath for a day. There are the > things all humans have in common (they can or can't do it) and the > things that not everyone has in common. The issue is when someone > idiotically insists everyone is the same and so there is nothing > relevant that some people can do and others can't, e. g. some people > can be injected with lots of thimerosal and not get brain damage, so > thimerosal must be safe for humans, or some people can chelate with 10 > mg/kg DMSA every 8 hours and not get worse brain damage so everyone > can. > > > But > > it was presented as fact without this huge and very important > > disclaimer - that it is just proposed theory and speculation at this > > point, right? > > In a scientific sense, no theories are ever facts. Only observations > are facts, and then only if repeatable. So the real question is > whether the theory was presented as scientifically legitimate when it > is contradicted by observations the presenter just doesn't like, or > whether a simpler theory is adequate to explain the facts. > > > If not, a great deal of explanation is being left out. > > This is usually the case. However at some point it becomes the > listerner's obligation to go learn it since it is unreasonable to > expect the presnter to spoon feed everyone with remedial knowledge. > The presenter's obligation stops at the point where they have clearly > and completely explained their theory and the factual (observational) > basis of it. > > > And it makes it sound like the 'researchers' really don't know what > > is going on, > > As a rule, if people knew what was going on they wouldn't be doing > resarch. Which is not to say anything critical of them, it is to point > out the tautology that research is the process of learning, and when > engaged in it one has not learned the answers yet. Areas of current > research are exactly the areas of great confusion (in medicine and all > other fields) and it is unreasonable to expect it to all be sorted out. > > >or back-peddling, or retracting things that were > > previously stated as facts. > > The confusion as to what " fact " means is important here. > > All scientific theories are falsifiable, the fate of most of them is to > be falsified promptly. The legitimate scientist is the first one to > point out that the theory they advanced last week has now been > falsified by observations and needs a replacement theory. > > > And if those things were wrong, how do we > > know that other things stated as fact aren't also wrong. This is the > > slippery slope. > > It helps a lot to understand the basic philosophy behind the > discussion, e. g. that scienice does not hvae any true theories. > > It also helps to study and understand as best you can. > > There is always risk and uncertainty. Decisionmaking in the face of > uncertainty is always scary. > > My experience has been that intelligence is a lot less of an issue than > being intellectually calm and open minded. Figuring things out the > first time is very hard, but checking to see if they are right is a lot > easier. Kinda like solving integral or differential equations. Most > anyone with a year or two of calculus can check and tell the solution > is correct, yet many seemingly simple ones stay unsolved for centuries > awaiting a stroke of genius. Once it hits, lots of people can check. > > People who focus on what is going on, what is real observation, does it > make sense, can get this figured out adequately in most cases to make a > lot of progress. It all starts with the realization that obsrvations > are facts, theories are not. > > > . > > Andy . . .. . . . . . . ======================================================= Quote Link to comment Share on other sites More sharing options...
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